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Deb Grabetz
Advocate
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Posted: Tue Jul 29th, 2008 21:28 |
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JanEE wrote: Deb,
That is too cute!!!
Jan
Heh Jan,
I thought the little guy in the "NoIR's" looked like he was having a herx of a day!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
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sunflower
Guest
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Posted: Thu Jul 31st, 2008 01:51 |
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“First they ignore it, then they laugh at it, then they say they knew it all along.”
19th century German philosopher Alexander Humbold
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lyme,fibro,candida,allergies,gerd,osteopenia/ pain,fatigue,dizzy,memoryloss20+yrs/ celexa,vicodin/ambien (sleep) probiotic,cal-mag/beni 40mg q6h 11-05/phase 3,8-06/1,25d=34 25d=36,18,17,10,13,5,7
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madwolf
Health Professional
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Posted: Thu Jul 31st, 2008 18:24 |
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Here are a few from my favorite author, Robert Heinlein:
Another ingredient for a happy marriage: budget the luxuries first!
And still another -- See to it that she has her own desk -- then keep your hands off it!
And another -- in a family argument, if it turns out you are right -- apologize at once!
Formal courtesy between husband and wife is even more important than it is between strangers.
Don't try to have the last word. You might get it.
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Dx: Psoriatic Arthritis, FMS/CFIDS, Raynaud's Restarted Phase 1 in Noremember 2007 Current 25-D is 35, Non-MP meds: Armour thyroid, 60mg qd. Cymbalta, 60mg qd. CoReg CR 40mg hs. (BP still stable) Januvia 100mg qd, Byetta 10 mcg sub-q bid.
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Deb Grabetz
Advocate
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Posted: Fri Aug 1st, 2008 12:39 |
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Steve,
I can see you're a very *smart* man!!!!!
My husband will enjoy these!!!!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
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madwolf
Health Professional
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Posted: Fri Aug 1st, 2008 19:20 |
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Well, here are some more... enjoy.
Do not handicap your children by making their lives easy.
Touch is the most fundamental sense. A baby experiences it, all over, before he is born and long before he learns to use sight, hearing, or taste, and no human being ever ceases to need it.
Keep your children short on pocket money -- but long on hugs.
Never crowd youngsters about their private affairs -- sex especially. When they are growing up, they are nerve ends all over, and resent (quite properly) any invasion of their privacy. Oh, sure, they'll make mistakes -- but that's their business, not yours. (You made your own mistakes, did you not?)
Little girls, like butterflies, need no excuse.
To stay young requires unceasing cultivation of the ability to unlearn old falsehoods.
You live and learn. Or you don't live long.
All cats are not gray after midnight. Endless variety--
Always store beer in a dark place.
Last edited on Fri Aug 1st, 2008 21:28 by madwolf
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Dx: Psoriatic Arthritis, FMS/CFIDS, Raynaud's Restarted Phase 1 in Noremember 2007 Current 25-D is 35, Non-MP meds: Armour thyroid, 60mg qd. Cymbalta, 60mg qd. CoReg CR 40mg hs. (BP still stable) Januvia 100mg qd, Byetta 10 mcg sub-q bid.
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Deb Grabetz
Advocate
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Posted: Sat Aug 2nd, 2008 13:05 |
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Pipistrelle (Member in Phase II) posted this comment recently, I thought it was a great analogy to how some of us feel on some days!
Comments:
I now feel like I am in recovery and not like something the cat brought in and played football with! 
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
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madwolf
Health Professional
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Posted: Mon Aug 4th, 2008 09:24 |
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Sovereign ingredient for a happy marriage: Pay cash or do without. Interest charges not only eat up a household budget; awareness of debt eats up domestic felicity.
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Dx: Psoriatic Arthritis, FMS/CFIDS, Raynaud's Restarted Phase 1 in Noremember 2007 Current 25-D is 35, Non-MP meds: Armour thyroid, 60mg qd. Cymbalta, 60mg qd. CoReg CR 40mg hs. (BP still stable) Januvia 100mg qd, Byetta 10 mcg sub-q bid.
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Deb Grabetz
Advocate
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Posted: Mon Aug 4th, 2008 11:21 |
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Steve...
Oh no......Not even one credit card??????  !!!!!!!!
"Raindrops on roses and whiskers on kittens,
Bright copper kettles and warm woolen mittens,
Brown paper packages tied up with strings,
All of my credit cards bought me these things".... 
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
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eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1007 |
| Status: |
Offline
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Posted: Mon Aug 4th, 2008 17:32 |
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| I'm a cash person myself (credit card is used instead of my bank card only in restaurants when the card is going to be out of my possession and then paid off in full each month...I track the spending) and I have to say that there is nothing like (following a budget and) being debt free!!! Claire
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CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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Juanita
Member in Phase 2
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 368 |
| Status: |
Offline
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Posted: Mon Aug 4th, 2008 19:09 |
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Courage is what it takes to stand up and speak; courage is also what it takes to sit down and listen. Winston Churchill
I think of this when dealing with those not on the MP and then those who think we are nuts or malingerers who like to draw things out for the attention. Time will prove our decision to be correct and the best revenge is to live one's life well despite naysayers who are derisive.
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D| Sept 21/07 25D-40.8ng/ml| May 7, 07 1,25D-35.8pg/ml
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Deb Grabetz
Advocate
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Posted: Mon Aug 4th, 2008 19:21 |
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Yes, very good point Juanita! It takes great courage to stand up for ones beliefs and yet it is quite easy to do when we *truly* believe in something!!!
Interesting article about Bernie Mac...Pneumonia and yet docs reluctant to link to his 20 year battle with Sarc!
Mac has suffered from Sarcoidosis, a tissue inflammation disease, since 1983. He has said that it has no effect on his daily life.
A representative for the 50-year-old Ocean's Eleven star insists he is already beating the deadly illness, and confirms it isn't linked to tissue inflammation disease sarcoidosis, which Mac has suffered from for the past 20 years.
Bernie Mac was hospitalized with pneumonia on August 1, 2008. Soon after, rumors of his demise had circulated, but were denied by his publicist. On August 2, 2008, a source close to the family said that Mac was in "very, very critical" condition
Last edited on Mon Aug 4th, 2008 19:22 by Deb Grabetz
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
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Deb Grabetz
Advocate
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Posted: Tue Aug 5th, 2008 20:19 |
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I'm going to post this in this thread only because I had made mention of this subject in my previous post...I was a bit curious about Bernie Mac's condition, as mention was made of him having pneumonia and a history of 20 years of Sarc, so this morning I did a search and happened across NBC out of Dallas, "EL news".
Here is the original posting of the lastest news on Bernie Mac--take note of the spelling of Sarcoidosis...
Another health issue for Bernie Mac. His publicist says the actor and comedian has pneumonia. He is hospitalized in Chicago, but his rep says Bernie Mac is responding well to treatment.
The publicist, Danica Smith, says it's expected the comedian will be released soon.
A few years ago, Bernie Mac came down with carcoidosis, a disease that results in the inflammation of the lungs. But that disease has been in remission since 2005 and the pneumonia he has now isn't related to the earlier aliment. Bernie Mac is 50.
Shortly after reading this I contacted the station manager via email and explained there was an error in reporting the disease name. To my surprise I received an email from Elvira Sakmari, Executive Producer for the Internet and she not only corrected the spelling but said she would contact (AP) who had reported the story to have it corrected nationwide!! She said she had never heard of this disease and therefore missed the typo, is it any wonder?? 
Baby steps...Baby steps... 
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
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Deb Grabetz
Advocate
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Posted: Tue Aug 5th, 2008 22:56 |
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Wow! Look at this on Bernie Mac!
http://newsblogs.chicagotribune.com/triage/2008/08/bernie-mac-had.html?cid=125362928#comments
Jen Hicks who is on the MP posted a great blog and asked the editors to contact her for a story regarding the Marshall Protocol. Nice job Jen!
I have sarcoidosis too. The Marshall Protocol has improved my life dramatically. The Trib should do a story on this amazing treatment for this supposedly "incurable" disease.
(Trib editors, PLEASE post this message. Many, many people could be helped by the Marshall Protocol, and please research it for a story. I am a journalist myself and would be happy to be interviewed for such a story.)
id=cr-other-headlinesPosted by: Jennifer Hicks | Aug 5, 2008 1:11:24 PM
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
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Pipistrelle
Member in Phase 2
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Posted: Fri Aug 8th, 2008 10:55 |
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edited to say: Quote from an American businessman:
If I had to select one quality, one personal characteristic that I regard as being most highly correlated with success, whatever the field, I would pick the trait of persistence. Determination. The will to endure to the end, to get knocked down seventy times and get up off the floor saying, Here comes number seventy-one!
Richard M DeVos
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Sarc lungs, uveitis '90 dx '94, pred 18 mo '93-'94; D25 31 Nov 06, D1,25 35 Nov 06, NoIRs Feb '07, D restrict Nov 06, low lux home, cover up, light exp work
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Juanita
Member in Phase 2
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 368 |
| Status: |
Offline
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Posted: Fri Aug 8th, 2008 19:32 |
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I agree, Richard. It breaks my heart to get an email from someone saying, 'I can't do the MP, I just don't have it in me to do the work.' I understand. You have to be determined to stick it out through the bad days when some 'wonder' drug could temporarily suppress the symptoms for you, fooling a person into think they are better.
There has to be something inside you, whether it's hidden strength or sheer desperation or known tenacity, something that keeps you going. I think that the more one understands the science, the more empowered one is to work the treatment. That's not easy in the early days with brain fog, eh? I grabbed onto what made sense to me and held onto it tightly. And was very appreciative of those farther along posting about their progress.
This family has quoted many of you for inspiration. So THANKS!
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D| Sept 21/07 25D-40.8ng/ml| May 7, 07 1,25D-35.8pg/ml
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Pipistrelle
Member in Phase 2
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Posted: Fri Aug 8th, 2008 21:40 |
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Hi again,
Sorry! I should have made it clearer that was a quote from Richard M. DeVos, an American businessman. I found it when I googled perseverance, which is a key quality in life, I have found.
I would love to be responsible for that quote! It ranks on a par with Winston Churchill's rallying cry to never, never, never, never give up.
Persevere is the motto on the coat of arms of Leith, a town and port on the shores of the River Forth near Edinburgh . Leithers are very proud of their very stirring motto. So much so, there is a famous public house there, called the Persevere.
So I'm not called Richard and I'm not from Leith either! I'm female, 54 yrs young, I live in central Scotland and I'm getting younger by the week on the Marshall Protocol!!
All the best
Pipistrelle
Last edited on Fri Aug 8th, 2008 21:47 by Pipistrelle
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Sarc lungs, uveitis '90 dx '94, pred 18 mo '93-'94; D25 31 Nov 06, D1,25 35 Nov 06, NoIRs Feb '07, D restrict Nov 06, low lux home, cover up, light exp work
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eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1007 |
| Status: |
Offline
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Posted: Fri Aug 8th, 2008 21:52 |
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I just want to say "Welcome Pipistrelle." Scotland is home to my favorite village: Peebles. Oh how I would love to live there. Claire
Yes...Peebles has everything and impossibly expensive! I have been in love with it since I first saw it as a 4 year old. Although living there may never come true, as long as I have some relatives there, there's hope that when I get well, I can get back to visiting and also going into Edinburgh, my favorite city. It's a twofer!
Last edited on Fri Aug 8th, 2008 22:44 by eClaire
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CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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Pipistrelle
Member in Phase 2
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Posted: Fri Aug 8th, 2008 22:11 |
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Me too, Claire - Peebles has everything - stunning location, village atmosphere and lovely people - but unfortunately its close proximity to Edinburgh means eye-watering house prices - even in today's economic climate.
Ah well, we can dream!
Pipistrelle
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Sarc lungs, uveitis '90 dx '94, pred 18 mo '93-'94; D25 31 Nov 06, D1,25 35 Nov 06, NoIRs Feb '07, D restrict Nov 06, low lux home, cover up, light exp work
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Juanita
Member in Phase 2
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 368 |
| Status: |
Offline
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Posted: Fri Aug 8th, 2008 23:16 |
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| Hello, Not Richard! From Not Pipistrelle.
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D| Sept 21/07 25D-40.8ng/ml| May 7, 07 1,25D-35.8pg/ml
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Pipistrelle
Member in Phase 2
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Posted: Sat Aug 9th, 2008 09:01 |
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Hi Juanita!
*waves hello as energetically as the bugs allow*
I will never be glad I had 18 years of sarc, but the silver lining of a very dark cloud is getting to know so many fellow MPers all around the world!
(Thanks again Trevor)
Pip 
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Sarc lungs, uveitis '90 dx '94, pred 18 mo '93-'94; D25 31 Nov 06, D1,25 35 Nov 06, NoIRs Feb '07, D restrict Nov 06, low lux home, cover up, light exp work
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