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Deb Grabetz
Moderator
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Posted: Sat Jun 27th, 2009 14:13 |
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Lee,
Maybe your cousin could connect more with what Vitamin D does to the human body by reading these two links. Using Vitamin D as a way to control rodents might help her understand the effects that D has on the human body also. Too bad Vitamin D is not named for what it truly is Steroid D!
http://digitalcommons.unl.edu/cgi/viewcontent.cgi?article=1014&context=vpcthirteen
http://www.groworganic.com/item_PAB061_Quintox_Mouse__Rat_Bait_Pail_of_.html
So now they've pulled the second one off the market??? Someone didn't like the marketing of what Vitamin D does?? They've opened up Pandora's Box and now want to put the lid back on it!
____________________
Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Caitiegirl
Member in Phase 2
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Posted: Sat Jun 27th, 2009 16:27 |
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Lee,
Hi from the middle of NC. I think this article by Joyce has additional info on how grains and gluten may affect the VDR. I know it is really making us rethink a couple of issues since we are struggling to keep symptoms down right now. And I would keep checking the Knowledge Base. As Paul posts the newly formatted info it is so clear, precise, and to me at the perfect level so that I understand it and can better talk to my doctor.
http://synergyhn.com/cga/
http://mpkb.mp-dev.com/doku.php/home:pathogenesis:vitamind:mechanisms
Hope this helps.
Mindy
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Caitie(19) lyme,seizures, myoclonus, dystonia, digestive, chronic headache, mental fog: 10/23/07 25D 36 1,25D 58, 1/18/08 25D 9.9 Cut sun/D 9/26/07 Benicar 10/25/07, NoIRs 10/29/07
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Ron
Member in Phase 2
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Posted: Mon Jun 29th, 2009 11:39 |
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14-year-old wants Scottish ministers to ensure all children receive supplements of vitamin D.
http://news.bbc.co.uk/2/hi/uk_news/scotland/8101610.stm
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Linda J
Member in Phase 3
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Posted: Mon Jun 29th, 2009 23:42 |
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I found his video on youtube, and would have liked to grade it with only one star, and post a comment on how WRONG he is, just to get the word out, but coudn't remember my google password, so I'm stuck not being able to post a comment. But if anyone else wants to give it a try, and has a google account, here's his youtube video:
http://www.youtube.com/watch?v=NX9t-4G6T_g
I'd really like to see things like this challenged, because some people actually DO read the comments, and the kid, himself will also probably read all the comments about his own video, which makes it a good opportunity to reach him to inform him that he's wrong. I'd like to see LOTS of posts by MPr's. So far there's only 12 people who have rated it, all positive. So if enough people rate it, it could make a significant impact.
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Lyme thyroiditis IBS MVP PTSD MCS 125D63 SAM-e Claritin probiotics psyllium silymarin magnesium 5htp homebound low lux NoIRs 25D8 (Oct08)
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JohnMcC
Member
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Posted: Tue Jun 30th, 2009 15:00 |
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I couldn't watch the video....too angry.
Having lived in Scotland for more than 20 years, having sampled the crap diet and the "culture" (no pun intended) of fast food and easy food not to mention the booze.
The NHS has everything sown up so tight that the peer review has doctors afraid to do anything that will threaten their license - add to that the god like stature (regardless of ability) of the white coat brigade and you have a compliant group of victims
I did add a short post, nothing controversial, no doubt it will be removed as it does not comply with the party line.
I have a sister that is serious ill with sarc, an uncle that is at deaths door because of prednisone & methotraxate - and they think I'm the loony........for taking the time to cure myself.... consider my treatment as nothing short of a witch doctors remedy...
until there is a law against stupidity.........
Sorry for the rant
Regards
John
PS I have already had negative feedback on my comment and called names....stick & stones........
____________________
Diagnosed Sarc by biopsy Jan93
25/04/05(25D-41 1,25D-94 ACE 35)
25/09/08(25D-30 1,25D-63 ACE 35) Phase1 28/09/08
3/12/08 (25D 10.8 1.25D 27.5) Phase 2 22/01/09
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Deb Grabetz
Moderator
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Posted: Tue Jun 30th, 2009 16:30 |
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JohnMcC wrote: I couldn't watch the video....too angry.
Having lived in Scotland for more than 20 years, having sampled the crap diet and the "culture" (no pun intended) of fast food and easy food not to mention the booze.
The NHS has everything sown up so tight that the peer review has doctors afraid to do anything that will threaten their license - add to that the god like stature (regardless of ability) of the white coat brigade and you have a compliant group of victims
I did add a short post, nothing controversial, no doubt it will be removed as it does not comply with the party line.
I have a sister that is serious ill with sarc, an uncle that is at deaths door because of prednisone & methotraxate - and they think I'm the loony........for taking the time to cure myself.... consider my treatment as nothing short of a witch doctors remedy...
until there is a law against stupidity.........
Sorry for the rant
Regards
John
PS I have already had negative feedback on my comment and called names....stick & stones........
Hi John,
You may want to get involved with the SILA site online that a few of us here on the MP have ventured onto. This Sarc support group is based out of the UK and many of its members are from the UK but many are also from other countries. Through some work with the moderators, I was able to get a private group opened up about the MP, so that there could be open discussion for those who were tired of steroids, methotrexate and dead end promises to get well. There are now over 60 members who have joined this group!
Good for you that you are not willing to take the standard road on your journey to wellnes and have ventured onto a path that will gain your health back for you. Cleveland Clinic here in the US is #1 in the U.S. for sarc research and yet they wanted to put me on methotrexate and further damage my health. It is hard to understand... and each and every day I am only grateful that I was handed this special gift of the MP. In just three short months I was so violently ill from steroids, that I knew methotrexate would only bring further stress to my ill body. My daughter who is a nurse tells me often how fortunate I was not to be diagnosed years ago, before the MP was available. She feels my health is much more stable due to the MP.  
____________________
Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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JohnMcC
Member
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Posted: Tue Jun 30th, 2009 17:08 |
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Hi Deb,
I will look up the SILA site - thank you.
I get so frustrated with the status quo attitude and I do get the "on no here comes that weirdo" - I suppose I will have to live with the shame of robust good health...
Regards
John
____________________
Diagnosed Sarc by biopsy Jan93
25/04/05(25D-41 1,25D-94 ACE 35)
25/09/08(25D-30 1,25D-63 ACE 35) Phase1 28/09/08
3/12/08 (25D 10.8 1.25D 27.5) Phase 2 22/01/09
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Deb Grabetz
Moderator
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Posted: Tue Jun 30th, 2009 18:09 |
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It's interesting John though when we start hearing about the plights of others. A very good friend mentioned to me, that a friend of hers has numerous health problems, has had his gallbladder removed, his spleen and some other continuing health problems. She then told me he also had sarcoidosis. I realized upon hearing this, that although I have been struggling with some extreme levels at times of IP, I had avoided the long courses of steroids, methotrexate etc.. and the side affects that come with it. My health is improving from where I was 2 1/2 years ago and I have hope. I have yet to see a sarcoidosis support site, other than the MP, where people seem to have hope!
My friend also mentioned, her friend is not taking care of himself the way she sees me, avoiding the sun, choosing foods, etc. So I suggest you just keep up your "weirdo" status...you're going places John!
 Deb
____________________
Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Ron
Member in Phase 2
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Posted: Tue Jun 30th, 2009 23:52 |
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Now what? "Essential Vitamin D" from leafy greens..? 
http://www.kten.com/Global/story.asp?S=10616535
Julie Mayo, a local Neuropath suggests, "If you are looking for it in food, dark, green leafy vegetables are best such as spinach, kale and broccoli. Another good natural source is sunlight."
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Ron
Member in Phase 2
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Posted: Fri Sep 18th, 2009 22:13 |
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http://www.onlinenews.com.pk/details.php?id=151547
Contrary to expectations, people with the inflammatory bowel condition Crohn’s disease are likely to have excessive levels of the active form of vitamin D in their blood, researchers have found.
Also, the higher the blood levels of active vitamin D in Crohn’s patients, the lower was their bone density
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eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1358 |
| Status: |
Online
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Posted: Fri Sep 18th, 2009 22:22 |
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Hahahahahahahahahahahahahahahahaha... oh, sorry.
____________________
38mo on MP; CFS FMS MCS COPD hypermob. IBS/GERD osteopor.; 125D48 25D<4;
NoIRs during most daylight outings & covered up; home w/o NoIRs
Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08 * Ph2.Oct-Nov08 * Ph1.Jan2009
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Ron
Member in Phase 2
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Posted: Fri Sep 18th, 2009 22:41 |
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http://graphics8.nytimes.com/images/2009/09/15/health/first2_large.jpg
This seems to be the first NY Times article on 'Vitamin D'. Very interesting that it says that the primary cause of rickets is either inadequate calcium or inadequate phosphorus.
So why then all this effort to "cure" it with "Vitamin D"..?
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