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Cynthia Schnitz
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| Joined: | Wed Apr 8th, 2009 |
| Location: | Arizona USA |
| Posts: | 59 |
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Posted: Sun Nov 15th, 2009 03:55 |
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That is great to hear about the astigmatism, as my far vision is now 20/20 except for astigmatism in my left eye. I sometimes wonder why I wear glasses in the day time at all, but after wearing glasses all my life, 20/80 until the last few years, I feel undressed/unsafe without them. I'll have to get over that feeling.
What I'd like to see is the near vision cure itself. I can't even eat without my glasses on. "We can hope, can't we?"
Cynthia
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Ph1 10/08, Ph2 12/08, Ph3 6/09, 125/25D 47/43 preMP, 25D14 12/09, Estradiol .75mg, Calcium anomaly(gone?), Spondylitis, early Diverticulosis, early Macular Degeneration(AMD), Type II Diabetes (unconfirmed,PreDiabetes?), returning sense smell
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eClaire
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| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1396 |
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Posted: Sun Nov 15th, 2009 04:43 |
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I found out my near vision got better at my last visit by a little bit (the distance also improved in my right eye and was slightly worse in the left). The doctor did not want to change the prescription telling me that I had gotten used to the stronger lenses for reading and that my slight headache/dizziness was probably not the glasses. But since getting the glasses on Thursday the slight headache, which I've had for two months, is gone. Could be a coincidence... but maybe not.
Usually near vision does not get better as we get older, eh?
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1396 |
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Posted: Sat Dec 5th, 2009 05:00 |
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Sunday is my 3 year MP anniversary. Hmmm.....
Well I no longer feel like I am going to die any moment, which I did pre-MP. Many of you have heard me talk about feeling like the grim reaper was breathing down my neck.
I am not much further along when it comes to energy except that I tend to be able to sit up--without and incline--for longer periods of time. That is, pre-MP I had to lie flat most of the time and couldn't even spend more than 10 or 20 minutes at a time on my recliner. Within 6 months that had bumped up to 8 to 12 hours a day--sometimes straight through (a tremendous quality of life improvement). So that improvement--being able to sit up without an incline is what I have experienced since that first bit of improvement.
Also, though I usually only run about one errand a week, if that, and visit my mother twice a week. I usually can make it through most or all of the errand with out feeling like I am going to pass out.
The best news has been in the reduction of pain that I felt after the first two years, which were unbelievable (but I made it through) and pre-MP. So pain levels are down.
Also, my labs showed no anemia for the last three months and my BUN had moved into the normal range. Creatinine and liver labs are still high and I hope they come down in the next 3 to 4 months, as I've yet to move on to Phase 2. My next set of lab tests are scheduled for the 11th and my fingers are crossed. (When I tried Phase 2, my kidneys labs got ridiculously high, and I did not want to risk dealing with emergency rooms for some other palliation for out of control IP only to have the doctors take my Benicar from me..... So I've been playing it safe rather than sorry.)
One big thing happened just yesterday morning, I was lying in bed thinking about something I purchased that ended up costing about $6.50. I had gotten about 40% off, then $10 off, then 15% off, and I was able to see the algebraic equation needed to come up with X, the original price. Now, my brain is not normally that clear, but has been fogged enough since my mid 20s not to be able to do that (about 30 years ago)... ever. To have that come to me out of the blue felt like a blessing. Okay... maybe I am totally senile now and can only remember things from my youth, algebra being one of them.
So, all in all, my quality life is better AND I have met some of the most fabulous people I have ever met in my life right here on this site.
Bless you all and thank you Dr. Marshall and everyone else who has contributed in any way, including all of you who took the risk to participate in the cohort to help us learn how to manage IP better.
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Sunbeam
Member
| Joined: | Thu Dec 14th, 2006 |
| Location: | Perth, Australia |
| Posts: | 358 |
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Posted: Sat Dec 5th, 2009 06:09 |
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A wonderful post Claire. It is good to see you are improving at whatever pace.
Lynn
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CFS. gen neuro. muscular tightening whole body pulsates|ADL's limited| 125D 30 MP 4/07 Panadol Mersyndol Noirs. Low lux home homebound. ph 2 1/2/08 25D 6 2/08
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Lee
Member
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Posted: Sat Dec 5th, 2009 12:12 |
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ahhhhhhhhhh Claire, ya just gotta love those moments of true clarity .... I used to study and study sales receipts hoping they were correct NOW I can actually figure out if they are or not ..LOL! With store cards, mfg coupons and in store sales it takes a "bug-free" mind to figure it .... Lee
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2003 SARC w/COPD
D ratio-2.13 Ph1-2/05 Benicar| 4/05 PH2| 06 Ph3| D25=5.4 2007-TSH-0.09 probiotics/silymarin/sunlight w/noirs
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Freddie Ash
Member
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Posted: Sat Dec 5th, 2009 14:04 |
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HI CLAIR
This is Fred in WV. Way to go Clair, HAPPY 3 YEAR ANNIVERSARY!!!!
I am glad for you that you have made it this far and seeing improvements. Keep up the great work. I do enjoy you post.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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KFaucher
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| Joined: | Sun Aug 1st, 2004 |
| Location: | USA |
| Posts: | 220 |
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Posted: Wed Dec 9th, 2009 23:59 |
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I just realized that I started the MP 5 years ago this week!
Ken
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Freddie Ash
Member
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Posted: Thu Dec 10th, 2009 00:04 |
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HI KEN
This is Fred in WV. Ken, way to go, HAPPY 5 YEAR ANNIVERSITY!!!
You have come a long way on the Marshall Protocol. Keep up the great work.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1396 |
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Posted: Thu Dec 10th, 2009 02:04 |
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Yea Ken! And I've seen by your posts on other threads that you are doing well. Are you willing to share a brief update?
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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KFaucher
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| Joined: | Sun Aug 1st, 2004 |
| Location: | USA |
| Posts: | 220 |
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Posted: Fri Dec 11th, 2009 00:02 |
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Brief update: Not sick.
Slightly longer update: I have not had any Abx since the early spring. Benicar 2 or 3 times a day (mostly 2). Generally no symptoms. Occasionally if I get too much sunlight exposure to my eyes, then I will be somewhat fatigued and tinnitus will start ringing. That only lasts less than a day. I still avoid vitamin D supplemented items, but my only sun avoidance is for my eyes. I find sunglasses are still a necessity. I have been spending a lot of time outdoors, working, kayaking, spear throwing. Yes, you read that correctly, I throw spears with a spear thrower (Atlatl). There is even a world association and competitions. I guess I must have inherited some genes from my mammoth hunter ancestors because I am getting pretty good.
Ken
"Life is either a daring adventure or nothing. Security does not exist in nature, nor do the children of men as a whole experience it. Avoiding danger is no safer in the long run than exposure." Helen Keller
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1396 |
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Posted: Fri Dec 11th, 2009 00:26 |
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Amazing! And I include spear throwing in that!
Let us know when you are able to ditch the sunglasses.
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Deb Grabetz
Moderator
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Posted: Sun Dec 20th, 2009 11:42 |
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KFaucher wrote: Brief update: Not sick.
I have been spending a lot of time outdoors, working, kayaking, spear throwing.
Ken
"Life is either a daring adventure or nothing. Security does not exist in nature, nor do the children of men as a whole experience it. Avoiding danger is no safer in the long run than exposure." Helen Keller
Ken,
What a great thing to read this morning! Best Wishes always, Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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marysue
Board Staff
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Posted: Tue Apr 27th, 2010 03:24 |
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Well folks, I've been waiting a whole year to post this--
Today is my first anniversary on the MP!!!!
Yep, one entire year on Benicar and lots of steady improvements occurring along the way. Maybe in another year I'll think about some abx if I need them. But, for now, steady IPs bordering on intolerable at times will keep me on a Benicar only path toward health.
Ah, the joys of honoring the passage of time well spent.
Marysue
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CFS/FM '95; restrict light/D Oct08; 125D70 25D30 Feb09; Benicar26Apr09; NoIRs, low light, no sun; 25D=10 (Jun09); 25D=5 (Nov09) Marysue on Benicar
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1396 |
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Posted: Tue Apr 27th, 2010 03:45 |
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Congratulations!!! I am so glad to have the opportunity to watch someone on the path that you've chosen. (I may join you on Benicar only if my current experiment does not work.)
Hugs, Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Freddie Ash
Member
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Posted: Tue Apr 27th, 2010 13:31 |
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HI MARYSUE
This is Fred in WV. Congrataulations on your one year aniversity being on the best treatment out there the Marshall Protocol. Keep up the great work and all you do here at the site.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidsosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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marysue
Board Staff
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Posted: Wed Apr 28th, 2010 04:50 |
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Thanks guys,
It's kind of like celebrating a birthday--I don't feel any older (or in this case, better), but it's nice to acknowledge the passage of time on such an important journey.
Marysue
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CFS/FM '95; restrict light/D Oct08; 125D70 25D30 Feb09; Benicar26Apr09; NoIRs, low light, no sun; 25D=10 (Jun09); 25D=5 (Nov09) Marysue on Benicar
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Freddie Ash
Member
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Posted: Sun May 2nd, 2010 23:32 |
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HI ALL
This is Fred in WV. I have 2 aniversities to tell about today.
First - Today makes 1year without and ABXs. Last ABX was on May 2,
2009. I have been getting lots of IP without them. But may try
some ABXs a little later this year.
Second - Tomorrow will be my 5 year aniversity being on the full Marshall
Protocol. I did take Benicar only at 20mg/6hours for almost one
year before being able to get my doctor to go for the MP.
So 5 years later I am moving on with the Marshall Protocol. Thank you Dr Marshall for the Marshall Protocol and my great health.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1396 |
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Posted: Mon May 3rd, 2010 00:30 |
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Congrats Freddie! Your continued improvement is an inspiration to me!!! I just keep trying to remember it is only time and in time I'll be six years on the MP (that is, 2 years and 7 months from now), and hopefully by then, I will be feeling as well as you are.
Keep up the good work!!!
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Sallie Q
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| Joined: | Fri Aug 28th, 2009 |
| Location: | Australia |
| Posts: | 63 |
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Posted: Tue May 4th, 2010 01:24 |
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marysue wrote: time well spent.
congratulations Marysue, Freddie, Claire
I might have posted to celebrate my anniversary of 18 months on MP, but was unexpectedly totally lacking in get-up-and-go-up-the-stairs, as well as 4 months sleep deprived (have now backed off Zith and lower bactrim so am celebrating 6 hours continuous sleep last night).
Many Happy Returns (of optimism)
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Sjogrens; b.cancer; postviral fatigue| D25was13.2ng/ml@ph1-Sept08 |Nov08mod.ph2 /Feb09ph2/ May09ph3| D25 7ng/ml@Jun10 NoIRs essential; testing for stage4, July 2010 Olmetec & Mino only
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Pipistrelle
Member
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Posted: Sun May 16th, 2010 18:07 |
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I hit my second MP anniversary this weekend, and here I am in Year 3 already, I can hardly believe it. Those who have seen my reports will know I had a tough time in phase 2 with 2 abx, so have been on Olmetec only since April last year. Plenty of IP still, so I'm happy that my immune system is still in search and destroy mode. I'm happy with that, and I feel it's enough to be going on with.
Here's to all of us on the MP, with special thanks to Dr Marshall, the research team, moderators and MP friends. I've appreciated everyone's help and support, and as a singleton it has made all the difference to me.
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Sarc lungs, uveitis '90 dx '92, pred 18 mo '93-'94; D25 31 Nov 06, D1,25 35 Nov 06, NoIRs Feb '07, D restrict Nov 06, low lux home, cover up, light exp work
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