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Deb Grabetz
Moderator
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Posted: Wed Aug 27th, 2008 07:44 |
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Michele,
Yes, I couged and coughed after starting MP. Sometimes very productive. Within a few months I started feeling this new *depth* to my lungs that honestly, I could not remember ever having...It was great! There is still mild activity going on in this area, so I know the healing continues! Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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eClaire
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| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
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Posted: Wed Aug 27th, 2008 13:19 |
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I'm actually scared of the coughing everyone talks about. I used to get lots of bronchitis, my lungs would get hyper reactive, and I now have mild COPD, and as of yet, I've had little lung involvement even after 21 months on the protocol (even though I expected it right away). I'm trying to use your stories to make me brave when my time arrives.
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Elisabeth
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| Joined: | Tue Feb 12th, 2008 |
| Location: | Missouri USA |
| Posts: | 127 |
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Posted: Wed Aug 27th, 2008 23:03 |
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Rock-on 'MP Sis'!! (It's wonderful, isn't it?!?)
Elisabeth 
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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Elisabeth
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| Joined: | Tue Feb 12th, 2008 |
| Location: | Missouri USA |
| Posts: | 127 |
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Posted: Fri Aug 29th, 2008 15:36 |
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Oops! Realized I didn't "address" above post - which was directed to Michele.
Apologies,
mE
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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Elisabeth
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Posted: Fri Aug 29th, 2008 15:39 |
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Another improvement I've noted of late is that within the past month or so I've begun being able to stand in the kitchen long enough to prepare one, and sometimes two, dishes for a meal about once a week, depending upon how long the prep. time for the dish is, and the amount of heat from oven, etc.
Before I couldn't handle even the light necessary just to read the recipe/directions on the container, much less standing - or even the heat from the oven; I would almost pass out.
YEAH!!
E
Last edited on Fri Aug 29th, 2008 15:53 by Elisabeth
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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Michele MBK
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| Location: | Virginia USA |
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Posted: Fri Aug 29th, 2008 19:41 |
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Deb,
Thanks for sharing about the coughing. Now as the rib pain IP starts kicking in and the cough is productive, it is more reassuring than disconcerting.
I totally thought MP-ers were CRAZY before experiencing this myself when I'd read people HAPPY about herxing. Now, I understand completely. And I am happy that while I feel the discomfort of herxing kick in this afternoon I can feel happy about it because this morning was pain free and the herx fits the predictable timetable as set out by our outstanding research team! The best part is knowing that it will go away and not stay 24/7 and I am recovering health while doing so!!
Elis, glad you are feeling stronger!!!!
Claire, Thanks for the frittata, books and conversation!
HAPPY IP everyone,
MicheleLast edited on Fri Aug 29th, 2008 19:42 by Michele MBK
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Lyme / RA 125D30 25D16 Advil / Vicodin or Celebrex low lux home NoIRS cover up Ph1May08 Ph2Sept08 May 09D25:6
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eClaire
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Posted: Fri Aug 29th, 2008 20:15 |
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This morning I was writing a TOTALLY BRILLIANT POST when all of a sudden the HGTV site appeared in my browser and my post was lost (you'll have to trust me that it was brilliant  ).
I was posting not about me but about Michele MBK and HER IMPROVEMENT.
On March 8, Michele came to visit me to calm her jitters about the MP. I wouldn't indulge her and basically said, "Youse take the leap and you land where youse lands." Or something to that affect.
At any rate, the woman I met on March 8 came into my home with her shoulders rounded over in a protective manner and she slowly moved about as someone trying to protect a body in a lot of pain. Pain was evident in her face.
Fortunately, Michele was in the half of MPers who feel better after taking Benicar (unlike the half who don't, which has been my experience), and the woman who came to have lunch at my home yesterday looked good. Good coloring, no pain etched in face, happy mood...the whole package. To top it off, after lunch Michele put on a little demonstration of her improvement. Jumping up and down (demonstration of the ability of her ankles, knees, and hips to take jarring movement) and she ran around my living room. Yes, we MPers love to relish in feeling better. Nothing could have made me happier.
Here's to Michele's improved health and to all of us, whether we are the half who see immediate improvement on the MP or the half who have to wait longer, may we always remember just how wonderful it is to feel good, just how blessed it is to be alive and even relatively pain free.
Blessings to all, Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Elisabeth
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Posted: Fri Aug 29th, 2008 22:47 |
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Sounds brilliant (and beautiful) to me Claire! 
Elisabeth
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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Sarah Jane
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| Location: | Alberta Canada |
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Posted: Sat Aug 30th, 2008 18:53 |
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What a wonderful story! Thank you for sharing that, Claire. And yay for Michele's improvements! I can just imagine her running around your living room, lol.
And I do believe you about being brilliant. How could that little emoticon lie? 
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MCS, CFS, Celiac, affected neuro, skin rashes | avoiding light and D | May7/07 25D=31.2ng/ml 1,25D=64.17pg/ml | OTC pain and allergy meds prn | Naproxen | Quercetin | Ph1- Aug 02/07 | Ph2- Mar 16/08 | Mod Ph2- Jun 8/09 |
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Michele MBK
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Posted: Sun Aug 31st, 2008 22:43 |
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May we always remember just how wonderful it is to feel good, just how blessed it is to be alive and even relatively pain free.
Indeed, Claire, indeed.
Thanks for sharing those moments.
Anywhere I go, I DO feel blessed now to feel SO much better and to have been led to the MP by so many kind people.
Michele
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Lyme / RA 125D30 25D16 Advil / Vicodin or Celebrex low lux home NoIRS cover up Ph1May08 Ph2Sept08 May 09D25:6
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Freddie Ash
Member
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Posted: Mon Sep 1st, 2008 00:42 |
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HI eCLAIRE
This is Fred in WV. Thanks from me also for that great story. You tell a great story also.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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Deb Grabetz
Moderator
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Posted: Mon Sep 1st, 2008 18:01 |
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All,
Into Phase II (six months now), I notice subtle improvements every week and then will just have something out of the blue that *screams* out at me! This happened to me last week.
I've been quite inactive for almost two years now and so decided to do some stretching the other day, as I'd like to start some mild yoga soon. I've had quite a lengthy battle of IP in my hips during my MP journey, which came pretty unexpected. I could not believe I could have so much pain in a place that I wasn't feeling, before the MP. So to my surprise, I felt complete flexibility in my hips, return out of nowhere. I must have lost this ever so slowly. So slowly, that I did not even notice when my hips began to get so stiff. Exciting stuff here!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Elisabeth
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Posted: Wed Sep 3rd, 2008 00:38 |
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Wow! I'm really looking forward to that day myself Deb.
I used to be SUPER flexible (people would comment on how much so) and involved in athletics, but the past 5-10 yrs I've gotten so that I cannot even complete simple stretches b/c I'm so "stiff & rigid" and feel like I'll "crack" if I push myself at all....
So, "Thanks for sharing"!
Elisabeth
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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Freddie Ash
Member
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Posted: Wed Sep 3rd, 2008 12:33 |
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HI ALL
This is Fred in WV. On exercising and walking, I walk almost every day for about one hour and do exercises for about 20minutes. I do a lot of ankle, legs, and arm & finger extecises due to a lot of stiffness in my toes, ankle & fingers. These seem to help. I have been doing them for about a year or so now. I can do 30 situps, two hundred arm movements. I even suprise myself at what I can do. I have tried to do pushups but my toes are to stiff to let do these for now, but I am working on that too now.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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Elisabeth
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Posted: Thu Sep 4th, 2008 13:51 |
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Well then Freddie, I guess by the time all is said and done here we may well be calling you "twinkle toes", eh???
. . . yep, I imagine we will . . . .
Elisabeth
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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Freddie Ash
Member
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Posted: Thu Sep 4th, 2008 18:13 |
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HI ELISABETH & ALL
This is Fred in WV. Thanks for all the kind words. I do not know about being called "TWINKLE TOES" but I would like to be able to do pushups to help my arm strength. I would do chinups but I do not have any bar to do them on. I am still working on all of this. Some day I will have a way to do these things and I will be doing them every day.
Thanks, I did get a big laugh out of you post. Keep up the good work and posting here.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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JanEE
Member
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Posted: Thu Sep 4th, 2008 20:25 |
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Freddie, I went through about a week during phase 2 where I could walk 2 miles each day, but that's all the longer it lasted. The energy just left me. Now, on phase 3, I'm weaker than I was then. I have a treadmill, but I only last about 5 minutes on it and that's it. I can manage some yoga stretching exercises. It doesn't help that I have a torn meniscus and a Baker's cyst on my left knee. I'm hoping it will eventually repair itself with the protocol so I don't have to have a knee replacement.
Did you begin slowly and work up to all the exercises you do? How long did it take to reach this point? Your energy is awesome. I imagine that you'll be doing those push ups before long.
Deb, I would love to have an improvement that just 'screamed' out at me. I'm trying to be patient though, keeping the very few fabulous days I've had alive in my memory. They keep me inspired.
I recently began to drop some weight and got very excited until I went to the doctor and she told me it was probably the increase in my thyroid medication. So, I feel like I can't even count that as an MP improvement. But----onward!
Jan
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CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
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eClaire
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| Location: | Virginia USA |
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Posted: Thu Sep 4th, 2008 21:08 |
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JanEE that you are in Phase 3 is a great improvement (you just don't know it because you are moving fast and haven't taken a break...at least I don't think you have). I'd love to be out of mod phase 2 and into phase 2 after nearly two years. It's all relative!!! Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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JanEE
Member
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Posted: Fri Sep 5th, 2008 00:36 |
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Claire, I know you're right. It's just that (and you know this too) it can get discouraging sometimes. I feel reasonably okay enough of the time---just no strength or energy---and I'm 'herxing' more than in phase 2.
Because of a mixup with my meds, I began phase 3 in the wrong way. Meg thought I should do phase 2 over again, but since I'd already started phase 3 I was reluctant to go backwards, so she said it was okay if I stayed at very low levels to begin with since I had been doing okay. I was so happy to finally be taking that combination of the three 'best' antibiotics that Dr. Marshall talks about I didn't want to give it up. So, maybe I've brought this on myself. I am going at a snail's pace, but I'm getting there. In the end, I'm sure after we each suffer from our own 'blips' here and there, we will all arrive at our destination---wonderful health and a new lease on life.
I had kidney issues in phase 1 that made it necessary to stop the meds several times (a total of 9 mos.) so I'm reluctant to even consider taking a break now. I think that we're all anxious to get to the 'finish line', but it's true---there really is no rushing it. Even though I know that, I still find myself wishing I could, but it is what it is. I probably could use a break, but I don't want to take it.
It seems nuts sometimes that we take so darn long at certain levels, and go a little faster through others. When you do get to phase 2 you might just zoom right through it.
Jan
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CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
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expate
Member
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Posted: Fri Sep 5th, 2008 01:32 |
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Jan,
Sending you heaps of encouragement your way. I am lucky in that I have experienced benefit in the short 6 weeks (plus about 3 unmedicated/reduce D months) I have been following the MP. So, even when I doubt, I know there's truth to it.
IDK, hang in there.
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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