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expate
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Posted: Sun May 31st, 2009 22:29 |
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I've been having IP generally in my lower abdomen: uterus, intestine, and bladder.
The uterine IP has been just a feeling of heaviness in my uterus, almost like I'm going to have a period... except that I haven't for 2 1/2 years.  I do have uterine fibroids, but when I saw my gyn last week she said my uterus was a full month smaller than a year and a half ago! 
The bladder IP has come in the form of pain. It's not bad, doesn't last long, comes and goes. I haven't had that in a couple of weeks.
Then intestinal stuff can be anything from bloating, to pain, to near constipation. It is probably the most constant of the three, but not bad.
Well, in the last two weeks, I've had issues with my bladder. It feels full, not like when you have an infection and you have the feeling of urgency. Just swollen. Also, and this was heartbreaking (sort of  ), I had the experience of leaking twice when sneezing. That made me feel like an old lady... which I am most definitely not!!! I've read about this issue before and Kegel exercises and all, but when I do them, it just doesn't feel like that's the issue.
Anybody else out there have a sort of swollen bladder feeling that could be IP?
 dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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Aunt Diana
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Posted: Sun May 31st, 2009 23:00 |
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I have had exactly what you describe. The feeling of menstrual cramps (not as strong as I used to have, but nevertheless, weird). Lyme disease put an end to all my female issues when I was in my early 40s. Just recently I've experienced the leaking thing when I cough or sneeze, or sometimes it just happens.
On the other hand, ever since my twenties I have had bladder problems. I was very susceptible to infections there, I must have had twenty or more in a ten year period. After that I was always running to the john, every few hours. I never could make it through the night without having to get up once or twice.
That has totally changed in the past year. I can sleep through the night and don't even have a sense of urgency in the morning. I must have had a lot of bugs hanging out in that area.
I have no idea what this leaky thing is, but it isn't bothersome enough yet to have me concerned. I figure, like everything else, it's IP related.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, , benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux
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Cynthia Schnitz
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Posted: Mon Jun 1st, 2009 02:12 |
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| Deleted Last edited on Mon Jun 1st, 2009 02:16 by Cynthia Schnitz
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Ph1 10/08, Ph2 12/08, Ph3 6/09, 125/25D 47/43 preMP, 25D14 12/09, Estradiol .75mg, Calcium anomaly(gone?), Spondylitis, early Diverticulosis, early Macular Degeneration(AMD), Type II Diabetes (unconfirmed,PreDiabetes?), returning sense smell
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eClaire
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Posted: Mon Jun 1st, 2009 16:23 |
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OMG! Please do not tell me I am the queen of bladder incontinence on the MP!!!
Okay ladies, I have no children and I have had leakage problems since my early twenties (sneezing, exercise, etc.)--for 30 years. (Kegel did not help.) It got so bad that I started leaking while having sex in the year or so before I became totally disabled (and had to stop having sex because my pee was caustic back then and it hurt me when it touched my skin). There was also the issue of feeling like I had to urinate all the time, which was not always the case. It got so bad pre-MP that I would leak A LOT after I peed, and so I would have to stand and bend forward when I peed so I could totally empty my bladder. If not, I'd think I was done, stand up and pee on myself with nary a sensation other than the pee. What a fun topic this is.
Now I can hold my urine and pee like a race horse. I only leak a little when I sneeze now and I see that disappearing and one day being able to exercise as well.
On a stranger note, my pee used to turn the toilet black (mold?). It would do this even though I would flush each time. I had to wash out the toilet every week or it would blacken (I know weekly is a good idea, but I was exhausted and would have preferred to have the housekeeper clean the toilet every two weeks). Well, thanks to the MP, the black is gone as well!
So...it is IP and IT WILL PASS (heh, heh).
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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expate
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Posted: Mon Jun 1st, 2009 21:47 |
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Wow, Claire, impressive credentials!
OK, I'm feeling a little more reassured. I hope it doesn't get worse, though. That sounded pretty tough.
I've never particularly had problems in this area. I've had maybe 3 UTI's in my life. Though, as I said, this feels very different than that.
On another note, I got on the scale yesterday and I have gained 11 pounds since the end of March. That's 11 pounds in two months!!! I really haven't changed much of anything in diet. I did get depressed and did very little physically, but I just don't get it. Well, I have been craving salt and using more than my usual amount (which is quite a bit). Crazy.
This makes me believe some weight gain could be IP. However, I aim to conquer it. I just can't live like this. Good workouts yesterday and today.
OK, back to work.
dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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eClaire
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Posted: Mon Jun 1st, 2009 22:43 |
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* me laughing again * I've never had a UTI either, but something is up with my kidneys!!! I also had vaginal yeast infections since starting my period, but they did not itch (and there was no point doing anything about them, as they always came back). Weird, I know.
In regard to weight. I increased my benicar and am sticking at 50mg mino (getting a new baseline) and I put on weight in the last couple of months. Makes me wonder where I'll end up.
Speaking of exercise, I'm feeling well enough to try restorative yoga once a week. I'm hoping to start this Wednesday.
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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JanEE
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Posted: Tue Jun 2nd, 2009 06:43 |
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Ah, ladies, an interesting subject. I don't seem to have most of the problems you're discussing. I guess I should be thankful for that. I mostly just have sneezing fits, without the subsequent results you're having. I just wanted to say to Odette that you are so lucky that you have the energy to exercise. I occasionally can do some work in my yard, but not sure if it is contributing to my overly strong IP, so I don't do it often. I can manage about 5 minutes on my treadmill, which seems useless. I do some yoga stretching once in a while, but have to be careful because my knees are bad and can crack real good in certain positions.
Claire, I took yoga classes for a year back in 2000 and found them to be really great. What I'd like to know is how does restsorative yoga differ from regular yoga? Would you consider filling me in on some of the things you learn there, maybe I could try some of it at home. I don't want to sign up for a class unless I know I can follow through.
Okay, continue on. I didn't mean to get off on another subject. Many thanks.
Jan
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CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
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JanEE
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Posted: Tue Jun 2nd, 2009 06:44 |
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Ah, ladies, an interesting subject. I don't seem to have most of the problems you're discussing. I guess I should be thankful for that. I mostly just have sneezing fits, without the subsequent results you're having. I just wanted to say to Odette that you are so lucky that you have the energy to exercise. I occasionally can do some work in my yard, but not sure if it is contributing to my overly strong IP, so I don't do it often. I can manage about 5 minutes on my treadmill, which seems useless. I do some yoga stretching once in a while, but have to be careful because my knees are bad and can crack real good in certain positions.
Claire, I took yoga classes for a year back in 2000 and found them to be really great. What I'd like to know is how does restsorative yoga differ from regular yoga? Would you consider filling me in on some of the things you learn there, maybe I could try some of it at home. I don't want to sign up for a class unless I know I can follow through.
Okay, continue on. I didn't mean to get off on another subject. Many thanks.
Jan
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CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
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eClaire
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Posted: Tue Jun 2nd, 2009 21:15 |
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Hey Jan, Juanita has been trying to get me to do restorative yoga. She does it. Apparently it's pretty gentle. I think you get into certain positions to get lymph moving and such. I've gotten links online, but have never followed through because I didn't have the energy. Still don't have the brain energy, and so I am going to pay because I do better even when well with in-person instruction, and so with a compromised brain no point in making what ought to be enjoyable a miserable experience. Plus, I need a yoga buddy to get started and Eric, my housemate, has agreed to go with me intially once a week, as he knows the owner and he can go to any class for free. (Must be nice!!!)
I'll let you know how I do and what the experience is.
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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expate
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Posted: Wed Jun 3rd, 2009 01:27 |
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I have to say that the only reason I have the energy to exercise is because I decided to cut my Mino in half, to 50 mg Q48hrs. I was just a slug. I decided to try reduucing Mino to see if it helped and it was magical. Within a week, I found a bit of my bounce was back. I have to exercise in the mornings though, because by nighttime, I'm too pooped.
dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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Juanita
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Posted: Wed Jun 3rd, 2009 19:14 |
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Hey... don't diss the extra energy, Odette. And if you really don't want it... send it to me! Ahahahahahahahahahaha!!!! *snort*
http://www.yogajournal.com is a great place to start looking into yoga. It can still be more athletic than someone with extreme fatigue or balance issues can manage, but it is chalk full of information and so is a good resource.
I do Iyenger yoga, which was designed for sick people. You hold or lay in poses for 3-10 minutes, so it's very good for people who can only lay down. They use straps and props, but in my very sick days of yore (and may they stay in yore), I would just lay with different pillows placed in strategic places under my body and then relax. As you can easily imagine, I do my yoga while watching tv. I was going to lay on the couch to watch anyways, so why not lay on my mat instead?
I first discovered Iyenger in the library! So don't forget to check out the yoga section the next time you go for books. I went through their whole collection until I found what style of yoga worked for me.
As to bladders, uteri and such.... count me in as a Club Member. I do kegels also, but I leaked last week while sitting in front of the computer. No coughing or laughing or anything. Just sitting there typing and reading. Jeeze...... But it comes and goes. It's clearly an IP.
The swollen feeling is unlikeable. No one wants to constantly feel their bladder or uterus 24/7, but it does make you grateful for small mercies when you wake up to discover that you innards feel normal again.
The way I look at it... it's unpleasant but better my bladder leaks than any of my other more important organs like my heart.
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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eClaire
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Posted: Wed Jun 3rd, 2009 19:31 |
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Jan,
I went to the restorative yoga class today for an hour and it pretty much works the way Juanita described. We were lying down the whole time, using pillows, bolsters, lap rugs, straps. About the only thing I risked while in the class was the possibility of boredom, which sort of tells me I've been slacking in the meditation department recently.
For me, I know I need the accountability of a class right now. Plus it will give me somewhere to go twice a week and help me not feel so isolated. (Juanita has her daughters to do yoga with...can you hear my envy?)
The instructor was great and I'm not certain I would have gotten certain elements by reading a book--that is, without his help.
Once I get it down, I may drop back to once a week to save some money, but I think it will be well worth the time, as all the areas of injury I have had have tightened up with years of just lying around and not knowing how to stretch what.
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Juanita
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Posted: Wed Jun 3rd, 2009 20:09 |
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Good for you, Claire! Your joints and lymph nodes will thank you. And once you've done it for long enough for you to find out if your body responds well to this exercise, you'll find it easier to keep going, even at home. After three days, I can tell that I haven't stretched. I feel more stagnant in my muscles, dirtier in flesh, and my pain load is higher (outside of IPs).
And at home, you can listen to your IPod or watch a movie if you wanted to stretch but not meditate. I've been known to even do yoga and drink my tea while eating a cookie.
A purist, I am not.
Oh... I also wanted to comment on weight. Mine sits at 170, plus or minus one pound and I'm 5'2". No matter what I eat, how much I sleep, if I have energy to exercise, no matter what abx dose I'm on. The weight just sits there.
It's a part of the Th1, eh? So just be patient, Odette (like that comes easily to some of us ), and this will resolve for you as things shift around inside you.
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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JanEE
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Posted: Fri Jun 5th, 2009 01:41 |
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Claire, Thanks for sharing what you did in class. That sounds a lot like what we did at the end of every yoga session. Just meditation and relaxing, except you do it longer.
I remember one piece of equipment that she used to have in the studio, but don't know what it was called. I've tried to find one online with no luck. It was like a footstool, sort of, but curved. One would sit in front of it and lay back over it to stretch out one's back and decompress the vertibrae. It felt soooo good. I have tried it with a pillow, but those are too soft and just give way. If I had the tools I'd try and build myself one.
A massage therapist that I went to once told me that one exercise a woman can do that may be the best thing she could ever do for herself, is to recline on your bed, on your back, with your head hanging over the side for 10 minutes everyday. If one's bed is too high it can make you feel a bit like you're going to slide off though. I have a long overstuffed footstool/storage unit that I use when I do it, so I'm closer to the floor. You kind of have to work up to it as it can make you feel weird, and a bit dizzy at first. I've not kept up with this, but did for a while and it felt great.
Good luck with your classes. It sounds like you will enjoy them.
Juanita, it is kind of amazing, once you get used to all that stretching, how much you miss it when you don't do it for a few days. And, I agree totally with the weight thing. I'm 5'2"---and 3/4" (can't leave that out) and weigh 161 plus or minus a bit. Mine just sits there too. I'm down to wearing rags practically because I don't want to buy a lot of clothes only to need smaller ones soon (I keep hoping).
Jan
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CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
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eClaire
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Posted: Fri Jun 5th, 2009 20:48 |
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| Finished my second session of restorative yoga and the instructor did a few new things...he mixes up the various poses over time. I must say that I was sore yesterday (the day after) and a bit stiff today. So I know I'm getting a real work out while extending very little energy. Hope that encourages you Jan to get back into some sort of class. Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Juanita
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Posted: Mon Jun 8th, 2009 22:08 |
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Can you do epsom salt baths, Claire? When I've done more than my body is used to epsom salt baths help cut down on the lactic acid that makes for sore muscle. Also, arnica homeopathic pills.
Now. Who knows if these two things are MP safe?
I hear you about wearing rags, Jan. I'm doing the same thing and it's driving my husband batty. Finally he and my daughters made me order some basics from Sears on-line so I'd at least have new pajama type clothing. I only have two outfits for the doctor's and the chiropractor's as I can't justify forking out cash for clothes that will only sit in the closet.
The chiro has noticed...... but he didn't offer to pay for more clothing so he can suck it up.
____________________
MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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expate
Member
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Posted: Mon Jun 8th, 2009 22:45 |
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A kind of related update... I am back to exercising regularly (treadmill or Zumba and Pilates, 5 - 6 days a week. Oh, I also picked up a hoola hoop at the grocery store.) since a week ago Sunday.
*scratches head*
*wonders if childhood hoola hoop ability is a false memory*
Also, I'm trying to watch my diet a bit more closely. As well, I am foregoing the rather significant amount of wine I was drinking. 
Well, I weighed yesterday and I've lost 3 pounds in week one! Yay me!
I make sure to have a bath with epsom salts after a tough workout. Even with that, the first two days back, well, I don't know if I've ever been that sore before. It has all chilled down now.
This is the first day of a Zith cycle. Zumba in the morning. I'm pooped.
*hmmm, corollary: Z + Z = zzzzzzzzzz*
OK, early supper, a DVD, and bed.
Cheers,
dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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Juanita
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Posted: Mon Jun 8th, 2009 22:56 |
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Hula hooping!! ODETTE! Yay for you!!!
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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eClaire
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Posted: Mon Jun 8th, 2009 23:14 |
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dette, Thanks for making me laugh. Now I want a hula hoop.
Juanita, I took an epsom salt bath on Saturday evening and it helped significantly. Woke up on Sunday without pain or stiffness. Did yoga today at home, but took a warm bath ahead of time to warm up everything. That seemed to help some. I'll probably take an epsom salts bath later, I'm feeling a little stiff again.
Epsom salts are okay on the MP (don't know about the arnica).
Claire
____________________
42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Juanita
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Posted: Mon Jun 22nd, 2009 17:55 |
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I went 30 days between last period and this cycle, plus it only last a day and a half.
My first thought was... I'm too old to be pregnant and I'll have to go off the MP! My second thought was .... Damn. Menopause. And then it hit me.... a third option..... my cycle is finally settling into normal.
Bit late. I turn 49 in July. But still.... HURRAH!!!!
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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