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Knochen
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| Joined: | Thu Feb 23rd, 2006 |
| Location: | USA |
| Posts: | 358 |
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Posted: Sat Aug 9th, 2008 16:14 |
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From the Chicago Tribune article - Aug 4
Mac, currently hospitalized in Chicago with severe pneumonia, has the condition but has been in remission since 2005. His publicist, Danica Smith, says sarcoidosis isn’t responsible for Mac’s current illness.
The news just came through the wires that Bernie Mac has died. It's a good thing he was in remission. There's a bad Irish joke with the doctor giving the punchline, "But you can rest assured he died cured!" I think we'll be hearing a lot of that.
Another sarcie (and his advisors) in denial to the bitter end. He would have been a great spokesman for the MP if we could have reached him. What a shame. Another triumph for current medical practice. Do I sound bitter? 
Last edited on Sat Aug 9th, 2008 16:16 by Knochen
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Reiter's Syndrome 25+ yrs, fatigue, joints, muscles, migraine, brainfog| 25D 6 ng/ml |Benicar May06|Ph1 June06|Ph 2 Sept06|Ph 3 Jan 07|NoIRs K-Cream Zinc Oxide cream - Always covered!
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edj2001
Member in Phase 3
| Joined: | Tue Oct 18th, 2005 |
| Location: | Allen, Texas USA |
| Posts: | 148 |
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Posted: Sat Aug 9th, 2008 19:03 |
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I just sent an email to Judith Graham, Public Health reporter, Chicago Tribune, who authored the Bernie Mac story. I took issue with her comment that sarc is incurable. Maybe if others send her information on the MP we can get her attention for a story about the MP. Looks like a good time for public awareness.
jegraham@tribune.com
Gene
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Sarc98 A.Fib uveitis sk cancer basal/melanoma colon tmr bladder tmr bph|digitex 0.125mg q24h propafenone 150mg q8h armour 60mg q24h proscar 5mg q24h Guaifensin 600mg qid Aspirin 81mg q12h |1,25D=50 (10/05), 25D=7 (4/08)| avd l&D
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eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1010 |
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Posted: Mon Aug 11th, 2008 01:12 |
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From Mark Twain:
"Forgiveness is the fragrance the violet sheds on the heel that has crushed it."
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CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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Freddie Ash
Member in Phase 3
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Posted: Mon Aug 11th, 2008 01:31 |
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HI KNOCHEN & ALL
This is Fred in WV. I like that Knochen, if I have any more cure before the Marshall Protocol I could not have stood it. The BEFORE THE MP CURE almost killed me.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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magsmom
Member in Phase 2
| Joined: | Thu Aug 7th, 2008 |
| Location: | Oklahoma USA |
| Posts: | 44 |
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Posted: Tue Aug 12th, 2008 07:14 |
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I love eclairs quote on the violets -
right now the one that comes to my mind is "Pick your battles / or Choose your battles carefully"
Especially something to consider when dealing with fatigue & other herx sympts
magsmom
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FM/Fatigue/Lyme/TMJ/Trigeminal Neur/Migraine/Degen Disc Dis/Sciatica/OsteoArth/Myalgias 125D52.2 Ph1Aug08 Benicar NoIRs low light home exp rt work aprx 30min 25D32.4
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Deb Grabetz
Advocate
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Posted: Tue Aug 12th, 2008 12:50 |
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Hi Magsmom,
Yes, I agree *picking your battles* when herxing is certainly good advice! My husband always had to be the one to remind me that I needed rest, I could never see it myself and the minute I would lie down it was *instant relief*.
BTW, I see from your signature line that you suffer from TMJ...so did I, you are going to be pleasantly surprised with this! Mine is gone! My right jaw was always swollen, could not keep my teeth together comfortably and my jaw cracked with each movement...not so anymore! Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
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Juanita
Member in Phase 2
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 368 |
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Posted: Tue Aug 12th, 2008 16:42 |
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I am deeply saddened for Bernie Mac's family and friends. I am frustrated that he fell for one of the most common pitfalls we sick people struggle with. How much denial can we continue with as if our illnesses would allow negotiation and dismissal?
Bacteria don't care how you feel about them! It ain't personal, it's bacterial business. We aren't the host as if we politely invited them in. We are the territory that they decided to take over. We need to be Winston Churchill to their Hitler, not Chamberlain. Some people and some things won't be negotiated with. You gotta stand your ground and blast them.
The MP would have been good for Bernie Mac and he could have been good for our profile. But the biggest losers are his family and my heart breaks that he felt he could out-stubborn his sarc. If attitude was all it took, none of us here would be sick.
What a rotten waste. I feel so sad for him.
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D| Sept 21/07 25D-40.8ng/ml| May 7, 07 1,25D-35.8pg/ml
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Deb Grabetz
Advocate
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Posted: Thu Aug 14th, 2008 14:44 |
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Matthew 15:14:
If the blind lead the blind, both shall fall into the ditch.
This is exactly how I felt with every doctor I saw...that I was being led down a blind path of destruction...I'm just happy that I chose to take "my blinders" off...for now "I see"
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
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Juanita
Member in Phase 2
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 368 |
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Posted: Thu Aug 14th, 2008 16:50 |
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Oh, look what I found today! It's us doing our MP doses!!
By perseverance, the snail reached the ark. Charles Haddon Spurgeon (1834- 1892)
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D| Sept 21/07 25D-40.8ng/ml| May 7, 07 1,25D-35.8pg/ml
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eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
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Posted: Thu Aug 14th, 2008 17:18 |
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I think folk who decide to take the MP route at this point in its development are a special breed (I say that from hanging out on other websites for the chronically ill).
One, many MPers were able to make a decision without relying on the authority of a doctor--more often having to convince a doctor to go along with the therapy--; indeed, they have often reached the conclusion that their doctors often just do not know fact from medical fiction;
Two, MPers were willing to take a leap of faith not just in the MP but where they would land (since half of us feel better on Benicar alone and half feel worse and there's no telling how the MP will really affect your life);
Three, MPers are willing to feel worse to get better--that is, most have given up the belief or have never believed that there's a magic bullet out there that's going to take away their symptoms let alone cure them;
Four, to do the MP MPers must be committed to doing all the elements of the MP, which make for a significant dent in their lifestyle (whatever that has morphed to be as a result of illness); and
Five, to complete the MP MPers must persevere--that is, have buckets of fortitude (of course, there are some folk who are just so sick when they begin the MP that it may not be possible for them stay the course...at one point, I was very near one of them).
Some quotations to that affect:
"The most common way people give up their power is by thinking they don't have any." Alice Walker
"Every great advance in natural knowledge has involved the abosulte rejection of authority." Thomas H. Huxley
"No authority is higher than reality." Peter Nivio Zarlenga
"The truth will set you free. But first, it will piss you off." Gloria Steinem
"It is always with excitement that I wake up in the morning wondering why my intuition will toss up to me, like gifts from the sea. I work with it and rely on it. It's my partner." Dr. Jonas Salk
"Leap, and the net will appear." Julie Cameron
"Courage is like a muscle. We strengthen it with use." Ruth Gordon
"There came a time when the risk to remain tight in the bud was more painful than the risk it took to blossom." Anais Nin
"Living is a form of not being sure, not knowing what next or how.... We guess. We may be wrong, but we take leap after leap in the dark." Agnes de Mille
"All growth is a leap in the dark, a spontaneous, unpremeditated act without benefit of experience." Henry Miller
"There is no such thing as a lack of faith. We all have plenty of faith, it's just that we have faith in the wrong things. We have faith in what can't be done rather than what can be done. We have faith in lack rather than abundance but there is no lack of faith. Faith is a law." Eric Butterworth
"We must walk consciously only part way toward our goal, and then leap in the dark to our success." Henry David Thoreau
"Patience is bitter, but its fruit is sweet." Jean Jacques Rousseau
"You're got to take the bitter with the sour." Samuel Goldwyn (Just a joke folks to see if you are awake.)
"Castles in the air--they are so easy to take refuge in. And so easy to build as well." Henrik Ibsen
"There are always two choices. Two paths to take. One is easy. And its only reward is that it's easy." Unknown
"The difference between involvement and commitment is like ham and eggs. The chicken is involved; the pig is committed." Martina Navratilova
“Commitment is what transforms a promise into reality. It is the words that speak boldly of your intentions. And the actions which speak louder than the words. It is making the time when there is none. Coming through time after time after time, year after year after year. Commitment is the stuff character is made of; the power to change the face of things. It is the daily triumph of integrity over skepticism." commonly attributed to Abraham Lincoln or Shearson Lehman
"In the confrontation between the stream and the rock, the stream always wins--not through strength but by perseverance." H. Jackson Brown, Jr.
"The difference between perseverance and obstinacy is, that one often comes from a strong will, and the other from a strong won't." Henry Ward Beecher
"Perseverance is the hard work you do after you get tired of doing the hard work you already did." Newt Gingrich
"Persevere and get it done." George Allen
"Fortitude is the marshal of thought, the armor of the will, and the fort of reason." Francis Bacon
"There is but one philosophy and its name is fortitude! To bear is to conquer our fate." Edward G. Bulwer-Lytton
Claire
P.S. Juanita, I almost included that quotation that you submitted while I was compiling this this!
Last edited on Thu Aug 14th, 2008 18:05 by eClaire
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CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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magsmom
Member in Phase 2
| Joined: | Thu Aug 7th, 2008 |
| Location: | Oklahoma USA |
| Posts: | 44 |
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Posted: Fri Aug 15th, 2008 05:46 |
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Hi Deb,
Strength:
Strength is born in the deep silence of long-suffering hearts; not admist joy. ~ Felicia Dorothea Browne Hemans
My TMJ pain (?) - ( as it may be Trigeminal Neuralgia pain)  -[I have been diagnosed with both] - - - is more in my eye and radiates down through the sinus area to my teeth. I have had sharp pain in this one tooth for ages so bad I "elected" a root canal on a perfectly healthy tooth - at the time the pain was so bad I thought if you took out the nerves surely the pain would no longer be there - - - - that has been 7 or more years ago now and I still have pain in this tooth. I have sharp electrical like bolts of lightning that stabs through my eye that literally takes away breath- I have a little bit of tension in my jaw - and diagnosed with TMJ - and am suppose to be to the end of my 'stint' therapy - but recent complications have rendered delay and progress with this form of therapy - -
What ever it is - - Pea Soup ?? I sure hope I have relief with the MP as you say you have. Thanks for sharing. Magsmom
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FM/Fatigue/Lyme/TMJ/Trigeminal Neur/Migraine/Degen Disc Dis/Sciatica/OsteoArth/Myalgias 125D52.2 Ph1Aug08 Benicar NoIRs low light home exp rt work aprx 30min 25D32.4
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Deb Grabetz
Advocate
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Posted: Fri Aug 15th, 2008 11:39 |
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Magsmom,
Strength...yes I guess that would define it quite well. Claire had written about what it takes to be the kind of person to committ and execute the MP to its fullest...now that I've read your strength quote, it is obvious we've all gained this strength through many years of suffering! Very nice!!!
Wow, I did not realize that type of pain (TMJ)would generate into the teeth. If you read back in my earliest posts I suffered from nerve pain in my teeth for years (until the MP!) and my dentist always told me there was *nothing there*. It was so frustrating because I could even tell the gum area was swollen but to him and no offense, he's a good dentist but there was a lot going on. After about 3 months on the MP it was one of the first nasty symptoms to disappear for me and I've not experience since! (He may be another that I'll educate about MP)
Good things are ahead for you.....Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
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Deb Grabetz
Advocate
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Posted: Fri Aug 15th, 2008 14:11 |
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
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Juanita
Member in Phase 2
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 368 |
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Posted: Fri Aug 15th, 2008 16:29 |
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Oh, Magsmom! Quick note relating to nerve pain and not quote. Yeah, that goes away! Phase 1 that was one of my worse IPs, that nerve pain in the teeth, sinuses and eyes. Oh, mercy, I thought I was going to have to have five root canals, but it was just IPs and it went away. Now it's a rare thing and when it arrives, it is much less pain. Much! So you just hang in there and keep doing your treatment. Relief is on the way.
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D| Sept 21/07 25D-40.8ng/ml| May 7, 07 1,25D-35.8pg/ml
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magsmom
Member in Phase 2
| Joined: | Thu Aug 7th, 2008 |
| Location: | Oklahoma USA |
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Posted: Fri Aug 15th, 2008 18:26 |
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Juanita & Deb
So many things to look forward too!! Deb - like I said not sure how much of the pain description to attribute to the TMJ or to the Trigeminial Neuralgia - etc- ( It is funny to think that two different diagnosis and two different doctors making claim on your symptoms !!) Like - they can have it! ~ ~ ~
Really hits home that at some point it is not your diagnosis, ( I am thinking of these in the sense of "street names") but more importantly it all points to TH1 Inflammatory Disease - -So I am recognizing some of us have the same symptoms with not the same diagnosis and some of us have same diagnosis with similiar and or different symptoms - our pain experience is where our paths have initially crossed but with the success of MP elevating us to be "symptom free" , "disease free", "FREE", this is the point where we all meld & bond. Let's here it for FREEEEEDOMMMM!!!
Magsmom
Last edited on Fri Aug 15th, 2008 18:29 by magsmom
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FM/Fatigue/Lyme/TMJ/Trigeminal Neur/Migraine/Degen Disc Dis/Sciatica/OsteoArth/Myalgias 125D52.2 Ph1Aug08 Benicar NoIRs low light home exp rt work aprx 30min 25D32.4
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caroldeleah
Member in Phase 2
| Joined: | Tue Jan 15th, 2008 |
| Location: | Maine USA |
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Posted: Sun Aug 17th, 2008 08:02 |
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How about a limerick? (I'm projecting a few months into the future here, since we're new on MP)
There was a young girl named Deleah
Who had-a-bug take up home in her uvea
But when Benny and Minny
Arrived to evict her
She said, "I will go, but you'll feel it!"
She will feel it twice--first the IP, then the glorious health!! We look forward to that for you, sweetie! Love, Mom
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Uveitis/Hashimotos/Hypothyroidism/Thyroid Nodule/Arthralgias/RefractiveMyopia/1,25D34/ Ph1Aug08/Ph2Nov08/25D14(10/08)/Combigan/Cytomel/RefreshPlusSgl
NoIRs/LowLuxHome/CoverUp/Sunscreen
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Juanita
Member in Phase 2
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
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Posted: Mon Aug 18th, 2008 15:58 |
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Good one, Caroldelea!!
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D| Sept 21/07 25D-40.8ng/ml| May 7, 07 1,25D-35.8pg/ml
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Joyful
Member in Phase 3
| Joined: | Sat Jun 9th, 2007 |
| Location: | USA |
| Posts: | 600 |
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Posted: Wed Aug 20th, 2008 22:05 |
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Just came across this quote:
"I started out with nothing. I still have most of it."- Micheal Davis
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Lyme?1980 Babs?05 Bart?05 CFS?06 | 125D50 Ph1Jul07 Ph2Feb08 Ph3Aug08 | NoIRs cover up but rarely leave low lux home | 25D15 Oct08 | ABC of MP
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Joyful
Member in Phase 3
| Joined: | Sat Jun 9th, 2007 |
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Posted: Fri Aug 22nd, 2008 05:19 |
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Consider the postage stamp:
its usefulness consists in the ability to stick to one thing
till it gets there.
~Josh Billings
The greatest oak
was once a little nut who held its ground.
~Author Unknown
It's not that I'm so smart,
it's just that I stay with problems longer.
~Albert Einstein
Found at: http://www.quotegarden.com/perseverance.html
Last edited on Fri Aug 22nd, 2008 05:20 by Joyful
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Lyme?1980 Babs?05 Bart?05 CFS?06 | 125D50 Ph1Jul07 Ph2Feb08 Ph3Aug08 | NoIRs cover up but rarely leave low lux home | 25D15 Oct08 | ABC of MP
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eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1010 |
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Posted: Fri Aug 22nd, 2008 07:30 |
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| Joyful, I LOVE those quotations!!! Claire
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CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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