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expate
Member in Phase 2
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Posted: Fri Aug 22nd, 2008 02:43 |
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I'm not sure where to post this question, but since the title of this thread has "unexpected" in it, I'm sure y'all won't automatically give me the boot.
I'm trying to figure out if what I am experiencing is IP or not. I'm posting here because it is unexpected. 
Two days ago a spot on my tongue felt sore, as if I'd bitten it. But I hadn't. It looked, maybe a little different. But I can't even be sure of that. Have any of you looked closely at the tongue? 
Then yesterday, that same spot felt weird, kind of like it always had cool air blowing over it. It definitely didn't look different from the rest of my tongue.
Today, it still had that sensation, but the back of my throat started feeling cottony or something. Really bothersome. When I took my 4:00 Benicar, I tried to notice if it improved. It seemed to in a bit, but maybe that was just from the hot water I took it with.
Then it seemed better by a fair amount. But now, 4 and a half hours later, it feels like it's coming back.
Herx or no herx? a la deal or no deal? [Of course my first thought went to tongue cancer. Nope, I'm not a fatalist. But the throat involvement is lessening that hypothesis.]
Thanks,
 dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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PaulT
Member in Phase 3
| Joined: | Fri Feb 25th, 2005 |
| Location: | Sydney, Australia |
| Posts: | 289 |
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Posted: Fri Aug 22nd, 2008 04:37 |
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 dette
Sounds like IP, smells like IP, looks like IP or it's just weird . . . .. .must be IP.
I have been considering starting a topic "Weird Herx" but "unexpected" works for me .. . . so heres a few I've had:
- Spots in muscles that give little pulsing twitches
- the soft part at back/top of mouth swollen
- getting the shakes when the kid across the road idles his subaru impressa
Cheers
Paul
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Sarcoid diag 1/05 - Cough, fatigue, Feb 07 125D=59.6, Oct 07 25D=12, May 08 25D=7.5 avoid light/D, Noirs, covering up, Zinc Oxide on exposed skin.
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expate
Member in Phase 2
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Posted: Fri Aug 22nd, 2008 05:19 |
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OK, this one was out of nowhere. Well, it was in reaction to light over-exposure, but it was nothing I'd ever experienced. The soles of my feet HURT. Really. On one hand, it was like a hyper-realistic dream. But, no, it was real. I'm trying to recall the kind of pain... burning, throbbing, aching... yeah all of it. I felt like a hobbit who'd been abused.
dette
P.S. Thankfully, it didn't last long. 2 hours max.
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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goobygirl
Member in Phase 3
| Joined: | Tue Jul 24th, 2007 |
| Location: | Illinois USA |
| Posts: | 68 |
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Posted: Sun Sep 7th, 2008 05:32 |
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Sounds like IP to me. I have a spot on my ankle that if I touch it, it feels like little webs or silk threads rubbing over the top of the skin, super sensitive.
My husband had a solution, don't rub it!! (duh...)
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FM, Hashimoto's thyroiditis, sleep apnea, 125D 24.2, MP 11/07, Cytomel, Ambien. CPap, NoIRs, limited outings covered up, 25D 33.5
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expate
Member in Phase 2
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Posted: Sun Sep 7th, 2008 06:25 |
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Isn't the body amazing?!?!? I quite love the little surprise offerings, given the context of knowing bacteria are the culprits. What else are "they" going to throw at me?
dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Debz
Member in Phase 2
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Posted: Sun Sep 28th, 2008 05:41 |
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Hi Expate,
I had Bursitis in my feet in 2002; which in the Merck manual states overuse, staph infection and the later seemed fair; since my fingers were also inflamed/infected. Now the throat thing I had was thrush and no saliva (used saliva substituted). I was in bad shape for a year after Mr Muscle oven cleaner inhalation and surgery for Sarcoidosis biopsy certainly did'nt help. I now can swallow bread and my teeth roots are not boggy anymore, the gums are healthier. Cancer is caused from a long period of inflammation. There is MP ABC's that lists anything you can think of and also I studied MP for 3 months before I signed up. I had a student Dr for the last 4yrs (who is now graduated) and the Medical Facility could'nt accomodate me on M P. I was hallucinating, having panic attacks, scared for my life, I was willing to try just about anything.
Debz
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Dx-Sarc(collagen disorder)/Herpes Whitlow 03, Neuro,sinus,Hyster,ear. Mr Muscle-hayfever,acute/chron bronchitis, pneumonia,hilar adenopathy,liver tumor&lesion,lg spleen,strep throat,thrush, psyco Mp:4/8/08 mino & Noirs,4/28/08 benicar
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Cowgirl
Member in Phase 2
| Joined: | Sat Nov 3rd, 2007 |
| Location: | Wyoming USA |
| Posts: | 44 |
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Posted: Sun Sep 28th, 2008 16:44 |
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Hello, Odette! Judging by my own experience, I'd say not to worry about your "weird IPs". Old-timey docs used to look at the tongue for signs of ill health. In my own search for help, I had a Naturopath teach me the condition of the tongue tells on you. My dentist always examines the tongue at my checkups.
I have had several painful TONGUE IPs so far, during my 11 months on the MP for Sarc. Sometimes it was one one or both SIDES, along the edges, and once almost a carbuncle-type sore right on the TIP. None of those lasted more than a day or two, but oh the relief when they went away! I have finally learned to say "Yeah, I'm killing and dumping BUGS today! Pass the Benicar, please!"
Last week the TIP became numb for a few minutes several times. Let me toss in here that the left-only upper LIP also became numb for a while that same week, and the entire CHIN was numb for several hours, too. So keep your chin up! Last edited on Sun Sep 28th, 2008 16:45 by Cowgirl
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Sarcoidosis/lungs, HTN, sinusitis, candida, hx repeat pneumonia, 125D83, 25D27, MP 11/07, guaifenisin, Nitetime Contac, Benadryl, NoIRs, low lux home. 3/08 25D18
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expate
Member in Phase 2
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Posted: Sun Sep 28th, 2008 18:15 |
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Thanks. I begin to grow past worry to appreciation.
dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Aunt Diana
Member in Phase 3
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Posted: Sun Sep 28th, 2008 21:39 |
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Maybe I'm a bit too cavalier about all this..but I suspect that practically every weird sensation or discomfort I experience is IP. There are so many variations on this theme that it's impossible to remember them all. For several weeks I had a spot on both heels that was very painful to touch....then it moved to my big toe...now it's in my ear...it's simply amazing where these bugs have been living.
However, after listening to Trevor's talk in Porto, I'm amazed it isn't even worse. It's a good thing we are taught to take it slow.
And the longer I go through the MP the slower I am taking it...it still works and my life has become a bit easier since I have stopped "pushing".
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, Oxycodone, advil p/n, darvoocett p/n, lorazapam, ambien, benedryl, zantac, magnesium, colase, Noirs, cover-up or avoid sun, house <30l
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eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1011 |
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Posted: Tue Sep 30th, 2008 09:52 |
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I have experienced so many odd symptoms and pains throughout my life that for years before I received some labels I was considered a hypochrondriac. Even today if my aging mother, who is being saddled with "the diseases of aging," has a physical complaint, I must feign ignorance rather than empathy. Sympathy is fine, but dare I say, 'I know what you mean." NO.
Since the MP has a way of bringing out latent symptoms, I would try to get beyond the concept of weird and just recognize that the body is capable of a myriad of symptoms and if you have't had one before it will simply seem weird. It's not.
What the body is capable of doing it is capable of doing. The only symptoms to be concerned about are those you think might be life threatening. (And even after a while, and a little experience, that list will narrow.)
Claire
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CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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Deb Grabetz
Advocate
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Posted: Tue Sep 30th, 2008 13:26 |
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eClaire wrote:
What the body is capable of doing it is capable of doing. The only symptoms to be concerned about are those you think might be life threatening. (And even after a while, and a little experience, that list will narrow.)
Claire
Claire,
Great advice! We gain experience from *listening* to our bodies as it responds to the IP. I often tell my family/friends that in the first few months of this protocol, as I was learning to *listen* and manage my own IP, had I not been completely groomed and taught what to expect through others and from this site, I would have been in the ER once a week!!!
My symptoms would fill a book and some were scary, like the heart palpitations, chest pressure, flank pain, abdominal swelling and severe weakness. I even spent a few weeks on crutches when I could put zero pressure on my ankle/foot where an old injury had been. In time as I became adept at adjusting my meds, I looked forward to new IP and started connecting the dots to where it was coming from...Good stuff this MP!!!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs, low lux home, not working, 4/07D2511 1/08D25-0 CranialSacral weekly
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Julia
Advocate
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Posted: Thu Nov 6th, 2008 18:10 |
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Here's one I haven't seen anyone else report, and it's a first for me, despite being a 'veteran' currently re-visiting old phase 3 combinations.
My hands have gone a patchy colour overnight
Yes, I did have tomato soup for lunch yesterday. And I made a tomato-based sauce for dinner. And had plums for dessert. But surely orange skin is a sign of months of excessive ingestion of beta-carotene, not one day!
This happened before, a couple of days ago, to a much lesser degree. I can't remember if I'd eaten anything to provoke it. At that stage I was just trying to think what I might have touched - but handling things doesn't get it round your nails and on the back of your fingers, and besides, it would wash off. This only lightens if I scrub very hard with a pumice stone. Ouch.
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Sarcoidosis, uveitis, hypercalcaemia, osteoarthritis, eczema. MP May 04.
Leading a full life - good old MP! Julia's story
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eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1011 |
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Posted: Thu Nov 6th, 2008 20:38 |
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Well Julia...keep us updated. If like most sxs, it will be transient, and knowing what happened with you will allow the rest of us to know how we might respond (e.g., not panic or see a doctor) should the same "really weird" symptom occur to us. Really, facinating. (I wonder if it is like when lymph begins moving again--that is, if the melanin cells are cleaning themselves out in our hands where you'd get the most light...I'm assuming this is mostly on the top of your hands.)
Claire
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CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2 - 5/25/08 Ph 2 10/29/2008
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expate
Member in Phase 2
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Posted: Fri Nov 7th, 2008 02:28 |
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A little late for Halloween, Julia!!!
Well, I have no explanation, but things definitely happen inside our bodies that if they showed on our skin might explain. Y'all are gonna' love this one...
When my 23 year old son was but a babe in arms, I was nursing him at bedtime. He fell asleep at the breast and when his head slipped off to the side, a bit of milk dribbled from his mouth. It was a palish coral in color. I'd eaten shrimp earlier...
Also, when he was a bit older, he really like sweet potatoes. I let him have them every day. His little nose started to go orange.
Keep us up to date,
dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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Julia
Advocate
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Posted: Fri Nov 7th, 2008 09:14 |
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The colour has almost completely faded now. It was on the inside of my hands as well as the light-exposed parts, so I don't think it was anything to do with light.
That's amazing, Odette - perhaps it shows some people are more sensitive this way? Does your son still react to coloured foods?
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Sarcoidosis, uveitis, hypercalcaemia, osteoarthritis, eczema. MP May 04.
Leading a full life - good old MP! Julia's story
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expate
Member in Phase 2
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Posted: Fri Nov 7th, 2008 13:44 |
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I'm glad your hands are back to their proper shade!
Not that I know of. Of course, I cut the orange diet immediately. His nose returned to its normal color. I don't think he'd be able to eat a single color food in the same proportioin to say, body weight as an adult.
He does have some Th1 issues though.  Of course, who doesn't? Actually, I see some people who I think seem really healthy. A very few, but a few.
dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08. Covered up, but no facemask any longer. NoIRs. Home low light.
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