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expate
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Posted: Sun Dec 21st, 2008 04:38 |
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Makes sense to me.
 dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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eClaire
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Posted: Sun Dec 21st, 2008 05:43 |
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I must be fanatically open-minded. Me and a quite a few other people on the MP.
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Knochen
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Posted: Sun Dec 21st, 2008 15:33 |
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They can't help being so close minded, because their minds really are being restricted from being able to adapt and change. So they get stuck on past medical training, and have a very difficult time shifting gears to new ways of thinking.
A 2 year old with an M-16 doesn't know what he's doing either, but can make you just as dead. Sorry, it's a doctor's job to learn and grow with advances in medicine. If they are incapable of doing that, they should get into another line of work where they will be less dangerous. I wouldn't tolerate a drunken truck driver complaining that his livelihood was at stake when his keys were taken away. Same goes for doctors. They need to be held to a high standard.
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Reiter's Syndrome 25+ yrs, fatigue, joints, muscles, migraine, brainfog| 25D 6 ng/ml |Benicar May06|Ph1 June06|Ph 2 Sept06|Ph 3 Jan 07|NoIRs K-Cream Zinc Oxide cream - Always covered!
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jondank
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Posted: Fri Dec 26th, 2008 15:53 |
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I have a couple of questions and comments re vitamin D in foods. I have an excellent book called "The Vitamins" by Gerald Combs, Jr. In the section on vitamin D it reports that eggs have 28 IU/100 gms. Salmon has 220 - 440 IU./100g. On those occasions in which I have inadvertantly eaten eggs I do not get any reaction (photosensitivity, eye pain) as I do from eating fish such as salmon or being out in the sun. Eggs do have a high amount of folic acid but your site suggests natural sources of folic acid are ok.
Another food which is on your avoid list is scallops. I can find no evidence that scallops contain any significant amount of vitamin D.
A food that is missing from the "avoid" list is poultry skin. It contains 900 IU/100 gms and I do react to poultry skin.
From the book:
Meats: IU per 100 gms
beef: 13
pork: 84
poultry: 80
If eggs are a problem then pork and chicken would (by the numbers) be even worse.
Regards,
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John: Sarcoidosis 4/07/06 CT Mediastinal & bilat hilar adenopath in lung| angina w/o stenosis lung sympt 06/01/02| 4/27/07 D25:18.4 ng/ml & D1-25=31.8 pg/ml| Beni 40mg q8h| 9/15/06 Ph1| date Ph2|
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Carricol
Member
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Posted: Fri May 1st, 2009 00:17 |
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They are now tieing Vitamin D to the flu.
http://www.medicalnewstoday.com/articles/51913.php
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Sarcoidosis 125D38 Ph1 Nov07, fluoxitine Lithium Synthroid 5-HTP tyrosine, NOIRs lite exp r/t commute cover up, Ph2 Jan08 25D9 Feb08
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Markt9452
Member
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Posted: Fri May 1st, 2009 01:16 |
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That is really well written. Hats off. If I hadn't gotten sick and realized what was really going on I would have believed every word.
I can guarantee a high percentage of persons reading that will buy D in the very near future if not right away.
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Th1 Lyme 125D20 D2510 Ph1Feb08 Ph2Apr08 daily lite exp covered up NoIRs| MyStory|
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jondank
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Posted: Fri May 1st, 2009 02:00 |
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I don't have a problem with the hypothesis...and it may explain why eating chicken soup would be helpful against viral infections as it would have a lot of vitamin D from the skin.
Unfortunately we can't take advantage of these benefits until we have completed our MP.
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John: Sarcoidosis 4/07/06 CT Mediastinal & bilat hilar adenopath in lung| angina w/o stenosis lung sympt 06/01/02| 4/27/07 D25:18.4 ng/ml & D1-25=31.8 pg/ml| Beni 40mg q8h| 9/15/06 Ph1| date Ph2|
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Dr Trevor Marshall
Foundation Staff
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Posted: Fri May 1st, 2009 15:17 |
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Since the symptoms from colds and flu are primarily immunopathology:
The Common Cold is really Immunopathology?
then it makes sense that Vitamin D would palliate them. What it does to the body's ability to fight the flu infection is quite another thing.
Make sure you see my new Prague presentation, where I describe how the tata protein from HIV takes hold of the VDR in order to overcome the human immune system. Mycobacteria down-regulates VDR too. And as discovery continues, I would not be at all surprised to find many of the other viruses have evolved to to do this, but less effectively. The tat protein that takes hold of the VDR has already mutated into gut bacteria (can't find the paper right now, maybe somebody here can help me find it again).
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Russ
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Posted: Fri May 1st, 2009 15:44 |
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| Is Benicar capable of displacing the tata protein from the VDR? Thinking more in terms of the gut bacteria that have adapted to use this rather than HIV.
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Lyme, MCS, ADD, optic nerve inflammation | Phase 1: Jul '06 | Phase 3: Jul '07 | 25D: 5 ng/ml (Oct '09)
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Dr Trevor Marshall
Foundation Staff
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Posted: Fri May 1st, 2009 16:31 |
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I doubt it. But we don't know the way that the disordered protein tat binds to the VDR, so the 'doubt' is all guesswork.
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Russ
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Posted: Fri May 1st, 2009 19:19 |
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| So does that mean bacteria and viruses that have this mutation are invincible?
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Lyme, MCS, ADD, optic nerve inflammation | Phase 1: Jul '06 | Phase 3: Jul '07 | 25D: 5 ng/ml (Oct '09)
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eClaire
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Posted: Sun May 3rd, 2009 04:35 |
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Dr. Cheney now says that Vit D3 is toxic. http://aboutmecfs.org/blog/
Too bad he is still off base with his new protocol.
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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jondank
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Posted: Tue May 5th, 2009 03:07 |
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| Further comment on theory that Vitamin D protects against the flu. I checked the weather in Mexico in April: no accumulation of precipitation. Rainy season is May through October. So, we would expect the population to be well stocked with vitamin D. So why are all of the deaths only in Mexico? The deaths are among young adults. Immune system over-reaction?
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John: Sarcoidosis 4/07/06 CT Mediastinal & bilat hilar adenopath in lung| angina w/o stenosis lung sympt 06/01/02| 4/27/07 D25:18.4 ng/ml & D1-25=31.8 pg/ml| Beni 40mg q8h| 9/15/06 Ph1| date Ph2|
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Lee
Member
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Posted: Mon May 18th, 2009 23:12 |
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I have a dear first cousin showing serious signs of th1 and knowing of my sarc and previous high "D" levels she had hers checked. Hers are quite low(about 10) and has now been convinced to supplement at very high doses. She is now getting getting the dreaded "palliation effect" and cannot understand my muddled attempts at explaining how her disease is doing this .... Can someone please help me to understand better so I can better explain this to her?! She is a dear sweet gal that has to support herself entirely and needs her health back asap!! TIA!! Lee
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2003 SARC w/COPD
D ratio-2.13 Ph1-2/05 Benicar| 4/05 PH2| 06 Ph3| D25=5.4 2007-TSH-0.09 probiotics/silymarin/sunlight w/noirs
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DNStog
Member
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Posted: Tue May 19th, 2009 02:25 |
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Lee...I would email her the links to Amy's newsletter Bacteriality. There is a lot of information to be had there on Vitamin D, much in layman terms. You could make it easier for her by printing off the papers yourself. Also see Joyce Waterhouse's paper:
http://www.townsendletter.com/Jan2009/vitaminD0109.htm
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Sarcoidosis/skin, joints, lungs, nerves, Raynauld's, uveitis, hypothyroid, sinus, wt. gain, Peradontal disease, GERD-hiatal hernia, breast ca 11/06, 25D7, Synthroid, Wellbutrin, eye vits, melatonin, Milk Thistle, Quercetin, Rx glacier, cover up, low lux h
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Lee
Member
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Posted: Tue May 19th, 2009 23:31 |
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| Thanks! I guess this will explain the low Vit D values as well as the high? Lee
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2003 SARC w/COPD
D ratio-2.13 Ph1-2/05 Benicar| 4/05 PH2| 06 Ph3| D25=5.4 2007-TSH-0.09 probiotics/silymarin/sunlight w/noirs
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Deb Grabetz
Support Team
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Posted: Thu Jun 11th, 2009 11:38 |
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I'm not sure if this has been posted on site. A recent study posted from Amy Proal's site on connection between milk consumption and Parkinson's Disease.
http://bacteriality.com/2009/04/04/milk/
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Lee
Member
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Posted: Thu Jun 11th, 2009 17:30 |
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| Hubby has been diagnosed with Celiac disease and his Vit D 25 is 19. His doc wants him to supplement D3(natch). How can I explain to doc and hubby WHY it would be criminal to supplement "D" as sick as Hubbuy is getting! This is the same doc that helps me with the MP and saw my very high Vit D levels. TIA!! Lee
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2003 SARC w/COPD
D ratio-2.13 Ph1-2/05 Benicar| 4/05 PH2| 06 Ph3| D25=5.4 2007-TSH-0.09 probiotics/silymarin/sunlight w/noirs
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Joyful
Foundation Staff
| Joined: | Sat Jun 9th, 2007 |
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Posted: Thu Jun 11th, 2009 17:50 |
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Lee, the links provided recently in this thread really contain some great information to print/hand out.
I made the point quickly with a family member today by explaining that in the past D was used in rat poison AND that the reason there are laws about how much D can be put into milk is because way back when it was thought to cure rickets and was added to many foods. At that time children were getting sick with D overdose symptoms and so the law restricts how much D is in the food supply! 
I don't know where the links for that information is, but I read it here somewhere on the site. Of course, that info will not work for the closed mind of a doctor as easily at it will help with an appeal to a loving spouse. 
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DNStog
Member
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Posted: Fri Jun 12th, 2009 03:40 |
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Under the title of Celia Disease, I found this info. --Donna
Some patients with celiac disease have low/normal 25D but elevated 1,25D apparently related to celiac. For examples, see PubMed articles 8186825 and 15310538
Quoting 15310538, "Our patient had hypocalcemia caused by celiac disease and values for serum 25-hydroxyvitamin D and 1,25-dihydroxyvitamin D that were normal and elevated, respectively. Correction was demonstrated after dietary gluten withdrawal."
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Sarcoidosis/skin, joints, lungs, nerves, Raynauld's, uveitis, hypothyroid, sinus, wt. gain, Peradontal disease, GERD-hiatal hernia, breast ca 11/06, 25D7, Synthroid, Wellbutrin, eye vits, melatonin, Milk Thistle, Quercetin, Rx glacier, cover up, low lux h
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