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Lee
Member
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Posted: Tue Jun 9th, 2009 23:30 |
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Not sure where to post this info but we need help here and soon! Hubby is getting sicker and sicker and even though he now lives near the doc in Va that helps me with the MP, doc will not help until we get a firm th1 DX?! He has tested him for numerous things and I feel the test results scream of th1, yet doc is not convinced ... Where can I post these results please? D levels inculded! TIA!!! Lee
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2003 SARC w/COPD
D ratio-2.13 Ph1-2/05 Benicar| 4/05 PH2| 06 Ph3| D25=5.4 2007-TSH-0.09 probiotics/silymarin/sunlight w/noirs
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1396 |
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Posted: Thu Jun 11th, 2009 21:22 |
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Lee, you need to post in CureMyTh1.com. Hopefully you will be finding a new doctor soon. One who actually understands the MP. The last 4 videos on this site would be could for any doctor to review. http://vimeo.com/5106259
Hope this helps,
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1396 |
| Status: |
Offline
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Posted: Thu Jun 11th, 2009 21:22 |
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Bump.
Last edited on Thu Jun 11th, 2009 21:22 by eClaire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Juanita
Member
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 529 |
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Posted: Thu Jun 11th, 2009 21:24 |
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Thanks, Claire. I couldn't think my way out of a wet paper bag and I really wanted Lee to get the help she needs.
Good luck with this, Lee!! We'll be rooting for you.
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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Lee
Member
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Posted: Thu Jun 11th, 2009 22:14 |
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Thanks ladies ....I should be more "savvy" at this ....but with all the recent stress in my life and I have been "lost" more than usual ... I think I can manage now armed with all this great recent ammo .....Lee
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2003 SARC w/COPD
D ratio-2.13 Ph1-2/05 Benicar| 4/05 PH2| 06 Ph3| D25=5.4 2007-TSH-0.09 probiotics/silymarin/sunlight w/noirs
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Juanita
Member
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 529 |
| Status: |
Offline
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Posted: Thu Jun 11th, 2009 22:42 |
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Getting lost is what we all do when we're new with the MP. I've been on 22 months and only just started to understand how the treatment works. 
Brain fog is not my friend, but it lives in my house. 
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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Lee
Member
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Posted: Wed Jul 22nd, 2009 13:41 |
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| My brain has finally settled down and I am back home in NC tyring to take care of ME ... Hubby did get another low D test and the docs cannot be convinced he is th1 because of this. BUT they did find he is a "celiac" and this proves to me that this along with his sleep apnea ARE th1. He will get a Cpap soon and also has been pulsing mino to keep symptoms at bay. He is almost in Ph1(almost)!! He has to camp out in the back bay for the summer due to new job and lower salary. Alot of water and light even with his light controls in place. Says he cannot get over 40 Beni per day taken in small increments?! But we are stabilizing and working on a gluten free diet! Any other celiacs have tips?! Lee
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2003 SARC w/COPD
D ratio-2.13 Ph1-2/05 Benicar| 4/05 PH2| 06 Ph3| D25=5.4 2007-TSH-0.09 probiotics/silymarin/sunlight w/noirs
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Caitiegirl
Member
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Posted: Fri Jul 24th, 2009 01:13 |
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Lee
My brother was so sick and finally was diagnosed with celiacs. Although we all know it is Th1 it really helped stabilize him to be on the gluten free diet. He is feeling much better since the diagnosis. Maybe going gluten free will buy you some time until you can find a local doc. It is so hard where we are in NC. The docs run scared of anything too out of the ordinary because the state board has come down hard on some lyme docs. Hopefully with the new papers coming out and the West China study we will get more docs to be willing to take a chance. Hopefully he will feel much better with a new diet. Just get used to reading labels absolutely every time you buy. Oh sorry we all have to do that with Vit. D already right? Good luck to you both.
Mindy
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Caitie(19) lyme,seizures, myoclonus, dystonia, digestive, chronic headache, mental fog: 10/23/07 25D 36 1,25D 58, 1/18/08 25D 9.9 Cut sun/D 9/26/07 Benicar 10/25/07, NoIRs 10/29/07
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