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MarkN
Member
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Posted: Fri Jul 4th, 2008 05:28 |
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I got one!
I don't have oily skin anymore.
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General insanity (Aspergers ??), CFS, some joint paint ...
11/06:1,25D=37 25D=43, 3/08:25D<7 ... Avoid D 12/06 ... PhaseOne 1/07, PhaseTwo 3/07, PhaseThree 9/07
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Deb Grabetz
Moderator
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Posted: Thu Jul 10th, 2008 22:34 |
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 I was pleasantly surprised by not only my sinuses improving 99.9% on most days with a rare and occasional herx...but also the disappearance of swelling in my jaw tissue, muscle area along the jaw, mastoid (behind the ear), ears, gums and throat. I have now come to realize that I had inflammation in all of these areas, which included trouble with the connecting tissue to my ears. This 18 year problem has now settled to the point that I have to remind myself how miserable I had always felt in previous years with all of this undx'd inflammation!
Oh yes...Makes me very
Last edited on Thu Jul 10th, 2008 22:35 by Deb Grabetz
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Aunt Diana
Member
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Posted: Sat Jul 12th, 2008 13:19 |
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Oh yes....that reminds me of my "allergies" which apparently were not alllergies at all, since they have all disappeared.
I had hepa filters, special bedding, popped claritin and benadryl all the time and felt miserable with itchy eyes and stuffy head.
In a year or so I'm going to try a new patch test for hair dye, hoping that perhaps that allergy will leave as well.
When I consider the money I am saving by not needing hepa filters, allergy meds, the Allergist and his weekly pinprick....(which did no good whatever) and all the stuff I used to get in the health food store...I'm sure I spend less on the MP meds.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, , benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux
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Deb Grabetz
Moderator
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Posted: Sat Jul 12th, 2008 20:44 |
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Oh yes, Diana thanks for mentioning the allergies. I went through the same thing...tried an Ionic Breeze in my bedroom, plastic allergen covers on my pillows, used Seldane, Seldane D, took Allegra daily, *Flonase, *Nasalcort, tried homeopathic drops, allergy shots (*which were I'm sure only aggravative as steroids), seemed to react to everything, ...after a year on MP, the word allergy doesn't even cross my mind, it is like it disappeared from my"thought" vocabulary after many, many years! 
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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stoneyhill
Member
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Posted: Sun Jul 13th, 2008 23:49 |
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I don't know how to say this and be polite but it is an unexpected improvement that is appreciated much more by wifey than me.
Flatulence no longer is odoriferous.
A year ago the grand kids would run into the bedroom to awaken me with their grandmother and all shout, "Granpappy, you have night gas! PeaYoo."
Now, just the other day, I was at the kitchen sink with my back to wifey who walked up behind me as I broke a little wind. I turned and saw her. She frowned.
I said, "What?"
"They don't stink."
She smiled.
This improvement has made my diet of lotsa beans much more endurable for her.
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Sarcoidosis/lungs, HTN, CAD, arthritis, NIDDM, cataract, 125D48, 25D31, MP 2-29-08, Vacation 4-15-08, Resumed 4-25-08 | Aspirin therapy, lisinopril, metaprolol, omeprazole, NoIRs, lite exp r/t to work, cover up, 1-08 25D33, 5-08 25D16
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Joyful
Foundation Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | On Vacation |
| Posts: | 764 |
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Posted: Mon Jul 14th, 2008 01:45 |
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Hey Stoney, THAT is worth REPORTING for sure! Thanks for sharing.  
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MP Stories | Bacteriality | MP Search | MP Knowledge Base
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Elisabeth
Health Professional
| Joined: | Tue Feb 12th, 2008 |
| Location: | Missouri USA |
| Posts: | 127 |
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Posted: Tue Jul 15th, 2008 04:31 |
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This may sound lame compared to a lot of improvements, but it's just something I noticed....
I no longer am "sore" on the palms of my hands (especially the "heel" of my hand). I used to rub them all of the time w/ the thumb of opposite hand b/c they ached, were "stiff" and sore. I attributed the discomfort to "aging, arthritis, ???". Now I rub them (out of habit) and they're not sore or "stiff" anymore. They actually feel pliable!!
Also, MarkN: Even though I'm in my 40's I still struggle w/ oily skin, but am noticing it clearing/drying up as I progress on the MP. Pretty cool, huh?!?
Elisabeth
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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martysfolks
Member
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Posted: Tue Jul 15th, 2008 14:09 |
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I have some great news! Got my blood work results today.
Looking back on my posts, I said that my cardiologist was very concerned about my skyrocketing triglyceride count, cholesterol both HDL abd LDL were all wacky. (I've had 4 heart surgeries, been treated with statins and the CAD continued to progress.
She was begging me to promise her that I would go back on Pravachol. She wouldn't let me out of the office unless I promised. Now she is not a normal doc, she is a friend as well, but a rather uninformed one when it comes to this protocol. I have tried to enlighten her and she is not open.
Anyway, I promised, but did not take the Pravachol and my triglycerides continued to climb. I wrote and got responses from Meg and Aussie Barb. Even though the triglycerides were almost at fatal level, I continued with the protocol and trusted.
Well, congratulations to all of you and to me. My Triglyceride level went from 450 down to 125 without statins, change of diet or exercise. This is truly a miracle!
Thank you Trevor and the whole gang. I don't have problems with my heart rythms any longer and having my count drop like that was pure joy. Dolores P. Rosner
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Scleroderma, RA, MCTD, CAD, MP11/07 metoprolol, cardizem, metformin, amaryl, warfarin, slo-mag, aspirin, NoIR's limited outings, covered up, lo lux home 25 D less than 4
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Freddie Ash
Member
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Posted: Tue Jul 15th, 2008 23:52 |
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HI ALL
This is Fred in WV. I guess that I was different than all that have posted to this subject. I did expect all my health problems to go away. That may sound odd to every one here. But back in the mid 1980s when I would have something new going on I would say to my doc, "That is most likely do to the Sarcoidosis." He would say, "You can have other diseases besides Sarcoidosis." So like I said in another post in the last few days, WHAT OTHER DISEASES.
Nothing ever supprised me about Sarcoidosis. When I was diagnosed in Feb 1982, after 9.5 years of seeing a lot of doctors over that time frame, and I found out the doctors or nurses knew nothing about sarc I started reading in all the librarys and book stores that I could fine for info about sarc and make copies for a file I was keeping. Even doctors wanted to know what I had in my file.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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Kas
Member
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Posted: Thu Jul 17th, 2008 22:20 |
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I don't care if the MP takes me forever, as long as I am seeing improvements and my disease is not deteriorating. Although I have to take things slowly, ( especially due to kidney IP, which was manifested by the MP, but must have been occult) and have had many personal setbacks which have impeded the speed of my progress, I believe I am still way better off than someone who has been on pred for the same length of time as I have been MP'ing.
Here are some of what I consider to be my small successes:
-I have been able to continue working throughout my 13 months straight on the MP. It has not left me more fatigued at this point, nor am I am at all brain fogged - in fact, I would say that I have more clarity than ever and an excellent memory. I can remember the names of 35 students in a class and recall them within ten minutes. Working keeps me from focusing on any herxy type aches and pains and the contact with my colleagues is a tonic.
- I have not had a day of absence for illness the entire semester. I have no spleen, and against my doc's advice, I declined the flu shot and stayed well! I may never have it again, as I had the best winter of my lfe - no colds, no flus, no sinus infections, which used to plague me every month or two. I cannot believe those have vanished!! Dr M told me not to worry about a student in my class who has TB, I didn't and I was fine. My doc has remarked that my only visits to her are for MP checkups and bloodwork pertaining to it. As a result, my claims for medicines are negligible these days.
- I have always been a huge vaginal yeast sufferer. My doctor used to say she had never seen anyone with a probelm as bad as mine. Well, in my early MP days, I had more than my fair share of it, but suddenly, ( and I cannot believe this myself!), I hardly know what yeast is. I have boxes of Cannesten cream lying unopenend. Of course, the yeast beast may come back to bite me as I slowly move forward to larger doses of abx, but for now, the reprieve is better than chocolate!
- I am 53 years old. I am in perimenopause, but I have not even known a hot flash/flush and seem to suffer none of the problems ladies at this stage of life do. Granted, I do use a natural progesterone cream, and that may be doing me good, too, says my pro MP natural gyn. Staying out of the sun has ensured no crow like neck yet, and as a natural redhead, has kept freckles and sun damage at bay. I am still wearing my size 8- 10 clothes, and, to date, have no acquired the middle aged abdominal spread so typical of my age group. I have not even yet had to use hair dye. Could Benicar be the fountain of youth??!
- I have pre- diabetes, but since being on the MP, my sugar levels are within the normal range and I hope never to get the disease.
Have my lungs improved? Not sure, as I have refused my annual CT this year. I am having a LFT test tomorrow, so will see how that goes and I am hoping that things are not worse and perhaps even better. Has my liver improved ? Well, it's not worse - it is still waxing and waning, but I have every confidence that it will improve as I progress over time, and so will the kidneys which I never even knew were affected. My gummy knee still plays up from time to time, but I have held off on the recommended arthroscopic surgery for now and maybe I will never have to have it. Burning feet, one of my early symptoms, rarely occurs, ditto pins and needles in the hands and fingers. My dentist rarely sees me and I was his best root canal patient before!
Just shy of four weeks ago, I watched my dear mother die of COPD brought on by autoimmune disease. On the final day of her life, cancer was diagnosed - perhaps from the cytotoxic drugs, perhaps from the scarring in her lungs- we will never know. She was determined that I do not go the route she did and that I stay on the MP as long as possible to get well and not suffer as she did. I will honour her memory by doing just that.
LFT done today - no significant change from a year back! Yippee! One of the tests showing lung volume was better, one was a bit worse, but apparently only because I have low hemoglobin due to the anemia of chronic disease. So, I have not deteriorated and my pulm, she of little MP faith, never mentioned the P ( prednisone!) word once!! She wanted to do another chest CT, I told her I wanted to hang on until next year in Spring. No problem there. She will see me in 6 months for a spirometry test and that's it. Because my pulm visits are normally stressful for me, when she took my BP, it was a healthy 100/60 !!!
I left her office with a very definite spring in my step!
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Sarc Dx by splenectomy 03- Lungs, lymph nodes, liver. Non MP meds: natural progesterone cream three weeks a month; cal/mag; probiotics; milk thistle daily; cranberry caps prn; quercetin prn.Noirs outdoors and under flourescent work lights, Spectra 3 cream
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Elisabeth
Health Professional
| Joined: | Tue Feb 12th, 2008 |
| Location: | Missouri USA |
| Posts: | 127 |
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Posted: Thu Jul 17th, 2008 22:37 |
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VERY encouraging!
Thanks for sharing Kas!
Elisabeth
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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Freddie Ash
Member
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Posted: Fri Jul 18th, 2008 00:31 |
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HI KAS & ALL
This is Fred in WV. Kas said - "MY DOCTOR USED TO SAY SHE HAD NEVER SEEN ANYONE WITH A PROBLEM AS BAD AS MINE," reminds me of what my doctor in the 1980s once told my wife, "I NEVER SAW ANY ONE WITH SO MANY THINGS WRONG AS HE HAS." So I just kept on pluging along looking for a cure back then.
Two years ago, after I started the MP, a man that I have known since about 1978, he made the following statement, "I ALWAYS SAID THAT IF THERE WAS A CURE OUT THERE FOR SARCOIDOSIS, YOU WOULD FIND IT." I had told this man about the cure of the Marshall Protocol. Thank you Dr Marshall and all the staff here for that cure.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1396 |
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Posted: Sat Jul 19th, 2008 12:05 |
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I have just recently noticed the following improvement.
For years (even before becoming totally disabled), seeing the "Warning" on a DVD or any sign that might say "warning" or an equally alarming word (e.g., "stress," etc.) would put a scare into me even when I knew what the warning was about and had no reason to be scared. It seemed like such an irrational fear, but I would have to look away at the start of a DVD, etc.
Now, DVD warnings and other occurences of these words mean nothing to me (at least at the moment...the fear may return later for a while as I move into 3-way combos). However, right now I am enjoying the relief of not being ambused by virtually nothing.
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Dody
Moderator
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Posted: Wed Jul 23rd, 2008 04:19 |
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see also MP while working:
One other happy milestone to report, unrelated to work: My hair is coming in much more brown than grey, more brown than in a decade or more. I'm 63, and my hair color's coming back!! Yay, MP! I've been promising our 24-year-old son that I expected to be getting more healthy on the MP than I've been in years. I believed it--but now I REALLY believe it.
All best, Dody
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Lyme Arrhythmia Vertigo Meningitis Bipolar lithium tylenol cover up outside mod low lux inside ModPh2Jul07 Ph2Apr08 Ph3Feb09 D25 Oct09 7 Mar10 4
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Juanita
Member
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 529 |
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Posted: Thu Jul 24th, 2008 22:07 |
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I have less brain fog. Prior to the MP, I couldn't follow a thought to its finish. Couldn't read because I would forget the beginning of the sentence before I reached the end of it. Regularly got lost in my own 1100 square foot home. Often couldn't remember my own name. And now I'm mentally well enough to start college this Fall. Sadly, my MCS hasn't lifted enough for me to go, but that will change with time.
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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Jeannine
Health Professional
| Joined: | Sun Aug 28th, 2005 |
| Location: | Mississippi USA |
| Posts: | 665 |
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Posted: Sat Jul 26th, 2008 08:19 |
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I was very skeptical of the Mp and had many of the questions and doubt Pre Mp ..I never thought I would be at this mark in the journey!
TWO YEAR MP BIRTHDAY..Doing really good.. morgellons symptoms almost gone, Depression (suidical many times) none..only occasional herx, chronic sores gone, horrid sleepiness GONE, Eye sight-no longer need glasses, PMS getting better/changing, Panic attacks gone, negative thinking gone, hair not falling out, sleeping refreshed-the best it has been in my life, I feel bored a lot versus pre Mp I was to tired to get bored, I no longer feel toxic and like I want to die, My outlook on life is totally different, I am dreaming and making plans and thoughts of the future, my relationships are better, I can handle stress much easier, Skin is the best it has been in my life no more cyst acne on my face monthly, purple weird mark that appeared on abdomen gone, memory improving, seizure like activity gone, food sensitivities gone, eye floaters reduced greatly in size, stiffness in joints greatly improved, FM pain over greatly improved, throat glands rarely sore, low grade temp gone, wart on foot gone, my self esteem is coming back! I missed me and now I am back. Slowly like a beautiful butterfly.
I never thought in my life I would write any of that. I was as skeptical of the MP like many of the newcomers/outsiders. I still have fatigue, pain and brain fog to clear but I am only at the two year mark and have been taking the MP slow. If this is all I get which I doubt I could live a happy thankful life.
I can only say that if I ever have a son I have decided I will name one Trevor and the other one George ( after Georgeinrolla who brought me to take a closer look at the MP after contacting me after he read a newspaper article I was interviewed for about Lyme Disease). I vow to dedicate some part of my life to helping others with this life changing and wonderful science. Last and not least my other thank yous go to my doctors who listened and tried to help me with the best of their hearts and knowledge. God bless me with two wonderful ones! They have sustained me in my pre MP hellish horrid life! Now time to make a difference for others...Thank you also to all the others here words cannot express your help and kindness!
If your in hell like I was.. remember one day at a time and you will get there!
I am even thinking of what I will do for my first low key post MP job.
Thank you GOD! Jeannine
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CFS FM Lyme Morgellon's 125D49 Ph1Aug06 25D <4 april 08)Prozac Valium Aleve ModPh2May07 Ph2Apr08 NoIRs limited outings covered lo lux home
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Deb Grabetz
Moderator
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Posted: Sat Jul 26th, 2008 10:55 |
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Jeannine,
As a co-MP'er who feels I've been to hell and back over so many years too , reading your post truly brought huge happy tears, for YOU, for ALL of us!  Such a powerful post, I hope that every newcomer that comes to the MP will have a chance to read your post...because it's true, skepticism can get the better of us, I could not believe that I would ever be well, even though I had great faith in the MP from the beginning. With perseverence and the MP, we rock!
Namesakes, Trevor and George, what an idea!
God Bless you Jeannine! Hugs, Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Juanita
Member
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 529 |
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Posted: Sat Jul 26th, 2008 21:22 |
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Wow, Jeannine!! Wow! Thank you for this post! And congratulations!
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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caroldeleah
Member
| Joined: | Tue Jan 15th, 2008 |
| Location: | USA |
| Posts: | 57 |
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Posted: Sun Jul 27th, 2008 06:04 |
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Congratulations Jeannine!! My daughter will hopefully begin MP before fall and we look forward to her "return to health". It is so encouraging to read everyone's stories.
So you are a former resident of Winnipeg also (does that make four of us now?) Brings back old memories! I actually prefer that climate -- fewer muggy days in summer and no slushy winters -- means the skating rinks in Assiniboine Park and St Vital Park are open from November through March!!
Anyone else want to reminisce about Winnipeg? What did you all do for fun up there? Where did you like to shop? Where did you work and what was the reason you moved away? Do you ever go back to visit? What are the pros and cons about living in Canada vs US? What schools, if any, did you attend there?
Then again, maybe looking ahead is what we MPers would rather do?
Manitoba needs their first MP supportive physician (for all my relatives!! ). Maybe someday I'll be able to tell our story to my doctor friends up there, eh?
All the best, Carol
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Uveitis|HashimotosHypothyroidism|Thyroid Nodule|Arthralgias|RefractiveMyopia|1,25D34| Ph1Aug08|Ph2Nov08|Ph3Jun09|25D 6(02/09)|25D 9(12/08)|Combigan/Cytomel/RefreshPlusSgl/NoIRs
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Jeannine
Health Professional
| Joined: | Sun Aug 28th, 2005 |
| Location: | Mississippi USA |
| Posts: | 665 |
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Posted: Mon Jul 28th, 2008 07:11 |
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Thanks to all of you! In the peg, eh?...I loved the parks, going to lake winnipeg, they were all my favorite...I miss them! I miss the cold now that I am on the MP. I do not go back to visit. However I have very fond memories and would like to one day.
I think looking in the past when one is ill is like taking a vacation of sorts..well if your thinking good thoughts LOL.
I still find myself looking at others who were very successful professionally and use to be jealous...well I still am a bit but not nearly as much as when I thought I was going to have live disabled all my life.
Three CHEERS to the MP.
I think I will name my two girls Meg and Barb
You all take care and HUGS to each of you!
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CFS FM Lyme Morgellon's 125D49 Ph1Aug06 25D <4 april 08)Prozac Valium Aleve ModPh2May07 Ph2Apr08 NoIRs limited outings covered lo lux home
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