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expate
Member in Phase 2
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Posted: Sat Oct 25th, 2008 16:27 |
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Here's an article on scleroderma, in case it's of interest...
http://tinyurl.com/5hz2cn
 dette
Edited to make that darn tiny url work.
Last edited on Sat Oct 25th, 2008 16:28 by expate
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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TrishOBrien
Member in Phase 3
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Posted: Sun Oct 26th, 2008 15:17 |
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Our local news did a story about a documentary called "Under Our Skin" that chronicals the issues lyme patients have gone through trying to get diagnosed and treated. This quote from the producer was so right on...
"Right now even if you get a diagnosis, which is difficult because the testing is so poor, it's hard to get treated because so many physicians afraid to treat Lyme and the if you're lucky enough to get the diagnosis and get somebody who can treat you, your insurance usually doesn't cover it," said Producer Andy Abrahams Wilson.
In this case they are discussing lyme, but you could do and <insert TH1 disease here> and we all know its the same story for so many of our MP friends.
Here's a link to the story: http://www.ksdk.com/news/health/story.aspx?storyid=158182&catid=9
fyi - If you search on google "Under Our Skin" you can watch a trailer. Don't watch it at work though - I cried on my keyboard.
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CFS arthralgia migraines RLS chills mouth sores swollen glands paresthesia 125D68 ibuprofen Vicodin Ph1May06 NoIRs lite exp r/t commute low lux home 25D?
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expate
Member in Phase 2
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Posted: Sun Oct 26th, 2008 17:07 |
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Wow, the trailer certainly puts a human face on these diseases. I'll be interested to see the full documentary to learn more about the politics of what's going on in the medical community around this.
But as the trailer points out, in the meantime, it is the patients who suffer, decline, and die.
 dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Dr Trevor Marshall
Research Team
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Posted: Sun Nov 2nd, 2008 23:40 |
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Unfortunately this movie is misleading, and may well do more harm than good.
Firstly, the symptoms being shown are not Chronic Lyme, but Chronic Th1 disease. The Borellia diagnosis is a co-infection. Many people will identify with those symptoms who never have been bitten by a tick.
In fact, three quarters of people with a chronic Lyme diagnosis never remember having been bitten by a tick. That is because Borelliosis, like all the chronic diseases, can be communicated within families, and between mother and children.
Promoting this flawed science has created a backlash from the scientific/medical community which reduces the liklihood that any of these patients will ever get effective treatment for their illness.
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expate
Member in Phase 2
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Posted: Mon Nov 3rd, 2008 03:05 |
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At one point in the trailer, the "proposition" that the disease passes to the fetus/baby via the placenta is posited. So, the idea that Lyme can exist without the patient having been bitten by a tick it presented.
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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