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Deb Grabetz
Moderator
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Posted: Mon Aug 25th, 2008 14:15 |
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"Coming together is a beginning,
staying together is progress,
and working together is success." 
Henry Ford
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Deb Grabetz
Moderator
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Posted: Thu Aug 28th, 2008 01:14 |
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AS I WAS READING THE MP SUCCESS STORIES LINK, I HAPPENED ACROSS THIS POEM WRITTEN BY GUSS WILKINSON A FELLOW MP'ER SINCE OCTOBER '03, THIS WAS POSTED IN JUNE, '07. I THOUGHT IT WORTH SHARING WITH ALL...
The Tunnel
Years of fog, pain, rage, confusion and angst,
- Fighting for breath,
- Fighting for sleep,
- Fighting for energy,
Years of waking up in a soaking bed,
- Struggling to find names,
- Struggling to find joy or hope,
- Struggling to find strength,
Years of apologising to people I love,
- For things that I said and did,
- For things that I thought,
- For things that I didn’t say, do or think
Years of losing myself
- The looks,
- The humour,
- And the fun,
My Family, my friends and others,
- Were losing me,
- But I am such a lucky man,
- For I did not lose them,
They are the heroes, soul-mates, brothers and sisters,
- And I am back,
- With a vengeance,
- With a spark,
No light at the end of the tunnel,
- For I have emerged,
- From the darkness and gloom,
- With a spring in my stride,
The tunnel is far behind me now,
- The air is so sweet and fresh,
- Vision is so crisp and colourful,
- Thought is so clear,
But who am I now?
- I am a husband and lover again,
- I am a valued father once more,
- I am a strong and dependable friend,
Push through fellow fighters,
- The journey is hard,
- The struggle is tough,
- But follow the trail,
We will be waiting for you at the other end,
- We’ll laugh together,
- We’ll remember together,
- And we’ll walk the rest of the way together…as better people
Guss: http://www.bugeikan.com
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Freddie Ash
Member
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Posted: Thu Aug 28th, 2008 12:27 |
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HI ALL
This is Fred in WV. Here are a few quotes that I came across:
1) FUNNY THING ABOUT KINDNESS...THE MORE IT'S USED, THE MORE YOU HAVE.
2) IF YOU ALWAYS DO WHAT YOU'VE ALWAYS DONE, YOU'LL ALWAYS GET WHAT YOU'VE ALWAYS GOT.
3) LOVE WILL FIND A WAY, INDIFFERNECE WILL FIND AN EXCUSE.
4) A SONG IN THE HEART GIVE THE DAY A GOOD START.
5) YOU WILL NEVER STUMBLE INTO ANYTHING GOOD WHILE SITTING.
6) SOMETHIMES THE MONEY YOU SAVE BY DOING IT YOURSELF WILL COME IN HANDY FOR GETTING IT DONE OVER. (on this one I think of how I spent money on the old ways of getting better with the old system way of treating the TH1 diseases)
7) YOU CAN'T TURN BACK THE CLOCK, BUT YOU CAN CERTAINLY WIND IT UP AGAIN. (isn't that what we have done by now being on the MP??)
8) FROGS HAVE IT EASY....THEY JUST HAVE TO EAT WHAT BUGS THEM.
9) SOMETHIMES, NOT BEING YOURSELF IS QUITE AN IMPROVEMENT.
I will stop here but will post more later.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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eClaire
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Posted: Thu Aug 28th, 2008 12:59 |
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Freddie, I LOVED those!!!
The one about bird song reminded me of another:
Those who wish to sing always find a song.
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Sarah Jane
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| Location: | Alberta Canada |
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Posted: Sat Aug 30th, 2008 19:59 |
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Great quotes, everyone! I don't know if these have been submitted yet or not, but here goes. 
Success is the sum of small efforts, repeated day in and day out.
Robert Collier
Our greatest glory is not in never falling but in rising every time we fall.
Confucius
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MCS, CFS, Celiac, affected neuro, skin rashes | avoiding light and D | May7/07 25D=31.2ng/ml 1,25D=64.17pg/ml | OTC pain and allergy meds prn | Naproxen | Quercetin | Ph1- Aug 02/07 | Ph2- Mar 16/08 | Mod Ph2- Jun 8/09 |
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eClaire
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Posted: Sat Aug 30th, 2008 23:17 |
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The following quotations are from Buddha, a beautiful book of photographs of Buddhas by Jon Ortner accompanied by a selection of Buddhist sayings (Welcome Books, NY, 2003).
I thought some folk might appreciate some of them on their MP journeys.
When a man has crossed over a river by the raft which he has built, he must leave the raft and proceed on his journey. In this way I have taught you The Dharma for getting across, Not for retaining. You must not cling to states of mind. (No doubt a number of us on the MP have states of mind about illness that we will need to let go of as we proceed along the MP journey and into wellness. The MP heals in many ways even if not by design--physical, emotional, spiritual...for me the practice of the MP highlights my attachment to plans--having things my way--, my resistance to change--flexibility--, and my desire for more immediate results--patience. I'm sure others could point out ways in which the "practice" of the MP is doing more than return them to physical wellness.)
As a silversmith sifts dust from silver, remove your own impurities little by little.
Perhaps I should post the next six on the "Overcoming Offense" thread:
Harsh words do not serve as a remedy and are pleasant to no one.
Develop the state of mind of friendliness, for, as you do so, ill-will will grow less; and of compassion, for thus vexation will grow less; and of joy, for thus aversion will grow less; and of equanimity, for thus repugnance will grow less.
The greatest gain is to give to others; the greatest loss is to receive without gratitude.
Look to your own faults, what you have done or left undone. Overlook the faults of others. (Of course, THIS can be taken to an unhealthy extreme!!! )
In this world hate never yet dispelled hate. Only love dispels hate. This is the law, ancient and inexhaustible. You too shall pass away. Knowing this, how can you quarrel?
Do only what you do not regret.
This one I love (as I can see myself in this one--the annoying people part!!!--for sure):
For one who is free from views there are no ties, for one who is delivered by understanding there are no follies; but those who grasp after views and philosophical opinions, they wander about the world annoying people.
Lastly...
If you will not take care of each other, who else will do so? Those who would attend to me, let them attend to the sick.
Claire
Last edited on Sat Aug 30th, 2008 23:18 by eClaire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Deb Grabetz
Moderator
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Posted: Mon Sep 1st, 2008 17:40 |
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~ All labor that uplifts humanity has dignity and importance and should be undertaken with painstaking excellence ~
Martin Luther King, Jr.
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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ShmickyD
Member
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Posted: Fri Sep 5th, 2008 18:24 |
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Here’s one especially for any one just about to start MP.
It’s from the letters of the Abbe De Tourville 1842-1903, who suffered from his own poor health issues.
Do not let us fear things too much, for we often suffer more from the things we fear than from those which really come to pass. And what good does it do, seeing that when evils come, they bring with them; a strength which we do not have in advance.
It’s sure helped me bite the bullet …….Mick…..
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eClaire
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Posted: Fri Sep 5th, 2008 20:20 |
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Mick, Your quotation on fear reminded me of this one from a Dan Gilbert talk at TED:
"We should have preferences that lead us into one future over another. But when those preferences drive us too hard and too fast because we have overrated the difference between these futures, we are at risk.
When our ambition is bounded, it leads us to work joyfully. When our ambition is unbounded, it leads us to lie, to cheat, to steal, to hurt others, to sacrifice things of real value.
When our fears are bounded, we're prudent, cautious, we're thoughtful. When our fears are unbounded and overblown, we're reckless, and we're cowardly.
The lesson I want to leave you with ... is that OUR LONGINGS AND OUR WORRIES ARE BOTH TO SOME DEGREE OVERBLOWN BECAUSE WE HAVE WITHIN US THE CAPACITY TO MANUFACTURE THE VERY COMMODITY WE ARE CONSTANTLY CHASING WHEN WE CHOOSE EXPERIENCE."
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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eClaire
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Posted: Fri Sep 5th, 2008 20:28 |
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One of the things I've noticed about folk who email me all afraid about beginning the MP (aside from folk who are still working and have loss of work fears) is the fear of death. For example, they say things like "It would kill me to be out of the light," or they are fearful that the cure will be worse than the illness to the point of death. Frankly, I was ready to go and so if the MP did me in, well so be it; at least I was giving my chance at life the best, IMHO, shot. It seems that many folk are clinging to life with such a tight grasp that they can't enter a reality where they themselves assess what might be best for them rather than a medical authority figure or medical consensus. (Imagine running our individual lives all by consensus.)
For a number of reasons, I am not afraid of death...the dying itself. However, there are certain endings that I've glimsped seem horrifying. I've come to realize the following about death when it comes, as it comes to all of us (so quoting myself, ha, ha):
"When death comes, it's probably best to acknowledge it with, 'Ah, here it is.'"
We struggle so much in life trying to deny what is and to grasp that which cannot be grasped. I hope when death comes I will greet it as an old friend (an old friend I faced before).
Last edited on Fri Sep 5th, 2008 20:37 by eClaire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Deb Grabetz
Moderator
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Posted: Fri Sep 5th, 2008 23:04 |
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*MAXINE ON THE MARSHALL PROTOCOL*
Maxine seems to need 2% NoIR's when working at the computer! No wonder Maxine has such a nasty temperament, she has been suffering from Th1.
I'll have to improvise here as Maxine's pic just keeps disappearing...another mood of hers I bet.
She is sitting at the computer,
With her nasty grin,
"I'M OUT OF BED
AND MADE IT TO THE COMPUTER...
WHAT MORE DO YOU WANT"
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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ShmickyD
Member
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Posted: Wed Sep 10th, 2008 11:49 |
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And on a really happy note remember,
Death is just nature’s way of telling you
to slow down!
Mick……
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Deb Grabetz
Moderator
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Posted: Thu Sep 11th, 2008 14:03 |
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"Shedding Light"
From one side of the world to the other
we have all been affected
by the shocking events of Sept. 11. 2001.
A Word of Thanks to all the
men and women around the world
of Police, Medical, Postal
and Firefighter Departments, for having placed
and continuing to place their lives on the front
lines.
A prayer for all Military Departments
and Personnel involved in this war
against terrorism. That the men and
women return safely, and that they and
their families be comforted during
each passing day.
A Special prayer for all the surviving
families and friends of the victims of Sept. 11, 01
all around the world who now face life, without
their loved ones, in a physical form...
A prayer for those who have lost their
livelihoods, that they may rebuild
and be comforted.
A prayer for the opressed peoples that they may be able
to rebuild their lives, towns,
and country.
....AMEN....
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Deb Grabetz
Moderator
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Posted: Sun Sep 14th, 2008 12:01 |
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Note: This post copied from Phase One Alumni Forum *Jason's Progress* as written by his father John.
... today a new awakening in faith has made us realize we are not only called into healing for ourselves, but also in various degrees into healing each other.
Only someone facing or sharing a serious sickness, pain or tragedy knows how hard it is. They know how hard it is to cope with the fear and uncertainty. They know how terrifying it is when the doubt comes. They know how hard it is to throw a mountain into the sea. But remember what Jesus told us in Matthew 17:19-20 when he said "I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, `Move from here to there' and it will move. Nothing will be impossible for you." Faith as small as a mustard seed sounds a little like hope to me, and that's a good start.
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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caroldeleah
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Posted: Tue Sep 16th, 2008 22:36 |
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If My Body Were A Car ( Before, During, but not after MP )
If my body were a car, this is the time I would be thinking about trading it in for a newer model!
I've got bumps and dents and scratches in my finish and my paint job is getting a little dull
But that's not the worst of it.......
My fenders are too wide to be considered stylish. They were once as sleek as a little MG; now they look more like an old Buick.
My seat cushions have split open at the seams. My seats are sagging. Seat belts? I gave up all belts when Krispy Cremes opened a shop in my neighborhood.
Air bags? Forget it. The only bags I have these days are under my eyes. Not counting the saddlebags, of course.
I have sooooooo many miles on my odometer. Sure, I've been many places and seen many things, but when's the last time an appraiser factored life experiences against depreciation?
My headlights are out of focus and it's especially hard to see things up close.
My traction is not as graceful as it once was. I slip and slide and skid and bump into things even in the best of weather.
My whitewalls are stained with varicose veins. It takes me hours to reach my maximum speed.
My fuel rate burns inefficiently.
But here's the worst of it
Almost every time I sneeze, cough or sputter....either my radiator leaks or my exhaust backfires!!!
~~~~~~~~~~~~~~~~~~~~~
<<<<Don't say "I can't"......Say "I haven't learned how, yet.".....Reg Bolton>>>>
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Uveitis|HashimotosHypothyroidism|Thyroid Nodule|Arthralgias|RefractiveMyopia|1,25D34| Ph1Aug08|Ph2Nov08|Ph3Jun09|25D 6(02/09)|25D 9(12/08)|Combigan/Cytomel/RefreshPlusSgl/NoIRs
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Freddie Ash
Member
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Posted: Tue Sep 16th, 2008 23:25 |
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HI CAROL
This is Fred in WV. That is a great one. I had to make a copy to read to my wife. Keep up the great posting.
REmember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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DWD
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Posted: Wed Sep 17th, 2008 03:10 |
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here's one that helps me get through...
"any path in life has its challenging points or it is not a path... merely a resting place".
we've all chosen the path... even if we are the ones who sometimes need the resting place the most...
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Rickettsial infection 125D53 (MP Mar07-Feb08 w/o NoIRs or light avoid) Ph1 Feb08 Ph2 Mar08, NoIRs, homebound low lux home with limited outings covered, endep 25D22 4/02/07, 25D Aug08 6.4
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eClaire
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Posted: Wed Sep 17th, 2008 03:40 |
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"Life isn't about how to survive the storm, but how to dance in the rain."
"Some people dance in the rain while others just get wet."
Here's to making the choice to dance! Claire
____________________
42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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caroldeleah
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Posted: Sat Sep 20th, 2008 04:59 |
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Eventually you will reach a point when you stop lying about your age and start bragging about it.
Some people try to turn back their odometers.
Not me, I want people to know "why" I look this way. I've traveled a long way and some of the roads weren't paved.
How old would you be if you didn't know how old you are?
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Uveitis|HashimotosHypothyroidism|Thyroid Nodule|Arthralgias|RefractiveMyopia|1,25D34| Ph1Aug08|Ph2Nov08|Ph3Jun09|25D 6(02/09)|25D 9(12/08)|Combigan/Cytomel/RefreshPlusSgl/NoIRs
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caroldeleah
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Posted: Tue Sep 23rd, 2008 03:02 |
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I am extraordinarily patient, provided I get my own way in the end.
Margaret Thatcher
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Uveitis|HashimotosHypothyroidism|Thyroid Nodule|Arthralgias|RefractiveMyopia|1,25D34| Ph1Aug08|Ph2Nov08|Ph3Jun09|25D 6(02/09)|25D 9(12/08)|Combigan/Cytomel/RefreshPlusSgl/NoIRs
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