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Elisabeth
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Posted: Mon Jun 23rd, 2008 06:26 |
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Hi! Is there anyone out there (obviously female) who has dealt w/ menopausal sx's while being on the MP???
I'm in my early 40's, missed my last period ~2 wks ago, and have started having FREQUENT hot flashes since then that are increasing w/ intensity daily it seems.
I know that hormones get a real "attitude adjustment" on the MP, but think that this is a bit much! Normally I would turn to supplements, but know that's a big "NO-NO"....
So, again, if anyone out there has any experiences/sx's/understanding they'd like to share re: this PLEASE POST/EMAIL ME!!
Thanks,
Elisabeth  (me during a hot flash!)
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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Lottis
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Posted: Mon Jun 23rd, 2008 18:56 |
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OK, good subject!
I just turned 48 years young.  My last period was more than ½ year ago. I have had no flushes or anything like that during the last two years that my periods have gotten less and less frequent.
I have been thinking a lot about what I am about to write now, and I really think, Elisabeth, that it has to do with the Th1 inflammation only. What are the menopausal flushes anyway??? 
I my case, I connect it to the inflammation, because I have been on the ARB irbesartan for the last five years, the highest dose, 300mg a day, for treating my high blood pressure. Before I got that medicine I had been on all the other blood pressure medications that are used, with no good results and basically only intolerable side effects. Irbesartan (Aprovel) was the first and only that I could tolerate, and it also took down the blood pressure much better, in my case. That is interesting in itself, because the ARBs are not supposed to be very powerful in taking down the pressure alone.
Anyway, the last 3½ years i was also taking a high quality pure aloe vera supplement every day, which also has powerful anti inflammatory benefits. And that really made me feel so much better, and I could slowly recover from a lot of my sickness symptoms, gradually build up energy and start a life again, feeling there was a future after all.  . Moving to Iceland and beginning to work like an Icelandic person (that is working like hell is burning your ass, ), I gradually developed my heart disease, and had to start a lot of other heart medications again, to try to control the heart. Sweating had developed, but it was tightly connected to the heart failure, not at all the kind of flush that comes during the menopause.
But, starting the MP, I had to stop the aloe vera supplementation, and it took only about 2-3 weeks and I was pouring of sweat from all over my body. I got feelings as if I had a fever, but the body temp was fine. I always got worse during the night times, but it also occurred during daytime, at least 10-15 times a day, and in any kind of situation, mostly when I moved, like getting dressed or something very light, but also while laying absolutely still. Never red face from chest and up, which is the typical "hormone-flush".
I also developed severe pain from my lower abdomen, around the pelvic area or lower intestines, and it was so bad it woke me up at night time. A strong antibiotic treatment took the pain away for two weeks, but then it slowly began again. At that exact time I changed from Aprovel to Olmetec. Still just on the dose that is for BP treatment, 40 mg every morning. And the inflammation slowed down again! Interesting, because that showed me that olmesartan was a more powerful anti inflammatory ARB than the Aprovel.
After about five weeks, I had to go up to the MP dose, because the side effect of being on a low dose of olmesartan in a bad Th1 disease, is not to be recommended. I got so strong immunopathology in my nervous system, that I almost lost control of my insanity! I was waiting for my endocrinolog to give me the green flag, because she wanted to test me for hyperaldosteronism, which would had meant to get off the ARB, the aldosteronblocker, the acetylsalicylicacid and the diuretic. Otherwise the blood marker would not be correct.
But I could not wait. It went straight up to the Q4 treatment, since before my MP break, that was the only tolerable treatment for me, and what do you think happened? ......I got so much better! No I only have 20 % the amount of sweating that I had before, and I will stay on this till I am settled on this.
I did a colonoscopy two weeks ago, but there were no signs of inflammation inside the intestines....no wonder.. I got the IBS diagnose. That will do for now. Adhesion's and a spastic colon, was the explanation. Or maybe the myomas on the womb. They have a hard time with me, the doctors, cause I do not make it easy for them to give me a diagnose, when I treat myself with the Olmetec Q4.
I try now and then to go down to Q6, but I always get so much worse again, that I am not ready for this. Going on the Minocycline will be the next challenge, but I am due for a MRI on the whole torso next week, and I am again sampling urine 48 hours, for the fourth time, so I must await some kind of diagnose. No doctor here seem to be able to accept the Th1 diagnose based on the vitamin D metabolite test, so I have to go through all these examinations. It could be something tumor-like and I might need other treatment as well, time will show.
So, I think you are just having immunopathology! And that is good in the long run!
/Lottis
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HTN,LVH,arrhythmia,hypercholesterol e.c.t. IBS fatique chr rhinit acne rosasea appendix-75 salivestones-89, gallblader-99, fibromyositis, e.c.t. 14feb-07 25D 7,8 &1,25D 38 http://www.nordurland.is/default.asp?cat_id=27
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Dr Trevor Marshall
Research Team
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Posted: Mon Jun 23rd, 2008 19:32 |
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As your hormones adjust to the VDR becoming active again you will find profound changes in your menses.
Everybody needs to be extra careful. Some of you may note that my early research (in the late 1970s) was in Fertility enhancement (where there actually is a well-defined 'cure') and Th1 diseased patients were pretty well all we saw.
At least one person who thought she was several years into menopause became pregnant after starting the MP. Your body is a finely tuned system which disease has unbalanaced. As the MP starts to balance everything again there will be profound changes.
You might also like to read Amy's abstracts at Karolinska and Porto for a bit more insight:
http://autoimmunityresearch.org/dmm2008/DMM2008_Amy_Poster.pdf
http://AutoimmunityResearch.org/ica2008/ICA2008_Proal_Abstract.pdf
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Elisabeth
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Posted: Mon Jun 23rd, 2008 21:17 |
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Thanks for your input/insight Lottis. I imagine that it is inflammation (Th1) origin as you said, just messing w/ my hormones - & my head.
In addition to the hot flashes I also have frequent "cramping" in my uterine area, lower back/abd & down thighs toward knees; sx's that I've had w/ "difficult" periods in the past - to the point of almost passing out w/ pain at times (and really scaring the people who were around me!)
I guess in truth, only time will tell, but I was interested to see if anyone else had experienced "MP-induced" pseudo-menopause, only to restart regular menses afterwards????
Elisabeth
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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Elisabeth
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Posted: Mon Jun 23rd, 2008 21:29 |
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Thanks Dr. Marshall. I will read links.
I had quite difficult pregnancies (all 4) where I was on bedrest for premature labor & dilation of cervix to the tune of 12 mos between all 4 children. W/ my 3rd I was hospitalized, on MgSO4 IV, etc. (talk about "hotflashes"!!). By the grace of God I was able to carry all 4 to term and deliver happy, healthy babies. I was in an abusive marriage at the time (dumb, I know!) so attributed all this to that factor in my life. However, after now learning about the underlying etiology of many of my other illnesses all these yrs, I've now begun questioning that....
I am now remarried (1 yr today!) and my current husband has never had children. I(we) was actually going through an interview/screening process w/ a fertility doc here in MidWest when I was dx w/ CFS this Jan. So, after what you've shared of your experience/research I suppose that there is a chance that we MAY have a child of our own someday . . . ?!? We were kinda bummed when these menopausal sx's began. My husband is very gracious; he wouldn't really say so, but I could tell....
I guess as long as there's life there's hope!!
Elisabeth
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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Dr Trevor Marshall
Research Team
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Posted: Mon Jun 23rd, 2008 21:30 |
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Elisabeth, I said "At least one person who thought she was several years into menopause, became pregnant after starting the MP." Maybe the Advocates can recall some others. I often stop counting at one, as even one well-documented case validates "proof of concept."
Last edited on Mon Jun 23rd, 2008 21:32 by Dr Trevor Marshall
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Elisabeth
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Posted: Mon Jun 23rd, 2008 21:45 |
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I understand the "one person makes proof +" concept; I personally ALSO believe in miracles!!
Thank-you Dr. Marshall.
Elisabeth
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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Joyful
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Posted: Mon Jun 23rd, 2008 23:42 |
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Elizabeth,
I hope my personal 'story' will provide some insight on this topic...
Since our marriage almost 10 years ago, my husband and I have not used hormonal based methods for pregnancy prevention. For the first two years we used the F.A.M. to avoid pregnancy and then for the next couple of years we used it to try to achieve pregnancy. Meaning that I was very aware of the hormonal dance being played out within my body each month. I even used a small microscope to examine my saliva each month to more quickly determine peak fertility (changes cause 'ferning' pattern in saliva on the slide). We were not successful in conceiving.
My experience during my illness is that when I was at my sickest (around 6 months before the MP start) my menses were still a mostly 'clockwork' 28 day cycle (very light bleeding though).
At that time I was attempting to use some traditional herbal remedies to help my failing health from what I thought was Lyme Disease, but I now know was Th1 disease with Lyme Disease co-infections.
Following the addition of yet another herbal remedy to my supplements, I did not ovulate for 3 months. When tested, the FSH was so high they said I was menopausal. (There were other symptoms that indicated the hormones were not working right either.) I was only 46 years old and knew it wasn't a 'natural' menopause, but it was in response to the remedies I had tried.
At this time I did not know about the MP, and did not trust in common Lyme Disease treatments (too many relapses). So, after some more research into herbal medicine, I read about how a particular herbal remedy was supposed to help the cAMP and a recent study on pubmed showed it to address some hormonal issues related to fertility, so I tried that. After a couple of weeks of using this herbal supplement, I ovulated and went on to have a normal period two weeks later. By this response I understood that the disease process was interfering with my body's ability to send the correct hormonal signals to orchestrate a normal fertility cycle.
It was about that time that I realized the Marshall Protocol was the treatment I needed to fix the root cause for all of my body's dysfunctions, including the hormonal problems. Reading about Martha's surprise baby from the MP, I even had a glimmer of hope that once the Th1 disease was overcome, we might succeed in becoming parents some day. (And I too, believe in miracles.) And, wouldn't it be wonderful to have the kind of health I would need to be a great 'older' mom too?
Since being on the MP I have had many changes in my body. And I did add the use of the NuvaRing at the start of the MP because of the concern about becoming pregnant while on the MP. The NuvaRing did indeed create a regular pattern, but of course, the hope is that it prevented ovuation completely.
Some time before I began the MP, I had begun to have what I called 'heat waves.' (This is not 'night sweats' but I am known to throw the sheets off and pull them back up quite a few times each night!) I now understand, from looking up information about this, that my brain was somehow getting a 'body core too hot' signal. In response to this misfired hormonal signal my brain sends a 'emergency cool-down' signal which leads to the hot/flushed feelings that some would blame on menopause. 
Three months into the MP, during the use of the modified phase two antibiotic, the withdrawal bleeding (not a real 'period' following ovluation) at the end of each NuvaRing 'cycle' was very sparse. Four months later when I began Phase 2 my 'period' only happened every other month. However, the 'heat waves' were pretty mild during those first couple of months in Phase 2.
Then I took a break from the MP due to a need to be available to my family for a stressful issue that took from April to May. Because of the missing 'periods' I decided to stop the NuvaRing (changing to a barrier method for pregnancy prevention). The 'heat waves' seemed to increase without the Benicar and the artificial hormones in place.
Finally, at the beginnning of June I restarted the Benicar and as of this week I am back into a full phase 2 antibiotics cycle. The 'heat waves' are continuing for now, but I expect that when the delicate balance in my body's hormones finds a new level of stability, they will slow down or stop again. I'll try to remember to report back in a few months.
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Lyme?1980 Babs?05 Bart?05 CFS?06 | 125D50 Ph1Jul07 Ph2Feb08 Ph3Aug08 | NoIRs cover up but rarely leave low lux home | 25D15 Oct08 | ABC of MP
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cwylie1
Member in Phase 2
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Posted: Tue Jun 24th, 2008 05:18 |
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Hello Elisabeth!!!
HAPPY ANNIVERSARY!!!!!
I'M VERY HAPPY FOR YOU.
About the hormone thing. Yee haw! When I remarried 8 years ago, I had a tubal ligation. Was 44 with 2 college aged boys. During the next two to 4 years, I had what Lottis is describing with the hot flashes in bed, covers on, covers off, extreme hot flash, then chill. Drove me nuts!!! Hard to get a good night's sleep either. (Hello, Lottis). Later I read about post tubal ligation syndrome and all the problems. Just fine and dandy!!! So, I messed up nature with that.
Interestingly, the hot flashes completely disappeared on a vegan diet I was on for several months and have never really come back. Just prior to getting ready to start the MP, I had hormone testing done which showed basement level hormones. I figured no wonder my body doesn't know what to do, there's hardly any hormones with which to do anything!!!
Knowing what I now know about the VDR, disregulation and hormones, I am trusting that the MP will indeed allow my hormones to return to where they should be. I'm 52 and have been praying for menopause for at least two years now!!
The month prior to starting the MP, my dr. put me on estrogen and progesterone and for the first time I had those upper chest, neck and facial flushes. Quite curious as I had never experienced that in my life before. However, we stopped the estrogen pre MP and I just stopped the progesterone this past week to allow my body to let the changes going on with the MP occur. Again I hope the final outcome for me will be MENOPAUSE!!!!! Yeah!!! I feel fine with that. While still on the progesterone this past month I had weekly spotting then finally a period, I think (was short). I will be watching to see what changes happen over the next few months as I continue the MP into Phase II
Sorry, no help on the baby thing. Will keep you in my prayers on that. So anything's possible, right!!! And miracles DO HAPPEN, we know that, too!
Take care all. I am again up too late!! Had to drive to Indianapolis tonight to attend a continuing ed. workshop on pulmonary function for PTs and SLPs. Should be very interesting. It's on how we will address pulmonary function, or lack thereof, from a rehab perspective.
Night!
Carol
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Migraines, RLS, MCS, ADD, tinitus, fatigue, tachycardia, Brain fog, mild HTN, joint pain, Ph1-6/9/08; 25-D 47 0n 5/08,43 on 7/28/08 and 36 on 9/6/08. 1,25D-66 on 5/02/08 and 55 on 9/6/08; Covered up, r/t to work, NoIRs. low lites.
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Elisabeth
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Posted: Tue Jun 24th, 2008 23:58 |
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Joyful & Carol,
Thank-you for sharing your life experiences (good & bad), as well as just your TIME typing all that up - whew! I REALLY appreciate it.
I do believe that I'm having more of the 'warm flushes' Carol described, as opposed to genuine "hot flashes" - and NO night time problems (at least when I'm "unconcsious" - ha!).
I had a tubal ligation after my 4th child (know it sounds weird, but my X admitted to wanting to keep me pregnant so that I wouldn't leave him (entrapment? - yea!). W/o having the mutual trust necessary, AND given the proven course of my pregnancies I opted for the more "secure route" at the time after much prayer and consideration. My current husband & I were looking into tubal reversal when I was dx w/ CFS/HYPOTHYROIDISM this Jan.
I believe it will all be OK in the end. I'm doing all I can to allow my body to recover and heal, and like many other things I believe that conception is ultimately "an act of God"; i.e., I'm looking to Him to see what HE does or doesn't have planned....
So there you have it! Thanks again for all you shared!!
Elisabeth
p.s. Thank-you for the anniversary congrat's Carol!! We had a very nice evening together even though we dined "in"!
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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eClaire
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Posted: Sat Jun 28th, 2008 02:00 |
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I just thought I'd ditto some of what Dr. Marshall and the others said. While I was having hot flashes and what I called back flashes (where my back would get extremely hot at night for hours on end) on and off prior to the MP. Pre-MP they were at their worst right after I crashed and became totally disabled. Then, when I started the MP, they got much worse. They have since calmed down so that they are hardly a bother, sometimes disappearing altogether for months. Also, although I hadn't had a period in over a year pre-MP, not long into the MP I had a mini-period. I'm 52 and I know some women don't go through menopause until 56 and so it seems to me that there may be a chance that I'll go back out of menopause. Not that I want that, but all sorts of interesting and wonderful things are happening in regard to this area of my health and I'm looking forward to me a healthy "active" woman again.
Thank you Dr. Marshall for the MP!!!
Claire
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CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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Elisabeth
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Posted: Mon Jun 30th, 2008 04:32 |
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Ditto on the "THANK-YOU DR. MARSHALL FOR SHARING THE MP W/ US"!!!!
Elisabeth & fam.
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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laura1814
Member in Phase 2
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Posted: Wed Jul 9th, 2008 19:08 |
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I am too tired to post all the details now, but I wanted to report that:
1. I just turned 39 a couple of weeks ago, and I was diagnosed as post-menopausal with a very high FSH two years ago. I suspect I was actually "post-menopausal" for several years before that, dating at least back to 2000 when I was diagnosed with PCOS, and probably even longer.
2. I started the MP in February.
3. I had a period two weeks ago!
I had energy for the few days right before and after it started, but I've been very tired since then.
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CFS, EBV, PCOS, POF, TMJ, hypoglycemia, hyperlipidemia, MP Ph1 1/08, MP Ph2 4/08; enzymes, & ranitidine PRN, NoIRs, low lux home, limited outings, covered up, 1,25D=37, 25D=9.
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Elisabeth
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Posted: Sat Aug 9th, 2008 05:12 |
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Just wanted to update that my hormones seem to have settled down. I still frequently vacillate between sweats/chills, but not to the extreme that I was experiencing when I first posted on this topic!
So, if anyone else out there is currently going through "menopause"; hold up! Like many other things on the MP - it may just change!!
mE
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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expate
Member in Phase 2
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Posted: Thu Aug 14th, 2008 14:47 |
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I am copying the following that I posted on May 19, 2008. I've bolded the more pertinent passages but am leaving the background info for those with more time and patience.
"I want to note some changes I've experienced since reducing D. I curtailed vitamin (multi) and dietary (omega-3 and flax seed oil) supplementation on Feb 18 and totally stopped on March 10. I severely reduced dietary intake of D and greatly reduced exposure to sunlight on April 10.
Also, I had been using bio-identical estradiol and progesterone until February 2008 and had finally rid myself of hotflashes. My prescription ran out and I was unsuccessful in renewing it (I get it from out of state). Hot flashes returned within about a month with increasing intensity and frequency.
Within several days of reducing D, I noticed light nausea, some odd pains behind my knees (?!) and in my ankle and a return of my left shoulder pain for no apparent reason (no gardening or exercise) whereupon I decided not to be as stringent in D avoidance.
The pain in my shoulder blade/back was different. It was much more clicky and then, almost like an anatomy lesson, it traveled from my back through to my neck so that I could feel it every time I would turn my head. I actually resorted to taking Advil for a few days (uncharacteristic) to be more comfortable. The constant pain resolved about 5 days ago on its own, without me going to the DO for treatment. It only hurt when I would get it in certain positions or use it actively. Last night was the first night in at least a year and a half that I could sleep on my left side with no pain!
On May 10 I had an incident of feeling nauseous, dizzy and almost fainting while under an intense bright light grid at a sports arena that went away when I retreated to a darkened corridor.
Then early last evening I had an odd experience. I had a totally unexpected bolt of pain in my right hip that had me double over (similar to the pain of an ovarian cyst bursting). It felt like a pinball sprung to the inside of my pelvis. The pain then traveled around my back to the other side and "exited" at my left hip. I stood back up and held the memory of the pain for a couple of minutes. Then within 15 or 20 minutes my uterus felt heavy and glumpy like before the start of my period. It continued to feel that way through the evening through to bedtime.
Now my last period was February 2007 (and a little spotting in July). I was sure I was going to start my period last night. Well, I didn't. But for the last 2 months I've woken like clockwork with hot flashes at 4:00 a.m. EVERY night. You know, the rip your gown off, turn your pillow to the cool side, get up and put a cold rag on your neck kind of hotflashes (sorry, boys ). They would continue off and on until morning. Well, last night... no hotflashes!
Then this morning at 8:00 a.m. I had a mild one but in an uncharacteristic place - on my forearms and forehead (usually they sweep across my back and up to my head, scalp, and forward to my forehead). That brought to mind what happened last Friday afternoon. I got the chills and had to get under my down comforter for 2 hours. It was strange, not just because it's summer in Oklahoma, but also because I was chilled in my hands and feet (not strange) but also my forearms and no place else. Weird.
I feel a little crampy in the uterus today, off and on, not bad. Just something I haven't felt for over a year. "
Since that post, I do get very mild hotflashes here and there. Nothing regular. I never did start my period again.
I did have three Uterine Fibroid Arterial Embolization procedures to treat very symptomatic uterine fibroids. Now with MPath understanding, I suspect the fibroids were due to Th1 infection/inflamation. I look forward to uterine hexing.
dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Juanita
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Posted: Thu Aug 14th, 2008 16:45 |
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Uterine herxing. Yeah. Fun, eh?
All three of my daughters and I used to have heavy periods with intense cramping. My youngest blacked out a few times and would regularly vomit from the pain level. We all just passed our one year mark on the MP (YAY!) and all of us have noticed that our monthly experience is vastly improved. The flow is normal, our periods are shorter (down to two days with one tapering off) *sorry, guys *, and it is no longer common to have pain. If we hurt now, we know we are having an IP.
I figure that MP is worth doing just to escape the Monthly Nightmare. And think of the money we are saving on organic tampons and Advil!
The transformation from the old days to now gives me total peace about menopause when it arrives for me. My mom had a horrific time with hers and my Grandmother spiraled into such despair, she was put into a psych hospital for depression. Which ultimately killed her as they cooked her heart giving her electroshock to try reboot her brain. Poor lamb. Dead at 53 because no one knew about Th1.
Thank you, Dr Marshall. I can't say that enough. You are our hero.
Last edited on Thu Aug 14th, 2008 17:10 by Juanita
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D| Sept 21/07 25D-40.8ng/ml| May 7, 07 1,25D-35.8pg/ml
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Over-Heated in PHX
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Posted: Thu Aug 14th, 2008 18:54 |
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expate wrote:
I did have three Uterine Fibroid Arterial Embolization procedures to treat very symptomatic uterine fibroids. Now with MPath understanding, I suspect the fibroids were due to Th1 infection/inflamation. I look forward to uterine hexing.
dette
Hi Odette,
I had an LSH, hysterectomy in June. I inquired if the grapefruit size Fibroid that was on my uterus was caused by Th-1 disease. It was confirmed to me by Fearless Leader Meg that, yes, Uterine Fibroids are indeed Th-1 disease. Makes sense, they run in families and are composed of abnormal cells.
Then after reading the document at http://www.bacteriality.com concerning the ability of women to create LOTS of 1,25-D by way of their uterus, and being 51, I thought this was one more good reason to go ahead with the hysterectomy. It might help me progress on the MP to eliminate that contribution. I won't know for awhile if it was any help at all in this respect since I'm still recovering from that surgery and a subsequent surgery to remove a very enlarged lymph node in my groin. Right now, I feel like my tolerance to my previous level of antibiotics on the MP has back-slid, but perhaps I'm only just in a recovery period, just too soon to tell.
I had the hyst done for another reason, as well. I had an acutely retroverted uterus which was causing other problems, pulling on the Round Ligament and causing pain in my groin for years and years.
The pathologist found another issue as well, that was causing pain in my uterus. Adenomyosis. I mention this because it may be worthwhile for interested parties to investigate this as a possibility before deciding on an embolization.. which wouldn't get rid of Adenomyosis.
Embolization was offered to me as a choice when the large fibroid was found by ultrasound. Had I gone that route, I would still have had pain (and the pulling on the round ligament). I would have been disappointed in the outcome. Adenomyosis is endometrium lost inside the uterine wall, they usually don't find it and diagnose it positively until a hysterectomy is performed. Just a thought to those who may be suffering undetected Adenomyosis in addition to a fibroid diagnosis, and hoping the MP will eventually shrink the fibroid ..when the pain is actually coming from the Adenomyosis, or under the same circumstance, thinking that an embolization may end the pain.. then failure. That wouldn't be good. I don't think Adenomyosis is Th-1. I considered waiting it out, letting the MP get rid of this fibrotic tissue over time.. I felt the exacerbation of pain I was feeling was uterine herx. Perhaps it was, but not necessarily.
ON TOPIC: About two weeks after my hyst, I apparently either entered menopause or my ovaries just went into shock due to the hyst. The lab tests all showed menopausal range, where this was not the case before the hyst. The gynecologist says we should test again at about 3 months post-op to see which is more likely the case. IN THE MEANTIME. Sweats, chills, sweats, chills....
Still, ver-Heated in PHX
PS. I found prior to the hyst, that the MP did effect the cycle in positive ways, reducing the flow, etc., as Juanita mentioned as well.Last edited on Thu Aug 14th, 2008 19:02 by Over-Heated in PHX
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Lyme Babesia hypothyroid OSA OA FM Morgellon's Uterine Fibroids 125D61 25D16 Ph2Jan08| Daily: Lyrica, Levothroid; and Aleve, Anacin or Lodine XL; Loratadine| (NoIRs 2% outdoor&computer use, low lux home, homebound, limited outings covered up &Keto
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neldawhite
Member
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Posted: Sun Sep 21st, 2008 04:20 |
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| I should be on the MP within the next two weeks...starting with avoiding sun and D moving to Benicar and eventually mino. Of course like all of us I have many little symptoms, aches and pains etc. However, my biggest daily "thorn in my side" has been hot flashes. They started about 2.5 years ago and have continued every 45 minutes since them. No exageration. They have been really hard or some more mild. Hard for me means not only do I get uncomfortably warm and clammy but I feel like the flash brings with it a feeling of dread, the feeling of low blood sugars and a sense that I am being slightly poisened. This causes such emotional stress that it takes all I have to get through it and thankful that at least I have another 43 minutes or so before the next one hits. I actually do lamaze type breathing to get through the peak of the flash. I have been waiting for the MP since Feb when I found the site but weaning off prednisone for a very inflammed lacrimal gland that displaced my right eye ball a bit. Then wanted to wait until we returned from a two week trip to fun filled Cabo San Lucas. Of course with those hot flashes I lived in the air conditioned room with cool rags or in a cool tempatured hot-tub submerged in the water in the shade. Now if I heat up from arms resting on computer, or cooking, or over exhurtion...then I can bring on another flash before the 45 minutes is up. Before my knowledge of the MP I of course talked to my Dr. about it who said since I have dense breast tissue and a core biopsy of a calcium deposit I would not be a candidate for hormone replacement due to increased risk of cancer. All she could offer was an antidepressant called Effexor. While hesitant I did try it as I was so anxious and falling into a depression feeling so sick...Big mistake I took one pill went to bed and woke up at 2:00am feeling like I was on the biggest speed trip of my life. I felt like I needed to call a suicide hot line but was to affraid to move. To affraid to even wake my husband. It was the scariest thing I have ever experienced. Called Dr. the next day and she said...Oh sorry that is a side affect in some people and I should have warned you to take it during the day with someone with you incase you did have a bad reaction. (Thank you....sarcasim). She offered another antidepressant but I said...no I guess I'm not bad enough yet because I will not go through that again. I do have xanax for extreme situations but I know better than to take it very often at all. It just kind of helps knowing it's there incase I can't cope. Luckily I have good coping skills, good support, and now hope through the MP. It is good to know that hot flash herxing will probably be a part of my recovery but could in time improve. Thank you for all of the post on hot flashing is it giving me lots of hope and helping me not to feel alone and to realize it is part of Th1.
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Fibromyalgia |swollen lacrymal glnd |chr. HFlash 3yrs Sinus Pressure | Ph1MP Oct 19 08 (Independant)| No D tests yet| NoIRS|covered up| low lux home | limited outings
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eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1009 |
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Online
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Posted: Sun Sep 21st, 2008 06:43 |
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Nelda,
Welcome to the Lifestyle boards Nelda. (I haven't noticed you posting before.)
I am writing to give you a tip about writing posts.
Many of us have reading comprehension problems and when someone posts a large block of text, our brains fall out...no, no...um...our brains can't handle it. (Of course, I am sure you have your share of weird Th1 symptoms and so can appreciate the weirdness of this.)
Please help us cognitively challeged folk by breaking your posts into paragraph form. They don't have to be perfect paragraphs...just enough white space, er, blue space to ease our flakey minds.
I'd love to read what you have written, but I'm afraid I won't be able to tackle large blocks of text for quite some time. No doubt I have quite a bit of neuro herxing ahead of me!
Thanks, Claire
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CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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neldawhite
Member
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Posted: Sun Sep 21st, 2008 12:50 |
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Hello Claire,
You are right. After reading my post I too get a bit of a headache, can't follow the print and feel like my eye balls are going in different directions....
That was my first post on Lifestyles. I have a few posts on Curemyth1. Thankful we have this site where it might be more appropriate to elaborate a bit on a variety of topics.
Over the past 7 months I have been reading posts regularly and feel like I already know many of you and look forward to becoming a regular here and joining the family of MPers. I study these sites like a college course, following link after link, reading and rereading.
It's amazing and comforting to know that each time I log on and read a bit I will learn something new, have a new awareness or an AAHAA moment .
Greatfull Student of the MP,
Nelda
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Fibromyalgia |swollen lacrymal glnd |chr. HFlash 3yrs Sinus Pressure | Ph1MP Oct 19 08 (Independant)| No D tests yet| NoIRS|covered up| low lux home | limited outings
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