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HeatherK
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Posted: Thu Mar 11th, 2010 13:09 |
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Wow... Thanks Deb! that is lovely, a lot of wisdom and encouragement there 'in a nutshell'.
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I just read this in our local newspaper and it brought a chuckle:
'I am not overweight. I am Chocolate-enriched"
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CFS for 5 yrs+ /started MP Sept20/07;( 25-D=24ng/ml, 1,25=47.5pg/ml.).. Dec/07(25-D= 14.4 ) Started Phase Two Mar 4/08; Dec 09(25D= 6); In blackout home/ wearing NoIRs/ Presumed celiac, wheat,dairy free.
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Deb Grabetz
Moderator
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Posted: Fri Mar 12th, 2010 11:49 |
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Heather,
That was a good one---chocolate enriched! Haha, in that case I'm on nutrient overload!!!
I found the following quote from Ralph to be one that I could relate to. It's something I try to do each morning when I wake up...embrace today and only today...and do it with zest, no matter how I'm feeling...I want to live out this one day as well as I can...we will never get that one particular day back I flew with a pilot once who told me when something exciting happens to you, small or big, something that makes you smile, let out a bit out-loud whooohoooo...he told me that it just energizes him, try it, at first it sounds silly and feels even sillier when you do it, but it works!
What you will do Forget about what you can't do. Focus on what you will do.
Dream big dreams and make workable plans that will get you there. Then put those plans into action and do what you will do.
Allow the beauty and richness of your dreams to expand your concept of what you are willing to do. This is your life and you deserve to give yourself the very best.
Intensely feel the accomplishment in your imagination. Let that incomparable feeling of satisfaction push you forward.
Focus on what you will do and you'll discover that it is more than enough. You have within you the capacity, the ability and the drive to reach whatever dreams are meaningful to you.
Every day is an opportunity for richness and fulfillment. Feel what you will do, and why, and make today the best one yet.
Read more: http://www.greatday.com/#ixzz0hxwCMwn8
____________________
Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Deb Grabetz
Moderator
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Posted: Thu Mar 18th, 2010 13:08 |
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| Each day, keep this thought in mind: Things are to be used, but people are to be loved. Watch your thoughts; they become words. Watch your words; they become actions. Watch your actions; they become habits. Watch your habits they become character; Watch your character; it becomes your destiny.
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Deb Grabetz
Moderator
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Posted: Fri Mar 19th, 2010 12:04 |
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ANOTHER VERY APPROPRIATE QUOTE FROM RALPH MARSTON. THIS REMINDS ME OF BEING ON THE MP. "CIRCUMSTANCES MAY INDEED PRESS AGAINST YOU BUT THEY CANNOT HOLD YOU BACK"
A very good friend of mine called yesterday to tell me her SIL had gone into a coma. She has sarcoidosis and has had the usual numerous ailments that seem to follow this disease. Her kidneys failed and they had her on dialysis, with the hope that this would bring her kidneys around and bring her out of the coma. My friend has talked to me about the MP and had even suggested her SIL speak with me...but as we humans do, we think we are going to work things out and I have never heard from her.. Again, I felt a wave of gratitude for the incredible work of Dr. Marshall and those who pioneered through this treatment for so many of us!
My friends SIL is only 62...and yes, with todays statistics I consider that yet to be very young.
Friday, March 19, 2010
Be in motion Do all you can, when you can, with what you have. Though it may sometimes seem that you're not getting much accomplished, the only alternative is to get nothing accomplished.
To make progress you must be actively making an effort. With each effort, at the very least you gain experience, exposure, knowledge and competence.
To find what you're looking for, you must be looking. To come across a great opportunity, you must be in motion.
By all means, go ahead and dream big, wonderful and meaningful dreams. Then let those dreams motivate you to get up and get busy making them real.
Circumstances may indeed push against you, but they cannot hold you back. Always, there is something you can do, some move you can make, some new approach you can follow.
Jump into life, get yourself in motion, and make a positive difference every chance you get. Persist, keep yourself moving, and you'll absolutely get where you wish to go.
-- Ralph Marston
Read more: http://www.greatday.com/#ixzz0icfR5MsR
____________________
Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Deb Grabetz
Moderator
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Posted: Tue Mar 30th, 2010 19:47 |
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The Importance of a Champion's Mentality
Posted by Victoria Osteen on March 30th, 2010
One of the best strategies of a great coach is to get his team thinking in the right direction. A great coach builds his team up and helps them believe in themselves. When his team goes out on the field, it's not only about their ability; it's about their attitude, mindset, and internal dialogue. They will do their best when they go out feeling like winners.
In the same way, you should go out every day feeling like a winner. You'll do best in life when you have a champion's attitude because of what you believe about yourself. Stay in the habit of speaking positive, faith-filled words over your life because a healthy self-image is one of the greatest assets you can have. It will not only cause you to rise higher, but it will inspire others around you to live at their best, too.
Your life is so important that you can't afford to live with a negative and defeated mindset. The way you live your life matters! It's like tossing a stone into a pond and it sends ripples across the water—your life "ripples out" and has influence on those around you. You may not think you have that much impact, but your life sets an example. Whether you realize it or not, you are influencing the people in your life even in the most subtle ways. Remember, influence is the power to produce an effect without an apparent exertion. In other words, just by living your life, you are producing an effect.
People are constantly watching and learning from our example, whether positive or negative, and we are responsible for how we influence those around us.
Today, focus on keeping a champion's mentality. Recognize that the way you see yourself matters and influences those around you. Choose to set yourself in the right direction and help those around come up higher in every area of their lives
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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eClaire
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| Location: | Virginia USA |
| Posts: | 1396 |
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Posted: Tue Mar 30th, 2010 20:51 |
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I absolutely believe this, which is why I agreed with my Social Psych professor who once said (34 years ago), "If you're going to smoke, smoke in a closet."
I hear people say things like, "If only I had a longer fuse," as if the size of their fuse is fait accompli. Or show consistent thought processes that only feed their poor self esteem issues. I was raised in a violent home and once thought very poorly of myself (in that, I had bad mental hygiene... stinking thinking). When I think back, I don't even recognize the thought processes I used as a young adult or the relationship I once had with anger. It all seems foreign.
We can achieve a lot when we give something our complete attention.
Thanks for posting this Deb, Claire
Last edited on Tue Mar 30th, 2010 20:52 by eClaire
____________________
42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Freddie Ash
Member
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Posted: Tue Mar 30th, 2010 23:55 |
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HI DEB & CLAIRE
This is Fred in WV. Deb thanks for posting. This reminds me when I was first diagnosed with the sarc, back in Feb 1982, my family doctor told me my good attitude was helping me greatly. So I have had a good attitude about beating the sarc.
On another time, a man I have known since about 1976 and I talked to him about my problems with the sarc and what I was doing to stay alive over all these years. About a year ago I was telling him about how I was doing on the MP and that it was a cure for sarc, his reply was, " I ALWAYS SAID IF THERE WAS A CURE OUT THERE FOR THE SARC YOU WOULD FIND IT". So this is more of my good attitude to beat the sarc.
On March 10 I had to see the doctor that replace my pacemaker and we were talking how well I did with all the surgeries that I have gone thru and my age of 70 and doing great on the MP and I told him I tried. He was about to leave the room but turned and said, "YOU DO MORE THAN TRY. YOU ARE DOING GREAT". Once again my good attitude and the MP working for me.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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Deb Grabetz
Moderator
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Posted: Fri Apr 23rd, 2010 11:10 |
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Another great quote...gently pushing us forward!
Friday, April 23, 2010
Jump up A challenge is a chance to jump up to a higher level of performance. Take that opportunity and run with it. *We've certainly all been offered a challenge with the MP*
If you haven't been as effective as you know you can be, a difficult challenge will change that. Because the challenge will leave you with no other choice. *I liked this as for so many of us who were so ill, this challenge stared us in the face. It wasn't about choice!*
Yes, it's inconvenient and uncomfortable and just plain hard work. But think of what will happen when you choose to run out and embrace it. *What a statement, inconvenient? uncomfortable? just plain hard work? You bet!*
You'll make yourself stronger, more capable, with greater discipline, focus and effectiveness. Not only will you create something of great value, you'll then be perfectly positioned to create even greater value on top of that. *Hasn't the MP changed so many of us? When we imagine we could persevere and become well? Just when you think you can't grow or become stronger you face a challenge like recovering from chronic disease*
You'll run faster when you're chasing after something, or when there's something chasing you. You'll discover that you can do it, and you'll discover how great it feels to give your very best. *I liked this part, "when there's something chasing after you"*
When a challenge jolts you awake, jump out of your slumber and hit the ground running. Be pleasantly amazed at where you can take yourself when there's a challenge pushing you forward. *Hit the ground running!*
-- Ralph Marston
Read more: http://www.greatday.com/#ixzz0lv5CTOx1
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Sallie Q
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Posted: Sat Apr 24th, 2010 06:26 |
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Prompted by thought of those who may suffer because they cannot understand what we do here and therefore will not follow in the footsteps of the MP alumni
We often despise what is most useful to us – Aesop.
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Sjogrens; b.cancer; postviral fatigue| D25was13.2ng/ml@ph1-Sept08 |Nov08mod.ph2 /Feb09ph2/ May09ph3| D25 7ng/ml@Jun10 NoIRs essential; testing for stage4, July 2010 Olmetec & Mino only
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Sallie Q
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Posted: Sat May 1st, 2010 23:44 |
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Out of the mouths of babes....
After hearing the radio broadcast today (Sunday) on community interfaith discussion, leadership in forming community groups and connections etc, which wound up with a speaker (founder of Sarah-Hagar movement in Israel), who said when women take their places in government and other powerful leadership positions, “there will be peace”
I then listened to ‘Foreign Correspondent’ in which the woman correspondent in war torn Thailand came home through groups of armed insurgents to greet her 3 year old son who said
“Mummy, the Red Shirts look nasty today, don’t go near them. They must feel fragile. They will feel better when their Mummies come home.”
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Sjogrens; b.cancer; postviral fatigue| D25was13.2ng/ml@ph1-Sept08 |Nov08mod.ph2 /Feb09ph2/ May09ph3| D25 7ng/ml@Jun10 NoIRs essential; testing for stage4, July 2010 Olmetec & Mino only
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Deb Grabetz
Moderator
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Posted: Wed May 5th, 2010 11:36 |
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I truly wish that every member on the MP or for that matter, anyone dealing with chronic health issues could read todays quote from Ralph Marston. So many of us have even discussed this issue, "the hurt" that comes with being chronically ill and those closest to us who do not understand. This was an incredible piece to read this morning as we do need to heal our emotional self as we heal our physical self!
Wednesday, May 5, 2010
Heal the hurt When you blame others for your troubles, you give them control of your life. Free yourself from your own anger, from your own resentment, and you'll find vastly more room for serenity and abundance.
It's bad enough if someone has wronged you in the past. Is it of any value for you to continue suffering from it?
Your best strategy is not to prolong the pain, or expand upon it. Your best strategy is to get past it as quickly as possible.
Whether or not anyone deserves your forgiveness is not the point. The point is, you deserve to forgive, to take back control of your life, so that you can live abundantly.
Your forgiveness may not even make a difference to those you forgive, if they're even aware of it. For you, it makes all the difference in the world.
When it is you who is feeling the hurt, it is also you who can heal the hurt. Heal the hurt, and move past the pain, with forgiveness.
Read more: http://www.greatday.com/#ixzz0n3OmcRYL
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Pipistrelle
Member
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Posted: Fri May 14th, 2010 11:54 |
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This quote is from a speech by Winston Churchill in the House of Commons, on 13 May 1940:
"I have nothing to offer but blood, sweat and tears."
He also said, "Victory, victory at all costs, victory in spite of all terror, victory however long and hard the road might be, for without victory there is no survival."
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Sarc lungs, uveitis '90 dx '92, pred 18 mo '93-'94; D25 31 Nov 06, D1,25 35 Nov 06, NoIRs Feb '07, D restrict Nov 06, low lux home, cover up, light exp work
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Sallie Q
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Posted: Sun May 16th, 2010 08:22 |
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Hard act to follow, Morag and Deb
So I play with the rules and pinch this quote from a book reviewer
We are in for a bad time. G.M. Young
More appropriately
The rule is, jam to-morrow and jam yesterday-- but never jam today. Lewis Carroll
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Sjogrens; b.cancer; postviral fatigue| D25was13.2ng/ml@ph1-Sept08 |Nov08mod.ph2 /Feb09ph2/ May09ph3| D25 7ng/ml@Jun10 NoIRs essential; testing for stage4, July 2010 Olmetec & Mino only
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Pipistrelle
Member
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Posted: Sat May 22nd, 2010 20:38 |
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“Life is a shipwreck, but we must not forget to sing in the lifeboats.”
- Voltaire
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Sarc lungs, uveitis '90 dx '92, pred 18 mo '93-'94; D25 31 Nov 06, D1,25 35 Nov 06, NoIRs Feb '07, D restrict Nov 06, low lux home, cover up, light exp work
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eClaire
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| Location: | Virginia USA |
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Posted: Sat May 22nd, 2010 20:46 |
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LOVE THAT!!!
____________________
42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Deb Grabetz
Moderator
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Posted: Mon May 24th, 2010 11:13 |
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Yes Morag, I enjoyed it also and shared it last night with an aunt....she is a favorite of mine, although she lives in a negative world...I reminded her to *sing while in her lifeboat*!!!!
I've come to the conclusion, that being ill has only afforded me a higher "quality" of life. By this I mean, as I heal and feel better and better, I appreciate in the morning, being able to now get up and do things that many years ago, I surely took for granted. Each day I am thankful for being able to weed my garden again, have lunch with a friend, console someone else, even brush my teeth, what a chore that used to be!!!!.
We are surely put through this trial for a reason, if we each seek out our own personal purpose, we find it. Life was never promised to be easy...and it rarely is for anyone. We are blessed to be in a time where we were able to find the MP using technology...and in time, each one us will have made a difference to someone else dealing with a chronic illness! I believe people, we are making history here!
____________________
Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Sallie Q
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Posted: Tue May 25th, 2010 10:10 |
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The one duty we owe to history is to rewrite it. Oscar Wilde
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Sjogrens; b.cancer; postviral fatigue| D25was13.2ng/ml@ph1-Sept08 |Nov08mod.ph2 /Feb09ph2/ May09ph3| D25 7ng/ml@Jun10 NoIRs essential; testing for stage4, July 2010 Olmetec & Mino only
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Deb Grabetz
Moderator
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Posted: Tue Jun 22nd, 2010 11:04 |
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I found today's great day quote moving...having lost many good years to sarcoidosis I've had those feelings of sadness. For the outbursts when I wasn't feeling well, for the many days when unable to live life...there must be so many of you who feel the same...yet Ralph's motivation here is telling us different...because of what we have lived and know, we can make a different and more complete future for ourselves as health returns! Makes sense to me!
Tuesday, June 22, 2010
Transform regrets Do you feel sadness and disappointment for what you have failed to do? Then you have some powerful energy for moving yourself forward.
Do you feel regret for the missed opportunities? That painful regret has a positive purpose.
For although those past opportunities are gone, even more powerful ones have arisen to take their place. What's even better is that you now have more reason than ever to make the most of them.
You can easily and naturally transform sadness into motivation. You can transform the regrets into powerful and unstoppable determination.
Feel the intensity of your own energy. Realize you can point that energy in any direction you choose.
Choose to point it forward, in alignment with your highest purpose and most treasured dreams. Now is the time that matters, and now you can make life great.
-- Ralph Marston
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Pipistrelle
Member
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Posted: Fri Jun 25th, 2010 21:43 |
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"Every worthwhile accomplishment, big or little, has its stages of drudgery and triumph; a beginning, a struggle and a victory"
Ghandi
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Sarc lungs, uveitis '90 dx '92, pred 18 mo '93-'94; D25 31 Nov 06, D1,25 35 Nov 06, NoIRs Feb '07, D restrict Nov 06, low lux home, cover up, light exp work
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
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Posted: Fri Jun 25th, 2010 22:47 |
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Morag, When I see that someone has posted to this thread, I try to guess who. Today I guessed Morag! Now I will have to start keeping track and see what my track record is!
After living with a housemate who took my every kindness and good turn as some sort of nefarious plot because his fiance was jealous he was living here and helping me (a disabled lesbian she once called friend) instead of living with her, I was finally told that he is moving out at the end of the month because I am to blame for everything that is wrong in their lives. (His fiance actually told me the other day that her strained relationship with the kids was made worse by me--though she demonstrated little effort to improve those relationships that I was able to see--and that if it weren't for me they'd me married by now; two days before he said to me, "I'm not ready to marry _____, her kids--age 20 and 16--drive me crazy. Where was he when she was talking inter-generational living, which was in reference to the 20 year old that he has the most trouble with and who does not drive and must be driven everywhere? In the same car with me and his fiance. And when his fiance made that remark about me, do you think he corrected her or do you think he let her believe that, yeah, Claire's the reason they aren't married by now? And they think I'm crazy.)
At any rate, today I saw a silver ring with the first part of this saying inscribed to the inside and the second half (after the colon) inscribed on top...
"The world needs your beautiful light: Shine On!"
So I bought it for myself to remind me to stay true to my values, my basic kindness despite their gleeful flaying of me like two hyenas stripping a dead carcass.
One thing I've learned in the last 2+ years:
You can do your best to be in right relationship with others, you can love, be kind, be honorable, and you can hope that others recognize your efforts and return them in kind. However, you can, despite your best efforts, still end up nailed to a cross like a common criminal. The lesson? Try your best anyway, love, be kind, be honorable.
At least I know that for nearly a year, I provided some unconditional, no strings attached love to two teenagers who needed it (while trying to be supportive of both their father and his fiance), and I tried to be a very good friend to someone who has betrayed me without apparent conscience. I can't ask more of myself. 
Last edited on Fri Jun 25th, 2010 22:51 by eClaire
____________________
42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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