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expate
Member in Phase 2
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Posted: Mon Jul 28th, 2008 20:34 |
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Thank you all for sharing. It gives great encouragement to see positive gains but also how very brave people can be.
I've only been taking Benicar for two weeks, but I have been limiting D and exposure to light since April and had noticed changes even with that. So recent, unexpected improvement (and this is a little strange, but here goes): I had a small rough patch of skin at the very top of the back of each leg. Aussie Barb referred to this same thing in her progress report as the "seating area". They develpoed maybe three or so years ago. I just figured they were callouses from sitting.  Well, they're gone, just like that, in the last week. I didn't have any sensation of itching or stinging while they were there or while they were resolving.
Also, yesterday I started experiencing pain in one of my finger joints that is twisted. It has slowly come to that shape but never with pain, only occasional itching. Now it hurts to bend it and to touch it. But I take that as a good sign that some healing is happening in there.
Cheers,
 dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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eClaire
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Posted: Mon Jul 28th, 2008 21:01 |
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Before starting the MP, although I sometimes had dragging around energy (felt like walking death) for about 2 to 6 hours some days, I could not stand or sit up for any length of time. For example, even reclining on my recliner was limited to about 10 to 20 MINUTES at a pop, which is where I would sit to eat my meals when not too sick. (Most of the time even a six inch wedge for the bed left me feeling unrested and so could not be used...forget elevating my torso slightly for the GERD that was causing me to lose my voice.) After about six months on the MP I could recline in my recliner for as many as 8 HOURS at a time! Major improvement. (Of course, I no longer had the dragging around energy, as my neuro IP was pretty intense, which made walking more difficult. I didn't start getting more than about 20 to 45 minutes of that until about 8 months in and it is really variable, although usually the quality of the energy is better.)
My vision improved when I had my eyes tested after 16 months.
The best improvement, however, has been the disappearance of minor urinary incontinence, which doesn't feel so minor when it is happening to you. That improvement showed up about 8 months in (although it does flare for a couple of days a little here or there).
And I haven't minded one bit dropping 40 pounds with essentially the same low carb diet I was on pre-MP, with the big exception of having got rid of foods with added Vit D and folic acid on the MP.
I think I've also had some improvement in my brain fog, as overall my reading comprehension seems to be improving slightly.
Claire
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CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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Karon
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Posted: Mon Jul 28th, 2008 21:48 |
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Hello MPers,
I had unexpected improvments right away with just no sun, no D diet house dark, and then benicar. My RA symptoms changed from the previous 10 months of severe suffering! I could not lay down AT ALL EVER. I would try to sleep in a recliner for an hour or two which just made me so anxious and depressed. Hopeless....This went on it seemed like forever. When I did get an attack (and I always got an attack) it lasted for 48 hours. Then I would get a "free day" and then the attack would go to the same joint oppisite side for 48 hours. The antiinflammatories and pain meds just made it bearable. They never made it stop or go away. I took these meds all day every day for 9 months.The only surprise I had to look forward to was which part of my body would be next!!! The only thing that kept me from taking my life was my children at first... and then finding the MP. I said all of that to show how bad off I was.
In the first week of Beni I was able to LAY DOWN and sleep. Yes.. I had the hot cold flashes (blanket on blanket off) for two weeks. I cried at the drop of a hat and had to deal with hot flashes at any moment of the day. The sleep alone was worth that!!!
Then my RA symptoms changed. It would only happen after my two day work week and only lasted 12 hours. Always on Mondays!! I made plans for this. Monday was my "sick day" I planned to do nothing but rest ,and pallitate the pain with my MP meds and pain meds.
This worked for me. I welcomed the pain I knew was comming because now it meant something different! It meant that I was healing. I was able to almost eliminate the other meds. I still take them now, but only when needed. About 1x per week!!
When starting the Mino, I was hit hard with the first 25mg and 50 mg and 75mg within the first hour lasting for 24 hrs. My neck, shoulders, elbows wrists, and hands would fall asleep and hurt so bad but be gone the next day. I also have a sore anus which is decreasing a little at a time.
Now at the 100 mg of mino I have a "cold". This happened on the 3rd dose. But no pain!!!!! Today is monday! and for the First time I am not in any kind of pain or discomfort, just an annoying cough and runny nose almost gone!
The MP has givin me my life back!!
If nothing else, the mp protocol and meds have done more for me than any of the other drugs/meds did for me.
I will be starting PH2 soon and I realize that the next abx will be involving more tissue. This may mean more RA pain for me for a while. Although I am a little anxious, I am ready, I will be healing! It will be interesting to see the new scheduels and changes my body will have. I hope to keep my 2 day work week , and I will shoot for that.
For me EVERY THING has improved. EVERYTHING!!
I would love to hear about PH2 from the MP elders. What changed for you? What was unexpected? What was the hardest part of this Phase?
Maybe this should be a new topic????
So Very Happily Herxing in CA
Karon
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RA PTSD 125D73 25D20 Ph1Apr08 Naproxen Tramadol Valium-stoolsoftnr-Lowlux Home & Work NoIRS cover up
25D14.4(Jul08)Ph2-Aug08
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Dr Trevor Marshall
Research Team
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Posted: Tue Jul 29th, 2008 03:17 |
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Karon,
It is fine to discuss generalities of phase 2/3 in a general topic like this. The reason we keep discussion of medication/dosing out of public view is because people can get themselves into a lot of trouble if they try to progress without the guidance, and experience, of the moderators
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Karon
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Posted: Tue Jul 29th, 2008 04:12 |
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Sorry Dr. T. M
I need more practice.
No meds or dose to be mentioned again... even for phase 1 !
Thanks for the heads up!
; )
Karon in Ca.
Last edited on Tue Jul 29th, 2008 04:14 by Karon
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RA PTSD 125D73 25D20 Ph1Apr08 Naproxen Tramadol Valium-stoolsoftnr-Lowlux Home & Work NoIRS cover up
25D14.4(Jul08)Ph2-Aug08
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Michele MBK
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Posted: Tue Jul 29th, 2008 05:38 |
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The antiinflammatories and pain meds just made it bearable. They never made it stop or go away. I took these meds all day every day for 9 months.The only surprise I had to look forward to was which part of my body would be next!!! The only thing that kept me from taking my life was my children at first... and then finding the MP.
Karon,
This rings so true for me, too. Thank you for posting. It was very interesting to hear your description of RA. I was dx-ed with RA last Sept '07. The pure hell I went through was unbelievable. I tried every kind of pain medicine and anti-inflammatory. The only one that helped the pain a little was Relafen and that started to eat my stomach.
Fortunately, I made the acquaintance of an MP angel (John McD) shortly after my dx. In asking him about AP research, I asked him if there was further and current research following Dr. Brown's work. Boy did I ask the right person that question!  This MP angel so very patiently explained the science behind my disease and a very different kind of treatment: MP or AP.
While rheumatologists openly say they don't know what causes RA, and that they don't know why their drugs like MTX work, here was some guy from the internet claiming to know the cause and a treatment plan that works. His scientific description made sense to me.
I tried AP first because it was more appealing to me on the no sunlight restriction side of treatment. But my immune system is not so blocked and the antibiotic without Benicar was sheer hell to experience because of the resultant runaway IP. It was beyond joint pain, it was full body pain. For example, a 50 mg dose of antibiotic gave me such a huge die-off reaction, I ended up in the ER. I had die-off in my lungs, ribs, muscles, and joints. With the help of an experienced AP doc, I backed way down on minocin. I was barely able to tolerate 3 mg of minocin. Throughout pre-MP I had trouble getting to sleep and staying asleep because of the pain. Although I looked forward to getting to sleep because it was the only time I was ever out of pain. The description list of life from this horrible time is too long to put here.
It took a lot of planning to get ready for MP, as every MP-er knows! Other MP / RA angels joined in patiently answering my questions (Carol and Ival) along with the curemyth1 advocates. Within 3 weeks on Benicar only, I was able to get around a lot better! I was sleeping a lot better and longer. After my AP experience, I was terrified to start 25 mg of Minocin, but compared to the runaway IP I had on AP, this was completely tolerable. 50 mg of minocin has been conquered and today was my first 75 mg dose. Benicar is my friend! Hurray!! In December - May, I could hardly walk across my house, my kids and husband could not touch me because of the resultant pain from the hypersensitive state my body was in. Many times I was too sick to sit at the table to eat. Tonight I was walking and jogging around a track by my kids elementary school...after sunset, of course! It feels great!!! And I can participate with my family and give / receive great hugs again!! 
The changes / improvements I have experienced in a short time on the MP have been unbelievable! The biggest is the reduction in pain. Other than MP meds, I rarely take another pain medicine. I feel very very blessed.
I thank God every day for Dr. Marshall, his protocol, my caring rookie MP doctor, my very supportive family and friends, and all the wonderful MP-ers who help each other along on this journey to recovery!
Thank you so much, Dr. Marshall!!!!!!!!
MicheleLast edited on Tue Jul 29th, 2008 06:31 by Michele MBK
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RA 125D30 D2516 Ambien Elavil Vicodin low lux home NoIRS cover up Ph1May08
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jrfoutin
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Posted: Tue Jul 29th, 2008 18:00 |
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Success stories has many, many improvements noted and should be mentioned on this thread for reference. Aussie Barb has cultivated a garden of delightful proof-of-concept share-the-joy discovery moments for years. See MARSHALL PROTOCOL SUCCESS STORIES Members Testimonies of their improving health >> individual LINKS here.
Similarly, Amy Proal's http://bacteriality.com/ site is also has a wider individual biography scope per individual, under her "Patient Interviews" subsection.
The thing that strikes me most is that it seems those on the MP are a very unique group that can't help but be grateful for the progress they see. They feel compelled to tell others about it. This is a phenom I have not seen elsewhere on any other boards that are identified with illness.
Probably as much as the pathogenesis and protocol, this repeated compelling phenom to say more about the MP Proof, alone, needs to be noted. We orchestrate a powerful value about the truth of the MP in a remarkable way. It just does not have an equivalent elsewhere.
I agree with Julia, too, that the scope of focus for improvement has included a wider range of options than I had initially expected would be needed to consider myself "well."
Absolutely, bonus packages arrive frequently on the MP if one pays attention and notices. Just remember, many times the change is slow and subtle, "creeping up on you", just like Belinda said in What degree of healing is possible using the Marshall Protocol?
Best to all--Janet
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2
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Karon
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Posted: Tue Jul 29th, 2008 19:34 |
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Hi Michele,
Funny thing...Ive been following you on your MP journey. We are so alike that it gives me comfort to see where you are at. 
I am not in the study yet but close to starting PH2. I have been excepted but no official invite to start posting yet.
I am patiently waiting before I begin my new abx.
Don't want to stay in PH1 to long due to clean places being dirtied by new invaders.
How far do you think you are from PH2? I can't remember your last dose post. I will have to go back to the MP site to remember. Brain Fog!!! 
I know you are close to me in this journey. Did I already say that ?!
Anyway.....an official HELLO GIRL
Your MP Sis
Karon in Ca.
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RA PTSD 125D73 25D20 Ph1Apr08 Naproxen Tramadol Valium-stoolsoftnr-Lowlux Home & Work NoIRS cover up
25D14.4(Jul08)Ph2-Aug08
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Michele MBK
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Posted: Wed Jul 30th, 2008 05:28 |
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Hi Karon,
I understand about watching other MP-ers who progress at a similar time-frame with a similar dx. While we all have bugs, I do wonder how the CWD decide where to live to create different symptoms and diagnosis. It's good you are accepted into the study and great that your doctor has already started you in the protocol. Do they have other MP patients and experience? I'm the first patient with mine. I love my doc! He's pretty outstanding!
As you probably have noticed, I'm moving slowly through phase I. I had hoped to start phase II before I have to go back to work (I teach) so the roughest transition would be over, but I had a set-back with strep throat and decided not to risk increasing while visiting family. It's hard to predict how long it will take to get there, but as long as I am tolerably herxing, I know I am making progress. This level of mino is currently creating a herx in my lungs, so I will be cautious. It's that "slow and steady" mantra that really sticks in my mind!
It's cool to have an "MP sis!"
Game on, woman!
Michele
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RA 125D30 D2516 Ambien Elavil Vicodin low lux home NoIRS cover up Ph1May08
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Karon
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Posted: Wed Jul 30th, 2008 21:11 |
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Hello Michele,
I too have an excellent Dr. It took a while to convince her to trust me(about 6 mo)
But they (the whole office) can't even believe that I am the same girl that they knew almost 1 year ago. I am the first MP patient in this county as far as we know!
I too am very courious as to why certain symptoms for different people and how the bugs choose. Someday with all the site data we may find an answer. Anyway.... a cat is a cat no matter the color right!?
I have anxioety about teaching this year. I homeschool my 9 year old. I may not do this this year. We have alot of trouble with the public schools here in SLO county. Mostly Paso Robles where I live!! I am going to try for Montessori... You have all my respect  I was not blessed with that talent or calling.
Did your RA hit you suddenly? Did you have any other symptoms before the RA.
I was blind sided almost overnight. Started with a hand injury at work and then BAMM!
At least that is the TH1 symptom that showed its ugly face first.
Hope you are having a pain free day too!
Thats right mama...Game On!
Love from your MP Sis
Karon
P.S. Forgive my spelling and grammer teach wish there was spell check!!!!
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RA PTSD 125D73 25D20 Ph1Apr08 Naproxen Tramadol Valium-stoolsoftnr-Lowlux Home & Work NoIRS cover up
25D14.4(Jul08)Ph2-Aug08
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expate
Member in Phase 2
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Posted: Wed Jul 30th, 2008 22:30 |
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Unexpected improvement:
I don't have to spend time applying mascara or other eye make-up. No one can see behind my NoIRs.
I don't feel guilty about not spending hours working in the garden in 105 degree weather.
Oh, and no exposed skin, no mosquito bites. They LOVE me.
dette
Last edited on Thu Jul 31st, 2008 02:27 by expate
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Santa Monica
Member in Phase 2
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Posted: Mon Aug 4th, 2008 04:03 |
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Michele and Karon,
It's good that you are following everyone's progress. This is the best thing about the MP website -- to know that we are not alone in our journey.
I was also concerned about going too slowly in phase I. It seemed to me that, like reading a good novel, the more I concentrate, the better. But as long as you don't stay in phase one for too much longer than the moderators advise, you'll be OK. The MP takes years to complete, and you have a long way to go.
I am in the early part of phase II, and, on the advice of the moderators and others on the site, I am moving VERY SLOWLY so as not to increase my IP to intolerable levels. I am different than many people on this site in that I am not housebound and have to be outside for a large portion of every day days for work and life. You have to find the balance that works for you so that you can continue safely on the MP.
As for improvements, my fiance says my hair is more lustrous, my hygenist says my gums are pink and healthy, my digestive system is working like clockwork again, and my skin is clear. I also have better breathing walking up stairs etc. with no cough. I no longer have to blow my nose twice a day.
This is not to say my life is perfect: I sometimes miss a day at work to accommodate stronger IP (I try to plan for these breaks by adjusting meds so the worst of it happens on my day off, or I schedule a day off to rest and make up for it later); I get irritable, anxious and claustophobic in the sun with all my clothes, gloves and hat on; and I still have trouble falling asleep (I know this will get better).
Thdere are other things I can complain about, but I'm sure you've read a bunch about it, but one thing you can be sure of is that you will get better, and if you're anything like me and alot of other people here, you'll start to notice it (for real!) in 6 mos. to a year. The improvements you'll make will be a miracle to you and those who love you.
Hang in there. The journey of a thousand miles begins with one step.
Mindy
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Sarcoidosis/lungs, CFS, Hashimoto's |Jan '08 125D 43, 25D 24|MP Phase I Mar 08|Apr '08 25D 32 |MP Phase II May 08|Armour, Lunesta, NoIRs.
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Michele MBK
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Posted: Mon Aug 4th, 2008 05:24 |
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Mindy,
Thank you so much for your encourging post! I too will be back to work daily soon and am apprehensive about how my diseased body will tolerate the stressors my job entails.  Your note about taking it slow to keep IP tolerable is my short term MP goal with full recovery being the end goal! It's very encouraging to hear you say you are working through this. What do you do?
Karon,
You are definitely incredible if you can teach your own child! My two don't take "instruction" well from my hubby or me and we are both teachers. So those parents that homeschool their children have my full respect!! I teach at a university, so unlike my hubby who teaches middles school, I have a different life stage. I taught younger kids with raging hormones in middle school and it sent me back into higher education after a couple years!!! God bless those who teach that age group! My hubby is a magnet for kids that age. They just like hanging out with him.
To answer your question, my RA started slowly. Slowly enough that I didn't attribute it to anything but getting a little older or work related repetitive stress injuries. I didn't recognize it was systemic until it flared like a raging bull last Sept. Within 1 1/2 weeks I was in a full body flare and had difficulty walking and holding things. My chiropractor and very good friend told me that what I had looked systemic and I should see my PCP and tell him to do some blood tests. I had no idea at the time what she meant by systemic. The RF was 104. Sed rate and all other markers normal. I knew absolutely nothing about RA and didn't comprehend it for a long time. I'm not sure I really do comprehend it yet! At the RBF site, Lyme is discussed in detail and recognizing that I could have Lyme I had my blood tested at IGeneX. I do have some positive bands of Lyme, but not enough to be considered "Lyme" by our US CDC standards. It is enough to be considered Lyme positive in Scotland, however! Now I just know that's part of my overall "pea soup" of pathogens. I've had pneumonia 3 times and bronchitis more than I can count following multiple strep throats. Beta Lactim medicines were largely used in treating these infections. So, I'm sure there are many CWD critters that were born from those illnesses. I've also broken a hand and in a different accident was thrown by a horse and broke a transprocessor in my back. More immune stressors.
Significant factors related to sunlight exposure and localized flares or fatigue were things I could relate back to after studying the MP site. Significant pain in my feet and fatigue occurred at the beach last summer. Hiking the Grand Canyon Rim in full sunlight led to feeling shaky and fatigued by the end of it. I thought I was nervous about missing our train connection, but now I know it was sun exposure. Over the last year or so, I stopped enjoying shopping. After about an hour, I'd get fatigued and just want to leave the stores and go rest. Now I relate to the florescent lights as being sources of evil energy. They still affect me very quickly. There are more sun exposure incidents that I now connect to disease, but I'll just list these couple significant ones for examples.
Today, I hiked on a mountain trail for about 50 minutes. It wasn't steep but pretty rocky. I pointed out to my boys tonight what a blessing the MP is and how much better mom is doing now with this new treatment. It is really a priveledge to be a part of this monumentally important clinical study. It's certainly not easy, but worth it!
Michele
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RA 125D30 D2516 Ambien Elavil Vicodin low lux home NoIRS cover up Ph1May08
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Santa Monica
Member in Phase 2
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Posted: Mon Aug 4th, 2008 06:21 |
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Michele,
I work in a flooring showroom that has lots of windows (I keep the windows near my desk covered), but I am often walking around with customers and can't avoid the natural light that comes in. I often have to remove my glassses to see color when I am helping my customers make their selections. On high IP days, my eyes are more sensitive to light, but there are days when it does not bother me too much. I also must go to the homes of my customers to measure etc. Usually on days when I take my glasses off too much I am exhaused by the time I get home. Using my "personal toolkit" helps.
If you plan to keep working while you are on the MP, and, let's face it, many of us have to, slow and steady wins the race. It took some convincing by the moderators, advocates and other friends I have made on the site for me to embrace the idea that as my D level lowers, the threat of uncontrollable IP goes up, so I am moving through each step with great care. I know I am going slower than many, but I'm still getting better -- every day yields improvement.
One other unexpected change: There are times when my sense of smell, which has always been good, gets so strong that I can smell things with such intensity that others are surprised by it. It goes back to normal in a day or so, but overall it has improved, I think, because my sinuses are clear!
Take care,
Mindy
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Sarcoidosis/lungs, CFS, Hashimoto's |Jan '08 125D 43, 25D 24|MP Phase I Mar 08|Apr '08 25D 32 |MP Phase II May 08|Armour, Lunesta, NoIRs.
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Karon
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Posted: Mon Aug 4th, 2008 16:32 |
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Hi Mindy,
Nice to hear from you . Slow is the way to go for sure. I feel my pace is perfect for me. I also can work around my IP's at least in this phase.
I work in a dark bar with no natural light and only two days a week. Perfect job for the MP
I am blessed and so very greatful.
I was a lucky one starting the MP. I felt better right away and started "improving" just as fast. I am early in my symptoms of RA. I was very cautious from the start and followed the MP guideline (No D Diet, No light, always NoIRS and lay low) pretty much to the letter. I know this made everything so, so much easier. I read so many posts from people that had a harder time because of light/sun exposer.
I can't wait to see what IP surprises are in store for me that have been lerking under the surface for years. Phase 2, I think will show me. We are not that far from eachother. Maybe some night we can meet in the future for an MP celebration I know there are a lot of others close to us here in Ca. too!
Hope your IP's are all tolerable!
Nice to meet you
with love from another MP Sister
Karon in Ca. (SLO County)
Michele,
I can look back now too and see when I had way to much sun. Gardening for 8 to 10 hours, no gloves in clay soil (OCD maybe? ) Long days at the beach  Too much stress! Bad relationship way to long.
High D content foods as well as D supplements . Seafood, sunflower seeds, muchrooms Egg Yolks, and Mayo where my main D foods for the last 3 years. OOPS!!!
I too had a high a RNA factor this year and for years a abnormal white blood count and protein in my urine. Never treated just a "hmmmmm" from previous Dr.'s .
I also had several UTI's and kidney infections for the last 8 years after my urgent C-Sec. I suspect I will be revisiting this as an IP while in PH 2. I am ready to anyway.
Your husband is a hero too! Will he be going on the MP?
My daughter 24 and my son 9 will both be going on the MP in the near future. Me first so I can help them with confidence and ease. Even my ex will be MP-ing by next year!
July flew by like it was one day. School is right around the corner !
Hey!!! I know...You and your family can move here to Paso Robles and open a Montessori school so that I can place my son with loving teachers that understand the MP.
Its all about me ya know . This would make my life almost perfect!!
What do you say? When are you comming???? LOL
Have an awesome RA free day Little Mama
With love from your MP Sis
Karon
P.s. Game still on!
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RA PTSD 125D73 25D20 Ph1Apr08 Naproxen Tramadol Valium-stoolsoftnr-Lowlux Home & Work NoIRS cover up
25D14.4(Jul08)Ph2-Aug08
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eClaire
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Posted: Mon Aug 4th, 2008 17:22 |
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Unexpected improvement....
Today I remained standing while putting on my socks (that is, I didn't sit on a chair or the bed). Sounds simple? This is the first time I have done that in about seven years. Even the idea of balancing on one foot took too much energy before.
Claire
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CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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Juanita
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Posted: Mon Aug 4th, 2008 19:15 |
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Speaking of feet! Thanks for reminding me, Claire. I used to have such bad splits on my heels, I would bleed into my socks and walking was painful when that happened. Now I rarely have to even scrub the dead skin off my heels. Which, of course, makes me feel prettier.
I also have WAY less bowel gas and I no longer clear a room with the family screaming ewwwwwww! That also makes me feel prettier.
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D| Sept 21/07 25D-40.8ng/ml| May 7, 07 1,25D-35.8pg/ml
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eClaire
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Posted: Mon Aug 4th, 2008 20:09 |
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| Juanita, What you say gives new meaning to the saying, "Pretty is as pretty does."
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CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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natalie17
Advocate
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Posted: Fri Aug 8th, 2008 04:52 |
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This is going to sound strange but I really wanted to share it -
Today I feel happy. Now I've always thought I was a happy and positive person - so has everyone around me, but today is different. I woke up with this huge excitement for life. I havent felt like that since I started feeling ill in early 2005. It's like I didn't realise that there was some higher state of happiness that could be acheived - and now I am there. It is a fantastic feeling.
I imagine in time I will feel the same about my health - I will get to 'feeling good', then reach 'feeling better than I ever remember feeling' as so many success stories report.
The future is definitely exciting, for all of us
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CFS/ME from June05| Ph1-July07| Ph2-Feb08 | Natalie's Story | ABCofMP
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Deb Grabetz
Advocate
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Posted: Fri Aug 8th, 2008 13:33 |
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Nat- It makes me happy inside just reading your post! I'm 51 and when I start feeling sorry for myself (and yes, sometimes I do!) I'm able to quickly put aside these negative thoughts by thinking of someone who is young, as you, and just starting out in life...You deserve the wellness to live a full life and I know with the MP, you will get there! Keep that happiness flowing...
Now, for a post in this thread...I just realized something that has disappeared *magically* since I've been on MP...Before my dx, my sleep was interrupted sometimes 3-4x a night with sleep apnea type symptoms. I would *startle* myself awake, as if I either had stopped breathing or could not get enough air. My pulm doc was going to send me for a sleep apnea study but of course, after a period of time on the MP, this disappeared. No surprise eh? It is always so exciting for me to realize "another symptom has left the building"!!!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
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