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natalie17
Member
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Posted: Wed Jun 18th, 2008 12:20 |
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I know I'm not alone in this..
Since about a month into the MP I have had a recurring dream (just about every night). It's never exactly the same, but always the same general story line, which goes like this....
I know I am unwell, but I am well enough to be out and about. I am faced with having to drive which I am nervous of but I do it anyway because I know, physically, I am capable. So, after trying to convince whoever else is around me in the dream that it would be better if they drove, I end up driving.
When I drive there is always something obstructing my view. Either I am sitting in the back seat and thinking it's stupid because I can't see from there, or I am too short in the front seat and can't see over the wheel, or it's really dusty, or I'm going up a big hill and can't see what's on the other side. But I never, ever crash.
Except once. Once, in November of last year, I dreamt that dream and I crashed into a pole (and all my tyres blew?!). I was shaken and terrified and then a friend of mine (who, in real life, knows less about cars than I do) fixed it for me and I was amazed at how easily my car was fixed.
Points for anyone who can guess what happened in real life of November last year......? My IP got out of control! It was intolerable and I took a short break from the MP which bought it back under control quickly.
Would love to hear if anyone has any similar stories. I have always dreamt a lot every night and been able to recall it every morning.
Has anyone had dreams that seem obviously related to their MP journey?
Has anyone started or stopped dreaming since beginning/progressing through the MP?
Has anyone elses nightmares stopped? (Mine have  ).
So insanely interesting to me....
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CFS/ME from June05| Ph1-July07| Ph2-Feb08 | Natalie's Story | ABCofMP
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Aunt Diana
Support Team
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Posted: Wed Jun 18th, 2008 20:30 |
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Hi Natalie,
It's a very interesting topic. I wish my memory was better...because back in phases 1 & 2 I had some of the most incredible and realistic dreams I've ever experienced . Some would seem like they were sorting out all the things that had ever happened to me and organizing them for my mind. They would be so real, so lifelike that it was shocking to wake up and find they were dreams. Sometimes I was sad to wake up because the dream was so real...family members who have been dead for years would seem so vivid and realistic.
On the other side of the same coin....when I was at my sickest and before I was treated I remember at times being confused about what part of my life was real and what was a dream. There were times I was unable to discern if something had really happened or if it had happened it a dream. I often thought of the Aborigines and how they believe that the dreams are real and that life is not...(my interpretation....I may be way off).
At any rate, dreams along the way, both before my treatment and after have been a fascinating side show. These experiences remind me of the experiments I have read of when a certain part of the brain is stimulated certain specific memories or thoughts seem to occur. Maybe that is what is happening....our brains are being stimulated in specific areas when that area starts to regenerate.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, , benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux
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Knochen
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Posted: Thu Jun 19th, 2008 00:31 |
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When I drive there is always something obstructing my view. Either I am sitting in the back seat and thinking it's stupid because I can't see from there, or I am too short in the front seat and can't see over the wheel, or it's really dusty, or I'm going up a big hill and can't see what's on the other side.
I think I've had this dream for 30 years! Maybe it just goes around and everybody gets it on a limited basis  . With me, it's always that I can't reach the pedals, or I'm in the back seat. On one memorable occasion, I was in the back seat, sitting backwards! I had to lean over backward (basically upside down over the seat) so I could see and reach the wheel! The pedals were obviously out of the question. I don't seem to crash either, but it's always close.
What did people dream about before there were cars? Chariots? I can see some ancient Greek now, "By the gods, Xanthippe, I nearly fell out and couldn't reach the reigns!"
I've been trying to do some lucid dreaming lately, and only managed it a couple of times in the past few months. I think I've still got too much neural involvement to get it right. I used to be able to do it when I was a teenager, with some regularity.
But you are right, some of the dreams on the MP are very very vivid. What fun! (mostly)
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Reiter's Syndrome 25+ yrs, fatigue, joints, muscles, migraine, brainfog| 25D 6 ng/ml |Benicar May06|Ph1 June06|Ph 2 Sept06|Ph 3 Jan 07|NoIRs K-Cream Zinc Oxide cream - Always covered!
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lionel forbes
Member
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Posted: Thu Jun 19th, 2008 05:55 |
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| I AM AT THE FINAL END OF PHASE 3,21/2 YEARS INTO MP, AND I CAN SAY THAT AS FAR AS DREAMS GO,WHILST ON THE MP, WHETHER THEY ARE VIVID, OR SILLY OR WHATEVER,JUST TOTALLY IGNORE THEM COMPLETELY.DREAMS CANNOT BE TAKEN TO BE MEANINGFUL WHILST ON THE MP FOR THE SIMPLE REASON THAT THEY ARE DISTORTED AS A RESULT OF BEING ONE OF THE IMMUNOPATHOLOY REACTIONS OF THE MP.REMEMBER THAT THE CWD BACTERIA OF TH1 DISEASES ARE PRESENT IN THE BRAIN, AND THE MP ALSO ACTS THERE,THEREBY CAUSING IP EFFECTS IN THE BRAIN.
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Sarcoidosis/lungs via biopsy 125D28 25D24 Ph1Jan05 Ph2Mar05 Ph3Aug/06 no other meds 25D7.8 (Nov07) NoIRs cover up
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Deb Grabetz
Support Team
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Posted: Thu Jun 19th, 2008 12:47 |
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Hi Natalie, How goes it today??
This is one of those fun topics! I didn't think too much about how my dreams had stopped over the last few years until I began my treatment with MP and they returned! I was pleasantly surprised to start dreaming again and they are always something pleasant...there is something beneath my dreams, they are not repetitious as yours but always do have some substance to my life....Last night in fact, I dreamt that one of my flights crashed,  now keep in mind I'm trained for this so my dream was all about getting the passengers out in a hurry, it wasn't really about the drama of a plane crashing. At the end of my dream (we are taught to do a sweep with the flashlight in an emergency) and during my "sweep", I found a dog and a woman under a seat....It kind of amazed me how I was acting out in my dream everything that I am trained to do as a flight attendent...lol!
I journal most of my dreams now as I think someday they will be fun to read. My most vivid dreams are always when I take my abx...especially the 10 day abx. Interesting how the IP is affecting my brain as the MP says it will! Deb
Last edited on Thu Jun 19th, 2008 13:50 by Deb Grabetz
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Ceredwyn
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| Location: | Rural, Vermont USA |
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Posted: Thu Jun 19th, 2008 13:25 |
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About a month into the MP, I dreamed that these centipede things were dragging me away to eat me by a scarf around my neck. I got away by pulling out a big pair of scissors and cutting the scarf.
Symbolism there seems pretty clear
I do beleive our subsconcious knows more about the state of our inner workings than is currently acknowledged. Somewhere, the primitive parts of our brain that control the basics try to describe in a symbolic way whats happening in the form of dreams and hunches.
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Lyme FM JRA1985 endometriosis osteopenia 125D79 25D39 Ph1Mar07 ModPh2Aug07 Ph2Dec07 Ph3Apr08 Armour Thyroid, Effexor Motrin Vicoden 25D14 (Aug07) NoIRs lite exp r/t child care
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John McDonald
Support Team
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Posted: Thu Jun 19th, 2008 21:38 |
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| I described a weird dream to a friend once long ago. He laughed at me and opined that my subconscious was so close to the surface that he could smell it. Ah well. I've had plenty of odd dreams on the MP though not so much lately. Some were pleasant and worth repeating if only I could. Some I am pleased and hope to have forgetten forever.
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RA 125D38, MP 9/05 Ph2 12/05 Ph3 09/06, Oct07 2510, NoIRs lite exp r/t work covered up
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natalie17
Member
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Posted: Fri Jun 20th, 2008 04:07 |
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Woah! Just saw the responses to this, fantastic
Aunt Diana - Our experiences sound very similar... escept miy experiences with not knowing if things were real were pre-MP. It was confusing, and scary - especially when you wake up thinking a loved one is no longer around! As for new areas of the brain being stimualted, interestingly.. the strong my IP is, the more disturbing my dreams are. Which I guess fits, because at my worst (pre-MP) I was having nightmares pretty much nightly. I am experiecing IP-dreams!
Knochen - "By the gods, Xanthippe, I nearly fell out and couldn't reach the reigns!" - Haha! Probably true too you know... why didn't they keep dream diaries or something back then? What a great book that would make! I agree, it's probably the kind of dream everyone has at some point or another... it just amazes me how frequent mine are. I've never had a repetitive dream that lasted over a week. I was also the same, although barely out of being a teenager (nearing 22) I had frequent lucid dreams when I was a teenager.
Lionel - I disagree. I know that the CWD bacteria are present in the brain and the brain is definitely affected, but I disagree that dreams can not be taken to be meaningful whilst on the MP. I think they are just distorted, or exaggerated. I think all dreams, MP or no MP.. or illnesses that aren't Th1, can be related back to what's going on in a person's life.
I see a psychologist and my dreams, although crazy at times through the MP, still reveal a lot about what I am thinking and going through internally to him. Perhaps the fact that the MP is such a journey and sometimes a mental challenge is the very reason our dreams can seem detached from real life, or at least part of the reason. Just my opinion...
Deb - I say how goes it all the time and people look at me like I'm stupid! So thank you for saying that, haha. Today goes a bit rough, but rough isn't so bad when you can see the calm ahead. How about you?
It is a fun topic - the MP, although very serious , has a fun side - I believe it has to, we are learning new things every day through people's experience. I am really glad this site was created to enable us to discuss things like this .
If I were dreaming I was on a flight that was crahsing it wouldn't be a dream - it'd be a nightmare! I am phobic of flying, planes, airports.. etc. I couldn't do your job. I hope to get over it to be able to see the world - Australia doesn;t have much access to everywhere else!
I think your dream definitely has meaning though (I think they all do, but I think yours is as obvious as mine). Knwoing exactly what to do in a stressful situation? Hmm..
Ceredwyn - Definitely clearn symbolism there! (to me anyway). I believe the subconcious reveals more about us than most things - including things that we sometimes don't realise ourselves. The brain is absolutely amazing. I don't think anyone will ever know everything about it. It's kind of like studying space... there will always be more to learn. I believe the brain is responsible for my strong intuition. People who claim to be psychics and amaze people with their ability to 'see the future' I believe are jsut extremely intuitive. The brain picks little pieces of information up without us even knowing it.. I have had a lot of dreams that have happened a week later. I think I'mjsut picking up on information other's may not. Speaking of my psychologist (I mentioned him above), I went to see him because I was down about no one knwoing what was wrong with me. He looked at me and said "Well you don't have cancer or anything, you have CFS.. see this Doc" & that's how I got my diagnosis (the CFS specialist he sent me to diagnosed me). Some poeple's intuition is amazing!
John Mc - I get the same thing. I repeat some of my dreams thinking they're crazy and people look at me like "well it's pretty obvious what you're thinking". I find my pleasant dreams are mainly me living out what I can't at the moment (going out, physical activity.. I run a lot in dreams when in real life I am mainly bed bound). Also let me take this opportunity to say a big thank you for helping create a site where we can discuss such awesome things!
Cheers to all,
Nat
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CFS/ME from June05| Ph1-July07| Ph2-Feb08 | Natalie's Story | ABCofMP
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cathys2007
Member
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Posted: Sun Jun 22nd, 2008 11:20 |
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I've had very vivd dreams all my life. In fact, sometimes I am aware that I'm dreaming and can control and change my dream or simply just tell myself to wake up. I was told this could be a symptom of narcolepsy ( which I was diagnosed with). I was wondering could this be a symptom of Th1 disease? Also could narcolepsy be a TH1 disease?
Years ago I was taking provigil for narcolepsy and then stopped since it was as affective over time. When I became so sick I couldn't function and diagnosed with sarcoid, my doctor suggested taking provigil again. My disease symptoms worsened with provigil. I stopped taking it. My doctor didn't undertstand. Can anyone explain why?
Thanks
Cathy
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Dx Sarcoid-lymph node biopsy/neurosarcoid 12/06/ FMS and IBS 25 yrs/ Narcolepsy/ Osteopenia/ Gerd/ Raynauds/ fatigue, brain fog, muscle pain, fevers, migraines/D12548, d2526/NoIR jan08
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Deb Grabetz
Support Team
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Posted: Sun Jun 22nd, 2008 15:03 |
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Hi Cathy,
My doctor had also prescribed Provigil for me to try since I was fighting so much fatigue. I chose not to take as I had already started the MP and have found that I do better with nothing but my MP meds. I have tried different palliatives and it just seems that I'm better at "weathering the storms" as the palliatives seem to confuse my already confused body! I'm not sure from your note if you tried the Provigil for the second time, after you were on MP or if this was before?
With the neuro involvement of Sarc, as it also sounds in your case with the sleep problems, I would not doubt that Th1 is the root of your issues. I have finally started sleeping well again. Everyone kept trying to tell me it was my age (51) and I am now sleeping like a baby through the night, since being on MP for 18 months. I was never one to lie awake with headlights in my eyes but would wake up 2-3 times and not getting a good nights rest, which I now know was causing me daytime fatigue. I also now dream which is a sign that I am sleeping deeper. It is a good thing! It looks like you've been on MP since November? I started sleeping better after about a year on MP. It was again, one of those subtle events that just started to occur and then one day I realized, heh, I'm sleeping through the night! whoo hoo! It was difficult waking up through the night, as a young adult I slept so sound...my husband would always tell me a train could pass through our bedroom and I would sleep through it....as I also did many times sleep through our children waking in the night! (Well, sometimes I played possum too!!)
Deb
Last edited on Sun Jun 22nd, 2008 15:07 by Deb Grabetz
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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cathys2007
Member
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Posted: Sun Jun 22nd, 2008 15:38 |
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Deb,
Thanks for your reply. It's nice to know that my sleep issue should be relieved on MP. Actually, I took the provigil before I knew about the MP. Although I've been a member since Nov 2007, I haven't started MP yet. (issues with finding a doctor to prescribe) Goodnews though, I found a doctor and plan to start MP Jul 5. Hopefully I'll be accepted in the study as well.
I wonder if provigil affects the VDR. It's also interesting how many were affected with more lucid vivid dreaming. Since I already experience that, I wonder how I will be affected. I hope I don't start acting out my dreams ha ha
Cathy
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Dx Sarcoid-lymph node biopsy/neurosarcoid 12/06/ FMS and IBS 25 yrs/ Narcolepsy/ Osteopenia/ Gerd/ Raynauds/ fatigue, brain fog, muscle pain, fevers, migraines/D12548, d2526/NoIR jan08
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natalie17
Member
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Posted: Mon Jun 23rd, 2008 00:56 |
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Jus to add to the provigil thing - I have read a lot in CFS/ME forums about people taking it and feeling fantastic. For the msot part after 3 or so months it stops having it's fantastic effect, and when they go off it they feel worse than when they first started.
One woman I read about stopped taking her provigil 5 years ago & was still trying to get herself back up to the level she was at prior to taking it. It made her 'crash' that badly.
I've never taken it, so just going off I've read. I also have no idea why it does that to people as I don't know how it works.. but just from the stories I've heard I am not a fan of provigil for Th1 disease (also read of people with fibro taking it).
& Cathy.. my sleep issues have already resolved ont he MP just shy of 11 months in .
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CFS/ME from June05| Ph1-July07| Ph2-Feb08 | Natalie's Story | ABCofMP
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cathys2007
Member
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Posted: Mon Jun 23rd, 2008 01:21 |
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| Thanks ....I'm looking forward to a good nights rest
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Dx Sarcoid-lymph node biopsy/neurosarcoid 12/06/ FMS and IBS 25 yrs/ Narcolepsy/ Osteopenia/ Gerd/ Raynauds/ fatigue, brain fog, muscle pain, fevers, migraines/D12548, d2526/NoIR jan08
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Lottis
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| Joined: | Sun Jan 21st, 2007 |
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Posted: Mon Jun 23rd, 2008 18:32 |
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This is so funny!
The first night I started the Q4 on the MP, I was laughing so much in my dreams! It did not make any sounds, but my stomach muscles laughed and laughed, that it woke me up. i fell asleep again, and the laughing dream came back, I think three times!
My dreams are not always with laughing now, but they are much more colorful and eventful since I started the olmesartan, and I laugh much more often now in my sleep, than I have ever done before in my life! This is so wonderful!
/Lottis
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HTN,LVH,arrhythmia,hypercholesterol e.c.t. IBS fatique chr rhinit acne rosasea salivestones-89, gallblader-99, e.c.t. 14feb-07 25D 7,8 &1,25D 38.http://marshallprotocol.com/view_topic.php?id=9892&forum_id=20&jump_to=173725#p173725
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cathys2007
Member
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Posted: Mon Jun 23rd, 2008 18:54 |
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Lottis
Thanks That's funny! I hear laughter is the best medicine!
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Dx Sarcoid-lymph node biopsy/neurosarcoid 12/06/ FMS and IBS 25 yrs/ Narcolepsy/ Osteopenia/ Gerd/ Raynauds/ fatigue, brain fog, muscle pain, fevers, migraines/D12548, d2526/NoIR jan08
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