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Deb Grabetz
Advocate
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Posted: Sun Oct 5th, 2008 17:06 |
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No you're not *out there* at all Aunt Diana. Dr. Mercola just runs a well known website that offers a lot of information to mainstream naturalists who prefer supplemental therapies.
Dr. Mercola is best know as founder and editor of the website Mercola.com. He advocates dietary and lifestyle approaches to health. He is very critical of mainstream medicine, the FDA , prescription drugs and surgery to treat disease. In other words he promotes and sells natural products for a profit. He has received warnings from the FDA for marketing nutritional supplements which violates the FDA. So primarily he is alternative medicine. One of his strong beliefs is fish oil and in the winter recommends cod liver oil consumption! Bad news for those with Th1! This is the reason that I emailed him in the first place. This *sound advice* he hands out without consideration of how supplementation affects people like you and I is dangerous! Very dangerous!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
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Aunt Diana
Member in Phase 3
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Posted: Sun Oct 5th, 2008 22:37 |
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| Thank you Deb.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, Oxycodone, advil p/n, darvoocett p/n, lorazapam, ambien, benedryl, zantac, magnesium, colase, Noirs, cover-up or avoid sun, house <30l
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Knochen
Advocate
| Joined: | Thu Feb 23rd, 2006 |
| Location: | USA |
| Posts: | 358 |
| Status: |
Offline
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Posted: Mon Oct 6th, 2008 02:06 |
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"Man will occasionally stumble over the truth, but most of the time he will pick himself up and continue on."
- Winston Churchill
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Reiter's Syndrome 25+ yrs, fatigue, joints, muscles, migraine, brainfog| 25D 6 ng/ml |Benicar May06|Ph1 June06|Ph 2 Sept06|Ph 3 Jan 07|NoIRs K-Cream Zinc Oxide cream - Always covered!
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expate
Member in Phase 2
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Posted: Tue Oct 14th, 2008 14:14 |
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Here a piece from BBC News on Parkinson's and vitamin D (right, you guessed it) insufficiency. I just returned from attending the funeral of a friend who died from Parkinson's.
http://news.bbc.co.uk/2/hi/health/7666749.stm
 dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Freddie Ash
Member in Phase 3
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Posted: Thu Dec 11th, 2008 18:27 |
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HI ALL
This is Fred in WV. I am posting some things that have been in the news this week and I think it is due to the vit-D problems going on now.
1) OPRAH WINFREY SAY SHE WEIGHS 200 POUNDS - I think this is due to her taking extra vit-D. The article says, 'WINFREY, 54, DETAILS HER RECENT STRUGGLES WITH AN OUT-OF-BALANCE THYROID AND HOW THE CONDITION MADE HER DEVELOP A FEAR OF WORKING OUT."
2) MEN IN THEIR 40s & 50s WHO EAT SEVEN OR MORE EGGS A WEEK ARE AT A HIGHER RISK OF DYING EARLIER - According to an alarming 20-year study of 21,327 male physicians by researcher at Brigham and Women's Hospital and Harvard Medical School run a higher risk of dying early. It gets worse, when men who have diabetes and eat any eggs at all raise their risk of an early death.
3) CANCER TO BE WORLD'S TOP KILLER BY 2010 - Cance will overtake heart disease as the world's top killer by 2010, part of a trend that should more than double global cancer cases and deaths by 2030, international health experts reported on Tuesday. Of corse they are blaming tobacco use for most of this.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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Deb Grabetz
Advocate
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Posted: Fri Dec 12th, 2008 23:15 |
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Freddie,
Great post! No doubt these all make sense to me also. Vitamin D was ruining my life and I cannot believe since I've started the MP and given it up how different I feel. Through the years, I was a huge milk drinker, ate eggs, well you know the drill...a few years ago I gave up the milk because I knew it was somehow affecting me and yet had no clue until the MP. Since eliminating eggs, salmon, tuna fish, and the other "high D"s...which has now been 20 months...it is obvious to me what has been dragging my health down and keeping me running on pure grit and willpower. Now of course due to Trevor's research I understand the affect that Vitamin D has been having on my body all these years. So many wasted years of ill health!
Too bad. I'm not sure what it takes to "wake" people up and understand they need to be their own health advocates and not take the media as gospel.
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
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Dr Trevor Marshall
Research Team
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Posted: Sat Dec 13th, 2008 08:30 |
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It is interesting that during my Seminar at West China Hospital, and the subsequent discussions, the words "osteoporosis" or "rickets" were not mentioned at all, nor was there any concern about Vitamin D 'deficiency'.
In China we didn't find any food which was supplemented, although mushrooms and eggs are staples of the diet.
The physicians had no pre-conceived notions about Vitamin D. Wow!
ps: If you want a sneak preview of West China Hospital itself, there is a 10 minute video I put together at:
http://curemyth1.org/flash/WCH.html
It will be a few days before I get the video of the actual seminar online, I have a lot of video footage to sift through
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Carricol
Member in Phase 2
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Posted: Sun Dec 14th, 2008 06:33 |
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| I saw recently where 70% of the cost of medical care in our country goes to treating chronic disease. Many if not most of these diseases could probably be treated by the MP. Makes one wonder how much money could be saved if the nation went on a massive education program and put most people on the MP. The medical community would of course cry foul because there is so much money to be made in the current paradigm.
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Sarcoidosis 125D38 Ph1 Nov07, fluoxitine Lithium Synthroid 5-HTP tyrosine, NOIRs lite exp r/t commute cover up, Ph2 Jan08 25D9 Feb08
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expate
Member in Phase 2
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Posted: Sun Dec 14th, 2008 08:24 |
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Devil's advocate here... OK, I know 70% of medical cost does not translate to 70% of patients [I'm the one who's been taking my Phase II abx on a 9 rather than 10 day cycle due to my ignorance of numbers]... but imagine if people who needed treatment but aren't getting it (AND add in those who actually have th1 disease but are misdiagnosed) were added to those percentages. Well really, imagine.
As I go through my days, attend holiday parties, talk about my dark glasses and see the number of people who nod knowingly when I recite symptoms, I'm not sure who would be running things if everybody went on the MP.
I know that I am barely affected by IP yet (except on the Grump-O-Meter). My reactions have largely been positive. BUT, I can't drive at night, I can't see well enough to draw, paint, sew, repair stuff around the house, not to mention get out to do yard work, garden, etc., etc. Fine for me. But, I alone in my household am undergoing treatment. What if all who needed it did? And, what if 70% of all the people (I know, that doesn't equal "70% medical costs") in the commercial sector suddenly had a "dim"inished life? The electrician, yard "man", postal carrier, day care provider, teacher, researcher, deli worker, gas station attendant, etc... you get the picture. It reminds me of those ads for VW's in the 1970's that pictured a world in which all vehicles were VW's. It was idyllic and cute, but, um no, a VW bug ambulence isn't practicable.
Which is not to say that a widespread large scale MP isn't practicable. I just don't know what it will look like.
Suddenly, you've got a science fiction movie on your hands. On one hand, we are the priviledged few who can afford, in money, health care benefits, time, and flexibility in work, or on the other hand the desperate few who can't afford not to give the MP a go and pursue it by grace of family support, disability payments, or the "generosity" of pharmacuetical companies. In either case, despite my belief in the benefit of the MP to individuals and society and given the nature of the unalterable nature of the hard science behind the MP, the way forward needs thought, planning, and consideration of the array of factors beyond the medicine of it, beyond tolerable IP, that will allow those in need of treatment to pursue a forward path.
End of rant.
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Julia
Advocate
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Posted: Sun Dec 14th, 2008 16:59 |
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I can't drive at night, I can't see well enough to draw, paint, sew, repair stuff around the house
Odette, unless you're one of the very few who have extreme light sensitivity, it sounds as if you're going more 'batty' than necessary.
You can drive at night with whatever strength of NoIRs allows you to see safely. You can read, sew, draw etc, with a reading lamp behind you, adjusted so that you're not getting a lot of reflection in your face.
Many of us old stagers started the MP before the 30-lux recommendation was made. We got on just fine by cutting down on daylight and avoiding very bright lights.
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Sarcoidosis, uveitis, hypercalcaemia, osteoarthritis, eczema. MP May 04.
Leading a full life - good old MP! Julia's story
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Carricol
Member in Phase 2
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Posted: Sun Dec 14th, 2008 21:05 |
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| I of course didn't mean that everyone instantly start the MP. That would not work. However, if over a 5 to 10 year period we gradually started phasing it in the potential would be overwhelming. Not everyone will herx to the same level and in the same way. By catching these diseases earlier one could rid themselves of the pathogens with a lot less impact.
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Sarcoidosis 125D38 Ph1 Nov07, fluoxitine Lithium Synthroid 5-HTP tyrosine, NOIRs lite exp r/t commute cover up, Ph2 Jan08 25D9 Feb08
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eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1007 |
| Status: |
Offline
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Posted: Sun Dec 14th, 2008 21:14 |
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I assumed as much; however, you have to admit that the potential for SciFi material shreaks from the horizon. At the same time, there might be a lot of people willing to live with what they have rather than do the MP unless additional interest (and research) turn up ways to help get endo-toxins out of the body while reducing the sensory experience of IP. (That's the people don't like pain theory. Many might rather, like frogs, get boiled slowly and die.) Claire
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CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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Aunt Diana
Member in Phase 3
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Posted: Mon Dec 15th, 2008 02:35 |
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I can imagine a time when at birth we will be automatically put on a protocol to rid us of the bacteria, before they become so entrenched. I am confident that as acceptance of this treatment becomes more mainstream, there will be many tweaks and changes that will make it easier, .....once the pharmaceutical companies start to put their minds to this they will come up with new and easier solutions, I would guess.
Yes, it is the stuff of science fiction....but I would rather look at it in a positive vein.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, Oxycodone, advil p/n, darvoocett p/n, lorazapam, ambien, benedryl, zantac, magnesium, colase, Noirs, cover-up or avoid sun, house <30l
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expate
Member in Phase 2
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Posted: Mon Dec 15th, 2008 03:18 |
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Hi, not trying to be negative. Just expressing my thoughts/feelings.
Aunt Diana, I hadn't even thought about "catching" the young... would definitely relieve the burden down the line.
Claire, what can I say? Maybe I do get dramatic at times.
Carricol, I knew you weren't saying, this is the deal, here we go deal with it. But your post struck a note with me, one that many have heard, responded to, and then had to deal with, which is that WE KNOW how the MP has helped us, but the roads to spreading "the word" reek of prostheletizing (sp?). So how, in a rational manner and with the knowledge that the established medical community (and this is why I was so irrate last night... I was at a party, talked to an MD about my experience ONLY BECAUSE HE ASKED ME ABOUT MY NOIR'S, and was actually, really [verbally] abused by him) has barriers to truth set up, how can we make inroads? It has taken me some reflection to understand how horrid his responses to me were. I understand now, his reaction. He has some real issues to deal with. But I was not prepared for the vitriol. I am now, and that will never happen again.
Julia (Hi!!! ). I don't know where I fall on the photosensitivity scale. I am "more" than not, but I am not as sensitive as many I read of. My problem is that I really need a good amount of light to see details. But when I take my glasses off to get that light, I have definite consequences. Painting involves color, which is skewed with my amber noirs, but OK, it could be interesting. But mostly, it's about seeing detail with limited light.
As to the driving, I can do it at night on well lit roads with glasses. But I live in a fairly small town (90,000) where there is not good lighting or marking of side streets. If it isn't lit, I can't see it with my NoIR's on (I have to wear them because the lights of oncoming cars is blinding). That freaks me out a bit.
Soooo, if I'm in familiar, well-lit territory, I can drive at night. I prefer to let my husband do it though. BUT, we went to a concert at a place up near the city (OKC) and got 40 minutes lost on the way home because I can't aggrivate my husband as I used to with my back seat driving. I have to suppose he can see and has the sense to look where we're going. I started to freak out when we discovered "swamps" in OKC, and found ourselves on curving 2 lane roads with 50 mph speed limits that had no white, yellow, or otherwise lines painted to let you know where the road ended and the pasture began. I vowed never again go into unknown territory at night.
 dette
Again, end of rant.
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1007 |
| Status: |
Offline
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Posted: Mon Dec 15th, 2008 05:44 |
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 dette,
That was not you shreeking from the horizon! People are capable of such absurdities and atrocities that SciFi imaginings can be instructive (and therefore positive).
Sorry you had that experience with the doctor at the party. I've had negative experiences with folk learning about the MP from me, however, none involving a doctor at an event. How rude.
I love the range of perspectives that folk have on this site even as I think there may be no such thing as enough levity, particularly when facing a health crisis of the magnitude we are facing in the US. Laughter, even if it had no impact on the health of the body, can help us keep our spirits up so we'll be better able to handle whatever aburdities (or atrocities) come our way as we try to get the word out about psuedo-vitamin D.
Claire
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CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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JohnMcC
Member
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Posted: Mon Dec 15th, 2008 16:35 |
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expate wrote: I was at a party, talked to an MD about my experience ONLY BECAUSE HE ASKED ME ABOUT MY NOIR'S, and was actually, really [verbally] abused by him) has barriers to truth set up, how can we make inroads? It has taken me some reflection to understand how horrid his responses to me were. I understand now, his reaction. He has some real issues to deal with. But I was not prepared for the vitriol. I am now, and that will never happen again. Odette, likewise sorry that you have that negative experience....
As I have been escorted from a Sarcoid "specialists" office by security because I dared to challenge his omnipotence...(called him a quack too!....not too smart, I know)
I finally accepted that doctors are no different from any other professional (lawyers, architects etc) they just have chosen medicine - some are good at what they do others are not. Does not make them all seeing, all knowing - most can't see past their med school indoctrination. I have argued with two doctors in recent months (my MP blog can be scathing to elements within the medical/pharmaceutical world and my brother directed a couple of medical friends to have a read) They were initially outraged and after I asked about my rights as a patient, my rights to my body and the fact that big business drives the drug sales - they did back off......grudgingly. I have the right to demand a well educated and knowledgeable physician - why should I be denied the right to have a say in my health.
But there are many out there that do see the patient as a vital team member and are willing to work with them - in fact reading the initial reports from Dr M regarding his visit to China fills me with hope that things are now gaining momentum for the MP. Hopefully you will not be subjected to another medical "Luddite"
The bubble of protectionism around medicine has to burst if people are going to get well regardless of profit...
rant over....
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25/04/05(25D-41 1,25D-94 ACE 35)
Diagnosed by biopsy Jan '93 Lung,lymphnodes, skin lesions X lots, depression, fatigue.
25/09/08(25D-30 1,25D-63 ACE 35)
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Aunt Diana
Member in Phase 3
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Posted: Mon Dec 15th, 2008 16:42 |
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Odette,
If you didn't live in Oklahoma I would swear you met my brother at that party the other night.
Charming fellow...isn't he?
Obviously, thinking outside the box is not something they are trained to do. Therefore the resentment upon meeting someone who does think.
Thank God they are not all like that.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, Oxycodone, advil p/n, darvoocett p/n, lorazapam, ambien, benedryl, zantac, magnesium, colase, Noirs, cover-up or avoid sun, house <30l
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expate
Member in Phase 2
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Posted: Mon Dec 15th, 2008 21:10 |
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Thanks Clair, John and Diana. My day is brighter already.
dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Carricol
Member in Phase 2
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Posted: Sat Dec 20th, 2008 04:42 |
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Doctor Mercola is at it again on Vitamin D
http://articles.mercola.com/sites/articles/archive/2008/12/16/my-one-hour-vitamin-d-lecture-to-clear-up-all-your-confusion-on-this-vital-nutrient.aspx
Thoughts? Comments?
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Sarcoidosis 125D38 Ph1 Nov07, fluoxitine Lithium Synthroid 5-HTP tyrosine, NOIRs lite exp r/t commute cover up, Ph2 Jan08 25D9 Feb08
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Linda J
Member in Phase 3
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Posted: Sun Dec 21st, 2008 05:36 |
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Keep in mind that doctors probably get exposed to more l-form bacteria in their line of work than most people, because of all the sick patients, all the use of antibiotics and anti-pathogenic chemicals in order to reduce the risk of infection. So they're likely dealing with the Th1 mental problems that so many people with Th1 develop, which includes dogmatism, fanaticism, negativity, intolerance and prejudism, and all the nasty negative effects that those Th1 pathogens have on the brain.
They can't help being so close minded, because their minds really are being restricted from being able to adapt and change. So they get stuck on past medical training, and have a very difficult time shifting gears to new ways of thinking.
It really makes perfect sense, if you think about it. So it isn't surprising to meet doctors who are so derogatory and fail to appreciate the benefits of the MP. They're simply unable to get past the effects that all that excess exposure to l-form bacteria has on them.
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Lyme thyroiditis IBS MVP PTSD MCS 125D63 SAM-e Claritin probiotics psyllium silymarin magnesium 5htp GABA homebound low lux NoIRs 25D8 (Oct08)
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