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eClaire Member in Phase 2

| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
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Posted: Thu Nov 13th, 2008 04:34 |
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I have a grump. I've been feeling the greys lately, and tonight I was watching the CMA's at my mother's and a song came on (both my ex and I really like country music and she liked to see romantic songs to me), and I could see her singing this particular song to the woman she left me for because she couldn't handle my disability. My stomach flopped and I felt sick and needed to leave my mothers. I'll know I'm really better when these moments come to an end. Grump, grump, grump. Okay this was not an MP grump, but it was a disability grump and my ex-blamed my starting the MP as the straw that broke the camel's back.
Claire
____________________ CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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expate Member in Phase 2

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Posted: Thu Nov 13th, 2008 14:25 |
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... because she didn't want you getting well. You just might leave her behind. Best to jump the gun and do the leaving.
That's my bit of amatuer psychology.
dette
____________________ Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Deb Grabetz Advocate

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Posted: Thu Nov 13th, 2008 14:43 |
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Odette...I like your way of thinking!
____________________ Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
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eClaire Member in Phase 2

| Joined: | Mon Sep 25th, 2006 |
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Posted: Thu Nov 13th, 2008 18:59 |
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Well, Odette, you may be on to something.
Claire
Last edited on Thu Nov 13th, 2008 19:03 by eClaire
____________________ CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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expate Member in Phase 2

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Posted: Fri Nov 14th, 2008 04:57 |
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Yep, I think so. Uh huh. Yeah. 
Odette
____________________ Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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expate Member in Phase 2

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Posted: Fri Nov 21st, 2008 21:34 |
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Grump # 1: I can't find the "New Topic" button for this forum, soooo....
this isn't a grump, but I had to put it somewhere.
I use g-mail for my e-mail service and they have a new feature called "themes" (color schemes). There's one that makes the background black with white print.
dette's eyes are very happy!
____________________ Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Juanita Member in Phase 2

| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
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Posted: Mon Nov 24th, 2008 19:27 |
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I had a whole list of grumps I was just waiting to feel better to post about as I was sure you all would understand, but like all IPs... once they've past, you don't care so intensely about that stuff any more. *grin*
I just love that we have this thread where we can grump. Knowing it is here and that you all would cyber-hug me helped me get through that bumpy patch.
SO HUGS BACK TO YOU!!! *warm friendly thank-you-for-being-you hugs for each of you* 
____________________ MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D| Sept 21/07 25D-40.8ng/ml| May 7, 07 1,25D-35.8pg/ml
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PaulT Member in Phase 3
| Joined: | Fri Feb 25th, 2005 |
| Location: | Sydney, Australia |
| Posts: | 289 |
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Posted: Mon Nov 24th, 2008 21:56 |
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I just feel the need to Grump ...... - must be a minor emotional IP happening here
Juanita - that last post wasn't Grumpy enough   . .. too much happiness <LOL>
____________________ Sarcoid diag 1/05 - Cough, fatigue, Feb 07 125D=59.6, Oct 07 25D=12, May 08 25D=7.5 avoid light/D, Noirs, covering up, Zinc Oxide on exposed skin.
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terrylmcc Member in Phase 3

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Posted: Tue Nov 25th, 2008 03:20 |
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Hello all.
This may be a grump, or not a grump? however dont think for one second i dont have a few.. But heres a thought that I wonder about from time to time,
It happens that i am gay,,, ok everyone gather yourselves and get up off the floor. I wonder if there are any others? And i also wonder if anyone feels that being gay could be a neuro TH1 related disorder? Right up there with . Hey Im not saying that the MP has made me straight, But i wonder if there are others that wonder about all the gender identity issues. Young people that feel like they were born in the wrong bodies, and the likes. Well I put it out there, if you want to PM me, feel free. I will return with real gripes later. I for one, loves to gripe. Heck it may be just another form of IP, its not like we all feel like a million bucks. AAARGGH. there i let out a scream, i feel better. My best to you all -- Terry
PS this may be in completely the wrong dang place. and so what?
____________________ Sarcoidosis/lung biopsy hx uveitis Ph1Jan07 ModPh2Apr07 Ph2Dec07 Ph3Feb08 NoIRs lite exp r/t to commute
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Markt9452 Member in Phase 3
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Posted: Tue Nov 25th, 2008 03:42 |
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That's completely outrageous Terry - I think you should post here more often
Mark
____________________ Th1 Lyme vertigo fatigue brain fog skin lesions tinnitis 125D20 D2510 Ph1Feb08 Ph2Apr08 daily lite exp covered up NoIRs| MyStory|
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eClaire Member in Phase 2

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Posted: Tue Nov 25th, 2008 04:59 |
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Terry,
OMG . The other day I almost said on the Birthday thread to try to cheer a few people up, "Were here, we're queer...okay, maybe only I am, but we're still alive and being given this opportunity to survive and quite possibly thrive."
About the gay issue. Yes, it has crossed my mind. Doesn't everything cross your mind when you are gay? However, I would hazard to guess that the statistics don't play out that way.
I will admit that at times I am scared to death that the MP will make me straight (and I'm thinking it is neuro IP...the thought that the MP might make me straight). No kidding.
Even though I'm single now, I've been married to a man before and I don't ever want to do that again. No way, no how. Love men. Yes I do. My genes even love them, precisely the way my genes love women (I have bisexual pheromones telling me which humans would make superior children with me genetically if XX + XX were possible--yikes!).
However, white picket fence and all the other layers of whatever it is that makes up orientation? Not looking to the XY combination; never should have allowed that pheromone stuff to confuse me.
I have a feeling that orientation is just as complicated as gender for everyone gay and straight. I mean, most straight people are homosocial as are gay people. What's up with that? Maybe CWD are that specific in regard to sexuality, but I don't see it.
Crossed my mind, yes, like a bad dream, but I don't see it.
Claire
Last edited on Tue Nov 25th, 2008 05:23 by eClaire
____________________ CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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Markt9452 Member in Phase 3
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Posted: Tue Nov 25th, 2008 05:30 |
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The neuro IP can be frustrating at times as it seems to create an over dramatization affect on cognition and the way information is processed. Things seem like a "Big Deal" when they probably shouldn't be and I come up with all kinds of "wild theories" about things. 
From my phase III progress report today...
I'm pretty sure at least a couple of those wild theories are true too.
____________________ Th1 Lyme vertigo fatigue brain fog skin lesions tinnitis 125D20 D2510 Ph1Feb08 Ph2Apr08 daily lite exp covered up NoIRs| MyStory|
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expate Member in Phase 2

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Posted: Tue Nov 25th, 2008 05:59 |
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Um, here's a timely, relevent? bit of wondering in this regard having to do with soy...
http://www.facebook.com/home.php#/note.php?note_id=50279291116
I don't know if all can see that... I'm pretty facebook illiterate. I use it to try to contact my students. But the essence of it is a claim that soy is making kids gay.   
If it works out y'all can't read it, I'll try to extract. In the very least, it's provocative.
dette
____________________ Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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expate Member in Phase 2

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Posted: Tue Nov 25th, 2008 06:23 |
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You know, there's one thing I'd like to add. A kind of unexpected benefit that the MP has brought me is that it helps me feel comfortable in my skin, whatever that is at the moment. The protocol has provoked unexpected but real physical AND emotional reactions in the form of IP. These are not necessarily pleasant, but they are instructive. I've learned to accept parts of myself as part of the process. So Terry, however it turns out, the trip's the thing.
dette
____________________ Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Deb Grabetz Advocate

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Posted: Tue Nov 25th, 2008 13:54 |
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OK so you all have *Deb laughing so loudly* my DH just asked me what could possibly be this funny on a research site!
Terry, some of my most fun friends from the airlines are yes, you guessed it gay! They are the ones I call for advice, they are the ones who remember my birthday and text me on Holidays. They are the ones whose hugs I miss since I've been off work! My piano teacher is gay and he and I have the most interesting conversations you could ever imagine. He is funny and very entertaining. When I hit a wrong note he has this creative thing he does where he hits the lower octave loudly to let me know I screwed up! I guess I never thought about this as having anything to do with illness because we are who we are! But maybe someone on site will offer us some insight!
Claire, you too had me in stitches....omg the thought that you might go straight when you are well.....omg! *Deb is struggling to regain her composure*. Although on a serious note, I have had some very similar thoughts in regards to my personality. I have always and I mean always been this really calm under pressure person. Nothing rattles me. My demeanor is always such that in business I was looked to when conflict resolution was needed. When I handled customer accounts I just always naturally resolved issues. In the air, emergencies were not an issue--heh if the plane is coming down, how much control did I have in the cabin anyway??? I have had this terrible fear that as the bugs went away and cleared my brain, my demeanor would change and I would lose this calmness. Just the other day I had a meltdown with the rep at Comcast...and a meltdown with my hubby for being gone so much...but I think maybe these were just normal reactions to bad situations! I don't want to lose my calm approach any more than you want to go straight!!!!!!!!
Thanks to you both for brightening my morning! Deb
____________________ Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
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eClaire Member in Phase 2

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Posted: Tue Nov 25th, 2008 20:54 |
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First off,
Mark you slay me. I'm pretty sure some of my wild theories are correct too: like the ones I have about quantum physics and what the universe looks like, black holes and all.
Odette,
I couldn't do the Facebook thing, as I'm not signed on.
However, I did a search on Google under * soy +("gay" OR "homosexual") *, and found this by The People for the American Way (under their Right Wing Watch): http://www.rightwingwatch.org/2006/12/soy_makes_you_g_1.html
Quote: "It is difficult to imagine just what WorldNetDaily’s standard is for rejecting a column or article – but whatever it is, it is apparently set so low that “soy makes you gay” manages to exceed the criteria."
http://www.worldnetdaily.com/index.php?fa=PAGE.view&pageId=70504
Well, I don't have the research to show it, but it has also reported in the last 10 go 15 years that plastics, particularly chemicals from soft plastics, which have entered the water supply, feminize, lower sperm count, etc., and this is changing the planet. (Apparently the molecular structure is recognized by the body as estrogen.)
While too much estrogen might account for the rise in breast cancer in women (a wild theory or did I read that somewhere), it does not account for lesbianism. (And lesbianism cannot be acccounted for simply by the number of straight women who lament, "Sometimes I wish I were a lesbian." Yeah, life is easier if you are a lesbian--that is, if you like your drama with a side of drama. That means, take the amount of drama you are used to in heterosexual relationships and add a side of drama b/c of the added stress of living as a gay person in a culture that punishes you spiritually and denies you basic rights can make life all the more...interesting.)
I think if there is a rise in homosexuality, which I doubt, it is more likely a natural function of overpopluation. Indeed, the more children a woman bears is statistically related to the number of gay children she will have. The more sons, the more likely the youngest sons will be gay. (Hmmm...that possibly supports Terry's concerns about CWD; however, if orientation primarily occurs in the womb, the only concern one would have is that the population would become so physically healthy that there would be no "gay" CWD in the womb and the gay population would dwindle. Or so physically overcome by CWD, that the process of natural selection would produce a lot of gay folk, which would curb the population explosion...theoretically.)
More likely, more and more homosexuals are just coming out of the closet, tired of being killed or beaten--either physically, emotionally, and/or spiritually by people and cultures around the globe--and being denied basic human rights.
Then again, if soy (the way we consume it) does give rise to male homosexuality or at least scares people into believing that it does, then people will start eating less soy (something that is recommended on the MP I believe for other health reasons).
Claire
____________________ CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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eClaire Member in Phase 2

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Posted: Tue Nov 25th, 2008 22:01 |
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Deb,
Your fear of losing your calm is the same as my fear of losing my basic joyfullness. I've always said that I've been given more than my share. However, if some of that were replaced by a little more calm (I, too, was the sort of person people turned to in a crisis at work), I wouldn't mind.
For me, the calm demeanor I had when trouble struck was not what I felt most of the time--it was mostly a skill that I could exercise in the face of disaster.
What I felt most of the time under the joy was probably the wired feeling that comes with the wired but tired experience of folk diagnosed with CFS (or any number of other Th1 illnesses that might create that experience).
So, I'd welcome more calm at the cost of some of my joyfulness. Hopefully, I'll have both.
Claire
____________________ CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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expate Member in Phase 2

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Posted: Tue Nov 25th, 2008 22:02 |
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Here's a Modern Greek poem to reinforce my sentiment that the journey is what counts. Make the most of who you are whereever you are in your particular journey.
dette
Ithaka
As you set out for Ithaka
hope the voyage is a long one,
full of adventure, full of discovery.
Laistrygonians and Cyclops,
angry Poseidon—don’t be afraid of them:
you’ll never find things like that on your way
as long as you keep your thoughts raised high,
as long as a rare excitement
stirs your spirit and your body.
Laistrygonians and Cyclops,
wild Poseidon—you won’t encounter them
unless you bring them along inside your soul,
unless your soul sets them up in front of you.
Hope the voyage is a long one.
May there be many a summer morning when,
with what pleasure, what joy,
you come into harbors seen for the first time;
may you stop at Phoenician trading stations
to buy fine things,
mother of pearl and coral, amber and ebony,
sensual perfume of every kind—
as many sensual perfumes as you can;
and may you visit many Egyptian cities
to gather stores of knowledge from their scholars.
Keep Ithaka always in your mind.
Arriving there is what you are destined for.
But do not hurry the journey at all.
Better if it lasts for years,
so you are old by the time you reach the island,
wealthy with all you have gained on the way,
not expecting Ithaka to make you rich.
Ithaka gave you the marvelous journey.
Without her you would not have set out.
She has nothing left to give you now.
And if you find her poor, Ithaka won’t have fooled you.
Wise as you will have become, so full of experience,
you will have understood by then what these Ithakas mean.
C.P. Cavafy
____________________ Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Juanita Member in Phase 2

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Posted: Wed Nov 26th, 2008 18:46 |
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soy is making kids gay
That's 'cause it's soy hard to keep one's hands to ones' self when standing next to an appealing person. *drum roll with cymbal tink*
Thank you, thank you, I'll be here until next Tuesday, folks!
____________________ MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D| Sept 21/07 25D-40.8ng/ml| May 7, 07 1,25D-35.8pg/ml
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eClaire Member in Phase 2

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Posted: Wed Nov 26th, 2008 18:54 |
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Grump, grump, grump...that's all you do Juanita! 
Okay, I got a grump.
You know the saying, "Itching palms means...."
Well, itching palms means CWD die off. New symptom for me in life and not just the MP (I know others of you have or have had this symptom) though I experienced itching body for years and years (that was maddening, er, crazy making).
I suppose I ought not be grumping and be celebrating instead...what was that chant? Oh yeah, Kill the bugs, kill the bugs, kill the bugs.
Claire
____________________ CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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