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Courage to Keep On
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Aunt Diana
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 Posted: Fri May 8th, 2009 03:53

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All I can say is WOW, beautiful letter...and isn't it sad? But I am thankful for the people here who do understand...I am much less alone now than I was before.



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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, , benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux
eClaire
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 Posted: Mon May 11th, 2009 06:59

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I wasn't sure where to post this, however, this seemed like a good place.

I am so impressed with the people who post on the CureMyTh1 section.  If one were to believe what our culture tells us, we'd think that most disabled people are malingerers, malcontents, hopeless, helpless, and/or basically responsible for their own illnesses.  (Except of course people injured in accidents where the accident was not their fault.) 

And yet, most of the folk who show up on the MP website show both courage and motivation in the face of daunting circumstances.  Not only that, they are often able to muster hope when hope tends to become a scarce commodity the longer one has been chronically ill (and therefore received no real help for ones illness and perhaps a fair amount of scorn or disbelief).

As much as I feel blessed to have found the MP, I sometimes feel more blessed to have found the people on the MP whose approach to life (and the very serious business of chronic illness) is like mine...tenacious.  People with strong wills and the desire to perservere...to take one more chance at life.

Thank you all!  Claire



____________________
42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
Sunbeam
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 Posted: Tue May 12th, 2009 03:55

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I second all of the last few posts and I am so thankful for our support group. The deeper I am involved with the MP. the more hope I have. Just at the moment that is hard, yet the flame of hope continues and I know this is the right path for me.

To be able to read  of the tough times others have been having and how  their experiences  are a reflection of my own, re- ingnites the hope flame when it is at its lowest.

I wish for you all a return to full health and a life filled with joy.

Thank you all for your wisdom,

Take care, Lynn



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CFS. gen neuro. muscular tightening whole body pulsates|ADL's limited| 125D 30 MP 4/07 Panadol Mersyndol Noirs. Low lux home homebound. ph 2 1/2/08 25D 6 2/08
eClaire
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 Posted: Mon Jun 1st, 2009 16:33

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Right before I started the MP, I found a white statue that is of a Santa and a reindeer.  The Santa has his fist raised in an "Onward ho!" fashion.  Remarkably, the Santa looks almost exactly like my brother who had died a year before of AIDS and of course Th1 related illness.  This statue, which I keep out all year long, cheers me on.

Also, I promised my brother, back when he was first diagnosed with AIDS and I was not yet disabled, that I would spread his ashes in three places.  The first was easy (his backyard rock garden), but the other two require that I hike.  One requires a hike up a series of waterfalls and the other requires a hike into a beach that is not accessible to motorists.  I must be well to fulfill this promise to him.  I will fulfill the promise.  This, perhaps more than anything, gives me the courage to go on. 

Plus, my father died at 57 (his mother at 46), my brother at 53.  I figure if I stick with the MP, I may be fully functional by the time I am 57 and able to return to work--that is my goal date 2013 (I'll be 57 in the fall of 2012).  I feel like my dad is cheering me on to be able to return to work about the time he ought to have been retiring due to illness (had he been granted disability retirement he may not of died so young). 

I want to beat my family's odds.  The MP is going to help me do it.:)

Claire 



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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
kenc
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 Posted: Mon Jun 1st, 2009 18:38

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eClaire,

My Dad's ashes have been sitting in a box in my living room since early 2007. I've been too sick to take a boat out into the ocean to scatter them. Well on May 17, his birthday, I did it. I was well enough to do it.

I think it's a good strategy to set goals in the future that require an improvement in health. That's the way we tell our body that we want it to keep going. And I think the body usually listens.

Ken



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Deb Grabetz
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 Posted: Sun Jun 14th, 2009 12:05

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Hi Ken,

I read your post earlier and meant to write you a note, how wonderful that you were able to get out and spread your dads ashes.   It must have felt like such an accomplishment for you...

Every day when I wake up I try to make myself a list of things to do...my brain still does not want to "think".  I wish I understood this more...to some it may seem like laziness...but it is far from being lazy...It is as if I get stuck in second gear.  So my lists help me accomplish things...I can relate to this list...when I pick it up and read it, my brain seems to take over from there but without a list, I can sit for hours in one place.  This also seems to wax and wane...but for the most part, this is always with me.  I will know when my neuro is healed when this clears up...Once I have this "kick start" off I go...:P  but the "kick start" is the tough part!



____________________
Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4

Lee
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 Posted: Sun Aug 2nd, 2009 23:32

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My step-father's ashes are in his flag box under the coffee table in my mom's house, which is my home now, since she passed away too.  They both donated their bodies to our local univ. and she has not returned.  My goal is to be well enough to find the closure when we do recieve her ashes and find a respectible resting place for them together.  Her wish was for us to do what we needed to do and for them to be together.  We are still unsure of how to do this but as I get better and stronger I am sure I will find the strength to find the answer.   I have sure lost alot in the last five years but I also am finding the the return of my health and am coping as I could never have before the MP!!  Thanks MP!!  Lee



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expate
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 Posted: Mon Aug 3rd, 2009 05:13

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Hi Lee, just to say... even pondering the answer is an accomplishment.  You'll do fine with it.  If it takes time, find comfort in knowing your parents are in the ever-after - our time frames are different than theirs.  ;)

I'm from New Orleans originally.  So, for me these last four years have been something else, post-Katrina, etc.  In April, in the same week that my brother died I had a solitary ceremony to bury my step-mother's ashes (per her wishes) who had been displaced from New Orleans by Katrina, died in Mississippi and ashes in my brother's closet for a year and a half before I could see her through.  Life happens.  Death happens.  We manage the best we can. 

My brother's body was donated to science.  We have yet to get a bit of him back.  It's kind of that purgatory (do note I'm an atheist) of knowing that he is still out there doing some good until the remainder of his body is returned in ashes that makes it all OK.  We know what to do when those ashes come, though it may take time. 

It's all a process.  Acknowledge and revel in it and be glad for the opportunity.

Celebrate your parents' lives!

Best,
Odette




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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
Juanita
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 Posted: Sun Aug 16th, 2009 22:05

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And though it's not the same thing, really... we donated our Al dog's body to the veterinary program as his brain tumour was so fascinating to our vet, he wanted to know if we'd let students learn from what had gone in inside his brain and body.  That it was unusual to see such a well cared for, athletic old dog with such a massive brain tumour. 

We were glad to help.  He was done with his body, why not let other dogs get the benefit of what the vet students could learn from him.  But there is this odd feeling of non-closure.  I have to keep reminding myself that his spirit is just fine and that's all that matters.  (I'm not an atheist, but more of a world religion student with my own twists from life experience and being an ex-church person.)

This has been a brutal year for my family.  Al the dog and my father died.  Sarah Jane almost bled to death.  And her older sister hooked up with a dude who we believed was going to do her great harm. 

It's given our IPs enormous perspective.  So we're sick.  We're still in the game, still on the MP.  Life can only look up.



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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
Deb Grabetz
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 Posted: Fri Oct 9th, 2009 12:41

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On the Dr. Oz show yesterday, their guests were a family with two children who are both allergic to the sun.  This caught my eye as I was resting in bed, obviously due to the conditions we all live in, sun avoidance!  The son is 18 and his younger sister  also has the same condition.  I couldn't help but wonder if the MP might be an answer for the two of them. 

They titled this with some very long name that I could not locate doing a search, but then again, I'm tired lately and didn't put a lot of effort into it! 

At about 18 months, their first child started showing signs of this allergy, screaming at the top of his lungs after sun exposure.  Imagine not being able to help your child.  They really didn't talk about how this was diagnosed, which I thought a miracle in itself but it is considered rare.  Rare, yet not really because the UV exposure is what is affecting all of us too!  These kids actually burn from the inside out and explain the sensation as touching a hot stove.  I could have cried watching this.  They have the most awesome attitudes and live their lives covered up.  They do most of their activities after dark and talked about water skiing at night.  Oh how I could relate to their lifestyle from the early stages of the MP.

Oddly, there have been times since I've become ill that I have described one of my symptoms as feeling "like my blood is boiling" or that my internal body is on fire.  Never to the degree of course that these kids are dealing with but I realized the comparision with the UV rays.

Their pain is almost indescribable, I would encourage you all to watch this clip for yourself.  It was on the Dr. Oz show but I was unable to locate anything that I could offer you as a link. 

Note:  I did send in a long letter of submission to the Dr. Oz show about the MP, I would encourage as many of you as you can to send in your story to Dr. Oz.  Who knows what might come of it!



____________________
Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4

Phil Schoner
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 Posted: Sat Oct 10th, 2009 14:37

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Yesterday on Good Morning America they had Dr. OZ on the show talking about vitamin D deficiency.  He talked the usual stuff about how many Americans are deficient in this important "vitamin".  Diane Sawyer stated that her doctor recently put her on massive supplements because her level was somewhere in the low teens.  She was soooo grateful that it had been discovered, and that she was now addressing it.

Dr. OZ stated that people should have a level of 50 or higher to be considered ok.  30-50 means you are (somewhat) deficient. Of course, it gets more grim from there, with poor Diane in really bad shape.  The rest of the segment talked about how to get more D, sunshine preferred, followed by diet and supplements.  During this part, Diane took a shot of cod liver oil, making a face at the taste.

Sooo, I don't think we should expect good ol Dr. Oz to come over to our way of thinking about the dangers of vitamin D anytime soon.  And to think how many doctors and health experts there are out there in positions like Dr. Oz to influence the masses in such a harmful way!

Phil



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Phil Schoner, MP Support Spouse, no symptoms, 125D 74 5/08, 25D 16 12/08, 25D 16 7/09, ph1 11/08, ph2 12/08, ph3 7/09
Deb Grabetz
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 Posted: Sat Oct 10th, 2009 15:44

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Phil,

You make a very good point with Dr. Oz's attitude towards Vitamin D.  As the medical community becomes more and more aware though of the detrimental effects to those of us who cannot tolerate Vitamin D, I believe it is important for Dr. Oz to hear from people like ourselves. 

To me I have always compared this component of Vitamin D as giving sugar to a diabetic.  Now if Dr. Oz got on national television and started telling diabetics to consume sugar, what kind of a response would he get??!  This is exactly the same as giving Vitamin D to those with sarcoidosis and other Th1 illnesses.  The fact that Vitamin D warnings are now on Vitamin D labels regarding sarcoidosis and lymphoma patients tells me that there is some light being shed on mainstream medicine.  We unfortunately cannot all be lumped into one pot...that Vitamin D is good for everyone.

This is exactly how so many people got sick in the first place in my opinion , with the big fish oil marketing campaign.  I personally know of people on site who became deathly ill from the fish oil and realized it too late.

This too will surface with the Vitamin D...we just have to continue to promote what has been researched and proven in regards to our particular diseases!:D   We do a complete diservice to all those who are being harmed by these "general" get well campaigns by not continuing our efforts to educate those around us that Vitamin D is not always suitable for everyone!

In this link for Vitamin D--- READ -- PRECAUTIONS!

http://www.healthgrades.com/drug-ratings/drug/sideeffects/6192/Vitamin%20D



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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4

Sallie Q
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 Posted: Sat Oct 10th, 2009 23:20

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Phil Schoner wrote: .........
Dr. OZ stated that people should have a level of 50 or higher to be considered ok.  30-50 means you are (somewhat) deficient. Of course, it gets more grim from there, with poor Diane in really bad shape.  The rest of the segment talked about how to get more D, sunshine preferred, followed by diet and supplements.  During this part, Diane took a shot of cod liver oil, making a face at the taste.
..........
at least when I was a kid they packaged the stuff in malt ('Irradol-A', it tasted so good the kids twisted their parent's arm to be allowed to have it :?

Phil it continually blows my mind how easily doctors forget any science they were ever taught, since this doctor is obviously picking up the figure for the range of ALL people tested (industrialised and over-medicated people!) and thinks that to be within the upper part of that range is OK [or in this sun-worshipping doctor's imagination, better than ok :shock:]
.
The actual Merck range for HEALTH was/is something like 25 to 45

i.e. if level is over 45 something is out of whack somewhere.
and this came from the Merck website apparently, which in itself is something of a fish oil salesman :(

How HEALTHY became "somewhat deficient" is a miracle of modern advertising

Linda J, you are express it all so beautifully, thank you
Sallie



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Sjogrens; b.cancer; postviral fatigue| D25was13.2ng/ml@ph1-Sept08 |Nov08mod.ph2 /Feb09ph2/ May09ph3| D25 7ng/ml@Jun10 NoIRs essential; testing for stage4, July 2010 Olmetec & Mino only
eClaire
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 Posted: Sat Oct 17th, 2009 05:59

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Last week was a bit of a rough week for me because it was a rough week for some folk that I know on the MP.  It seems that most of us go through periods where we have a crisis in faith/belief about the MP.  This was the case for some of my MP friends. 

I'm not saying that I don't have moments of doubt.  Indeed, I able able to juggle doubt and conviction at the same time.  And so I spent time shoring people up while admitting that I might be wrong... for them.  I'm not going to pretend I don't have doubts.

So I got to wondering why my crises of faith might be so mild, so infrequent.
  I got to wondering why I am so prepared to do whatever it takes to at least give the MP six or seven years of my life on the belief, the chance, the hope that I will be functional by the end of that time. 

In part, it seems that my commitment comes down to my belief that nothing else, no other treatment, makes as much sense to me, and my facing the fact that I was one sick puppy when I started the MP.  Because of the extent of my illness, it has also been pretty clear that I must give the treatment time. 

In the end though, I am not quite certain how I keep the faith and keep going. 

Perhaps it relates to the fact that I used to be a rock climber. 

When you get all shaky in the knee, exhausted beyond belief, and want to quit the rock, you can't just hang out there on the rock face, particularly when you are not doing top rope climbing*.  That is, when you are engaged in lead rope climbing**, there is no way for anyone to let you down to the ground once you are up on the rock face.  When you are frightened, when you doubt your ability out on the rock, it is sort of do or die.  You have no other choice but to rest a bit, gather your wits about you, and find a way to dig deep; your life depends upon it.  I guess that was a lesson well learned by me. 

Once, on a climb at Seneca Rocks in West Virginia, my climbing partner and I started off to do a climbing route (a mapped out route on the rock face) that was well suited to our skill level (something we'd feel comfortable doing without a top rope... with a top rope climb, you can take a whole lot more chances to improve your skill level and increase your confidence).  However, half way through the climb, we--my lead climber and I--got off track and ended up on a climb that was WAY above our skill level for lead rope climbing. 

There we were at about 200 feet up climbing sheer rock face (that means straight up, with no sizeable crags or ledges).  The climb to an easier route was quite far away and so we had no choice but to face the rock face and proceed.  And so we climbed for another 100 or so feet, most often with the tiniest of holds (some only 1/3" in depth and little to none more than 2" deep).  To make matters worse, the person leading was much taller with better reach and so I couldn't even use the holds he used... I had to find my own way.

At times, I would become frozen on the rock and plaster myself to it.  A big no, no in rock climbing generally, as it is often a sign of pretty intense fear and the effort to cling to the rock uses up a lot of energy--energy you need to, well, survive--, throws your balance off, slows you down.  Besides I wasn't going to be able to belay*** the lead climber when hugging the rock.

At times the lead climber would have to encourage me to "push off of the rock."  Something that at those times felt like would be the death of me.  And yet, I'd push off of the rock, search for a hold, take that leap of faith (yes, sometimes I had to push off of a 2" ledge and leap for the next hold). 

Of course, you know the end of the story... I made it up the rock face safely. 

And then, my climbing partner and the other couple we were climbing with told me that there was no way to climb down (I must admit I am a doer and not a reader when it comes to stuff like this and so I had no reason to doubt them).  Because the the way down is so WAY down, we had to hook up with other climbers to rappel down to the bottom.  We, us and a bunch of strangers I did not know from Adam, did this in three pitches (meaning, we took a route that allowed us to rest on a good size ledge--meaning my feet may not have been completely on rock, but at least my feet were planted-- twice while we hooked up a belay system to secure our descent).

The whole way down I kept saying, "This is killing me, this is killing me" I was so frightened.  My friends thought I was being hysterically funny when I was in fact hysterical.  I thought my heart would fail from fright.  Did I mention I'm afraid of heights?  And that when you rappel, you pretty much have to look down.

Did I mention that this was the FIRST time my climbing partner and I had gone lead rope climbing?  Yes, neither one of us were experienced in lead rope climbing; we had always had the security of being able to be let down to the ground before that climb. 

So of course we chose to climb a rock that juts 900 feet above the ground our first time out lead rope climbing.  The "climb," after a hike up the outcropping, is only about 300 feet.  To give you a sense of scale from points around the U.S. and some of the globe, the Statue of Liberty is 305 feet tall, Big Ben is 316 feet, the Washington Monument is 555 feet, the Sydney Opera House is 600 feet, the Space Needle in Seattle is 605 feet, the tallest structure in London is One Canada Square at 771 feet, the Four Seasons Tower in Miami is 789 feet, the IDS tower in Minneapolis--the tallest building in that city--is 792 feet--I was scared to death riding the elevator in that building--, the Sydney Tower is 997 feet, the Eiffel Tower is 1063 feet, the Empire State Building is 1250 feet. 

So it was like climbing something as tall as the Statue of Liberty (from the ground to the tip) http://en.wikipedia.org/wiki/File:Statue_of_Liberty,_NY.jpg on top of the Sydney Opera House http://en.wikipedia.org/wiki/File:Sydney_opera_house_side_view.jpg.:D 

Which means we had great views at the top, and looking down was a lot scarier than 300 feet!:shock:

Here's a Wikipedia link to Seneca Rocks: http://en.wikipedia.org/wiki/Seneca_Rocks  We meant to go up E to the top and diverted to Q (note the name--"Crispy Critter").  http://en.wikipedia.org/wiki/File:Seneca_southwest.jpg


For years, I kept a picture of Seneca Rocks in my office to remind me that I could do anything I set my mind to.  I never knew this experience would come in so handy. 

Claire

*"Top-rope climbing (or Top-roping) is a style in climbing in which a rope, used for the climber's safety, runs from a belayer at the foot of a route through one or more carabiners connected to an anchor system at the top of the route and back down to the climber, usually attaching to the climber by means of a harness." (From Wikipedia.)
 
**Lead climbing "involves a lead climber attaching themselves to a length of dynamic (stretchy) climbing rope and ascending a route whilst periodically attaching protection to the face of the route and "clipping in" to it. The lead climber must have another person acting as a belayer."  (From Wikipedia)

***Belay/Belayer:  "The belayer has multiple roles: holding the rope in the event of a fall, and paying out or taking up rope as the climber moves."  (From Wikipedia)

Last edited on Sat Oct 17th, 2009 07:36 by eClaire



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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
Deb Grabetz
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 Posted: Sat Oct 17th, 2009 10:54

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Wow, Claire I so enjoyed this read this morning....you were just pounding away on those keys at one in the morning! 

This was very inspirational, thank you for such a descriptive story.  Honestly, I could close my eyes and almost feel myself climbing right there with you.  Rock climbing is not something I've ever done.  I'm not particularily an outdoors-y person yet the sheer image of you up there pushing yourself made me wish I was!!

You are so completely right about this...we really never do know what we can accomplish until we do it!  Maybe next to being married and raising a family, doing the MP is one of the biggest things I've ever committed to...and I have to honestly say, my DH and kids, never gave me this much IP!!!

***On that note after my really intense two weeks of IP, I have had a blissful vacation this entire week.  No fatigue, very minimal IP, so much ambition that I have to make myself go to bed at night!  This is what the MP promises...and although I know this is only a glimpse of what lies ahead...it is incredible to have these little pieces of life back and experience it day after day...My wings have been spread this week and I've been enjoying the sights!



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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4

Lee
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 Posted: Sat Oct 17th, 2009 13:35

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 Claire ...You Go Girl!  I hope you keep that picture nearby these days too ...:cool:   Lee



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Freddie Ash
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 Posted: Sat Oct 17th, 2009 14:15

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HI CLAIRE

This is Fred in WV.  Thanks for sharing that story.  I have been at Seneca Rocks, WV but I am not a climber, even affraid of heights.  So I would never try what you did.  You are a strong woman to be able to do all that.

Remember, we are all in this together and I am pulling for us.

Your friend in Sarcoidosis

Freddei



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JanEE
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 Posted: Sat Oct 17th, 2009 18:03

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Claire, you may have been terrified, but you still did it.  Wow, what a story.  There are so many facets to Claire!
 
I have always been afraid of heights myself, but for some reason I thought it might be easier to skydive than to be up on top of my roof, which I find really frightening.  However, I haven't tried skydiving, and am not sure I would when it came right down to it. 
 
Like you I occasionally have my doubts about the MP, while at the same time believing in it totally.  It does seem kind of odd.  When I began the MP I was totally committed to 3 years, but here I am at over four and still determined to see it through.  I have also recently decided that 7 years might be a better number to go for.  I don't think my family is convinced, but how can I just give up now?  Besides, I recently had a week of feeling great, as did Deb, and that always helps renew determination.  I look forward to more of those days.
 
Thanks for your story.
Jan



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CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
eClaire
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Joined: Mon Sep 25th, 2006
Location: Virginia USA
Posts: 1396
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 Posted: Sat Oct 17th, 2009 19:24

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:D:D:D:D:D I would not sky dive if you paid me a million dollars!  And bungee jumping seems like a really good way to mess up your joints!  And riding a bike on most public streets seems suicidal.  You see, I really am quite risk adverse... I just loved to climb despite my fear of heights.  I swear I am part mountain goat. 

However, even when well, my climbing days are over because of a serious injury to a knee sustained when I was run down by a car (I don't recommend having that happen to you), and you need your knees to run, jump, climb.

Claire



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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
Sunbeam
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Joined: Thu Dec 14th, 2006
Location: Perth, Australia
Posts: 358
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 Posted: Mon Oct 19th, 2009 07:19

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Hi Claire,

I enjoyed your climbing story. I would not even attempt climbing up a high tower, never mind a cliff face. Sky diving - no way!   My feet stay on terra firma.

I have been trying to think how adventurous I have been in my life and see that traveling to other lands is the best that I can come up with.

However being on MP may count for something,

Lynn.



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CFS. gen neuro. muscular tightening whole body pulsates|ADL's limited| 125D 30 MP 4/07 Panadol Mersyndol Noirs. Low lux home homebound. ph 2 1/2/08 25D 6 2/08

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