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Deb Grabetz
Moderator
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Posted: Fri Aug 22nd, 2008 10:29 |
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Please share your MP anniversary stories here! How encouraging for us all to *hear* and share in these life-changing stories!
  
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Deb Grabetz
Moderator
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Posted: Fri Aug 22nd, 2008 11:14 |
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OK...I'll start...
My one year anniversary has just passed...
 July 30, 2007 Here is my very first post when starting Benicar on that day...
7/30/07
"It is so incredibly exciting to be at this point with the MP...I feel better today than I have felt since being diagnosed in February (07)...well, that is the goal! I imagine myself still struggling on Prednisone had I not found MP...with nowhere to go...unlike moving forward the way I have been doing over the last three months...I'll not deceive anyone by saying it's been easy...I've had a couple days I thought I could just not take the pain, fatigue and weakness another minute...but with the help of Lottie and all of you...I have made it here...thank you for your understanding...for your support...for the belief that I would get here someday...off the steroids!"
There was no way to know what lay ahead for me personally in that first year. Only all the research I had done reading through other posts on site. Was it tough...you betcha! Did I have days that I thought I was not going to get through it? You betcha! I started the MP at the sickest point I've been in over 20 years with sarc, so it was no picnic...and yet today as I'm now starting into my second year, I am seeing so much of my life returning. Getting through that first year is one huge milestone with a lot of personal goals, hard work and determination!
Never, did I expect to feel well, I was that sick! (Now, this doesn't mean I didn't have faith in the MP, it is the only thing I did have faith in, back then!) I'm here to say that not only am I getting well, but I am now at a point that I have these occasional days that I feel the "young Deb" I experienced during my better times. A TIP TO WELLNESS: *LISTEN* TO MODERATOR ADVICE WITH A PASSION, IT'S KEY IN GETTING WELL!
My symptoms in the beginning of the MP were a page long, sometimes over 20 different challenging IP responses...today I vary between 3-4 strong IPR...and they are ever changing which tells me that healing is happening everywhere in my ill body. Last week I had a facial cheek muscle twitching for two solid days...after awhile it actually becomes an event to see what might be healing next...
My strongest challenge is still fighting fatigue and getting my "zip" back. But today I'm confident that this too will return...
Happy Anniversary to Me!!!! "NEVER GIVE UP"
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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HeatherK
Member
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Posted: Wed Sep 24th, 2008 12:44 |
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ONE YEAR ON THE MP!!! I MADE IT! Sept 20th
I'd like to report my progress, after evaluating where I have come too in the past year. It was a tough year, many rough days, but in many ways seemed to go fast ( I slept a lot ) yet some of those rough days were long! By the grace of God, I got through the year and it was well worth it.
I can now climb stairs several times a day. Before the MP, I only ascended once, to go to bed at night, never standing up, but with hands on the steps ahead of me, bending over, because orthostatic intolerance/fatigue was soo bad. I have now occasionally surprised myself because I just found myself ...amazingly RUNNING... up the stairs like I used to 8 years ago ( but not on herxing days)
Energy levels all around are much better, gotta a ways to go yet to sustain energy in any activity, but my walks at night are good, 5 telephone poles lengths here in the country. I haven't tried further lengths lately but am walking this briskly now most days.
A plus I did not expect , and didn't notice untill this summer, that my hair has thickened considerably and have some gray reversal going on.!!! Love it!
Sleep has improved greatly, restless legs only bother me occasionally now, usually indicating a need to increase Mino. I have now graduated from my couch to a recliner chair , sitting up much more. I do not clean my house yet, and getting the supper meal cooked and on the table is the biggest feat of the day still.
I am still very much in the darkened house, rarely going out in daylight as light sensitivity is the biggest thing I deal with now. I am getting out to shop after dark occasionally now as the days lengthen.
Realistically I have a long ways to go yet, but I now see it for myself and feel that I am stronger, and Friends tell me I LOOK and SOUND better.
The light in the tunnel has gotten much closer.!
A Mighty ThankYou to Dr. Marshall and his devoted team for this opportunity for renewed health.
Gratefully , Heather
( in Phase Two.)
Last edited on Wed Sep 24th, 2008 13:16 by HeatherK
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CFS for 5 yrs+ /started MP Sept20/07;( 25-D=24ng/ml, 1,25=47.5pg/ml.).. Dec/07(25-D= 14.4 ) Started Phase Two Mar 4/08; Dec 09(25D= 6); In blackout home/ wearing NoIRs/ Presumed celiac, wheat,dairy free.
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MrsKeeper
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Posted: Thu Oct 2nd, 2008 23:23 |
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Hi all,
I was asked if I would add here the recent post I made on the main MP board Phase One Alumni Forum. So here it is for those who may have missed it:
I am observing my 4th year anniversary on the Marshall Protocol today so I decided to post my progress for those who don’t have access to Phase 2 and 3 threads.
I was incapacitated with chronic disease many years ago, FM, CFS, thyroid disease, and osteoarthritis being the most prevalent. Besides the usual “standard of care” treatments from doctors, I have also tried many supplements and other remedies over the years.
I took flax and fish oil supplements per the recommendation of the digestive disease doctor who was treating me. I took Calcium with D and Magnesium per the guidance of another well-meaning doctor. I tried the guaifenesin and doxycycline protocols for FM without any noticeable effect.
I watched the Internet for years for reports of something, anything, that would offer true hope for a real cure. I had come to accept the fact that there wasn’t one. I would read about other people who thought they had found some supplement combination, or drug, or treatment, or something and watched and waited, only to see that in time they didn’t work either.
Just prior to beginning the MP I was taking the following 16 prescription drugs plus additional supplements:
2400 mg Neurontin daily for pain
400 mg Ultram (Tramadol) daily for pain
75 mg Effexor twice daily for fibromyalgia (pain and sleep)
50 mg? Wellbutrin daily for depression
.1 mg/.125 mg (alternating) Levoxyl for Hashimoto’s thyroiditis
Beconase nasal spray, 2 sprays ea nostril twice daily for allergies
Allegra 180 mg daily for allergies
2 mg Estrace daily for HRT
Estring for pelvic pain associated with IC
10 mg Ambien nightly for sleep
Zomig 5 mg 3-4 times per month/as needed for migraines
100 mg. Topomax twice daily for migraines (preventative)
Reglan 5 mg (for migraine “cocktail”)
Nexium 40 mg daily for reflux
Ranitidine 150 mg prn for reflux
Vioxx 25 mg for arthritis
Calcium/Magnesium w/Vitamin D added (1000 mg, 600 mg, 400 iu respectively)
Flax & fish oil
Numerous extra vitamins, herbs, and supplements
Despite all my efforts things were going downhill at an increasing rate and there wasn’t anything else left to try. I lived with overriding pain, fatigue, very poor sleep, a headache that never went away, and frequent migraines.
I often suffered constipation or IBS. I experienced hormonal problems from a young age and had an ovary and uterus removed at the age of 37. (I didn’t begin HRT until about ten years later.)
I had cystic, painful breasts with calcifications and for a time had to have mammograms every 6 months to keep a watchful eye on things. (After 3 ½ years on the MP, my latest mammogram was NORMAL.)
I had osteoarthritis with deformed knuckles in my fingers and painful wrists, knees, ankles, right hip and great toes. I had carpel tunnel in both wrists and I had surgery on my right wrist because it became so unbearable. (Since the MP I no longer have carpal tunnel in my left wrist.)
My legs, lower back, and right hip were so painful that I could not walk very far or stand for very long at a time. Some days I needed a cane to assist me for walking. (Now I’m able to go for nice long walks after dark with my husband without slowing him down.)
For well over a decade I received a friendly annual warning letter from my doctor about my high cholesterol, which peaked at 311 while on the MP and is now in the normal range thanks to the MP.
Four years before the MP (in 2000) I had surgery for a large hiatel hernia and Barrett’s esophagus. The hernia and Barrett’s was discovered just after my bout with Guillian-Barré (1999), which paralyzed me and put me in ICU for 20 days, requiring 13 rounds of plasmapherisis (plasma exchange). While in the hospital for my hiatal hernia surgery, I fell and received a head injury that severed the olfactory nerve, leaving me with a permanent loss of smell and taste and injured both inner ears, leaving me with severe vertigo. I was treated for the vertigo and it is greatly improved.
I then developed severe pelvic and lower back pain and was diagnosed with interstitial cystitis. Despite being on maximum pain medication for fibromyalgia, arthritis, and headaches, the IC pain was unbearable. (I no longer have the pelvic pain. This was the first symptom to resolve early in the MP.)
My daughter and I learned about the Marshall Protocol in the summer of 2004. My daughter began first because she was the most disabled, but once we saw how long the process was going to take, and how fast I was deteriorating, I decided to begin the MP also. On October 1, 2004 I took my first Benicar.
In 2006 I slowly weaned off of Neurontin, then Wellbutrin and Effexor. In 2007 I began weaning off Ultram, switching to a half tab hydrocodone every 6 hrs for pain relief. I then weaned off the Topomax. I have lowered my thyroid med, estradiol, and Ambien doses several times over the years on the MP. I stopped the allergy meds early on, along with the Nexium, and other meds.
I am now taking:
Benicar and current 3 abx dose
½ tab 25 mcg Levoxyl daily
½ tab .5 mg estradiol daily
½ tab 5/325 mg hydrocodone every 6 hours for pain
¼ tab 10 mg. Ambien
1000 mg Calcium daily
My joints are not painful anymore. I have a few finger knuckles that are still deformed, but I don’t have any pain when they are touched anymore and they don’t ache terribly.
I sleep well most of the time. Occasionally I will be wakeful, but that is due to the explainable circumstances of IP (immunopathology response a.k.a. ‘herx’), or light exposure. However, I do still use the fraction of Ambien nightly.
I don’t have a headache all the time anymore and I haven’t had a migraine in a very long time. I do still get headaches now and then, either from IP response or light exposure, but they are manageable with Tylenol and I don’t need the big gun cocktail of medications which I used to take 2-3 times per month prior to the MP.
Since starting the MP I developed adhesive capsulitis (frozen shoulder) in both shoulders. This was probably IP. I went to physical therapy for this and it improved over time. Adjusting the MP meds was helpful in controlling the discomfort.
When I began the 2nd abx I began having intolerable IP responses in my gall bladder and it was discovered that it was full of hundreds of gallstones. I took a pause from the abx and had my gall bladder removed (October ’05).
One of my greatest challenges on the MP has been the extremely slow decent of my 25D levels. Even with concentrated adherence to the dietary guidelines it took me 3 ½ years to get my 25D into the “therapeutic range.”
I have had to progress very slowly in ramping the abx. In fact, I have only this year been able to take the three of them on the regular 48 hour/10 day schedule without intolerable IP, and I am still on very low doses.
While weaning off of Ultram (which was very difficult for me) I got into an intolerable situation after a fall down the stairs. In Feb. ’07 I took a one month break from the MP abx but I found I felt better once I got back on the minocylcine and Benicar schedule. I’ve been more careful to keep things tolerable since and have progressed slowly.
I am currently in a phase of light sensitivity. (I was having strong neurological reactions including depression, sleeplessness, confusion, anger, and crying easily.) I have had to stay home from my weekly attendance at church on Sundays for the last 4 months, a big sacrifice, in order to “stop the madness.”
Overall, I am doing better than I was before starting the Marshall Protocol (and without all the drugs I was taking before!) My body is on the road to recovery and not on a steady decline with increasing dysfunction. Although it’s taken me longer to get to where I am now than I’d originally hoped, I am quite pleased with the results so far. Not everyone has as much trouble lowering their 25D as me and we all have different levels of disease involvement. Everyone’s MP experience will be different.
The MP is not something everyone can do. It is hard. You can’t just dabble with it, or think it will make you completely well in 3 months. Or even in one year. For some of us it takes years of being diligent to see improvements. Some improvements seem small or maybe not the ones we would have chosen to see first and fastest. Patience is required. And you MUST follow the MP guidelines and the directions of the moderators. They have the advantage of experience, knowledge, and perspective. You cannot do the MP “your way” or deviate from the guidelines and be successful.
One of the greatest gifts the MP has given me is hope. I have hope for a brighter future. Though it’s slow going, I am seeing improvements. What palliative drugs, supplements, and other treatments have never been able to do for me, the MP is doing!
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Freddie Ash
Member
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Posted: Fri Oct 3rd, 2008 12:10 |
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HI JANICE
This is Fred in WV. Thanks for that great MP story. In the story you said, "THE MP IS NOT SOMETHING EVERYONE CAN DO. IT IS HARD." I always tell the people that I am talking to about the MP the same thing, that it is not easy, but add neither is the TH1 diseases. They will kill you. So I tell them do the MP is my best option, because I want to live a few more years. Like Dr Marshall once said we may live to be 120 or even 140 and still be able to do things like I can now. Thanks again for that story.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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Deb Grabetz
Moderator
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Posted: Fri Jul 24th, 2009 12:50 |
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July marks my TWO year anniversary on the MP! It also marks many significant changes in my health since becoming ill in the fall of 2006. For one I was able to return to work after two years!  A huge accomplishment for me Being bedridden for months, unable to stand for months didn't seem to leave much hope in ever returning to work....and yet it happened! I take a walk every night now, it helps with my energy. Yet, I remember a time, months ago, when I barely got out my front door and had to turn around, I was too weak to walk! My bloodwork has improved-- D-0, (from 12) D,1-25 18 (from 54) Sed Rate fluctuates is 25 (from 42) CRP-cardiac-- is 5.49 (from 9.1!) It is quite obvious that I am here and doing well because of the MP!
This week in my progress report, I posted most recent symptoms from my abx increase, they were all mild. Mild flank pain, aching calves, parathesia in hands, rib pain. Below I've listed what "i looked like" two years ago. It's hard to believe now that was "me". I have so much to be grateful for this morning as I write my MP anniversary post and will be forever grateful to Dr. Trevor Marshall, and to those who worked so hard before me to get well and prove that there is hope to cure chronic illness. Today I smile...for all of us!
Following posts are from two years ago:
* Tightness in chest; bronchial area *No change from last week but less pressure. Still have trouble wearing a bra; too much pressure.
* Mid back pain *Mid back pain has worsened
*Hoarseness continues. Voice barely audible at times. Burning sensation in chest.
* Wooziness; like my head was mildly swimming...with prominent ringing in ears. Feel a bit like a bobble head, if that's a good description of this...or like I'm swaying on a boat..
*Fatigue kicked in a bit heavier the first hour after taking. *Fatigue has worsened.
*Coughing most of the day (haven't coughed in a couple of months);productive.
*Couging a bit more productive than usual. Coughing up teaspoonfuls phleghm.
*Pressure in my waist area, increased flank pain *Comes and goes...
*Left ear itching
*Activity in my right ear;drainage, pain,plugged.
*Tummy activity
*Leg pain
*Neck pain *Mild neck pain returned
*Shoulder pain
*Sore throat
*Heel/ankle/leg pain
*Increased heart beat;cardiac symptoms.
*Burping-
*Runny nose
*Leg weakness *A bit worse seems to tie in with my back pain and fatigue.
*Body stiffness *Definitely noticed an increase in all over stiffness;we are also having some heavy thunderstorms here and question the connection. Flu-like symptoms.
*Nosebleeds subsided after five days
*Unable to stand for any length of time. Taking a shower pretty much wipes me out.
*Sun/light exposure causes fatigue.
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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JanEE
Member
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Posted: Sat Jul 25th, 2009 06:01 |
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Fabulous news, Deb! And a very Happy Anniversary to you too. You're one great example of what the MP can do.
Hugs, Jan
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CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
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Deb Grabetz
Moderator
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Posted: Sat Jul 25th, 2009 12:41 |
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Heh Jan...Like many of us here, I still have a long way to go -- yet having an MP anniversary gives one the chance to look back and see the progress that we are making. I have felt lucky from the beginning that so many, were wise enough to teach that the MP takes time, not to rush it and understand it will not happen as quickly as we would like. Had I not had not been taught this I'm sure I would have become discouraged, long ago.
Hope you are doing well, thanks for your note, you are a joy to "know".
Hugs, Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
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Posted: Thu Jul 30th, 2009 01:29 |
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Happy anniversary Deb!!! Yeah for you! (I'm coming up on 3 years in December... can't wait to watch my progress from now until then.)
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Deb Grabetz
Moderator
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Posted: Thu Jul 30th, 2009 12:56 |
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Thanks Claire...I enjoy watching your progress too
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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HeatherK
Member
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Posted: Mon Sep 21st, 2009 12:30 |
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I have been on the MP 2 years yesterday!
Glad to have it behind me and looking forward to more recovery in next year. Still in Phase 2, (18 mths) and have many improvements, slowly but SURE. Energy levels are up and down , and have learned in past week that excitement drains my energy very quickly, took 3 days to recover,  so I do have a ways to go yet. I am on Mino/Bactrim combo, after Mino/Zith combo became intolerable in April .
But ,........... where would I be today if I had not found the MP 2 years ago, now that is a real scary thought ....
I SO APPRECIATE THIS PROTOCOL AND THE RESEARCHERS BEHIND IT, and ALL those who have encouraged me on in the Darkest Days.....Looking back, most of it I cannot remember , slept a lot, and so Thankful that my God has sustained me through this.
Hugs all around!
Hold Fast
HeatherLast edited on Mon Sep 21st, 2009 12:31 by HeatherK
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CFS for 5 yrs+ /started MP Sept20/07;( 25-D=24ng/ml, 1,25=47.5pg/ml.).. Dec/07(25-D= 14.4 ) Started Phase Two Mar 4/08; Dec 09(25D= 6); In blackout home/ wearing NoIRs/ Presumed celiac, wheat,dairy free.
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Deb Grabetz
Moderator
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Posted: Mon Sep 21st, 2009 15:48 |
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HeatherK
Congratulations TWO years! It is this perseverance that will see you to your goal... Best wishes always for continued recovery and wellness!
Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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eClaire
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| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1396 |
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Posted: Mon Sep 21st, 2009 17:35 |
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Yeah Heather!!!
My first two years were the hardest... so far (I'm nearly 3 years in).
Cheers to you for your commitment to regaining your life.
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Freddie Ash
Member
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Posted: Mon Sep 21st, 2009 19:37 |
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HI HEATHER
This is Fred in WV. Way to go on making it 2 years on the MP. Like I have said before that the MP is hard but so are these diseases so you chose the MP instead of the disease. Thank you for doing that and tell us about your great progress along the way. We will make it.
Remember, we are all in this together and I am pulling for us.
Your friend in sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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Cynthia Schnitz
Board Staff
| Joined: | Wed Apr 8th, 2009 |
| Location: | Arizona USA |
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Posted: Fri Nov 13th, 2009 00:48 |
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One year on the MP at the end of October. Here is my summary of the year's progress and non-progress. It is the same as in my progress thread, but available here for those not having access the Phase 2/3 forum, and a with few minor additions missed in my thread.
Please realize that my progress is well ahead of the average MPer because I started the MP far less ill and with less of a bacterial load than the average MPer currently. Perhaps in the future, when people recognize the value of the MP, they will not wait until their illness reaches a level that leads them to a degree of desperation, as so many on the MP have noted of their pre-MP situation.
What brought me to the MP was, actually, a bit of desperation too, but not of serious illness, or at least, not that I could be sure of. With no doctor able to "see" my calcium problem, and as far as I knew, no other human being in the whole world with the same symptoms, who could say what the end game would be, and all that I could say was that the problem had gotten only marginally better in 13 years, hence a certain amount of desperation. So, to carry on with my summary, here is,
WHERE I WAS A YEAR AGO, AND THE SAME CONDITION TODAY:
- Calcium Problem. Pre-MP. If I would consume a cup of dairy or more a day, I would wake up in the night with the sensation of a single electrical shock running thru my upper torso. A little less than a cup a day, on average, was OK, and was up from near zero dairy 13 years earlier. I had discovered this slight improvement because of a new set of symptoms that turned out to be calcium deficiency, and adding 3 cups of milk spread out over 4 or 5 days eliminated the new symptoms. Now, a year later, I make it a point to consume about 4 cups of dairy a day, to get close to the RDA, with no problems what so ever. This change began just 2 or 3 months into the MP, and by 5 to 6 months the problem was pretty well gone.
- Spondylosis in my spine pre-MP required an omega 3 oil capsule twice a day to keep the pads in my back from swelling like balloons, down from 6 capsules a day 6 years earlier when I started a low carb diet. I switched to olmesartan at the start of the MP, and it has usually been sufficient to prevent the swelling. Several changes have taken place in regards to my back over this last year. I can now wear very tight fitting elastic waist bands in my clothing, where any elastic waist band was a big discomfort before. The amount of mechanical stress to my back requiring extra olmesartan has been gradually increasing, but at this point in the MP, I can not accept unlimited mechanical stress without a payback. I can, at this point tho, sit in any shaped chair without discomfort, a very real problem pre-MP, where most chairs caused a sore back very rapidly.
- Early Diverticulosis? Well, I don't know, as I have postponed the colonoscopy for a year now, and will probably postpone it further. However, one of my first IPs was a burning sensation in the old area of complaint that finally was resolved to be the early diverticulosis, but not much IP in that location after 3 or 4 months.
- Early Macular Degeneration, no change at the six month point. I will have the optometrist take another picture of my retina in the next week or 2, and report if there is any change.
- Sense of smell, a complete flat line pre-MP, except for an instantaneous poof of smell sensation once every 2 or 3 months. Very gradually over this year, my sense of smell has been improving. It is never zero any more, tho more often then not, it is poor. Occasionally it is exquisitely functional, much to my great joy. I can now also continuously sense temperature and humidity with my nose, something I could not do pre-MP.
- Hip joints. For some time pre-MP, I had a lack of range of motion in my hips, and because the nerves in my hips were not working, I now realize, I blamed the condition on my back problem as bringing my knees up produced considerable pain in my back. The nerves in my hips are at least partially functional now as I feel pain there on occasion, and my hip range of motion went from about 20% pre-MP to about 60% gradually over this year, with some ups and downs.
- Finger ulcers, a very common problem for 7 years after using a heavy in-line sander for a month, day in and day out, and pre-MP was triggered regularly by any form of chilling of limbs or body (Raynaud's comes to mind, but my dermatologist wouldn't go there) and that move very rapidly to bleeding cuts in something much less than an hour, went away almost immediately after starting the MP, except for one or two instances that had to be IP, as there was no chilling involved. It has not returned this cold season yet, even tho I have chilled my fingers to an icy severe pain breaking up frozen hamburger. Along with this change to my fingers/skin, I noticed early on that I was no longer suffering constant nicks, gouges, and abrasions on my fingers and hands, a sign of very delicate skin, but assumed it was my sedentary life style on the MP. But now that I am active again, I still don't get them.
- Other skin problems. Pre-MP, I could not sleep with my facial or neck skin against my hair, or intense itching would occur almost immediately. This stopped at about the 8 month point.
- Ear Problems. My propensity to ear aches in 80 degree drafts, something I have had to one degree or another since childhood, went away after 3 months on the MP, tho I am not sure this is gone for good, as the skin in my ear canal may just be calloused from repair going on there, but, since it has been 9 months since the improvement, maybe I'll keep this one. Another BIG problem that has been improving is waking in the middle of the night every week or two with excruciation pain in the ear I was sleeping on. I had gotten really good at not sleeping on my ears over the years. Now that habit appears no longer a necessity, tho it was a slowly attained improvement.
- Thirst. My gripping dry throat/thirst that would send me into a coughing fit if I didn't get water immediately, went away in 3 or 4 months on the MP. I no longer panic if I find I've left home without a bottle of water in the car. In addition, my frequent thirst that probably dates back to my suspected diabetes that caused me to go on the low carb diet 7 years ago, has suddenly dropped back to a normal thirst a few weeks ago.
- Frequent night leg cramps. Cramps in calves and feet during the night seem to have gone away during the last few months on MP.
- Dreams. Not having been able to remember ever having dreamed for any of the last 20 years or so, I now remember at least parts of dreams 10% to 20% of nights.
- Fungus. Toenail fungus on left big toe gone, and started going away on 2 months of D avoidance, before starting the MP, and has not returned. The last of my intestinal Candida also went away shortly there after, and before starting MP.
- Hair. My witch's hair may soon be a thing of the past. The hair on my head is clearly starting to grow faster, with split ends occurring further down my back. Under arm hair is now evident, where it was imperceivable before. And a form of seborrhea, where sandy, but unshedding, bumps on my scalp have been ever present since the start of the MP a year ago, have finally reduced to a near smooth scalp just this week. (A later note: it is modulation up and down, which is still new)
- Bladder. My bladder, undoubtedly being the cause of getting up every hour or two all night long pre-MP, appeared to be improving, allowing me to sleep 4 to 7 hours most of the time. But, with what appears to be a lot of herxing, my bladder in the last couple of weeks has reverted to being very sensitive, and sleep has suffered, and a marginal incontinence that had not changed thru the MP, has suddenly become a big annoyance. I have increased my olmesartan at night, and it appears to have improved sleeping, so I will assume the problem is IP, and am expecting at least to be back to a less sensitive bladder soon, and maybe with some improvements. (Bladder has settled down after a few days on 4h Beni)
- Brain fog. Brain fog was no doubt a big part of my decision to retire early. I realize now that I probably could have avoided most of it by staying out of the sun and protecting my eyes. With the D and light avoidance 4 months pre-MP and during the MP, I have not had any brain fog, word recall problems, except for a few times when testing my eye sensitivity, and by 8 or 9 months into the MP, my light sensitivity was sufficiently low that brain fog is not a problem.
- Sinus pressure at top left of nose, no longer an annoyance.
CONDITIONS YET TO BE ADDRESSED BY THE MP
- Body chilling resulting from sitting, tho only during winter. This is not to be confused with the kind of chilling one gets with low Progesterone, which I also get occasionally, but the 2 are very different.
- Stamina and general energy level, including waking refreshed in the morning, not great pre-MP
- Over weight
- Poor sense of balance
- Plaque on teeth
- Malformed small toenails*
- Floaters*
- Astigmatism in left eye *
- Poor near vision (Presbyopia) *
- Cellulite *
* Well, I can hope, can't I?
AND A FEW THINGS BROUGHT ON BY THE MP, AND NOT YET RESOLVED
- Stamina and general energy level, worse while on MP
- Tinnitus, continuous for the last year, but only occurred occasionally pre-MP.
- Plaque on teeth, heavy pre-MP, but extremely heavy since starting the MP
- Ghost smell, sensing something that is not real, a frequent reminder that herx is in the works.
- Lethargy, very bad for the first 6 months, mostly gone now, but occasionally shows up
- Weakness in leg muscles and aches in joints, starting this month. Previous weakness in hand/arm muscles at ~ 6 months lasted a couple of months.
Cynthia
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Ph1 10/08, Ph2 12/08, Ph3 6/09, 125/25D 47/43 preMP, 25D14 12/09, Estradiol .75mg, Calcium anomaly(gone?), Spondylitis, early Diverticulosis, early Macular Degeneration(AMD), Type II Diabetes (unconfirmed,PreDiabetes?), returning sense smell
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1396 |
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Posted: Fri Nov 13th, 2009 02:01 |
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It's great to see your improvements Cynthia. Funny how you didn't think you were sick pre-MP (save having that weird thing with the calcium), but you did have some long-term symptoms that you seemed to have gotten used to and accepted. Looks like you are getting a whole new lease on life. Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Deb Grabetz
Moderator
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Posted: Fri Nov 13th, 2009 11:04 |
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Cynthia,
Nice report! One thing I recognized reading your report is the number of issues you were dealing with even though you feel you were not as ill as some on the MP! That is a lot physical stuff to be handling...nice to see a turnaround coming for you and in a most reasonable amount of time...I hope your wish list is healed over the coming months Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Freddie Ash
Member
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Posted: Fri Nov 13th, 2009 12:26 |
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HI CYNTHIA
This is Fred in WV. Congratulations on one year aniversity being on the MP. It sure looks like you have made a lot of progress with it. I always said it would take me longer to kill all the bugs that I had. You have a great report and a lot to be proud of on how the MP has worked for you. Thanks for all the work you do here each one of us here on the MP or trying to get started on the MP.
Rememeber, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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Cynthia Schnitz
Board Staff
| Joined: | Wed Apr 8th, 2009 |
| Location: | Arizona USA |
| Posts: | 59 |
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Posted: Sat Nov 14th, 2009 04:26 |
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| I can now add that there was no change what so ever in my Early Macular Degeneration over this last year on the MP, as I just got my retinas photographed today, and you can't tell any difference in the old and new photos. I guess it is a good thing it is not worse, but I am looking for the day I can point to the MP as something to reverse this condition. Also, I should note that it is slight enough not to cause any problems, but particularly that I didn't know about it going into the MP, and discovered it hours before my first dose of Minocycline. Wanted to get the flash in the eye thing out of the way before light sensitivity set in. What a surprise it was. Cynthia
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Ph1 10/08, Ph2 12/08, Ph3 6/09, 125/25D 47/43 preMP, 25D14 12/09, Estradiol .75mg, Calcium anomaly(gone?), Spondylitis, early Diverticulosis, early Macular Degeneration(AMD), Type II Diabetes (unconfirmed,PreDiabetes?), returning sense smell
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Dr Trevor Marshall
Foundation Staff
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Posted: Sun Nov 15th, 2009 00:42 |
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Cynthia,
I just got a new eyeglasses prescription. Same diopter as a decade ago, but the astigmatism in the left eye has now disappeared. Right eye still has a little astigmatism, however. Photos of the retina looked perfectly (young and) healthy So I wouldn't lose hope just yet Apparently the eyes just take time
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