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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1396 |
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Posted: Wed Jul 30th, 2008 16:10 |
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 Juanita!!!
Hope you have a great day and an even better year!
(By the way, this thread is for regular birthdays and MP anniversaries.)
Last edited on Wed Jul 30th, 2008 18:44 by eClaire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Dr Trevor Marshall
Foundation Staff
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Posted: Wed Jul 30th, 2008 16:29 |
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On 10th August 2002 I spent a day at Disneyland with the family. For the first time in two decades I was able to 'stay alive' until the fireworks, and I realized something profound was happening. I had been testing antibiotics just a couple of weeks, although I had been on Benicar since May and on other ARBs for 3 years.
Here is part of what I wrote to Belinda on 14 Aug 2002:
My daughter has a school-friend visiting from England, and I have spent a lot of time out-of-doors over the last week. Over the weekend I drove to Irvine (4 hours), went to an open-air Weezer concert, spent Saturday at Disneyland and Sunday driving around Orange County. Rather than being sick-as-a-dog I have been right-as-rain on Monday/Tuesday. Clearly something has changed drastically.
Additionally, even at the end of the day in the sun at Disneyland I felt under no pressure. I was relaxed and comfortable. There were no neuro effects at all. I did measure a rise in my Blood Pressure, from 105/65 to 135/75 from beginning to end of the weekend.
The Science wasn't all that well developed by this point in 2002, and I was certainly exaggerating when I said "no neuro effects at all," but these events stick in my mind as the time I knew we "had pulled it off." History in the making.
Somewhere about the start of August 2002, this week (or next week), 6 years ago - my MP anniversary
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Adrianne
Member
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Posted: Wed Jul 30th, 2008 18:36 |
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Happy MP Anniversary, Trevor! And may you have MANY,MANY more!! How can I say thank you to someone who literally made it possible for us to truly live again. Also, as a parent, I can't even begin to put in words how thankful I am that my son MarkN, who has been quite ill for at least 15 years, now has hope for recovery and eventually the ability to lead a full life. I can't even type anymore.......the tears are flowing.
With much, much gratitude,
Adrianne
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CFS Ph1Jan07 ModPh2Apr07 Ph2Aug07 Ph3Feb08 L-tryptophan benadryl famotodine 25D9.1(Mar07) NoIRs limited outings covered
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Karon
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| Joined: | Thu Nov 15th, 2007 |
| Location: | USA |
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Posted: Wed Jul 30th, 2008 19:23 |
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Happy Birthday Juanita!     
This has to be a great one!
Thanks to Dr. T we will (should/could) all have more B-Days!
Dr.T,
Amazing that you had success right away too! I would love to hear more about your journey when and if you ever have the time for this type of chat.
It is very exciting!!!
My tears are flowing too!
Happily Herxing with no pain today
Karon in CA.
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RA PTSD 125D73 25D20 Ph1Apr08 Naproxen Tramadol Valium-stoolsoftnr-Lowlux Home & Work NoIRS cover up
25D14.4(Jul08)Ph2-Aug08
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eClaire
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| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1396 |
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Posted: Wed Jul 30th, 2008 19:53 |
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| Happy belated birthday Adrianne!!!
____________________
42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Adrianne
Member
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Posted: Wed Jul 30th, 2008 20:06 |
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Thanks Claire,
How thoughtful of you to start this thread! Nice to have opportunities to celebrate
Adrianne
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CFS Ph1Jan07 ModPh2Apr07 Ph2Aug07 Ph3Feb08 L-tryptophan benadryl famotodine 25D9.1(Mar07) NoIRs limited outings covered
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Sunbeam
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| Joined: | Thu Dec 14th, 2006 |
| Location: | Perth, Australia |
| Posts: | 358 |
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Posted: Thu Jul 31st, 2008 04:02 |
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Happy Birthday Juanita. I hope you had a wonderful birthday too, Adrianne.
Thanks Dr Trevor for the hope you have given to all of us. it must have been wonderful to spend a day with your family after such along time.
This site is so helpfull. It feels good to communicate with others who have a good understanding of what we are all going through.
Great thread Claire.
Regards, Lynn.
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CFS. gen neuro. muscular tightening whole body pulsates|ADL's limited| 125D 30 MP 4/07 Panadol Mersyndol Noirs. Low lux home homebound. ph 2 1/2/08 25D 6 2/08
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JanEE
Member
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Posted: Thu Jul 31st, 2008 06:30 |
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A Happy, Happy Birthday to Juanita!
And belated Happy Wishes for you, Adrianne!
And to Dr. Trevor for "pulling it off"
an EXTRA SPECIAL
HAPPY ANNIVERSARY!!!
Hugs,
Jan
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CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
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Deb Grabetz
Moderator
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Posted: Thu Jul 31st, 2008 11:33 |
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 IT'S YOUR BIRTHDAY JUANITA!
YOU'RE THE KIND OF GAL THAT I'M HAPPY TO CALL ONE OF MY FAVORITE  !!!!! SOME DAYS YOU'RE
THE  AND OTHER DAYS YOU'RE HERXING LIKE
 OUT OF WATER...ON MOST DAYS YOU'RE AS
SILLY AS A  !!!!!!!!!!
I WOULDN'T GO OUT AND TREAT YOURSELF TO A BIG
 FOR YOUR BIG DAY...YOU KNOW FULL OF SUGAR
AND SUCH...BUT HOPE YOU  BIG,
HOWEVER YOU SPEND IT......................
HERE'S A BIG  FROM ME...!!!
 YOU'RE JUST GETTING BETTER AND
BETTER, WITH EACH PASSING DAY, THANKS MP!!!
HAPPY BIRTHDAY, EH??!!!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Deb Grabetz
Moderator
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Posted: Thu Jul 31st, 2008 11:56 |
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YES, THIS THREAD HAS EVEN MORE SIGNIFICANCE, THANKS TO
YOU DR. MARSHALL...AS WE WILL ALL BE CELEBRATING MORE
AND MORE HEALTHY BIRTHDAYS AS TIME GOES
BY....BIRTHDAYS LIKE MANY OF US HAVE NOT KNOWN IN
YEARS... THANKS FROM MY  (WHICH BEATS MORE REGULAR
EACH DAY)...YOU'VE GIVEN US ALL....A GREAT BIG....
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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geneartemenko
Member
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Posted: Thu Jul 31st, 2008 15:52 |
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Happy MP Anniversary, Dr. Marshall. My best wishes for all aspects of your's life. Thank You for the hope and help you have given to all of us.
Happy Birthday to Juanita and Adrianne!
Gene
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Lyme 05 125D51 25D40(Aug07) Ph1 Feb08 NoIRs low lux home & work covered up on commute 25D19.3(May08) Ph2May08
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Adrianne
Member
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Posted: Thu Jul 31st, 2008 16:57 |
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What fun! I feel like I've been to an online birthday party (and consumed lots of confections!). Cave life just ain't what it used to be Thank you to all for your birthday greetings!
Adrianne
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CFS Ph1Jan07 ModPh2Apr07 Ph2Aug07 Ph3Feb08 L-tryptophan benadryl famotodine 25D9.1(Mar07) NoIRs limited outings covered
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Juanita
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| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
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Posted: Fri Aug 1st, 2008 20:41 |
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Thank you, Everyone, for the happy birthdays! What a warm fuzzy to arrive to.
And Dr T knocks it out of the park! The MP crowd cheers as he trots around the bases. That's one heck of an anniversary to celebrate, eh? Yeah!!
Happy Birthday, Adrianne!
I'm looking forward to my family's one year mark on the MP. August 2. Yay!
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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Deb Grabetz
Moderator
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Posted: Fri Aug 15th, 2008 20:42 |
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Happy Birthday Julia...
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1396 |
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Posted: Fri Aug 15th, 2008 20:59 |
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Julia!
Thanks for being you and for supporting so many people!!! Claire
____________________
42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Julia
.
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Posted: Fri Aug 15th, 2008 22:41 |
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Thank you!
Let's see... 60 last year...
so that's 59 this year... YAY!!!
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Freddie Ash
Member
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Posted: Fri Aug 15th, 2008 23:17 |
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HI JULIA
This is Fred in WV. I want to wish you a GREAT BIG HAPPY BIRTHDAY also!!!
Thanks for all the things that you do here for all of us who are in need.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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JanEE
Member
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Posted: Sat Aug 16th, 2008 00:02 |
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All together now: (to the tune of Jingle Bells)
Jingle bones, Jingle bones,
---oops! Wrong holiday,
Julia was a 60 year old
and this year 59---Yay!
She's been good, She's been brave,
with MP near and dear,
Now as Trevor promised her,
She's younger every year!
So, to a very inspiring lady, Happy Birthday Julia (slightly belated)
Hugs,
Jan
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CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
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Sunbeam
Member
| Joined: | Thu Dec 14th, 2006 |
| Location: | Perth, Australia |
| Posts: | 358 |
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Posted: Sat Aug 16th, 2008 02:35 |
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Very late Birthday wishes
Julia.
What a great encouragement you are to others. Thanks for being you.
Take care. Lynn
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CFS. gen neuro. muscular tightening whole body pulsates|ADL's limited| 125D 30 MP 4/07 Panadol Mersyndol Noirs. Low lux home homebound. ph 2 1/2/08 25D 6 2/08
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Julia
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Posted: Sat Aug 16th, 2008 20:16 |
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Thank you everyone!
Freddie, you are such an inspiration to us all
 ...did someone say 'bones'??
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