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Juanita
Member
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 529 |
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Posted: Wed Aug 13th, 2008 18:29 |
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Holy Hanna! I had forgotten that! My fella, Martin, used to do that throat scratching thing and I just about left him in the first summer of our marriage over it. Every rag weed season that noise comes back like geese returning home at the end of winter. Honk! Honk! Honk! Oh, the fights we had about that! 
What a silly thing to fight over, eh?
And this year? NOT ONCE! And all I noticed was that his allergies were better. If you hadn't brought this up, I wouldn't have remembered.
And between us... I used to do it too, but I grew up with fussily mannered parents so had to learn how to scratch without sound. Martin grew up with farm folk where bodily noises were understood. Which is good, because I have bowel gas IPs that are very noisy!! 
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1396 |
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Posted: Wed Aug 13th, 2008 20:27 |
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| TMI
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Deb Grabetz
Moderator
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Posted: Wed Aug 13th, 2008 23:49 |
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You two just keep me laughing  .....they say laughter is the best medicine....
Well next to the MP, of course....and if that's true, you both are helping me
heal...THANKS! Bowel gas, for the love of pete...If I'm lucky enough to get back to work, you are not welcome on my plane!
xoxo
 
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Adrianne
Member
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Posted: Thu Aug 14th, 2008 02:39 |
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You THREE are keeping me laughing!! If laughter is good medicine, we should all be well in no time! Last edited on Thu Aug 14th, 2008 02:41 by Adrianne
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CFS Ph1Jan07 ModPh2Apr07 Ph2Aug07 Ph3Feb08 L-tryptophan benadryl famotodine 25D9.1(Mar07) NoIRs limited outings covered
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Maureensew
Registered
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Posted: Thu Aug 14th, 2008 02:45 |
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I do the throat scratching thing too!!!!! I use to do it when I was a teenager and it would drive my sister crazy. I shared a room with my sister and when we would be going to sleep she would yell at me to STOP IT!!!! I wouldn't even be aware of it. I continue to be amazed at the similarities with odd symptoms that exist with this TH1 disease. Each step like this adds more certainty that I am on the right path to renewed health.
Blessings to all! Maureen
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Maureen FM PH1 July08 125D75 25D33 (Apr08) 25D28(Aug08) 25D 20(Oct08) 25D19(Dec08) Ph2 Oct08 omeprazole diazepam acetaminophen hydroxazine restart ph1 apr09
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expate
Member
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Posted: Thu Aug 14th, 2008 02:49 |
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I had to alter a pair of my daughter's jeans which involved ripping seam with some heavy stitching. The last time I wielded a razor blade for such work, I couldn't finish. My hands cramped so badly and then just lost tone.
Well, I have one happy daughter! And one happy me! My hands are working for me again.
dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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kenc
Member
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Posted: Sun Aug 17th, 2008 04:02 |
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My dentist is going to take pictures next week so that he has a record of the amazing improvement in my gums - they're growing back!
My optomitrist has given me a new lower prescription - 1 diopter less for myopia.
The arthritis in my hands has disappeared.
Most of the psoriasis has disappeared.
Now I'm waiting for the diarrhea, anemia, low energy and low weight to vanish.
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Crohn's Disease 1984, 24May05 1,25D=33 25D=8.4 6Sep05 1,25D=29 25D=12, 12Jul05 Beni+pred, 27Sep05 Mino, 12Jul06 Phase2+dexa ,12Jul07 1,25=16.7 25D<10, 14Aug07 Phase2
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Juanita
Member
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 529 |
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Posted: Mon Aug 18th, 2008 15:07 |
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Gums growing back. Yay! Both my parents had to have several gum surgeries and mine started disappearing in my twenties. Tooth and gum care have always been a big deal for me in the hopes of avoiding what my parents went through. Plus, I had to have twelve teeth filled when I was thirteen, so paranoia has been my friend for thirty five years.
I've read of other people's teeth and gums responding to their MP, but mine has been slow in that regard. I just passed the one year mark and only last week did I begin to notice that my gums are looking healthier and... I think.... yeah, I think there is more gum. I keep going to the bathroom mirror to peek.
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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Deb Grabetz
Moderator
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Posted: Mon Aug 18th, 2008 15:14 |
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dette...Now that just brings on big happy tears from me...to you
Ken, I've experienced some varying IBS with my sarc and it's not fun, surely nothing close to what you've been dealing with...but good to see that you are making progress with many things....full sail ahead!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Jon
Member
| Joined: | Thu Apr 19th, 2007 |
| Location: | |
| Posts: | 7 |
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Posted: Mon Aug 18th, 2008 17:20 |
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As a RA sufferer, with alot of OA from my RA, the Benicar blockade immediately took 99 percent of my Joint pain away. It was like magic. It had an amazing anti inflamatory property for me. I wonder if people not on the MP who take an ARB realise thier getting a double benefit..lol. Jon
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Dr Trevor Marshall
Foundation Staff
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Posted: Mon Aug 18th, 2008 18:17 |
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Jon, people who are not aware of the MP science do not take Benicar in a manner which gives palliation - in fact, for many of them, once-a-day dosing will make the pain worse as the symptoms wax and wane...
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Markt9452
Member
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Posted: Mon Aug 18th, 2008 21:17 |
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Ken - I didn't think it was possible for a persons gums to grow back. I've been told that doesn't happen. That's very encouraging and really amazing.
Mark
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Th1 Lyme 125D20 D2510 Ph1Feb08 Ph2Apr08 daily lite exp covered up NoIRs| MyStory|
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Adrianne
Member
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Posted: Tue Aug 19th, 2008 02:26 |
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I just realized that the glands in my neck which had been swollen for many, many years are not swollen anymore! 
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CFS Ph1Jan07 ModPh2Apr07 Ph2Aug07 Ph3Feb08 L-tryptophan benadryl famotodine 25D9.1(Mar07) NoIRs limited outings covered
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Deb Grabetz
Moderator
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Posted: Tue Aug 19th, 2008 11:02 |
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Adrianne, That must seem astounding to see such a change! Yeah!
My post today is a bit on the vain side  but my eyelashes are coming back and full like they used to be!!! I've always had these awesome eyelashes, that came with my bushy eyebrows...hahahaha! Of course the bushy eyebrows you just keep shaped up...so not a bad trade off! At some point there were even gaps on my eyelids...and before I derailed I was blaming it all on age...!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Adrianne
Member
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Posted: Tue Aug 19th, 2008 14:11 |
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Deb, you mentioned in one of your posts that the swelling in your glands was gone and that prompted me to check mine. Otherwise I might not have even noticed it!
Great news about your eyelashes!! So encouraging! I'll keep an "eye" on mine as they too used to be long and full and they have been rather sparse for a long time.
Adrianne
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CFS Ph1Jan07 ModPh2Apr07 Ph2Aug07 Ph3Feb08 L-tryptophan benadryl famotodine 25D9.1(Mar07) NoIRs limited outings covered
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Deb Grabetz
Moderator
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Posted: Sat Aug 23rd, 2008 11:28 |
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In the past I've reported *thickening* tissue in many different areas of my body. (To give some idea what it felt like would be a tight muscle, although it wasn't muscle!) Most commonly an area in my back, back of my thighs near knees, butt, and thighs seemed to be the worse areas. I noticed this long before I flared but didn't give too much thought. All of this tissue is now softened up with only one tiny area left, which runs along a rib in my back!!!
Yesterday I had one of those days...I felt good all day...like myself, what I could remember during a good run, when there were no sarc symptoms! It was both exhilarating and scary for me...this happened a few weeks ago also, I had almost a full week of mostly wellness...it just came and then disappeared! I wrote to an MP friend that when I feel really well like that, it is like being a fish out of water.
I've become so accustomed to being so completely sick, every single day for almost two years now, that when this healing shows itself I'm feeling somewhat helpless! I feel a bit like a child who has never been exposed to the world! ...or learning to take his/her steps after being unable to walk. It is truly the strangest thing to be going through, for someone like me who was always active and out in the world!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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terrylmcc
Member
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Posted: Tue Aug 26th, 2008 18:06 |
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OK Folks,
Heres a new one. While watching television, or when I find something funny, and have to laugh out loud. In the years prior to the MP, I would have an automatic cough that would interrupt my laugh. Not just a soft cough, but a sort of coughing fit.
Recently I have been laughing out loud, and shocked when the coughing fit is no longer there. Sometimes I do cough while laughing. But i would say there is a 90% improvement. So I'm going to give credit to the MP for this one.
Anyone else? Best Terry
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Sarcoidosis/lung biopsy hx uveitis Ph1Jan07 ModPh2Apr07 Ph2Dec07 Ph3Feb08 NoIRs lite exp r/t to commute
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Deb Grabetz
Moderator
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Posted: Tue Aug 26th, 2008 18:37 |
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| Yes, Terry (Michigan neighbor!) I have done this same thing for years. I've played Bunco with a regular group for 25 years and as long as I can remember when we start laughing too hard, I cough, cough, cough. It always seemed odd that I was the "only one" that coughed like this but of course, didn't know I had sarc until a couple years ago....Although I've only been on the MP for a year, it has lessened. I still cough but not as hard and often not at all, guess it would be safe to say your 90% improvement is a very Good observation
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Elisabeth
Health Professional
| Joined: | Tue Feb 12th, 2008 |
| Location: | Missouri USA |
| Posts: | 127 |
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Posted: Tue Aug 26th, 2008 22:14 |
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This is a happy one:
The other night I was sitting beside my husband and he said, "What are you smiling about?!?". I then realized that I was unconsciously smiling for no reason and couldn't remember the last time THAT had happened.
I've been uncomfortable for so long that I think I'd gotten so I hardly smiled, even when there was a reason to do so; I am thankful - for all of us!
Elisabeth
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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Michele MBK
Member
| Joined: | Fri Jan 4th, 2008 |
| Location: | Virginia USA |
| Posts: | 69 |
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Posted: Wed Aug 27th, 2008 03:11 |
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Terry and Deb,
I also have coughed for years when laughing. It started following my first pneumonia 20 years ago. Come to think of it, that's when my first "rib pain" occured too. So glad to know this will get better! Did you have lung herxing to rid this? My "cold?" continues with productive coughing and I'd be much happier assured this was IP and ridding my system of CWD.
Elisabeth, for months I didn't / couldn't genuinely laugh or smile. I had nothing left. Pain was totally overtaking my whole body. Now I feel an inner glow coming back. I can laugh and smile again. There's still much work for MP to do, the pain is much less, but there is more to be done. Onward!
MicheleLast edited on Wed Aug 27th, 2008 03:12 by Michele MBK
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Lyme / RA 125D30 25D16 Advil / Vicodin or Celebrex low lux home NoIRS cover up Ph1May08 Ph2Sept08 May 09D25:6
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