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suecat
Member in Phase 2
| Joined: | Thu Feb 14th, 2008 |
| Location: | |
| Posts: | 70 |
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Posted: Sat Sep 6th, 2008 23:26 |
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Hi,
I remember reading of a current
mp member with trigeminal neuralgia. I have it and wanted to hear from
that person. It was a fairly recent post here on the lifestyle forum. I'm
temporaily homeless (seeking new housing) but have access to look at e-
mails through the mp site. This is a really painful time for me bringinng
more challenges from a root canal that I just had. I haven't had the ability to
scan the forums to find the individual.
thanks,
sue
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FMS/CFS 125D55 25D32 Ph1Apr08 cal/mag guaifensen gabapentin doxylamine NoIRs covered up low lux home
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eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1011 |
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Online
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Posted: Sun Sep 7th, 2008 06:36 |
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Sorry you are going through this Sue (and so I am posting to keep this to help keep it at the top of the listing).
I had all over facial nerve pain (don't know the words used in diagnosing) for over five months following a filling (on pain meds and such...back when pain meds actually worked for me and helped some with this). Finally, the dentist (and the specialist believed me) when the tooth died (or whatever it is that teeth do). I so wanted to be relieved of the pain and I had just gone through an expensive failure with a root canal that I ended up having the denitist pull it. The pain went away immediately. I'm not suggesting that for you in any way b/c that may not happen to you. Just saying I can relate to unremitting facial nerve pain, and I feel for you.
Hope you find some relief, Claire
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CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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suecat
Member in Phase 2
| Joined: | Thu Feb 14th, 2008 |
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| Posts: | 70 |
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Posted: Mon Sep 8th, 2008 01:54 |
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Thanks Claire.
I've had the problem for close to two years with about a 2-3 month reprieve.
Even after this root canal going on 5th day post I still have a knot there, it's
worrisom. The nerve pain/inflammation was like someone literally tood a
sledge hammer to the right side of my head. To think I have to go back and
get a crown on it makes me want to run as far away as I can. I'm on vicodin
(1st time ever in my life like you I have a high pain tolerance) and on a mP
compatible antiboitic but see nothing
decreasingimproving as it should...will give it some more time but believe I
considered the pulling but the dentist pooh, pooh the idea. She packed it
with medicine and in a month will clean out the meds. and pack it with the gutta percha.
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FMS/CFS 125D55 25D32 Ph1Apr08 cal/mag guaifensen gabapentin doxylamine NoIRs covered up low lux home
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marion villa
Member in Phase 3
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Posted: Fri Sep 12th, 2008 21:42 |
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Take a medication for the swellness also, like ibuprofen 500mgQ6hrs, or diclofenac 100mgQ 12 hrs,also with your pain medication and ask your dentist or check for yourself if your tooth is still touching with the antagonist tooth (upper or lower, you know) It must be off oclussion (contact) so it can heal properly. If it is still high maybe that is causing you so much pain, the dentist should cut some tooth, wait a few days and put a crown etc then.
I had a trigeminal pain some months before I started the MP myself, and I wanted to chop my head off. I took, dr gave me gabapentin tegretol and B 12  vit. It took about 5 weeks to diminish.
I hope this is useful to you.
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Lupus, RA, erythema nosodum, skin ulcers, MP 11/07, voltaren, paracetamol advil, almagato,Tylex w/codeine, NoIRs, limited outings covered up,Ph 2 started 20 april 2008, 25D<4ng
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suecat
Member in Phase 2
| Joined: | Thu Feb 14th, 2008 |
| Location: | |
| Posts: | 70 |
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Posted: Sat Sep 13th, 2008 02:00 |
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thanks marion,
it's better now, just can't do alot of motion because I can set it off again, but the infection itself has dimished.
sue
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FMS/CFS 125D55 25D32 Ph1Apr08 cal/mag guaifensen gabapentin doxylamine NoIRs covered up low lux home
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magsmom
Member in Phase 2
| Joined: | Thu Aug 7th, 2008 |
| Location: | Oklahoma USA |
| Posts: | 44 |
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Posted: Sun Sep 14th, 2008 04:37 |
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Suecat,
I am sorry to hear your afflicted with such.
I was diagnosed with Trigiminal Neuralgia is 2005 when I had Lasik eye surg. I inquited about my ongoing eye pain & was referred to a neuro-opthamologist. My symptoms are sharp stabbing pain through eye like an icepick stabbing through or sometimes so quick and sudden like bolts of lightening. They disappear just as quick. but so intense that it you wince and your breath is taken away. Also there is pain that lingers and it is acccompanied with intense pressure. I have been having this pain for probably 15 years.
Of course I did not originally know the eye pain was Trigeminal Neuralgia or that it also was related to the pain I was having in this one tooth.
What I know now is that the pain will also generate down to your teeth. Ten years ago I elected a root canal due to severe ongoing intollerable tooth pain. The tooth was perfectly healthy - The dental office said my sinus cavities were deep and that was probably what I was feeling pressing on my tooth nerves. I said if they took the nerves out the pain would go away - They thought I was crazy.
I also have migraines which I took a comination of Imitrex and ? for - but due to complications I went to a craniofacial pain specialist, ( dental specialist). I was diagnosed with TMJ and fitted with mouth splints. This doctor said my TN may not be accurate because TMJ also is influenced by the Trigininal cavity area - - - -
I still have the tooth pain inspite of the root canal. As well as the eye pain& eye headaches. I hope this will yet be something else that is cured by the MP as little result have been experienced from my other treatments. Magsmom
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FM/Fatigue/Lyme/TMJ/Trigeminal Neur/Migraine/Degen Disc Dis/Sciatica/OsteoArth/Myalgias 125D52.2 Ph1Aug08 Benicar NoIRs low light home exp rt work aprx 30min 25D32.4
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suecat
Member in Phase 2
| Joined: | Thu Feb 14th, 2008 |
| Location: | |
| Posts: | 70 |
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Posted: Tue Sep 16th, 2008 04:00 |
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Hi Magsmom,
Mine is related to neuromuscular issuses on my right side, I'm off kilter and it has affected my whole right side. I'm reaching in hoping the mP will help as I've tried so many things.
Thanks for responding, It's a lonely road and we are just getting relocated in a new area so I've had to halt everything. I feeling really discouraged.
I pray the Mp bugs will diminish for you and your pain will ease,
sue
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FMS/CFS 125D55 25D32 Ph1Apr08 cal/mag guaifensen gabapentin doxylamine NoIRs covered up low lux home
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Debz
Member in Phase 2
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Posted: Tue Sep 23rd, 2008 03:15 |
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Hi Suecat,
I was a dental assistant and had Sarcoidosis at the time and did'nt know it. I had to have a root canal redone and there was'nt any decay. I must of had a soft tissue deposit (calcium leaching from my teeth) causing the pain. Another time I had to have a 30yr old bridge recemented and some decay removed from a tooth behind the bridge. I also had a severe herpes (my ammune system was'nt taking care of anything) outbreak for 10 days and Amoxicillin was given to me!). I also have severe arthritis in my left jaw (1/2" bone missing, broke jaw in 4th grade). If you're on Minocyline thats good for any mouth infection. Sometimes bugs affect nerves too.
Debz
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Dx-Sarc(collagen disorder)/Herpes Whitlow 03, Neuro,sinus,Hyster,ear. Mr Muscle-hayfever,acute/chron bronchitis, pneumonia,hilar adenopathy,liver tumor&lesion,lg spleen,strep throat,thrush, psyco Mp:4/8/08 mino & Noirs,4/28/08 benicar
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Deb Grabetz
Advocate
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Posted: Wed Sep 24th, 2008 21:38 |
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suecat and Debz,
This is a great topic as it seems many with Th1, post of suffering with tooth and jaw, sinus and other related problems. I am also one of those and this area was one of the first that healed when I started the MP. I've also seen many others post of resolution of these problems early on in the MP! For 18 years I told my dentist how tender my gum area was, off and on under a crown and the miserable jaw issues...and for 18 years he would tell me that *everything looked normal*!!
Here's a link that you both may find interesting reading!
DENTAL PROBLEMS and Th1 inflammation.
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
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P.Bear R.N.
Research Team
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Posted: Fri Sep 26th, 2008 22:50 |
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Sue and all, I had periodic trigeminal neuralgia attacks for many years before the MP. "The icepick that keeps on giving" or "tic douloureux" would last for me much longer than the common one or two minutes and would literally be unbearable. I also has a frequent baseline facial pain that was not as terrible. I had Bell's palsy in late 70's and have learned this can be a common manifestation in those with TH1 inflammation. The great news is that I have not had an attack in the three years and seven months I have been on the MP and my baseline facial pain and dental sensitivity is all gone. If this was the only benefit I had from the MP it would have been well worth it; but I have a whole portfolio of improvements in my health that I never would have thought possible.
best,P.B.
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MCS, neuroborreliosis, fatigue, tinnitus, neck/facial/shoulder/lumbar pain, Bells palsy, Prostatitis, blurry vision, dizziness, 1,25D=48, MP2/05 MP3, cytomel, D25<5
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Juanita
Member in Phase 2
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 368 |
| Status: |
Offline
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Posted: Mon Nov 24th, 2008 19:23 |
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Adding my voice to the choir. I used to have constant facial/ sinus nerve pain (2-5). During phase 1, it fluxuated from (3-8) and now in phase 2... it's rare that I'll get a pain of (1-2).
If I hadn't read this thread, I would have forgotten that facial-sinus nerve pain had ever been a part of my daily life. Thank you, MP! And Dr Marshall. 
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D| Sept 21/07 25D-40.8ng/ml| May 7, 07 1,25D-35.8pg/ml
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