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ocallamp
Member in Phase 2
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Posted: Sat Oct 4th, 2008 00:50 |
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Has anyone with Raynauds found a good way to keep their hands warm? My hands get terribly cold when I'm in the house and wearing gloves is rather difficult as I am constantly removing them to get things done. Winter hasn't even arrived and I'm already struggling.
Also, can anyone who has had Raynauds clear up on the MP tell me about how long it took before they noticed a difference?
Thanks,
Maureen
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RA, Scleroderma, Dermatamyositis - Benicar started 3/6/08, Phase 1 - 4/26/08, Phase 2 - 7/11/08. Prozac, Darvoset
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Rico
Member in Phase 3
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Posted: Sun Oct 5th, 2008 02:34 |
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Two winters ago was the first winter my wife didn't have cold, numb, hands/fingers since she was a teen - she's in her 40's.
I've also noticed my hands/fingers aren't as sensitive to cold now as they once were.
Not sure what to suggest - my wife has always needed a warmer home (increase the heat) and warmer clothes to be able to cope.
You need to have patience and persist on the MP. Some people take longer than others. Hang in there.
Last edited on Sun Oct 5th, 2008 02:39 by Rico
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No diagnosis/some symptoms; wife with Sarc on MP; Olm 40mg q6h| avoid D| 1,25D=63 25D=32 (May 2006) 1,25D=44; 25D=10(Dec 2006)PhaseI(May06) PhaseII(Aug06) PhaseIII(Aug07)
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Aunt Diana
Member in Phase 3
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Posted: Sun Oct 5th, 2008 23:00 |
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I no longer have cold hands and feet....I used to get so cold that the only way I could warm up would be to soak in a hot bath. I finally moved to a warm climate but even then I would still have cold hands and feet.
Lately I haven't been bothered by it...but it's one of those symptoms that went away quietly and I really hadn't thought of it until this subject came up.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, Oxycodone, advil p/n, darvoocett p/n, lorazapam, ambien, benedryl, zantac, magnesium, colase, Noirs, cover-up or avoid sun, house <30l
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expate
Member in Phase 2
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Posted: Tue Oct 7th, 2008 17:42 |
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I should have known... everything is explained by MP. I get cold hands despite wearing gloves in the winter. Sometimes I even turn purple under my fingernails. Warm water is the only thing that brings me back at that point.
So, this winter, perhaps I'll see improvement in that area.
 dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Michele MBK
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Posted: Wed Oct 8th, 2008 15:25 |
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Maureen,
I'm so glad you asked this question. My hands and feet are often icy cold and I am much more easily chilled than my husband and sons. I have wondered if it would be labelled Raynaud's but I have never asked doc about it.
I pre-warm my bed with a couple of electric heating pads. They have a timer and turn off after a while, by then I'm toasty and asleep. But during the evening awake hours is the worst. I've had cold feet all of my life. Th1 finally explains the reason to me. I don't have an answer to keeping them warm while working. Funny, right now my hands are toasty warm, but they won't be tonight.
What really gets my hands cold is that it takes forever for hot water to run to the bathroom sink. Typically I wash my hands in icy cold water and colder in the winter...I need to remember to run the hot water first for a while, but it seems so wasteful and I don't like to do it.
We have put a woodburning stove insert into our fireplace, so once we start heating our home that way, the main living area is about 78 in the winter!!! Well, in the immediate vicinity of the stove which is where I bask. I love it. The boys wear shorts. We try to limit that oil heat and will do so even more this winter. 2 cords of wood is sure cheaper than 8 tanks of oil to get through the season!
Have you considered fleece gloves and perhaps cut the ends off of the tips so you can keep doing things? They'd be easy to wash! As a musician, I get very cold hands before performances which is a bad thing. It's quite important to be able to feel the keys!!!! Doing windmills with my arms can increase blood flow and warm them up...I do other "back stage" prep too to warm hands. There are hunters packs that you can get traversing your favorite Walmart store while "blind."  I slip those into fleece gloves to warm my hands before performances, too. At home, I have a cloth bag with rice in it that I microwave for 2 minutes and then wrap my hands with it. That gets them back to warm.
I, too, am glad to see this will improve with MP!
Off to go practice and teach!
(Which I can now do because of MP!!!  )
Michele
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RA 125D30 D2516 Ambien Elavil Vicodin low lux home NoIRS cover up Ph1May08
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caroldeleah
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Posted: Wed Oct 8th, 2008 17:18 |
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I have cold hands and feet (socks help with that one). But I also play the piano (as well as teach) and my fingers are always very cold when I play. I always blamed this on my hypothyroidism. I am glad this will probably get better on MP as I am only 17 and plan to be a piano major in college.
~Deleah~
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Uveitis/Hashimotos/Hypothyroidism/Thyroid Nodule/Arthralgias/RefractiveMyopia/1,25D34/ Ph1Aug08/Ph2Nov08/25D14(10/08)/Combigan/Cytomel/RefreshPlusSgl
NoIRs/LowLuxHome/CoverUp/Sunscreen
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suecat
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Posted: Fri Oct 24th, 2008 18:13 |
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Hi Mpers,
Sue here I'm just getting started back on the mP after a move. Hard stuff when
chronic and extreme illness exists. God is good though and has blessed us.
Question is this: How do you keep your feet (especially) and hands warm now that
it's cooling off.(I'm just taking inside the house) I have very cold feet normally and
had some really warm socks that
would help. Problem is I have to wear shoes b/c of orthodics and the socks are to
thick for them. I can do little movement/exercise as I severly sick at this point. Any ideas?
P.S. Does anyone know where I could buy a breathable pair of leg warmers such as cotton? or whatever is is breathable????
thanks,
sue
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FMS/CFS 125D55 25D32 Ph1Apr08 cal/mag guaifensen gabapentin doxylamine NoIRs covered up low lux home
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Knochen
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Posted: Fri Oct 24th, 2008 19:35 |
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Polartec or similar polyester fleece are very good choices for keeping warm. It's got good breathability and is lightweight and washable.
For leg warmers, Google provided this as the first hit
http://www.dynamic-living.com/product/black-polartec-fleece-leg-warmers/
For your feet, you may just have to get some larger/wider shoes, put the orthotics in them and use thicker socks. (Polartec socks are nice!) Remember that you want your shoes relatively loose so the blood flow isn't impeded.
http://www.cabelas.com/spodw-1/0005493.shtml
(try searching polartec in the Cabelas catalog for other goodies)
Or if you are just sitting around the house, these might be even better on the feet.
http://tinyurl.com/63xtbs
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Reiter's Syndrome 25+ yrs, fatigue, joints, muscles, migraine, brainfog| 25D 6 ng/ml |Benicar May06|Ph1 June06|Ph 2 Sept06|Ph 3 Jan 07|NoIRs K-Cream Zinc Oxide cream - Always covered!
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JanEE
Member in Phase 3
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Posted: Fri Oct 24th, 2008 20:15 |
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The weather's only just begun to change and my feet and hands are already cold. Mostly in the evening while sitting and watching tv. For my hands I just heat up my beanbag, filled with dried corn, in the microwave and wrap it around my hands. The beanbag also comes in handy when I have blood drawn. It's really hard to find my veins, and she has been taking it from the back of my left hand. If I use the beanbag wrapped around it on the way to the office it raises the veins very nicely.
Just last night my feet were freezing so I just ran some hot tap water (as hot as the skin will bear) in a plastic tub and sat with my feet in it until they warmed up. I put a towel on the floor next to the tub to dry off on. It doesn't last forever, but keeps them warm until I hop into bed. The beanbag works here too, but the water seems to work better for me. Somehow, when one's feet are cold everything is cold. Miserable.
Unfortunately, these things only work if you're sitting, but the nice thick socks help the rest of the time.
Jan
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CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
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Juanita
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Posted: Sat Oct 25th, 2008 19:55 |
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Expensive socks from a hiking or diabetic store if you want to keep using your orthotics, that's what I'm thinking. *smile* Don't you just hate it when your issues start stacking up, weighing one against the other???
I wear two pairs of sock in the winter, inside and outside of the house. Cotton diabetic socks and then pure wool socks on top, then slippers. You can imagine the size of my slippers! Same with my winter boots.
I start with one pair of mittens in the Fall and by winter, I'm wearing two pairs on each hand. Often two toques or knitted hats at once also.
My grandma used to say if your feet are cold, put on a hat. I tried that. It didn't work for me, but if I start putting more layers over my chest like extra shirts and a fleecy vest, that works. As long as I also wear two socks. *grin*
Good luck with figuring out what works for you! 
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D| Sept 21/07 25D-40.8ng/ml| May 7, 07 1,25D-35.8pg/ml
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Aunt Diana
Member in Phase 3
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Posted: Sat Oct 25th, 2008 23:47 |
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| I use the hot water trick myself, and I also use an electric blanket but I don't leave it on during the night. I just use it to warm the bed up so that when I first climb in the bed is toasty and my feet will stay warm. I guess a heating pad would work just as well.
____________________
Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, Oxycodone, advil p/n, darvoocett p/n, lorazapam, ambien, benedryl, zantac, magnesium, colase, Noirs, cover-up or avoid sun, house <30l
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eClaire
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Posted: Mon Oct 27th, 2008 07:15 |
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Juanita,
I used to use the two pair of socks and layering of clothes on my chest when out for any length of time in the cold (of course the cold here is usually nothing like the cold there and that is where time factors in). With my chilly IPs, I am layering a lot: silk long johns under my pajamas, robe, wrap, and blanket at time with big fuzzy socks. I am now for the first time in my life sleeping with socks on my feet.
If I get too cold in the house with the chilly IPs, I will start wearing my Uggs around the house, as they are super warm since they are wool fleece lined. I wonder how they do in Alberta? And I'll wear my Scooby Doo night cap and fleece gloves with the finger tips cut off.
Claire
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CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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Dogster
Member in Phase 3
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Posted: Wed Oct 29th, 2008 01:29 |
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Smart Wool was a great invention--they took out the "barbs." Feels like soft cotten. Smart wool socks are popular, and come in various thickness and lengths, from anklets to mid-calf or higher for hunters. Very thick and cushy too!!!
I used to wear canadian made boots with real leather outers and real wool fleece lining, cant think of the brand right now. Wore these with the smart wool socks inside the house!
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CFS lyme RSD: pain migraine| tylenol fioricet flexeril tramadol temazepam| acidoph guaif/cold| Q| Cut D/exp Feb05| NoIR Mar05| June05 Comm Beni Q8H| July05 mino| Jan06 PH2| Aug06 1,25D=29 25D=17|
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suecat
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Posted: Wed Oct 29th, 2008 02:48 |
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Good suggestions! THANKS! to all.
sue
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FMS/CFS 125D55 25D32 Ph1Apr08 cal/mag guaifensen gabapentin doxylamine NoIRs covered up low lux home
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Alayne
Member in Phase 3
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Posted: Fri Oct 31st, 2008 05:26 |
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Thought I'd add that I've lived with freezing feet, fingers, ears, and nose since I can remember! Up until early this year, I'd warm the bed with heating pad(s), put the heating pad either over my chest or feet (depending on which was coldest). I often wore gloves and a fleece hat in bed as well.
Now, we're talking about Southern California where the temps really don't fall below 50 very often. So you can imagine how I did in Minnesota and other more northern climes - frostbite.
That said, I did do some winter/snow camping one year and my forearms and hands swelled up beyond the point of being able to use them. You could hear the tendons scraping against bone across a quiet room (when I got back). The doc had no idea what'd caused it. Ha!
When I started the MP, I really noticed Raynaud's symptoms. White frozen fingers. It took well over two years on the MP before my extremities stopped feeling excessively cold. Now I sleep with only one or two blankets, whereas before it was 5-6 with a heating pad. My guy was continually rolling into a mountain of fabric, which drove him nuts. 
I also don't sleep with socks for the first time in..um...my entire life? The second blanket is only if the air conditioner's on.
What I now notice is that I can't hold a piece of ice for long - just getting some out of the freezer. It hurts like I'm being burned. I didn't have that kind of quick reaction before and wonder if my nerve endings are either in the midst of repairing themselves, or have almost repaired themselves and that's what ice is actually supposed to feel like?
I also used to be able to hold and drink very hot things as well - no longer. I think that's supposed to be what's normal? Anyone's guess on that one?
All that said, I never did well in the heat pre-MP. It'd make me sick. Now I can handle it pretty darned well - even with a number of layers. Very cool.
~Alayne
P.S. Suecat - I have to wear orthotics as well. So, I buy sturdy slippers that can take a pairs of socks AND the orthotics. Keen Timberline Slip Ons are fantastic. They're the only ones I've found that comfortably accomodate the extra space requirement. I bought my size, removed the sizeable insoles, and voila, I live in them. The only thing to avoid is getting that darned sock ripple under the arch - that hurts!
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ME/CFS/FM Sick 25+yrs 6/05:25D-34 1,25D-69, 11/07:25D-8 1,25-37, NoIRs/Avoid Sun/D/Use Zinc oxide. 11/17/05-Ph1, 5/06-MPh2, 12/06-MPh2#2, 6/07-MPh2#3,1/08-Ph2, 4/08-Ph3, NonMP Meds:Sleep:Loraz/Ambien /MThis/Calc/Mag/Lysine
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suecat
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Posted: Wed Nov 19th, 2008 17:29 |
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I think extreme inability to handle cold or being cold has some to do with thryoid also.
I will get it checked again, my mom had an inactive thryroid diagnoisi by the time she
was my age.
Of course the thryroid being out of wack is TH! related.
meanwhile....heating pads, leg warmers, blankets, scarves and evening afternoon/baths are in order.
Alayne,
I live in south texas so it's not like it reaaaaalllllllllly get's hold here. This has been a life long challenge. ..can't wait for it to improve.
suecat
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FMS/CFS 125D55 25D32 Ph1Apr08 cal/mag guaifensen gabapentin doxylamine NoIRs covered up low lux home
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Afternoon Tea
Member in Phase 3
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Posted: Thu Nov 20th, 2008 20:38 |
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| What about the little packets that produce heat once they are activated? We used them when we were skiing (oh, gosh, skiing... I want to do that again some day!). They are small enough they can slide into gloves or mittens or be placed in socks, and they last a long time. I'm sure you can find them at a sporting goods stores.
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Palindromic RA (Probably early classic RA) | 125D39 |Ph1 3/08 | 25D31 | Synthroid (.088mg due to thyroidectomy) | NoIRs | covered up, reduced lux home |
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suecat
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Posted: Thu Dec 11th, 2008 16:42 |
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Can anyone confirm that space heaters are contraindicated due to the heat waves or
whatever.
thanks,
sue
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FMS/CFS 125D55 25D32 Ph1Apr08 cal/mag guaifensen gabapentin doxylamine NoIRs covered up low lux home
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Juanita
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Posted: Thu Dec 11th, 2008 19:18 |
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EMF? Electro magnetic frequency? I look forward to hearing more experienced people respond to your question, there, Sue. I wouldn't think it would be a problem with the meds. Only if you have an EMF sensitivity. Which I used to have but has improved drastically since passing phase 1.
On the cold body parts discussion.... I ..... *drum roll, please*... am finally warm for the FIRST TIME in 48 years!! I freeze in the winter, am cold in the summer, including the times we spent in Los Angeles. I was warm while pregnant with Sarah, who was born with freezing cold and blue feet. She's still cold today. But about a week ago, I warmed up.
IT'S FABULOUS!!!
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D| Sept 21/07 25D-40.8ng/ml| May 7, 07 1,25D-35.8pg/ml
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suecat
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Posted: Fri Dec 12th, 2008 17:42 |
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Wonderful for you!! I'm doing the happy dance for you in my head/heart. My physical won't comply I saw this addressed in another topic forum anwsred by Trevor but will have to think where it was.
sue
P.S. A hot water bottle used for enemas filled with hot water works I found yesterday to warm icy feet...usually the only thing that worked is my husband's belly but this is a nice alternative as he's not here doing the day. Fill it up and sit somewhere and take your socks off and put your feet upon it and they do get warm.
Especially nice at the computer where we have a window emitting huge cold draft.
Cover the top of feet with blanket.
Last edited on Fri Dec 12th, 2008 17:46 by suecat
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FMS/CFS 125D55 25D32 Ph1Apr08 cal/mag guaifensen gabapentin doxylamine NoIRs covered up low lux home
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