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Aunt Diana
Member
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Posted: Mon Apr 5th, 2010 20:42 |
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That's interesting, Cynthia...you and I most have been posting at the same time. These are nice surprises don't you think?
I was just thinking of all my family members who blew me off when I started the MP, especially my sister, and how I wish I could tell them about these kinds of little miracles that keep happening. But, since they have not been interested in this all along' it is simply too difficult to try to explain these things to them at this point. (I suspect they would only "roll their eyes" anyway.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, , benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux
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Deb Grabetz
Moderator
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Posted: Wed Apr 7th, 2010 02:31 |
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Aunt Diana,
NO SYMPATHY FOR THE LONELY BACTERIA...NOT!
THIS IS OFF THE TOPIC BUT AUNT DIANA I'M SORRY TO HEAR ABOUT THE LACK OF INTEREST FROM YOUR FAMILY AND THE MP...REMEMBER YOU HAVE A LOTTA FAMILY RIGHT HERE...THE DIFFERENCE? WE REALLY UNDERSTAND WHAT YOU ARE LIVING...AND WE HONESTLY CARE! SO I SAY...WHO NEEDS 'EM! AS YOU CAN TELL, I'VE EXPERIENCED SOME OF THE SAME
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Joyful
Foundation Staff
| Joined: | Sat Jun 9th, 2007 |
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Posted: Wed Apr 7th, 2010 07:01 |
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Yes, Aunt Diana, we may be long distance and only connected via internet, but we do care... and hopefully you feel our love and joy when we are "together"!
Deb, your caps lock on your keyboard got stuck ON.  
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MP Stories | Bacteriality | MP Search | MP Knowledge Base
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Deb Grabetz
Moderator
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Posted: Wed Apr 7th, 2010 11:41 |
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 Joyful, My caps ON get stuck when my thoughts become strong and meaningful...!!!
As this thread continues, I woke up this morning with this thought in mind as it relates to my eye improvement. There are so many who speculate about the MP and yet for those of us who have treated with it, we have seen improvements that we could not have imagined. I have read so often here on site the same responses, "I've gotten my life back". Seeing something as small as eye improvement, which btw has been gone for 20 years, tells me a lot. I have a lot of common sense and I feed off of that not only with my health but life in general.
As I was doing some research on Sarcoidosis online last week, I happened across a site about heart inflammation and a doctor was pretty much slamming the MP and Dr. Marshall being a *bio-chemist*. This makes me laugh out loud. THESE DOCTORS AND RESEARCHERS HAVE COME UP WITH NOTHING BETTER THAN A COMMON "OH SARC WILL GO AWAY ON ITS OWN" AND OFFERED US PREDNISONE TREATMENT OR METHOTREXATE AND YET PEOPLE ARE GETTING WELL ON THE MP. Ahhh, so in steps my common sense. In one  I have drugs (Prednisone, Methotrexate, spray steroids, antimalaria drugs, etc) that are not proving to better my health and are
in fact STATISTICALLY bringing on other health challenges and making me worse. In the other I have the research of the MP, the success stories, the hundreds of pages online for the public to read, to research on their own, consume and use to regain their health with the help of their own doctors and commonly known FDA approved medications. Now, which hand would I choose??? My common sense immediately tells me that the MP IS the smart choice.
Honestly, I now will be the naysayer, as I could care less about all of these researchers out there who are tooting their horns on support sites and websites about treating and writing about sarcoidosis and yet have given us nothing. NOTHING! They are the same ones who ban us from their support sites, forbid us to mention the MP and yet have given the sarcoidosis community nothing. NOTHING!! In my opinion, rather than being concerned about those of us who are struggling with our health, they are more concerned about their own views and maybe even looking stupid in the end for chasing dead ends, which btw is exactly what they look like to me... Dr. Marshall knew the deadly future of sarcoidosis as he lived it personally. Which one of these so called brilliant researchers out there can tell you they understand what its like having sarcoidosis or any other chronic illness?
Within the past few months I have started seeing more and more awareness of the connection of Vitamin D to these chronic illnesses and especially sarcoidosis. Hmmmm, where do you think these people are getting their information?? From the Marshall Protocol, Dr. Marshall, oh---- the biochemist!
In the end, I will hold on to my common sense and realize how far I have come in the past three years of being on the MP. It is commonly written that sarcoidosis will kill within 10-20 years of diagnosis. Thanks to Dr. Marshall I am ahead of the game. I was 34 when I first flared with sarcoid, I will be 54 this year.
Tomorrow I am traveling to Memphis to recieve an award from the airline that I work for, something I could not have done without the MP. Why is that? Because I returned to work and made a difference, thanks to the Marshall Protocol!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Freddie Ash
Member
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Posted: Wed Apr 7th, 2010 13:02 |
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HI DEB & ALL
This is Fred in WV. This may not be the place for this post but Deb saying she won an award after she went back to work because of the MP. To show you have much the doctors know/don't know about sarcoidosis my family doctor won an award of some kind because of me (he told me this himself) and my knowledge of sarcoidosis. He had a lot of student doctors come to his office and if I was there to see him he sent them in to see me and I would educate them on sarcoidosis. So I won the award but the family doctor got credit for it.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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Scarlett
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| Joined: | Mon Mar 3rd, 2008 |
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Posted: Wed Apr 7th, 2010 13:49 |
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Deb . . . Congratulations on your award, but most of all on your successful return to work. My father became disabled due to a spinal injury in the 1980's and passed away from lung cancer in July of 2004. I would stop and check on him (he lived alone) alot of mornings on my way to work and as I would periodically complain about having to go to work he would remind me of how lucky I was to still be able to go to work. As a much younger and inexperienced person I just didn't comprehend what he was saying . . . I had not truly lived yet. I was young and inexperienced in alot of areas of life, but as we know, much wisdom comes with age. In 2001 I was diagnosed w/Sarc and began to go down hill fast. I now fully understand what he was saying to me. I now count myself among the lucky ones who is able to still go to work and in todays ecomony, to even have a job. I have worked for the same man for 31 years and he knows I am not a slacker. He often tells me I am tougher than him. Yes, I am. Yes, we MP'ers are tough. We must be tough and I thank God for the strength He gives me each day and for the knowledge Dr. Marshall has been given and for unselfishly sharing it with the world. Yes, one day, Dr. Marshall will be recognized for all he has contributed to this world and especially to all pioneers of the MP. I have rambled long enough. Again, congratulations and keep telling the world about the MP, enjoy each day and keep healing.
Freddie . . . sorry you didn't get the credit but I am sooo glad your doctor has come around in his thinking on the MP and that you are regaining your health as well. Just think of all the people you have helped through your doctor. Keep up the good work, one person and one doctor at a time.
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Sarcoidosis, gastric paresis, osteopenia, hypotension, migraines, dry eye,insomnia, transient global amnesia, initial (2/08) 125D48, 25D58, 4/18/08 25D37, MP-3/3/08, PhaseII-3/28/08 Ambien, NoIRS, low lux home & work, lt exp r/t commute
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Knochen
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Posted: Wed Apr 7th, 2010 18:17 |
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So I won the award but the family doctor got credit for it.
Hi Fred. Your doc may have got a piece of paper and a pat on the back, but the people who *really* got the award are the future patients of those student doctors. Your contribution will echo down to them in ways you'll never see directly, but you can put your head on your pillow tonight knowing that you did a good thing. Kudos from me and everybody else here for being vocal and bringing your doc and his students kicking and screaming into the 21st century. At the very least, you win the coveted "I got my boss promoted" award.
And congrats to Deb for her award! Another shining example of what the MP can do.
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Reiter's Syndrome 25+ yrs, fatigue, joints, muscles, migraine, brainfog| 25D 6 ng/ml |Benicar May06|Ph1 June06|Ph 2 Sept06|Ph 3 Jan 07|NoIRs K-Cream Zinc Oxide cream - Always covered!
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Sallie Q
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| Joined: | Fri Aug 28th, 2009 |
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Posted: Wed Apr 7th, 2010 22:19 |
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Yippee, Deb and Fred
Deb Grabetz wrote: oh---- the biochemist!
didn't Louis Pasteur have the same problem?
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Sjogrens; b.cancer; postviral fatigue| D25was13.2ng/ml@ph1-Sept08 |Nov08mod.ph2 /Feb09ph2/ May09ph3| D25 7ng/ml@Jun10 NoIRs essential; testing for stage4, July 2010 Olmetec & Mino only
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Freddie Ash
Member
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Posted: Wed Apr 7th, 2010 23:56 |
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HI ALL
This is Fred in WV. I want to thank you all for the response but I was supprised at the response which I was not expecting from my last post.
Thank you Scarlett, Knochen, and Sallie Q.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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expate
Member
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Posted: Fri Apr 23rd, 2010 02:48 |
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Just checking in. I am still amazed at how grounded I am now (ie. unexpected improvement), in the face of incredible pressures with work and family. I'm on no meds or vitamins or supplements, except MP, oh yeah, and wine, but really, I am so better equipped to deal with crises. Do know that I continue in psychotherapy that I have been in since 2001. But this is a physical grounding quite apart from the psychological.
Plus, I've been able to read fiction for the first time in a long time. Non-fiction allows you to pick it up and set it down as long as you hold on to information. Fiction requires attachment, IMO, and therefore better health. Interesting.
Odette
Last edited on Fri Apr 23rd, 2010 02:51 by expate
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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Deb Grabetz
Moderator
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Posted: Fri Apr 23rd, 2010 11:01 |
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Odette,
What a great report to read this morning! What a connection between our brains and these illnesses we all deal with. No wonder people are so hard to understand at times With all this "unknown" bacteria floating around in our heads!
Isn't the reading amazing? I used to blame not being able to read on being too busy, or too tired and sure enough I am starting to be able to do the same, read through a few chapters, a magazine, etc. I used to love to read and now feel I can almost guage around the time I started getting sick many years ago by the fact that I could no longer read!
Keep up the great work...and great posts! Hugs, Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Sallie Q
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Posted: Sat Apr 24th, 2010 10:42 |
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Yeah, Odette
I'm about to go back into Psychotherapy myself for accumulated stress, have done none since my lovely 'shrink' died in tragic circumstances maybe 20 years ago now
I have been trekking badly for 3 months
Was really stressed early this afternoon talking to my husband
A few hours later when he was resting, I was tidying up and listening to the radio when they played my old favorites. I started to sing and fully expected to be croaking the way I have often been in conversation over the last week or so.
Now I may have been hallucinating this, and although I am sure my husband woke up while I was doing it, I am not game to check with him ……
I was able to sing every single song to which I knew the words (most of them) and I did not croak, have to break off, or as far as I know even go off key .
A day to remember
And will remember which day.
Sadly, today commemorates the first recorded genocide I know of. Historians say it lead directly to Hitler's actions destroying Jewish citizens and people who were ill or handicapped. (must have been many sufferers from Th1 who went up in smoke).
Anyway for those who do not know, I refer to, and grieve for the Armenian nation destroyed by the Ottoman regime in Turkey.
Easy for me to remember this day, the 24th April, as 25th April commemorates Australians and New Zealanders killed as comrades in arms (European war again)
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Sjogrens; b.cancer; postviral fatigue| D25was13.2ng/ml@ph1-Sept08 |Nov08mod.ph2 /Feb09ph2/ May09ph3| D25 7ng/ml@Jun10 NoIRs essential; testing for stage4, July 2010 Olmetec & Mino only
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Aunt Diana
Member
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Posted: Sun Apr 25th, 2010 19:25 |
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| Thank you for the interesting history lesson, Sallie. We can learn so much from history as it tends to repeat itself. It worries me that these lessons are so easily forgotten.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, , benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux
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Dody
Moderator
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Posted: Mon Apr 26th, 2010 00:13 |
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My latest unexpected improvement: My pierced ears have finally healed! I don't have very "wimpy ears" anymore!
I had my ears pierced, at last, at age 49, 16 years ago. For two years they were actively infected and painful. I couldn't take wires out for more than a few hours without the holes trying to close up.
Of course a less stubborn person would have given up on pierced ears, but I had waited a long time for this and was not about to let them close up.
I did react adversely to every substance ear wires can be made of except for niobium. My ears couldn't tolerate frequent changes of earrings, so I have simply worn the same earrings day in and day out for weeks at a time.
I took my earrings out two mornings ago before going on a whale watch, and forgot to put them back in till this afternoon. To my amazement: the holes weren't pink; the wires went in easily (I didn't have the sensation of re-piercing); as I put the wires in I couldn't tell where the hole was from the pain, because there was no pain; and in the "worst" ear, where I used to have to enter the ear and then hunt around through scar tissue for the exit hole, the wire just went straight through.
In other words, my "wimpy" ears, and their holes, have finally healed!!! It only took 16 years longer--the 3-1/2 years on the MP being key--than the person who pierced my ears said it would.
Thank you MP for another unexpected benefit!! Dody
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Lyme Arrhythmia Vertigo Meningitis Bipolar lithium tylenol cover up outside mod low lux inside ModPh2Jul07 Ph2Apr08 Ph3Feb09 D25 Oct09 7 Mar10 4
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Deb Grabetz
Moderator
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Posted: Wed May 5th, 2010 21:37 |
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I recently realized that a long time symptom has disappeared. Since starting the MP almost three years ago, I have had this clammy, sweaty feeling that would come over me as if fighting an infection. It would vary in degree but today as I was reading something about infection, I realized I had not had this type of IP in a few weeks now!
This is why I like to keep a list of IP that I have experienced, it really helps me notice the big improvements, that tend to disappear once healed...outta sight, outta mind, so they say. It's good to be able to see healing, to guage how we're doing!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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eClaire
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| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1397 |
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Posted: Sun Jul 18th, 2010 19:34 |
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This was not unexpected, but I thought I'd share in case someone looks up plantar fasciitis on the MP.
Within in months of becoming nearly totally bed bound in November 2003, I had a severe case of plantar fasciitis (which the foot doctor told me was impossible to have as a result of being bed bound), and I would have to wear shoes with molded foot beds in them just to cross the ten feet between my bed and the toilet. After two years on the MP (fall 2008), I was once again able to walk around bare foot on my hardware floors.
Last edited on Sun Jul 18th, 2010 19:34 by eClaire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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expate
Member
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Posted: Mon Jul 19th, 2010 06:39 |
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Good to hear.
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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Deb Grabetz
Moderator
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Posted: Mon Jul 19th, 2010 22:19 |
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| Those nice little surprises are the best Claire!!!!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Deb Grabetz
Moderator
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Posted: Tue Jul 20th, 2010 13:29 |
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Sitting here playing on my laptop with my knee propped up on a chair...I notice a scar that I've had since falling off my bike into gravel at about age six...The scar runs from the side of my knee down the inside of my leg...
This scar has always been thick and lumpy in the area near the knee, so I would say about 4-5 inches (length about 8 inces) and it is now completely flat. I haven't paid much attention to this because the entire scar is barely even visible anymore...makes me feel better about all of this nerve pain and muscle pain I've been having over the last month...surely there is some big healing happening! Another *shout out* for the MP!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1397 |
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Posted: Tue Jul 20th, 2010 13:41 |
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Yeah MP!!! ```````` (That was Bonnie leaning on the keyboard to put in her 2 cents for the MP.)
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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