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Smoking, Sarcoidosis, and Immunopathology
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zeno_the_stoic
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Joined: Thu Sep 20th, 2007
Location: Staunton, Virginia USA
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 Posted: Tue Aug 5th, 2008 19:07

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I usually post obvious or previously answered questions.  I'm sorry about that.  I did search for this and didn't find anything.

I was a smoker for tens years (1.5 pack per day).  I quit 7 years ago.  I was Dx Sarc 2 years ago.  I've been on MP 6 months currently Phase 3. 

That said:

I occasionally notice the smell of cigarette smoke.  It's puzzling.   It happens while sitting at my desk here at the office or in my bedroom at the house.  The house was rehabbed in the last year and everything, including the walls themselves, was replaced.  I'm in a climate controlled building in both cases and I'm on the second floor.  I swear it seems as though I'm exhaling it!

Have any of you experienced this?  Does the immunopathology (or fibrosis healing) stir up "pockets" of tar from when I was smoking?



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Sarc|MP-12/12/07|PI-12/30/07|PII-2/20/09|Dtests 12/12/07-46 pg/mL-8.5ng/mL|ibuprofen,effexor,Mucinex,ranitidine,Ambien|NoIR,covered up|
Knochen
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Joined: Thu Feb 23rd, 2006
Location: USA
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 Posted: Tue Aug 5th, 2008 19:11

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It might be a neural thing too.  I had hallicinations of the smell of smoke for years before the MP, but they have almost gone away.  My smoke smelled just like a house fire.  Always a fun smell to wake up to in the middle of the night. :X

Oh, and I never smoked...



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Reiter's Syndrome 25+ yrs, fatigue, joints, muscles, migraine, brainfog| 25D 6 ng/ml |Benicar May06|Ph1 June06|Ph 2 Sept06|Ph 3 Jan 07|NoIRs K-Cream Zinc Oxide cream - Always covered!
JanEE
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Joined: Sun Oct 21st, 2007
Location: Kitsap Peninsula, Washington USA
Posts: 220
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 Posted: Tue Aug 5th, 2008 20:02

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I have never smoked.  A few times though, while being on the MP, I have smelled smoke in my house that I couldn't track down. 
 
When I was young it seemed everyone smoked anywhere and everywhere until the air was blue.  As an young adult I hated going to certain places because of the smoke in my hair and clothes afterward---not to mention my lungs.  I lived in a condo for a while and there were three people in the next unit that smoked and the smoke actually came through the walls in my bedroom.  It was awful.
 
My parents smoked most of their early years, but quit in their later years.  My husband never smoked and my kids never smoked and nobody has smoked in any of my houses.  Could it be that long-ago inhaled smoke that's coming out now as IP?  Seems pretty far-fetched, but who knows.
 
By the way, Zeno, I really like your very creative avatar.
 
Jan



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CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
Juanita
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Joined: Thu May 3rd, 2007
Location: Alberta Canada
Posts: 529
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 Posted: Wed Aug 6th, 2008 18:17

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This happens to me all the time and not just with smoke.  I will sometimes puff out farm equipment exhaust or propane or train exhaust.  Sometimes it can be neuro, that's for sure.  But sometimes my lungs are releasing things I've breathed in large quantities in the past and the person standing next to me will smell it in my breath. When it's neuro, only the neuro person will smell it, eh?  (As I've hunted the house for rotten vomit, only to find it's all in my head.  :P)

Coughing is an IP as bacteria dies in the lungs.  As the scar tissue heals, which I've read Dr Marshall talk about with his own sarc lungs, you'll cough.  If something was contained behind the scar tissue, especially smoke which your lungs were saturated with, and the scar tissue dissolves... makes sense that would come out, right?



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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
natalie17
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Joined: Sun Jul 8th, 2007
Location: Melbourne, Australia
Posts: 344
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 Posted: Fri Aug 8th, 2008 03:00

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I've never smoked but I had a similar thing happen to me with B vitamins.  Pre-MP I took Berocca for a long time in tablet form, which has a potent B-vitamin taste and smell.. and for weeks after stopping, even months, I swore I could smell it coming out of my finger tips... strange.



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rebeckah
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Joined: Mon Aug 14th, 2006
Location: Ann Arbor, Michigan USA
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 Posted: Fri Aug 8th, 2008 20:27

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I've had this happen alot. Not just smoke, but mold and photochemistry. I also smell photochemistry when I pee sometimes & I haven't been near that stuff for about 10 years. I have no doubt that our body "locks away" all sorts of toxins to isolate them from harming vital organs. I can always tell when I'm having a good healing in my lungs because that moldy dirt taste comes up.



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Sarcoidosis/lungs 125D39 25D8 Ph1 Jan08 Ph2 May08 oxygen 24/7 famotidine omeprazole lo lux home NoIRs limited outings covered up
Aunt Diana
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Joined: Fri Sep 30th, 2005
Location: Vero Beach, Florida USA
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 Posted: Sat Aug 9th, 2008 02:24

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This is a little off topic, a bit different slant re: smelling smoke.

I used to be the proud owner of an antique cottage in Edgartown, a whaling village in Martha's Vineyard, Cape Cod. The house was vintage 1700 and had belonged to the candlemaker in town...thus it was called the "Candlemakers Cottage."

I would rent the house out in the summertime and spend some weekends there in spring and fall, usually with a houseful of family or friends. As time passed we started to believe the house was haunted. Mainly because of things that would happen during the night that the next morning at the breakfast table would come out....and everyone was always shocked that "no...I didn't close that door".....or "no, I didn't go downstairs" and everyone would look at each other and realize that the noises we had all heard during the night were unexplained.
Then we all started to smell smoke, at night, when everyone was supposedly asleep. I kid you not. It was like cigarette smoke, yet no one in our crowd smoked. This would even happen when I let friends stay there without me....and they had no idea of the "history"of the house maybe being haunted. They would ask me later if I realized my house was haunted and would tell me stories of smelling smoke and hearing things.
Unfortunately I had to sell that house (actually that's where I contracted Lyme disease) so I don't know if the haunting still continues....I don't know what else to call it.

My mother had always been a heavy smoker and sometimes we thought this might have been her. (Crazy? I'm not sure) Or was it the Candlemaker?

I doubt if the MP would cure it, whatever it was.



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