 |
| Author | Post |
|---|
Dody
Member in Phase 2
|
Posted: Mon Aug 4th, 2008 01:25 |
|
| I lost weight in Phase I and have gained some weight in Phase 2. Like all the other changes that seem to happen on the MP (like lab numbers going up and down), I try to just not worry about the weight and figure that I am a work in progress and will eventually be in much better health than I'm in now, and will also be able to exercise more which will also help with the weight. --Dody
____________________
Lyme arrhythmia Lithium Valium Tylenol Mucinex NoIRs low lux home lite exp r/t to work cover up outside Mod Ph2Jul07 Ph2Apr08 D25Feb08
|
Bobbie
Member in Phase 2
|
Posted: Mon Aug 4th, 2008 04:46 |
|
Thank you, Dody. It's nice to know others experience these things as well. I wasn't overly concerned, just curious. Sometimes it's just nice to know others experience similar things. I agree with you that good health is the most important thing. I am looking forward to it!
Bobbie
____________________
CFS IBS atrial fib 125D94 25D60 Ph1Feb08 no meds NoIRs cover up work at home low lux cut food 25D39(Feb08)Ph2May08 25D21.1(June08)
|
Juanita
Member in Phase 2
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 368 |
| Status: |
Offline
|
|
Posted: Mon Aug 4th, 2008 19:56 |
|
Just prior to starting the MP, I had worked my way down to 156 lbs from eating wisely and walking long distances regularly. Then the MP, darkness, only necessary walking for the dogs needs, and POOF! Up to 172 lb. 
I eat the same, walk no more than I have since beginning the MP, and I now cycle between 169 and 172 lbs. Nothing lower. But my body shape is changing. The weight is leaving my rib cage. I weigh the same so it will have moved elsewhere, probably my arms. But I'm getting kicking rib cage muscles that make small bumps like I've been doing sit-ups. Which I'm not.
Kind people had told me not worry about weight as when our bodies heal, the weight becomes what's healthiest for the individual. I'm counting on that. I know that my muscles have definition like I've been lifting weights. Which I'm not. It's kinda cool.
____________________
MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D| Sept 21/07 25D-40.8ng/ml| May 7, 07 1,25D-35.8pg/ml
|
Bobbie
Member in Phase 2
|
Posted: Mon Aug 4th, 2008 21:04 |
|
Juanita--that's good news. Better definition and muscles looking like you're working them out without all the work. I like it! Our stories in this regard are similar, but I haven't been on the MP as long as you have so you're maybe a snapshot into the days to come. Right now I'm still all flab and bloat in the middle --oh well. I trust in the MP and what it does, and, mostly, I trust my body will know what to do when my body is no longer hijacked with bugs.
____________________
CFS IBS atrial fib 125D94 25D60 Ph1Feb08 no meds NoIRs cover up work at home low lux cut food 25D39(Feb08)Ph2May08 25D21.1(June08)
|
JanEE
Member in Phase 3
|
Posted: Mon Aug 4th, 2008 23:37 |
|
Juanita, From looking at your picture I always pictured you as one of the lucky thin people, so maybe that's what you were meant to be and will be again.
Like you, I had started a walking regime just before beginning the MP and was noticing some nice changes, but that came to a rapid halt.
I no sooner posted here on page one (July 26) about my weight and I lost 5 pounds for no reason. It seems to come and go. I have felt like my body changes sometimes too, but wonder if it's just wishful thinking. I am kind of thinking that it correlates with herxing. When I'm herxing I feel like I'm all flab and bloat just as Bobbie said she feels like she is. It changes so drastically that sometimes I have to unzip my jeans while sitting at the computer. When I'm not herxing is when I feel thinner and I think I look thinner too. I keep hoping things are changing because I've been this way long enough to suit me!!!
I also keep trying to walk on my treadmill but my knees are a wreck and too much treadmill walking doesn't seem to agree with them. A couple years ago I ended up with a torn meniscus from getting up from a chair, and then just as that was getting better I fell down a couple stairs and banged myself up again. I'll keep trying though because some people indicate that our bodies might be able to eventually repair things like that.
So, here's to great muscle tone and repaired, healthy bodies!!!
Jan
____________________
CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
|
Juanita
Member in Phase 2
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 368 |
| Status: |
Offline
|
|
Posted: Tue Aug 5th, 2008 00:52 |
|
I am so happy to hear others deal with bloating also. It's not as bad as it had been earlier in the journey, but it's still a problem for me. Fortunately, most of my pants have elastic and strings in them so I can tighten or loosen as needed. I'll be glad when this is over also.
____________________
MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D| Sept 21/07 25D-40.8ng/ml| May 7, 07 1,25D-35.8pg/ml
|
expate
Member in Phase 2
|
Posted: Tue Aug 5th, 2008 01:40 |
|
I'm feeling like a blob, even though my weight is the same. Mind you, I've only been on Benicar a bit over two weeks and just started Mino today. I have been limiting D since mid April and definitely had hormonal adjustments happening since then.
I had my last ballet class in May (and am increasingly thinking I may not be able to go back mid August) and haven't exercised much this summer. But I didn't feel "blobby" until recently.
On one hand, it's a little scary as I too am someone who struggled with weight, those 5 pounds per year after kids that you wake up one morning wondering where your body disappeared to. I lost 60 pounds about 6 or 7 years ago and had kept it off by eating well and exercising. Then one shoulder and the other went, execise waned and I've put on 10 to 15 pounds in the last 2 years. But because I was exercising, it didn't seem so bad.
Now I even notice a difference in my calf muscles. OK, they're not quite flaccid, but...
However, I trust the MP will get me through this. My diet is good. My exercise is near nil. I will change that as I see how.
I'm thinking of taking a Pilates class this fall instead of ballet. I mean, you're lying down during the whole class. So, you know, if I get dizzy, there's no where to fall... But seriously, I'm just going to take a wait and see attitude. The MP comes first.
 dette
____________________
Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
|
JanEE
Member in Phase 3
|
Posted: Tue Aug 5th, 2008 02:17 |
|
I just remembered this post from Dr. Marshall that I'd filed in my notebook a while back. It was in response to Joyful on Sept. 21, 2007. I think he was telling her about his experiences with probiotics, but it certainly applies to our discussion here also.
Quote: "Joyful, I personally had a very diseased gut until about 5 yrs. into the MP. Bloating, pain, and a host of other symptoms were a constant nuisance. I never found any probiotic to be of any use in reducing those symptoms, and I did try a number of probiotics over the years."
Jan
____________________
CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
|
Juanita
Member in Phase 2
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 368 |
| Status: |
Offline
|
|
Posted: Wed Aug 6th, 2008 19:39 |
|
Doing Pilates is a brilliant idea, Odette! I do floor yoga for the same reason. Sarah, my middle daughter, thought she'd just swing from a floor posture into a Sun Salutation and ... BOOM! On the floor, out like a light. Face first into a pile of dog hair, which didn't impress her germaphobic self. So we're all extra careful now. Some days the whole yoga session will be laying on various pillows to achieve the posture. Stretch without skid marks is our motto.
Lots of people only do Pilates and have fabulous muscle tone from it. So the only trick for you will be where your energy levels will be in the Fall. And if you've got the energy, go for it.
____________________
MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D| Sept 21/07 25D-40.8ng/ml| May 7, 07 1,25D-35.8pg/ml
|
Freddie Ash
Member in Phase 3
|
Posted: Thu Aug 7th, 2008 01:16 |
|
HI ALL
This is Fred in WV. I hope this the correct place for this one. This evening for about 15 or so minutes the front part of my tongue was tingling and had funny feeling with slight numbness. It went away and I consider it an IP. I had forgotten about this one becasue I have had this back in the 1980s. If it last very long I have slight swollowing problems. I just though I would throw this one out there also.
Also, a weird one on sweating. Back in the 1980s I started breaking out in a sweat after eating some fruit, like an apple, peach, plum in one area. Area like on my R side of my forehead just above the eye or even on the other side. I told my doctor at that time and he said he thouht it was a reaction that might cause a migraine. He advised me not to eat any more. But I never quit eating my fruit. I still have this from time to time. I never sweated much from the 1980s on up to now. This year I have sweated more than I can remember for some time.
Remember, we are all in this together and I am pullin for us.
Your friend in Sarcoidosis
Freddie
____________________
Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
|
expate
Member in Phase 2
|
Posted: Thu Aug 7th, 2008 04:19 |
|
Yes, Juanita, I think Pilates will be my answer.
Freddie, your astute observation and body memory are exactly what is welcome here. Speaking for myself, I find it "mind-blowing" to connect all of the dots and begin to get a picture regarding my body and its maladies.
 dette
____________________
Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
|
Deb Grabetz
Advocate
|
Posted: Thu Aug 7th, 2008 13:31 |
|
Hi Freddie,
After having Sarc as long as you have Freddie, it must be such an experience to have so much interesting and revealing IP! It seems when I have those, I am a bit in awe with TM's research and what we have all been gifted here with the MP. It catches me by surprise when I realize an area of my body has healed after years of aggravation! It's a big whoohoo for me!
Thanks, for reminding us "we are all in this together." Always a warm and reassuring feeling! We're pullin' for you also!
Deb
____________________
Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
|
Freddie Ash
Member in Phase 3
|
Posted: Fri Aug 8th, 2008 03:03 |
|
HI DETTA & DEB
This is Fred in WV. Thanks to both of you for all the kind words. I am out to just help others with these TH1 diseases. I have been doing this since I was diagnosed with the Sarc and found out the doctors or nurses did not know anything or could not even find out anything about it. I have lots of stories about Sarcoidosis, doctors, and hospital stays over my years since Aug 1972. In the mid 1990s I was telling a cardiologists about some of the things that had happened to me and he said I should get a professional writer and write a book on the experences. A man at West Virginia Univesity got some of my story once a few years ago because he was going to write a to try to bring awareness to the Sarc and he was to put a whole chapter about me in it but I have never found out if he ever got it published. He may have gotton to sick. Last I heard of it some one was to review it.
On how long I have had Sarc, I most likely had it the whole 68years(make that 69years on Sept 1) of my life. I had ricketts just after I was born. There is more posted in another place at this MP site. My the way, my "REMEMBER, WE ARE ALL IN THIS TOGETHER" saying at the end of each post came one day when I used it on the old Sarcinfo.com site and my friend Belinda liked it so I continuned to use ever since. Also my, YOUR FRIEND IN SARCOIDOSIS" saying came back in 1982 after I found some lady a few miles away from where I lived and we would write letters back and forth to each other every few weeks. I did not know how to sign my letter and I came up with that line to close each letter.
I hope this is not to boring to any one here, but this is just a drop in the bucket about me.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
____________________
Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
|
Pipistrelle
Member in Phase 2
|
Posted: Fri Aug 8th, 2008 10:23 |
|
(slightly off topic but a reply to the above! Please forgive)
Hi Freddie,
I too would like to say how much I appreciate your very reassuring and warm way of finishing off your posts! It kind of sums up the whole ethos of the Marshall Protocol and the level of support we can give each other along the way - as someone else so eloquently put it, 'a bunch of determined folks who want to get better', and another person said, 'with moderators who are angels', who with the advocates, fellow participants and board staff give of their time and support with such generosity.
The MP websites are a shining example of how the internet can be used in a truly humanitarian and healing way.
My gratitude to all
Pipistrelle
Last edited on Fri Aug 8th, 2008 10:27 by Pipistrelle
____________________
Sarc lungs, uveitis '90 dx '94, pred 18 mo '93-'94; D25 31 Nov 06, D1,25 35 Nov 06, NoIRs Feb '07, D restrict Nov 06, low lux home, cover up, light exp work
|
Deb Grabetz
Advocate
|
Posted: Tue Aug 12th, 2008 12:45 |
|
| I cannot seem to keep both the Lifestyles and Main MP open at the same time on my computer? Does anyone know if there is a way to do this?
____________________
Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
|
expate
Member in Phase 2
|
Posted: Tue Aug 12th, 2008 14:15 |
|
I think you just have to use two separate windows.
____________________
Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
|
Dr Trevor Marshall
Research Team
|
Posted: Tue Aug 12th, 2008 14:32 |
|
Or just use two tabs on Firefox
Currently I have 12 open tabs on my Firefox screen
http://GetFirefox.com
|
eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1010 |
| Status: |
Offline
|
|
Posted: Tue Aug 12th, 2008 18:41 |
|
Back to unusual questions - I have 2:
Issue 1: The middle finger on both my hands bend toward the pinky finger with the bend starting at the middle joint and becoming significantly more pronounced at the end joint, and both fingers seem to be twisting to the right as well. I don't know what causes this (it's not like I have much arthritis in either hand..."fibro" mainly). According to Chinese medicine this results from problems with the liver (and well there's the MCS that so many of us get). Okay, so it's BBB (Karon's Big Bad Bugs) or CWD.
My question: (I can force these to straighten and so) I wonder as I get better on the MP will they straighten? Has anyone see anything like this get better? (I'm one of the folk who has trigger finger on each and every finger, including the thumb, and I've been told they'll get better over time on the MP and they are improving.)
Issue 2: I have slight bunions on both feet (more so on one foot--that's the one that hurts and gives me problems with shoes), and although I know that shoes are not the cause of bunions (there was a group of aborigines somewhere found to have bunions and they didn't wear shoes), shoes really aggravate the bunion on one foot and so my shoewear selection has been extremely limited for about 30 years, as the wrong shoe would make that bunion worse.
My questions: Will the bunions go down (that is remodel)? Will the pain at least go away in the bunion on the one foot? Has anyone experienced bunion relief on the MP?
Thanks, Claire
____________________
CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
|
expate
Member in Phase 2
|
Posted: Tue Aug 12th, 2008 21:40 |
|
I don't have any answers, but I do have the beginnings of the same problem with my fingers. My pointers on both hands are doing the twist toward the pinky thing. Those joints never hurt, but sometimes itch. I have had some small IP in that department.
I don't know if they will "remodel", but I have taken photos just in case.
I don't have the problem with trigger fingers or bunions though.
dette
____________________
Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
|
Scarab
Member in Phase 3
| Joined: | Thu Aug 10th, 2006 |
| Location: | Sydney, Australia |
| Posts: | 142 |
| Status: |
Offline
|
|
Posted: Wed Aug 13th, 2008 05:18 |
|
Hi Claire.. Ah bunions.... I had a beauty on my right foot. Left foot was normal. It's not there any more. It became progressivly smaller in the first 18mths on MP. I noticed the buring, reddness and pain from time to time but did not pay it much heed. Just thought it was the big toe thing that many complain of on the MP.
I was genuinely shocked when one day lying on the couch with my feet up and there it was..... or wasn't.... just a small bump left to resolve.
It hurt, it burnt and it got angry red form time to time but it went.
You have a bunion? I am sure not for long!
Take care
a
____________________
Sarc Aug06|CFS June90| Avoid light&D NoIRs Beni40mg q6h Sept06 mino Sept06| Aug06 1,25D-57.5 25D-20 Apr07 25D-5 Apr08 25D-4| Aug 07 2% NoIRs outside only, Average 30mins per day outside K&16% zinc.
|
Current time is 10:39 | Page:   1 2 3 4 5 6 7 8 ...   |
|
|
|
|
