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Juanita
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| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 529 |
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Posted: Mon Nov 24th, 2008 18:36 |
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It can be uplifting to read of what people are grateful for in their lives and to say one's own, eh? So this is a thread just for that. 
I am grateful for the MP, to Dr Marshall and to the staff, that can't be expressed enough. Thank you from the bottom of my soul.
I am grateful for feeling better. Three train exhaust exposures two days ago and I didn't react beyond a stuffy nose and a bit of brain fog. That is miraculous in my world of extreme MCS.
I am grateful to my guy, Martin, my daughters and my e-friends who have been so loving and supportive and who 'get' me.
I am grateful it's not snowing.
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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ocallamp
Member
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Posted: Sat Nov 29th, 2008 00:06 |
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Hi to all,
I just had to post about my day today. I actually had normal energy today! All of a sudden, I noticed that I wasn't dragging, I didn't need to lay down, my head didn't hurt, and I wanted to do stuff. It's been about 12 years since I've had that feeling. I actually braved shopping on Black Friday just because I could! I'm sure I will pay for it later tonight or tomorrow, but it was fun. My teenage son even commented on my energy. I've been sick since he was 2, so he has no idea that I used to be a top caliber athlete who rarely stopped moving!
Then, when I returned from the stores, I took on my husband in a game of Scrabble and am glad to report that I whipped his butt. That's something I haven't been able to do since before the TH1 stuff reared its ugly head. He actually commented that I seem to be back to my old self!
I know I still have a long way to go, but today was inspiring. Thanks to Dr. Marshall and all the moderators for giving me a piece of my life back, even if it is temporary.
Maureen
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RA, Scleroderma, Dermatamyositis - Benicar started 3/6/08, Phase 1 - 4/26/08, Phase 2 - 7/11/08. Prozac, Darvoset
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eClaire
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| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1396 |
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Posted: Sat Nov 29th, 2008 05:59 |
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I'm grateful that Maureen had such a miraculous day today!
I am grateful for the support of other MP members and some of the wonderful friends I have made. Thank you guys for helping me get through my break up with my partner in the last year. I don't think I would have remained sane without you.
I am grateful that one more doctor (my previous) decided to do yet another unnecessary lupus test on me (negative) that got me searching the Internet and bumping into the MP. Thanks to everyone who works for the MP in whatever function; all of you have hearts of gold.
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Deb Grabetz
Moderator
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Posted: Sat Nov 29th, 2008 11:46 |
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Ditto Claire. I am grateful for each step that others are making on the MP! It is so heartwarming to see others progress!
For me personally, I am so very grateful this morning on this Thanksgiving weekend (here in the U.S.) that the MP came into my life. My doctor just released me earlier this month to return to work. My plan is to work part-time as soon as possible but in the meantime will return to training this month for three weeks. I leave tomorrow morning!
In the past 10 days since finding out I would be training during the month of December, I decorated the house and got about 90% of my Christmas shopping done and presents wrapped and under the tree. I am totally astounded, to be quite honest, how my brain (and obviously my physical self) is now functioning at such a high level as compared to two years ago when just a simple task just totally daunted me. In fact, I see this returning at a higher level than I can remember. It feels so good to be able to manage life again. How little do others understand that loss!!! I think going back to training will be a real marker for me, to see just how I adapt to a classroom setting and testing. I was very fortunate that my contract extended a full two years out for even as soon as six months ago, I would not have been able to manage this!
What I find very heartwarming also, is the excitement I saw in my doc's face when he told me I was his first Sarc patient to return to work. He told me he has been amazed with my progress and I'm sure as a physician he must be feeling some pride for his part in this! Something my doc left me with that I found to be worth mentioning is this. It's almost like remembering your roots but he said the biggest thing he sees in patients is that they forget to take care of themselves after they begin to feel well. Good point! It's that reminder to stay tuned in to what we've learned on the MP. Do the maintenance required, pay attention to the foods we eat, rest, take care of ourselves because we are all we've got!!! I will be on the MP yet for quite some time, so I'm not there yet, where I could even think about getting lax with my health...but know from all I've learned here, I will constantly be aware of the healing that is going on.
My doc was dx'd at 35 years old with terminal thyroid cancer. He had a wife pregnant at the time with their fourth child. He is now in his sixties and so active it would blow your mind...but HE is still very aware of the path he took to get himself well, just like so many of us here on the MP are!
...and so in ending I'd like to share this quote from Andre Gide:
"ONE DOESN'T DISCOVER NEW LANDS WITHOUT CONSENTING TO LOSE
SIGHT OF THE SHORE FOR A VERY LONG TIME"... Ahhhh...rings SO true!
My best to you all for the Holiday season... Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Caitiegirl
Member
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Posted: Mon Dec 1st, 2008 03:21 |
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Congratulations Deb!! I guess you are already in training by now but hope you blow their socks off!
Mindy
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Caitie(19) lyme,seizures, myoclonus, dystonia, digestive, chronic headache, mental fog: 10/23/07 25D 36 1,25D 58, 1/18/08 25D 9.9 Cut sun/D 9/26/07 Benicar 10/25/07, NoIRs 10/29/07
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Michele MBK
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| Joined: | Fri Jan 4th, 2008 |
| Location: | Virginia USA |
| Posts: | 69 |
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Posted: Mon Dec 1st, 2008 03:44 |
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Juanita, This is an absolutely perfect thread!!!! My heart is so full of gratitude for so many people I fear it may burst!
(Oh, could it be a herx???!!!!! .....no, I think not...)
People I have met through this illness have changed my life and are still changing my life. I see everything as new, miraculous, to be savored, lingered upon and enjoyed with great delight and wonderment.
Through many months of severe pain, all I had was hope. Experiencing the incredible progress on MP has truly reinforced my belief in miracles.
This is a song I have found expresses the transformation from hope to miracle. It exemplifies Dr. Marshall's research and protocol to me.
"When You Believe"
http://www.youtube.com/watch?v=CxIN79n4jVo
Michele
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Lyme / RA 125D30 25D16 Advil / Vicodin or Celebrex low lux home NoIRS cover up Ph1May08 Ph2Sept08 May 09D25:6
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Deb Grabetz
Moderator
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Posted: Mon Dec 1st, 2008 22:58 |
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Mindy, thank you...it is a big step for me!!!! ...and I appreciate your thoughts...so far, so good!
Michele...you are so right...these posts bring tears to my eyes...just like yours just did!!!
I thank John and Dr. M for allowing this forum!
Hugs, Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Sunbeam
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| Joined: | Thu Dec 14th, 2006 |
| Location: | Perth, Australia |
| Posts: | 358 |
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Posted: Tue Dec 2nd, 2008 00:57 |
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Hi Deb,
Just read your post and I am so thrilled to hear you are back in training. This is wonderful news relax and enjoy it all.
Thanks Michele for the youtube link that was some performance and an appropriate song, it certainly lifts the spirits.
Take care, Lynn
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CFS. gen neuro. muscular tightening whole body pulsates|ADL's limited| 125D 30 MP 4/07 Panadol Mersyndol Noirs. Low lux home homebound. ph 2 1/2/08 25D 6 2/08
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Juanita
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| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 529 |
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Posted: Wed Dec 3rd, 2008 15:28 |
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Great news, Deb! And congratulations, Ocallamp!
I am grateful that so far this winter hasn't been terrible. Trying to see the sidewalk while wearing sunglasses and NoIRs, plus layers of clothing that get in the way is a nightmare. Thank heavens we haven't gotten stomped with heavy snow and ice! May it continue.
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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eClaire
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| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1396 |
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Posted: Thu Dec 4th, 2008 21:48 |
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I am greatful for this thread and all the lifestyle threads that give us the opportunity to explore our thoughts, learn, and therefore apply that learning. I hope others get as much out of this experimental community as I do.
Claire
Last edited on Thu Dec 4th, 2008 21:49 by eClaire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Deb Grabetz
Moderator
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Posted: Sun Dec 7th, 2008 17:53 |
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Once again I am grateful for the MP, Dr. Marshall and all those who help execute this protocol...without it I am not sure where I would be today!
This last week was a stressful one, late hours, lots of testing, flying on the weekend and yet with some close monitoring of my meds, I have done quite well. My mental clarity is holding on....my three tests have been 100%- 100%- and a 98%. Of course it helps that I have been in this position before but a year and a half ago, I could not have even boarded a plane to get to this training or have even cared to give it a try! It is one miraculous thing for me to be here!!!!!!!
Have been keeping up with the treadmill as often as possible as this seems to keep my muscles loose and my energy working well for me. So far, so good!!
Today is our one day off this week. We are still studying for three more tests this week. I have a great class of people who are all flight attendant candidates. I hesitated coming here...was not sure if I could manage and so glad that I took the plunge...it has been rewarding, it has been good for me to get back to "life" as I knew it and I have met some fabulous people along the way. It was a push for me--yet I knew if it didn't work or I wasn't feeling well---I could always come home! Again, I thank this protocol for giving me this chance at getting some of my life back! I always knew that there was "light at the end of that long tunnel"...
Interestingly, I cannot remember feeling as well as I do now, even when I get tired, I have much more consistent energy than I have ever known as an adult. I always felt so sluggish and mentally unclear most of the time. I see now what so many talk about, "of feeling better than they could ever have expected." I definitely see this when walking or on the treadmill. I have been able to easily do 30 minutes on the treadmill where in past years was unable to more than maybe 5-10 minutes and would struggle to do so. If I chose I could probably go another 30 minutes but trying not to tax my body too heavily. It is actually kind of strange to know this kind of stamina because I've never had it!!! More proof in the puddin'!!!!!!!
Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Juanita
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| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 529 |
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Posted: Thu Dec 11th, 2008 18:06 |
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What great news, Deb!!
Not that I'm not jealous at the same time as happy for you. We started around the same time and I'm no where near being able to rejoin the world. I'm just aiming towards being able to see my oldest graduate from paramedic school Jan 9th. Without going to the dinner and dance later on.
Stupid MCS. 
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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Deb Grabetz
Moderator
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Posted: Thu Dec 11th, 2008 22:51 |
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Juanita...You WILL get there and I will be celebrating with you!!!! I still have a ways to go on the MP...I'm not through Phase II yet and who knows what Phase III will bring for me...but I can say this, I feel better and have better stamina than I can remember...and we're talking for many years. My level of tolerance both mental and physical has changed, it is some incredible, miraculous gift. I so wish I could wrap the MP up, in paper and bows and give it to others...I just hope that by our continued posting and the positive progress that people who are on the MP are making, continues to multiply into hundreds of thousands who find healing from chronic illness! My New Years wish...Thanks for the words, they made me smile... We have had a couple of tough days of hard work...one more week to go 
Hugs, Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Lottis
Health Professional
| Joined: | Sun Jan 21st, 2007 |
| Location: | Sweden |
| Posts: | 123 |
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Posted: Sat Dec 13th, 2008 17:04 |
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Today 13 december, we celebrate Lucia in Sweden, and it is a celabration the the Light in the darkest time of the season. Every year the TV sends from some place in Sweden and this time it is from Malmö.
I want to send this music in gratitude to you, Dr. Trevor Marshall, to advocates, board members, research team members and to all of you who supports each other and me.
Enjoy!
http://svt.se/svt/road/Classic/shared/mediacenter/index.jsp?&d=60317&lid=lista_1329383&lpos=0
/Lottis
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HTN,LVH,arrhythmia,hypercholesterol e.c.t. IBS fatique chr rhinit acne rosasea salivestones-89, gallblader-99, e.c.t. 14feb-07 25D 7,8 &1,25D 38.http://marshallprotocol.com/view_topic.php?id=9892&forum_id=20&jump_to=173725#p173725
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suecat
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Posted: Sun Dec 14th, 2008 03:10 |
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I want to say I'm grateful for my dh who has put up with so much drama wit this illness and stayed around to be supportive even when I oftentimes take it out on him. --
also my mother-in-law as alsway there to lend an ear even if she has no idea what the MP is but is concerned and always supportive.
my two boys pitch in some reluctantly but they do help me for the most part.
Good family can't be beat,
sue
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FMS/CFS 125D55 25D32 Ph1Apr08 cal/mag guaifensen gabapentin doxylamine NoIRs covered up low lux home
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Juanita
Member
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 529 |
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Posted: Tue Dec 16th, 2008 15:48 |
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I had such rage last week.... WOOF! As I roared at Martin about what a jerk he was, he just breathed and relaxed his shoulders. So I yelled at him for being passive. Oh, man, was I awful.
I apologized for three days afterwards, and he kept saying, It wasn't you, Honey. It was the illness and a bad reaction to town exhaust. Boy, am I glad I'm not like that regularly. I did that once to my SIL while reacting badly to codeine and 15 years later, she still hasn't forgiven me.
I am SO grateful to those who understand! I do the MP for them too. No way do I want to be living with MCS for the rest of my life! They deserve the best me just as much as I deserve to be the best me, eh?
Aren't we a lucky crew to have found the MP? I wish I could hug Dr Marshall.
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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Deb Grabetz
Moderator
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Posted: Sun Dec 21st, 2008 13:27 |
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Hello Everyone!
Back from training and back in this gratitude thread to express my deep gratitude to this protocol for making my current progress possible.
I caught a terrible cold while in training. 2/3 of my class were ill and I was hoping to escape the terrible bug but alas, I fell prey. I followed the guidelines on the MP to get through and avoided anything other than some Hall's cough drops. For the first time in 30 years this cold did not end up in my chest in bronchitis or pneumonia-- I had a normal cold just like a normal person would and almost fully recovered as of this morning.
My training was again brutal---it's like cramming a full college course into three weeks. Our teachers were awesome and entertaining which helped but there is no getting around this kind of a program. We have a 5" binder completely full that must be covered, consumed and tested and I was able to do it. Six months ago I would not only been unable to travel but would not have lasted through the first day.
I am now moving forward one day at a time. I start flying on Christmas Eve only for one day. My hope is to get to part time as quickly as possible in order to control my schedule to monitor my body's response while continuing the MP.The MP must come first before anything...so, so far so good! If anyone had told me six months ago I would be managing this well, I wouldn't have believed them with an open mind! (17 months into the MP as of right now).
May you all have a blessed Holiday...and thank you for all of the blessings that you have brought into my life...Your thoughts and prayers while I was in training were much appreciated, thank you! Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Juanita
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| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 529 |
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Posted: Mon Dec 22nd, 2008 20:24 |
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Yay, Deb! Yay, MP!!!!
BIG YAY!!!
____________________
MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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Deb Grabetz
Moderator
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Posted: Wed Dec 31st, 2008 18:53 |
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I wasn't sure where I wanted to post this but thought this gratitude thread was a good place! Not sure how many of you believe that things don't just happen by chance...but I am one of those. I believe all of us who are on the MP are not here by chance also...and wanted to share this story!
For those of you who may not have read recent posts...I just returned from three weeks of training with my company at the airlines. It took me a few weeks to decide if I really wanted to give this a shot or not. After being on a medical with Sarc for two years it was a scary venture for me. I have been responding to the MP and knew I had reached a point that it was possible to try but still it was a leap of faith for me! There were little signs along the way that I was moving in the right direction...but one in particular still has me shaking my head in disbelief...and this is the one I wanted to share with you all...
One day in class I did not have a pen and asked a fellow classmate sitting next to me if she could spare one. A girl behind me overheard that I needed a pen and told me she had brought a bunch and handed me one from her bag. When I took the pen that was offered to me, lo and behold it was a pen that the drug reps hand out, with guess what drug advertised?? BENICAR!! OK for some this may not seem like such a coincidence but for me, who believes nothing happens by chance, my mouth dropped to the floor. When I asked Laura where she had gotten the pen, she told me, "she had no idea"! I knew during training that it I started having unbearable IP from the extra light exposure etc, that I would rely on my Benicar...little did I know that I would be reminded in such a way with a gentle nudge that "yes, you can do this"!
I take this pen with me on my flights...I like to think of it as my lucky pen!
God Bless one and all and a very Healthy and Happy New Year to each and every one of you! Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Michele MBK
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| Joined: | Fri Jan 4th, 2008 |
| Location: | Virginia USA |
| Posts: | 69 |
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Posted: Wed Dec 31st, 2008 22:14 |
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Deb,
What a wonderful "happening." I also believe none of us on the MP are here by chance and I too have had similar and relentless types of coincidental "happenings" that are too numerous to dismiss.
You have inspired me to share one now. Cwylie1 in Peoria will truly appreciate this MP cooincidence!! Last summer we met friends at Joe's Crab shack along the river front in Peoria, Ill. While we we taking a wonderful evening stroll along the riverfront and chatting to catch up on each other's lives and as I was telling of my MP journey we walked across a patch of sidewalk with "Marshall Plaza" inscribed in it!!!! We were all quite astonished and taken by this coincidence and of course took it as a very positive "sign"!
Now where can I get some of those Benicar pens??!!!!
Happy New Year to all for more years filled with recovering and recovered health!
Michele
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Lyme / RA 125D30 25D16 Advil / Vicodin or Celebrex low lux home NoIRS cover up Ph1May08 Ph2Sept08 May 09D25:6
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