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Shadowfeet
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Posted: Sat Jul 19th, 2008 07:02 |
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I know this is a bit of a strange topic, but I'm curious to know if others have had similar experiences.
Before starting the MP I always had curly hair - not tight ringlet type curls, but wavy curly. After 2-3 months on the MP, I noticed that my hair has turned almost straight! Last time I went to the hairdresser I talked to her about it and she had also noticed the changes. She said that she has had other clients whose hair has changed during illness. I just find it interesting that mine didn't change til I started the MP. Maybe it is associated with changes/adjustments in hormones?
I'm not obsessing about it, I know it's a minor thing!  Just wondered if anyone had similar experiences or any insights.
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CFS thyroiditis endometriosis 125D34 25D>7Dec07 Effexor Lyrica thyroxine clonazepam OCP NoIRs limited outings covered up Ph1Sep07 ModPh2Dec07 Ph2May08
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Jeannine
Health Professional
| Joined: | Sun Aug 28th, 2005 |
| Location: | Mississippi USA |
| Posts: | 665 |
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Posted: Sat Jul 19th, 2008 08:02 |
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I think you will enjoy this link!
Hair and nail changes in Th1 diseases and MP
Jeannine
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CFS FM Lyme Morgellon's 125D49 Ph1Aug06 25D <4 april 08)Prozac Valium Aleve ModPh2May07 Ph2Apr08 NoIRs limited outings covered lo lux home
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bealunn
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| Joined: | Sat Jun 23rd, 2007 |
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Posted: Sat Jul 19th, 2008 08:27 |
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Hello
Thanks for your topic.
I have always had curly/frizzy hair to the great frustration of both myself and all of my hairdressers. (Look at my photo. That's after putting a lot of anti-frizz treatment on it ) I think I must have tried just about every product on the market. 
Over the past 2/3 weeks I too have noticed that my hair seems much less frizzy, less dry, I am not using 'Frizz-Ease' as before and my curls are more relaxed and wavy.
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expate
Member
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Posted: Sat Jul 19th, 2008 15:41 |
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I only just started on Benicar two days ago, but I quit taking supplements in early April and started avoiding sun/light, and avoiding D in diet in mid-April. I know I've brought my D levels down just by noting hormonal changes (severe reduction in hot flashes) and improvement in shoulder pain and mobility.
Which is all to say, my hair is a bit thicker than it was. I noticed the difference but thought maybe it was just the shampoo I use (not that I had changed it  ). But then I went in for a haircut (which I only get three-ish times a year since it grows so slowly), and my hairdresser said my hair was thicker without me saying anything. I'm thrilled and hope it continues or at least stays as is. I've always had thin hair 
Now, if I could develop a some of those curls you've lost...
dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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Michele MBK
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| Joined: | Fri Jan 4th, 2008 |
| Location: | Virginia USA |
| Posts: | 69 |
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Posted: Sat Jul 19th, 2008 18:05 |
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My hairdresser said the same thing to me about illnesses changing hair, fingernails and toenails. She said these are the first areas our body "gives up" when becoming ill.
While I was on "conventional" medicine for RA of plaquenil and prednisone I was losing a lot of hair, though was too sick to notice or care. 5 weeks into the MP, my hairdresser pointed out to me for the first time that I had lost a lot of hair and immediately said not to worry because I had an inch of new hairgrowth all over my head. The fascinating comment was that it was about 4-5 weeks worth of hair growth!!! My hair started regrowing almost simultaneously with starting Benicar.
I have noticed my fingernails need trimming more often now. However, my toenails are still slow growing and have ridges in them. I am watching my toenails to see a what point in the MP they may grow more quickly and smoothly.
Now I can only hope that these new hairs coming in will be dark brown instead of grey! 
Michele
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Lyme / RA 125D30 25D16 Advil / Vicodin or Celebrex low lux home NoIRS cover up Ph1May08 Ph2Sept08 May 09D25:6
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sunflower
Member
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Posted: Sat Jul 19th, 2008 18:43 |
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shadowfeet,
my hair has always been very curly, and has definitely straightened alot since being on the MP, also. i liked my hair curlier much better, cause it disguised how thin my hair has gotten over the years. i'm hoping it eventually will go back to the way it was....and i'm hoping it will thicken-up, as well . thanks....sun
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lyme,fibro,candida,allergies,gerd,osteopenia/ pain,fatigue,dizzy,memoryloss20+yrs/ celexa,vicodin/ambien (sleep) probiotic,cal-mag/beni 40mg q6h 11-05/phase 3,8-06/1,25d=34 25d=36,18,17,10,13,5,7
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Juanita
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| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 529 |
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Posted: Sat Jul 19th, 2008 18:53 |
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My guy was going bald and his hair was snowy white like Santa Claus. Now his colour is coming back, even in his beard, and the balding patches are filling back in again, plus the hairs themselves are thicker. Which means as his hair cutter with no training... I have to figure out a new look for him. The old hair cutting style just looks too poofy now that he has more hair to express its self.
I was going very gray and now my hair is more red than white. I look like I have strong highlights instead of just aging. And my hair has more body. I'm hoping my eyelashes will respond the same way as my hubbie's head. They used to be thicker and longer and I want that back.
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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JanEE
Member
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Posted: Sat Jul 19th, 2008 22:57 |
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The last perm I had was before beginning the MP. It turned my hair to a gooey mess, as if a container of Elmer's glue had been worked into it. Since then I have only had about three trims and have just been letting it grow. It has also been getting whiter. My hairdresser says it is so healthy and 'slippery' she can't even get a clip to stay in it. I've learned how though.
I've gone through two or three different bouts of hair thinning and re-thickening during the protocol, but I've always had plenty of hair so I don't mind.
When I was very young I had naturally curly, golden blonde hair and then had to get it all shaved off because a stray cat had given me ringworm. My mother always said she wept when all those curls came off. Oh, the mortification of going to school with a headscarf covering my baldness! When it grew back it was dark brown and straight as a board. I think it would be just wonderful if, when I'm through with the protocol, it would be naturally curly, or a color again, although that might be too much to hope for.
Jan
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CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
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Adrianne
Member
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Posted: Sun Jul 20th, 2008 00:04 |
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My hair has been growing like a weed! My hairdresser was astounded about how much my hair had grown since my last haircut. I have to get it cut more often now.
Adrianne
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CFS Ph1Jan07 ModPh2Apr07 Ph2Aug07 Ph3Feb08 L-tryptophan benadryl famotodine 25D9.1(Mar07) NoIRs limited outings covered
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Shadowfeet
Member
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Posted: Sun Jul 20th, 2008 10:51 |
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Thanks so much for your responses everyone! Very interesting to hear about your experiences.
Jeannine, thank you for posting that link. That's interesting that the hair follicles can be affected by CWD bacteria and 1,25D. My hairdresser told me that the hair follicles are reponsible for whether hair is curly or straight.
Sunflower, sorry to hear that you're missing your curly hair too. I liked having curly hair too, hopefully it comes back for both of us eventually. Still, the main thing I want is to be well again!
I started getting grey hairs when I was 21 - I have quite a few now, 10 years on. That would be great if they disappear!
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CFS thyroiditis endometriosis 125D34 25D>7Dec07 Effexor Lyrica thyroxine clonazepam OCP NoIRs limited outings covered up Ph1Sep07 ModPh2Dec07 Ph2May08
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Deb Grabetz
Moderator
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Posted: Sun Jul 20th, 2008 14:15 |
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Hi!
I've had very similar experiences with my hair! It seemed to start thinning at the top of my head just before I became ill. Not only is my hair thicker and lacking thin spots but my grey is coming in much slower. I think I began noticing the change in the grey hair first. Juanita, I am right there with you on the eyelashes...I've always had these lush, Bette Davis lashes...whoever stole them, please return...there will be a reward and no questions asked! I think you may have the initials CWD!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Knochen
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| Joined: | Thu Feb 23rd, 2006 |
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Posted: Sun Jul 20th, 2008 15:45 |
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I think my hair is less wiry than it was prior to the MP, and it's possible that it's getting the color back. It's hard to say, since I've always had a sort of mousy color that had gray hairs throughout since my early 20's. I started out as a real towhead, then it darkened up in my early teens, then got a little saltier, where it has stayed. The texture does seem a lot better, and I'm certainly not getting grayer. I suppose the real test would be to let my beard grow and see what color it comes in, but I don't want to do that. My hair doesn't show any real curl until it gets a certain length, and I'd look silly at my age with a late 1970's Peter Frampton mane. Can't help you on that one!
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Reiter's Syndrome 25+ yrs, fatigue, joints, muscles, migraine, brainfog| 25D 6 ng/ml |Benicar May06|Ph1 June06|Ph 2 Sept06|Ph 3 Jan 07|NoIRs K-Cream Zinc Oxide cream - Always covered!
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eClaire
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| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
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Posted: Tue Jul 22nd, 2008 01:57 |
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Juanita, You are giving me hope that I will get the red back in my hair! Not that it was red on its own, but with a little sun, I'd turn into a redhead up through my mid twenties (I actually died my hair red one winter with permanent hair dye and none of my friends noticed as they were so used to my red hair in the summer). (I also started off with red hair in life.) My hair turned very dark brown over a few year period and then nearly black in one year around the time when I was 30.
After 20 months on the MP, I think my white and grey hair is disappearing (not that I had much, but enough). And so I will cross my fingers for the red as well!
Now if only the wrinkles that found me when I started going down hill very quickly would leave--that is, if I would get that collagen back--, I could look my norm, which was always 10 years younger than my age.
Claire...
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Dody
Moderator
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Posted: Wed Jul 23rd, 2008 04:16 |
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My hair is coming in much more brown than grey, more brown than in a decade or more. I'm 63, and my hair color's coming back!! Yay, MP! I've been promising our 24-year-old son that I expected to be getting more healthy on the MP than I've been in years. I believed it--but now I REALLY believe it.
All best, Dody
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Lyme Arrhythmia Vertigo Meningitis Bipolar lithium tylenol cover up outside mod low lux inside ModPh2Jul07 Ph2Apr08 Ph3Feb09 D25 Oct09 7 Mar10 4
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Pipistrelle
Member
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Posted: Fri Aug 13th, 2010 17:44 |
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Hair today.. gone tomorrow! Oh dear, I am not a happy bunny when I look at the sparse, fine wispy hair I have left, with the scalp grinning through - I've taken to wearing a selection of baker boy caps indoors as well as out, to hide the disaster that is my (lack of) hair!
I'm the offspring of two fine-haired people, so the genetics don't help anyway. But my sister, five years older than me, has a lush head of plentiful fine hair. Lucky her!! She seems to have escaped Th1 illness so far, which is reflected in her hair I guess.
I'm seriously thinking about a wig, to lift my spirits and feel more feminine. Has anyone else experienced such drastic hair loss? It is not new but has just got to a point that I now want to keep it covered up, I am so embarassed by it... I'm not totally vain but it doesn't reflect the real me and makes me want to cry!
Anyone else got similar tales to tell? Anyone gone down the wig route and was it ok for you? Please do tell!
Morag
Last edited on Fri Aug 13th, 2010 18:05 by Pipistrelle
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Sarc lungs, uveitis '90 dx '92, pred 18 mo '93-'94; D25 31 Nov 06, D1,25 35 Nov 06, NoIRs Feb '07, D restrict Nov 06, low lux home, cover up, light exp work
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Joyful
Foundation Staff
| Joined: | Sat Jun 9th, 2007 |
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Posted: Sat Aug 14th, 2010 12:35 |
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Hello Morag.
Sorry about the hair thinning. I've gone through this too.
Whenever I read that someone on the MP has an increase in hair loss, I think of immunopathology/herx in the endocrine system (think thyroid) as that is a common symptom of low thyroid. Of course, there can be other causes as well. And it doesn't change the distress of watching your hair thin away to so little either. If it were me, I would continue to be vigilant about keeping the IP/herx to a minimum.
As for wigs, I can't say I like the idea for myself. I undertand in Ch.ina they use prisoners of conscience as slave labor for making them.
I will make a quick unrelated note on this topic since I am here... I have started to soak my scalp when taking Epsom salt baths, which I am doing a couple times a week still. When I drop my head back into the water, I massage the scalp to get the magnesium sulfate into the skin. After these baths my hair has more curl (I don't rinse it, it stays fresh only for a day doing this). I like the curl. 
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MP Stories | Bacteriality | MP Search | MP Knowledge Base
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Pipistrelle
Member
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Posted: Sat Aug 14th, 2010 13:19 |
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Thanks Joyful
I'll stick with the hats rather than investigate wigs, I didn't know that about the slave/forced labour used in making them, and I wouldn't like to have exploitation and misery on my conscience or on my head.
I'll try the epsom salts tip too. And will keep looking for jaunty caps!
Morag
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Sarc lungs, uveitis '90 dx '92, pred 18 mo '93-'94; D25 31 Nov 06, D1,25 35 Nov 06, NoIRs Feb '07, D restrict Nov 06, low lux home, cover up, light exp work
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Lee
Member
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Posted: Sat Aug 14th, 2010 13:56 |
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Hey ladies ....I too am experiencing probably a 20-30% hair loss lately! I have always had fine, yet plenty of hair ... Hashimoto's changed that to fine and sparce long before the MP. I do think the MP has helped until just lately and I blame my recent hair loss on the stress of moving ....yet again! Different water and the lack of a suitable bath tub for epsom salt baths. YES, I did exactly as Joyful reports, dipping my hair back into the warm salt water and would gently rub it into my scalp and hair several times per week. I still had thin hair but at least my scalp was not peeping out! My hair was shinier and easier to manage then too. Hubby says our in house water filter helped his skin and hair that we had before this recent move. Living in a rental we cannot put in the same filter but we did install a shower head that supposedly filters out some of the yuckies?! This was just done this week as I have reached the panic stage as far as hair loss goes! I also got a TSH this week to make sure that my thyroid is not over or under treated. I do not think hats are good for hair ....or wigs for that matter. I would be happy just to get some of my own back ... Lee
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2003 SARC w/COPD
D ratio-2.13 Ph1-2/05 Benicar| 4/05 PH2| 06 Ph3| D25=5.4 2007-TSH-0.09 probiotics/silymarin/sunlight w/noirs
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JanEE
Member
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Posted: Sat Aug 14th, 2010 18:59 |
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Morag, I can sympathize with you. While I've still got plenty of hair, there's just a bare hint of scalp through it on the right side. I used to have very thick hair, but it's dwindling away at a fast rate.
I'm hypothyroid and have been taking Armour thyroid. Over time my hair began to fall out at an alarming rate. I found it everywhere---in my clothes, on the floor, filling my hairbrush. Between me and my cat, who was also losing her hair (but she's hyperthyroid), I was beside myself trying to keep it cleaned up.
When Armour thyroid wasn't available in the US for a while, I tried another type that didn't agree with me, so stopped using thyroid completely, and it resulted in no difference in the way I felt. However, I noticed that my hair began to stop falling out---and my cat was on meds to correct her hyperthyroidism so hers had slowed down considerably also.
A few months later I again tested low, and Armour thyroid had become available once again, so my doctor put me back on it---and wouldn't you know my hair is falling out once again.
After five+ years on the MP there hasn't been any change for the better. Doctor has been looking into some kind of iodine therapy to see if that would work better at nudging it into better health so her patients wouldn't have to depend on thyroid meds.
Jan
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CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
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Lee
Member
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Posted: Sat Aug 14th, 2010 21:31 |
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Jan .....eakkkkkkk I am on "synthroid" brand name and that could be a major contributor to my hair loss .... I thought it was more or less my disease causing it. I have had thyroid disease for 42 years! This is the worst my hair has ever been though and I may have to accept some of it might be due to natural aging. My mum's hair thinned late in life and went from curly to straight. She never had thyroid probs but took many meds for heart and circulatory disease. Thanks for sharing! Lee
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2003 SARC w/COPD
D ratio-2.13 Ph1-2/05 Benicar| 4/05 PH2| 06 Ph3| D25=5.4 2007-TSH-0.09 probiotics/silymarin/sunlight w/noirs
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